Institutes of Health (NIH)
Surveillance, Epidemiology, and End Results Program
Department of Health and Human Services, National Institutes of Health (NIH), National
Cancer Institute (NCI), Division of Cancer Control and Population Sciences,
Surveillance Research Program, Cancer Statistics Branch.
The SEER Program
is an authoritative source of information on cancer incidence and survival in
the United States. SEER currently collects and publishes cancer incidence and
survival data from population-based cancer registries covering approximately 26%
of the U.S. population.
Geographic areas were selected for inclusion in the SEER
Program based on their ability to operate and maintain a high-quality
population-based cancer reporting system and for their epidemiologically
significant population subgroups.
The SEER Program
registries routinely collect data on patients with cancer diagnoses among
residents of their respective geographic coverage areas.
Patient demographics, primary tumor site, morphology,
stage at diagnosis, first course of treatment, and vital status.
The population data used in calculating
cancer rates is obtained periodically from the Census Bureau.
Age, sex, race, year of diagnosis, and
National and States with registries.
SEER*Stat statistical software provides a convenient, intuitive mechanism for
the analysis of SEER and other cancer-related databases. Cancer incidence rates
used for the NHQR and NHDR were generated using the SEER*Stat statistical
software and were adjusted to the 2000 U.S. standard million population by
5-year age groups.
Agency home page: http://www.cancer.gov.
Data system home page: http://www.seer.cancer.gov.
Ries LAG, Harkins D,
Krapcho M, et al., eds. SEER cancer statistics review,
1975-2003. Bethesda, MD: National Cancer Institute; 2006. Available at: http://seer.cancer.gov/csr/1975_2003/.
United States Renal Data System (USRDS)
U.S. Department of Health and Human Services, National
Institutes of Health (NIH), National Institute for Diabetes and Digestive and
Kidney Disease (NIDDK) in collaboration with the U.S. Department of Health and
Human Services, Centers for Medicare & Medicaid (CMS).
The USRDS is a national data
system that collects, analyzes, and distributes information about end stage
renal disease (ESRD) in the United States. It includes continuous mandated
reporting from physicians who treat ESRD. The major source of ESRD patient information for the USRDS is
the CMS Renal Beneficiary and Utilization System (REBUS)/Program Management and
Medical Information System (PMMIS) database. The REBUS/PMMIS database contains demographic,
diagnostic, and treatment history information for all Medicare beneficiaries
with ESRD. The database has been expanded to include non-Medicare patients.
data are supplemented by data from the Social Security Administration, U.S.
Department of Veterans Affairs facilities, U.S. Census Bureau, local and
national ESRD provider databases, and international ESRD registries.
Patient-specific data are compiled from medical records, as well as data on
medical providers and treatment facilities.
Date of onset of ESRD, treatment modality, causes of
death, patient survival, hospitalization, cost and cost-effectiveness, and
institutional providers of ESRD treatment. Questions in special surveys cover
behavioral risk factors (for example, alcohol and tobacco use), preventive
health measures, health status, activity limitations, and health care access
Medicare and non-Medicare ESRD patients.
Gender, age, income, education, race, and
Continuously since 1988.
National, State, and county.
Agency home page: http://www.niddk.nih.gov.
Data system home page: http://www.usrds.org.
U.S. Renal Data System. USRDS
2008 annual data report: atlas of chronic kidney disease and end-stage renal disease
in the United States. Bethesda, MD: National Institute of Diabetes and
Digestive and Kidney Diseases; 2008. More information is available at: http://www.usrds.org/research.htm.
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