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AHRQ Research Studies Date
Topics
- Caregiving (1)
- Centers for Education and Research on Therapeutics (CERTs) (1)
- Children/Adolescents (2)
- Chronic Conditions (1)
- Clinician-Patient Communication (4)
- Communication (1)
- Comparative Effectiveness (1)
- Diabetes (1)
- Digestive Disease and Health (1)
- Disparities (1)
- Education: Continuing Medical Education (1)
- Education: Patient and Caregiver (2)
- Elderly (1)
- Electronic Health Records (EHRs) (3)
- Emergency Department (1)
- Evidence-Based Practice (1)
- Genetics (1)
- Healthcare Delivery (2)
- Health Information Technology (HIT) (4)
- Health Insurance (1)
- Heart Disease and Health (1)
- Hospitals (1)
- Human Immunodeficiency Virus (HIV) (1)
- Inpatient Care (1)
- Intensive Care Unit (ICU) (1)
- Medical Devices (1)
- Medicare (1)
- Medication (3)
- Opioids (1)
- Pain (1)
- Patient-Centered Healthcare (6)
- Patient-Centered Outcomes Research (1)
- Patient Adherence/Compliance (1)
- (-) Patient and Family Engagement (21)
- Patient Safety (1)
- Policy (1)
- Practice Patterns (1)
- Prevention (1)
- Primary Care (1)
- Primary Care: Models of Care (1)
- Provider: Pharmacist (1)
- Public Health (1)
- Quality of Care (2)
- Shared Decision Making (8)
- Sickle Cell Disease (1)
- Teams (2)
- Web-Based (1)
- Women (1)
AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 21 of 21 Research Studies DisplayedPrey JE, Polubriaginof F, Kuperman GJ
A global analysis of approaches to sharing clinical data with patients.
The authors investigated the current state of approaches for providing patients with access to their own clinical information. They found that efforts to improve patient access to data are active on a global-scale; however, there are many open questions about best practices and much can be learned by adopting an international perspective to guide future implementation efforts.
AHRQ-funded; HS021816.
Citation: Prey JE, Polubriaginof F, Kuperman GJ .
A global analysis of approaches to sharing clinical data with patients.
Stud Health Technol Inform 2015;216:907.
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Keywords: Education: Continuing Medical Education, Electronic Health Records (EHRs), Health Information Technology (HIT), Patient and Family Engagement
Lemke AA, Harris-Wai JN
Stakeholder engagement in policy development: challenges and opportunities for human genomics.
The purpose of this paper is to examine how stakeholder engagement is used to develop policies in genomics research and public health areas, as well as to identify future priorities for conducting evidence-based stakeholder engagements. It concluded that several challenges of using stakeholder engagement as a tool for genomics policy development remain, and little evidence regarding how to best incorporate stakeholder feedback into policy-making processes is currently available.
AHRQ-funded; HS023547.
Citation: Lemke AA, Harris-Wai JN .
Stakeholder engagement in policy development: challenges and opportunities for human genomics.
Genet Med 2015 Dec;17(12):949-57. doi: 10.1038/gim.2015.8.
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Keywords: Evidence-Based Practice, Genetics, Patient and Family Engagement, Policy, Public Health
Hajizadeh N, Uhler LM, Perez Figueroa RE
Understanding patients' and doctors' attitudes about shared decision making for advance care planning.
The authors sought to gain general insights into the current practice of shared decision making (SDM) and attitudes about patient involvement, and also to gain specific insights into experience with, and attitudes about, SDM for advance care planning. They found that patients were generally open to having end-of-life discussions with their doctors, although their openness sometimes depended on the circumstance. Doctors reported engaging in end-of-life treatment decisions with their patients, although they expressed the need for conversations to take place earlier, in advance of acute illness.
AHRQ-funded; HS022061; HS019473.
Citation: Hajizadeh N, Uhler LM, Perez Figueroa RE .
Understanding patients' and doctors' attitudes about shared decision making for advance care planning.
Health Expect 2015 Dec;18(6):2054-65. doi: 10.1111/hex.12285.
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Keywords: Clinician-Patient Communication, Shared Decision Making, Patient and Family Engagement, Patient-Centered Healthcare
Dykes PC, Stade D, Dalal A
Strategies for managing mobile devices for use by hospitalized inpatients.
The authors implemented the PROSPECT (Promoting Respect and Ongoing Safety through Patient-centeredness, Engagement, Communication and Technology) project at Brigham and Women's Hospital. The goal of PROSPECT is to transform the hospital environment by providing a suite of e-tools to facilitate teamwork. In this paper, the authors described decisions and challenges faced and related the strategies used and lessons learned.
AHRQ-funded; HS023535.
Citation: Dykes PC, Stade D, Dalal A .
Strategies for managing mobile devices for use by hospitalized inpatients.
AMIA Annu Symp Proc 2015 Nov 5;2015:522-31.
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Keywords: Communication, Inpatient Care, Patient and Family Engagement, Patient Safety, Teams
O'Leary K, Vizer L, Eschler J
Understanding patients' health and technology attitudes for tailoring self-management interventions.
The researchers elicited attitudes toward technology use and participation in care of 40 participants in a maximum variation sample. They found three participant clusters-"Proactive Techies," "Indie Self-Managers," and "Remind Me! Non-Techies"-that represent varying attitudes toward health behaviors and technologies that were independent of race, education level, and age. Their approach provides insight into how people prioritize important values related to health participation and technology.
AHRQ-funded; HS021590.
Citation: O'Leary K, Vizer L, Eschler J .
Understanding patients' health and technology attitudes for tailoring self-management interventions.
AMIA Annu Symp Proc 2015 Nov 5;2015:991-1000.
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Keywords: Chronic Conditions, Health Information Technology (HIT), Patient and Family Engagement, Clinician-Patient Communication
VanGompel EC, Jerant AF, Franks PM
Primary care attributes associated with receipt of preventive care services: a national study.
This study explored whether primary care attributes (PCAs) encompassed by patient-centered medical homes increase receipt of preventive care. Based ,on a nationally representative sample, greater reported exposure to key primary care attributes, with the exception of enhanced access, was associated with increased preventive care. These findings may inform best practices for maximizing preventive care delivery.
AHRQ-funded; HS022236.
Citation: VanGompel EC, Jerant AF, Franks PM .
Primary care attributes associated with receipt of preventive care services: a national study.
J Am Board Fam Med 2015 Nov-Dec;28(6):733-41. doi: 10.3122/jabfm.2015.06.150092.
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Keywords: Patient-Centered Healthcare, Patient and Family Engagement, Prevention, Primary Care
Shortell SM, Sehgal NJ, Bibi S
An early assessment of accountable care organizations' efforts to engage patients and their families.
The authors sought to examine the extent to which ACOs actively engage patients and their families, explore challenges involved, and consider approaches for dealing with those challenges. They identified important practices associated with greater patient activation and engagement, including high-level leadership commitment, goal-setting supported by adequate resources, extensive provider training, use of interdisciplinary care teams, and frequent monitoring and reporting on progress.
AHRQ-funded; HS022241.
Citation: Shortell SM, Sehgal NJ, Bibi S .
An early assessment of accountable care organizations' efforts to engage patients and their families.
Med Care Res Rev 2015 Oct;72(5):580-604. doi: 10.1177/1077558715588874.
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Keywords: Shared Decision Making, Quality of Care, Patient and Family Engagement, Clinician-Patient Communication
Blumenthal-Barby JS, Kostick KM, Delgado ED
Assessment of patients' and caregivers' informational and decisional needs for left ventricular assist device placement: implications for informed consent and shared decision-making.
The authors investigated the decision-making process and informational and decisional needs of patients and their caregivers regarding left ventricular assist device (LVAD) placement. They found that participants easily and clearly identified their values: life extension; family; and mobility. Participants reported the need to meet other patients and caregivers before device placement and to have an involved caregiver to synthesize information. They further found that some participants demonstrated a lack of clarity regarding transplant probability.
AHRQ-funded; HS024849.
Citation: Blumenthal-Barby JS, Kostick KM, Delgado ED .
Assessment of patients' and caregivers' informational and decisional needs for left ventricular assist device placement: implications for informed consent and shared decision-making.
J Heart Lung Transplant 2015 Sep;34(9):1182-9. doi: 10.1016/j.healun.2015.03.026.
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Keywords: Caregiving, Shared Decision Making, Heart Disease and Health, Medical Devices, Patient and Family Engagement
Singh JA, Qu H, Yazdany J
Barriers to medication decision making in women with lupus nephritis: a formative study using nominal group technique.
The researchers assessed the perspectives of women with lupus nephritis on barriers to medication decision making. The most salient perceived barriers, as indicated by percent-weighted votes assigned, were known/anticipated side effects (15.6 percent), medication expense/ability to afford medications (8.2 percent), and the fear that the medication could cause other diseases (7.8 percent).
AHRQ-funded; HS021110.
Citation: Singh JA, Qu H, Yazdany J .
Barriers to medication decision making in women with lupus nephritis: a formative study using nominal group technique.
J Rheumatol 2015 Sep;42(9):1616-23. doi: 10.3899/jrheum.150168.
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Keywords: Centers for Education and Research on Therapeutics (CERTs), Shared Decision Making, Education: Patient and Caregiver, Medication, Patient and Family Engagement
Meisel ZF, Smith RJ
Engaging patients around the risks of opioid misuse in the emergency.
The authors of this editorial considered a number of different types of strategies to increase patient awareness of risks and benefits associated with alternative pain management strategies in the ED. These include traditional education, communicating risks, shared decisionmaking, community interventions and “sticky” narratives. They conclude that patients, families and communities must be included in order to navigate the tight¬rope walk between providing adequate pain control and mitigating misuse and dependency.
AHRQ-funded; HS021956.
Citation: Meisel ZF, Smith RJ .
Engaging patients around the risks of opioid misuse in the emergency.
Pain Manag 2015 Sep;5(5):323-6. doi: 10.2217/pmt.15.31..
Keywords: Emergency Department, Opioids, Pain, Patient and Family Engagement
Siegel CA, Lofland JH, Naim A
Gastroenterologists' views of shared decision making for patients with inflammatory bowel disease.
The researchers examined gastroenterologists' perspectives about shared decision making (SDM) with patients with inflammatory bowel disease (IBD). They found three key barriers to practicing SDM were lack of time, reimbursement, and tools. They concluded that gastroenterologists lack the systematic approaches and tools for implementing SDM within their IBD practices.
AHRQ-funded; HS021747.
Citation: Siegel CA, Lofland JH, Naim A .
Gastroenterologists' views of shared decision making for patients with inflammatory bowel disease.
Dig Dis Sci 2015 Sep;60(9):2636-45. doi: 10.1007/s10620-015-3675-z.
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Keywords: Shared Decision Making, Digestive Disease and Health, Patient and Family Engagement, Practice Patterns
Beach MC, Roter DL, Saha S
Impact of a brief patient and provider intervention to improve the quality of communication about medication adherence among HIV patients.
The authors designed this study to improve patient-provider communication about HIV medication adherence. They found that brief provider training, combined with patient coaching sessions, improved provider communication behaviors and increased dialogue regarding medication adherence.
AHRQ-funded; HS013903; 290010012.
Citation: Beach MC, Roter DL, Saha S .
Impact of a brief patient and provider intervention to improve the quality of communication about medication adherence among HIV patients.
Patient Educ Couns 2015 Sep;98(9):1078-83. doi: 10.1016/j.pec.2015.05.011.
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Keywords: Human Immunodeficiency Virus (HIV), Medication, Patient Adherence/Compliance, Patient and Family Engagement, Clinician-Patient Communication
Lyles C, Schillinger D, Sarkar U
Connecting the dots: health information technology expansion and health disparities.
The authors argue that early evidence links EHR and portal use to better healthcare processes and health outcomes. Promoting patient engagement with health technology such as portals is challenging, and rapid expansion of portals could exacerbate existing healthcare disparities if only well-resourced individuals use these websites.
AHRQ-funded; HS023558; HS022408; HS022047.
Citation: Lyles C, Schillinger D, Sarkar U .
Connecting the dots: health information technology expansion and health disparities.
PLoS Med 2015 Jul 14;12(7):e1001852. doi: 10.1371/journal.pmed.1001852..
Keywords: Disparities, Electronic Health Records (EHRs), Health Information Technology (HIT), Patient and Family Engagement, Web-Based
DeCamp M, Sugarman J, Berkowitz SA
Meaningfully engaging patients in ACO decision making.
In this article, the authors describe how ACOs can achieve meaningful system-level patient engagement. They specify a three-step engagement framework: identifying beneficiary representatives, cultivating relationships, and evaluating engagement. They conclude that their proposed three-step framework can help accountable care organizations (ACOs) conceptualize a plan for meaningfully engaging patients in ACO governance.
AHRQ-funded; HS023684.
Citation: DeCamp M, Sugarman J, Berkowitz SA .
Meaningfully engaging patients in ACO decision making.
Am J Accountable Care 2015 Jun;3(2):30-33.
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Keywords: Patient and Family Engagement, Shared Decision Making, Health Insurance, Healthcare Delivery
Schmittdiel JA, Desai J, Schroeder EB
Methods for engaging stakeholders in comparative effectiveness research: a patient-centered approach to improving diabetes care.
This article presents ways to engage stakeholders in comparative effectiveness research, including patient community surveys, stakeholder meetings with substantial patient representation, and patient stakeholder deciding votes in selecting pilot research topics. Researchers and health care leaders should continue to develop best-practices and strategies for increasing patient involvement in comparative effectiveness and delivery science research.
AHRQ-funded; HS022963; HS019859.
Citation: Schmittdiel JA, Desai J, Schroeder EB .
Methods for engaging stakeholders in comparative effectiveness research: a patient-centered approach to improving diabetes care.
Healthc (Amst) 2015 Jun;3(2):80-8. doi: 10.1016/j.hjdsi.2015.02.005.
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Keywords: Comparative Effectiveness, Diabetes, Patient-Centered Healthcare, Patient-Centered Outcomes Research, Patient and Family Engagement
Doucette WR, Pendergast JF, Zhang Y
Stimulating comprehensive medication reviews among Medicare Part D beneficiaries.
The authors assessed the impact of a patient engagement intervention utilizing the Medication User Self-Evaluation (MUSE) tool on the completion percentage of comprehensive medication reviews (CMRs) among Medicare Part D beneficiaries. They found that the estimated odds of having a CMR among those who received the MUSE intervention were 2 times that of their counterparts. They concluded that Part D plans could use the MUSE to engage targeted beneficiaries in using pharmacist-provided MTM services.
AHRQ-funded; HS018353.
Citation: Doucette WR, Pendergast JF, Zhang Y .
Stimulating comprehensive medication reviews among Medicare Part D beneficiaries.
Am J Manag Care 2015 Jun;21(6):e372-8.
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Keywords: Elderly, Medicare, Medication, Patient and Family Engagement, Provider: Pharmacist
Moore JE, Titler MG, Kane Low L
AHRQ Author: Moore JE
Transforming patient-centered care: development of the evidence informed decision making through engagement model.
The purpose of this article is to set forth a new patient-centered implementation model informed by a qualitative study that explored women’s decisions, perceptions, and experiences of elective induction of labor. Through a process of theory evaluation and development, the authors explore patient-centered concepts (patient activation and shared decision making) within an implementation model by mapping qualitative data from an elective induction of labor study to assess the model’s ability to capture these key concepts.
AHRQ-authored.
Citation: Moore JE, Titler MG, Kane Low L .
Transforming patient-centered care: development of the evidence informed decision making through engagement model.
Womens Health Issues 2015 May-Jun;25(3):276-82. doi: 10.1016/j.whi.2015.02.002..
Keywords: Shared Decision Making, Patient and Family Engagement, Patient-Centered Healthcare, Primary Care: Models of Care, Women
Crosby LE, Shook LM, Ware RE
Shared decision making for hydroxyurea treatment initiation in children with sickle cell anemia.
While decision aids and tools are being developed, the authors recommended six strategies providers can use to facilitate discussions concerning the NHLBI clinical guidelines to recommend hydroxyurea for young patients with sickle cell anemia.
AHRQ-funded; HS021114.
Citation: Crosby LE, Shook LM, Ware RE .
Shared decision making for hydroxyurea treatment initiation in children with sickle cell anemia.
Pediatr Blood Cancer 2015 Feb;62(2):184-85. doi: 10.1002/pbc.25124.
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Keywords: Children/Adolescents, Shared Decision Making, Education: Patient and Caregiver, Patient and Family Engagement, Sickle Cell Disease
Eschler J, O'Leary K, Kendall L
Systematic inquiry for design of health care information systems: an example of elicitation of the patient stakeholder perspective.
The authors described the application of a theoretical framework to organize qualitative data during a multi-stage research study into patient engagement with electronic health records, thereby more effectively eliciting patient stakeholder needs and goals to inform the design of future health care information systems.
AHRQ-funded; HS021590.
Citation: Eschler J, O'Leary K, Kendall L .
Systematic inquiry for design of health care information systems: an example of elicitation of the patient stakeholder perspective.
Proc Annu Hawaii Int Conf Syst Sci 2015 Jan 5;2015:2804-13. doi: 10.1109/hicss.2015.339.
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Keywords: Electronic Health Records (EHRs), Quality of Care, Health Information Technology (HIT), Patient and Family Engagement
Xie A, Carayon P, Cox ED
Application of participatory ergonomics to the redesign of the family-centred rounds process.
This study applied a participatory ergonomics (PE) approach to redesigning the family-centred rounds (FCR) process to improve family engagement. Human factors and ergonomics (HFE) principles were integrated in both the content and process of FCR redesign. The authors described activities of the PE process and presented data on PE process evaluation. They concluded that to demonstrate the value of PE-based FCR redesign, future research should document its impact on FCR process measures and patient outcome measures.
AHRQ-funded; HS018680.
Citation: Xie A, Carayon P, Cox ED .
Application of participatory ergonomics to the redesign of the family-centred rounds process.
Ergonomics 2015;58(10):1726-44. doi: 10.1080/00140139.2015.1029534.
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Keywords: Healthcare Delivery, Hospitals, Patient and Family Engagement, Patient-Centered Healthcare, Teams
Baird J, Davies B, Hinds PS
What impact do hospital and unit-based rules have upon patient and family-centered care in the pediatric intensive care unit?
This qualitative, grounded theory study identified the existence of explicit and implicit rules in a pediatric intensive care unit, all of which negatively affected the family's ability to receive care that was attentive to their needs. The rules also placed the registered nurse in the challenging position of serving as rule enforcer and facilitator of patient and family-centered care.
AHRQ-funded; HS000063.
Citation: Baird J, Davies B, Hinds PS .
What impact do hospital and unit-based rules have upon patient and family-centered care in the pediatric intensive care unit?
J Pediatr Nurs 2015 Jan-Feb;30(1):133-42. doi: 10.1016/j.pedn.2014.10.001.
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Keywords: Children/Adolescents, Intensive Care Unit (ICU), Patient and Family Engagement, Patient-Centered Healthcare, Children/Adolescents