Appendix D: Additional Sources
This appendix includes links
to sources with additional information about key data sources, concepts, or
standards discussed in the report.
All-payer claims databases
The APCD Council is a
federation of government, private, non-profit, and academic organizations
focused on improving the development and deployment of State-based all payer
claims databases. Their Web site contains useful information on active and
developing APCDs, projects related to APCDs, and standardization related to
APCDs. Available at: http://www.apcdcouncil.org .
Continuity of Care
The Continuity of Care
Document is a standard for transferring information between health IT systems
during care transitions. The CCD standard was developed by the Health IT
Standards Panel to harmonize the Clinical Data Architecture interoperability
standard developed by Health Level 7 (HL7) with the Continuity of Care Record
developed by ASTM (see next entry). Background on the CCD standard, as well as
additional technical details, are available from HL7 at: http://wiki.hl7.org/index.php?title=Product_CCD .
Continuity of Care Record
The Continuity of Care Record
is a standard for transferring information between health IT systems during
care transitions. The CCR is related to the CCD, but was developed by ASTM
(formerly American Society for Testing and Materials). Information about the
CCR standard is available from ASTM at: http://www.astm.org/Standards/E2369.htm .
Health IT Standards Panel
Although the HIT Standards
Panel formally concluded in April 2010, the HITSP Web site contains a wealth of
information about current health IT standards for interoperability, including continuity
of care documents (CCD), EHR lab results reporting, and consultations and
transfers of care. Available at: http://www.hitsp.org/default.aspx .
Meaningful Use Incentive
The Centers for Medicare and
Medicaid Services provides an overview of the Meaningful Use incentive program
and links to the program requirements and measures, available at: https://www.cms.gov/Regulations-and-Guidance/Legislation/EHRIncentivePrograms/index.html.
Guidance for calculating the
Clinical Quality Measures required for the Meaningful Use program is available
National Quality Forum
(NQF) Quality Data Model
Information about the NQF
Quality Data Model is available at: http://www.qualityforum.org/Projects/h/QDS_Model/Quality_Data_Model.aspx#t=1&s=&p .
Office of the National
Coordinator (ONC) for Health IT
The Office of the National
Coordinator for Health Information Technology (ONC) is the central coordinating
entity for Federal health IT development efforts. The ONC Web site has a wealth
of information about health IT standards, initiatives, and the Meaningful Use
Incentive Program: http://healthit.hhs.gov/portal/server.pt/community/healthit_hhs_gov__home/1204
Of particular interest is the
Health IT Policy Committee (HITPC), which includes workgroups focused on
Meaningful Use, certification and adoption of Health IT, and information
exchange, among others. The HITPC Web site is available at: http://healthit.hhs.gov/portal/server.pt/community/healthit_hhs_gov__health_it_policy_committee/1269
Also of interest is the
Health IT Standards Committee (HITSC) which is charged with making
recommendations to the National Coordinator for Health IT on standards,
implementation specifications, and certification criteria for the electronic
exchange and use of health information. The HITSC Web site is available at: http://healthit.hhs.gov/portal/server.pt/community/healthit_hhs_gov__health_it_standards_committee/1271
The popHealth tool is
designed to help EHR vendors and health care providers extract data elements
required to inform all 44 Meaningful Use Stage I quality measures from their
Continuity of Care records (CCD or CCR). A summary of the popHealth tool is
available at: http://projectpophealth.org .
After creating an account,
users may download the programs through the Web site in order to run popHealth
software, available at: http://projectpophealth.org/download.html .
Registry of Patient
The Agency for Healthcare
Research and Quality is developing a Registry of Patient Registries (RoPR), similar
to clinicaltrials.gov, to provide searchable information about the focus,
content, design, and stewardship of many patient registries in the country.
Information about RoPR is available at: http://www.effectivehealthcare.ahrq.gov/index.cfm/search-for-guides-reviews-and-reports/?pageaction=displayproduct&productid=690
Interoperability (S&I) Framework
The S&I Framework is a
federal initiative to harmonize interoperability efforts within the health IT
field. A wealth of information about the framework, its objectives, on-going
work, and how to participate, is available at: http://wiki.siframework.org .
A useful starting place for
understanding the S&I Framework is the Introduction and Overview, available
at: http://jira.siframework.org/wiki/display/SIF/Introduction+and+Overview .
framework initiative of particular interest for care coordination is the
Transitions of Care Initiative, which aims to facilitate transfer of summary of
care records. Information on the initiative is available at: http://wiki.siframework.org/Transitions+of+Care+%28ToC%29+Initiative .
Return to Contents
AHRQ Publication No. 12-0014-EF
Current as of March 2012
McDonald KM, Schultz E, Chapman T, Davies S, Pineda N, Lonhart J, Schmidt E, Wilson AB. Prospects for Care Coordination Measurement Using Electronic Data Sources. AHRQ Publication No. 12-0014-EF, March 2012. Prepared by Stanford University
under subcontract to Battelle on Contract No. 290-04-0020 (AHRQ SQI-II). Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/qual/prospectscare/index.html