Appendix I (continued)
Complete List of Articles and Reports Reviewed
SM, Logsdon R. Assessing quality of life in Alzheimer's disease.
York, NY: Springer
Publishing Company; 2000.
SM, Mor V. The prevalence and consequences of unmet need: contrasts between
older and younger adults with disability. Med Care 1997 Nov;35(11):1132-48.
Applebaum RB, Kunkel S,
Davis S. A guide to quality in
consumer-directed services. (Study funded by the Robert Wood Johnson Foundation
as part of the National Cash and Counseling Demonstration Project).
Miami, OH: Scripps
Gerontology Institute, Miami
University of Ohio;
Arnold R, Ranchor AV, Sanderman R, et al.
contribution of domains of quality of life to overall quality of life for
different chronic diseases. Qual Life Res 2004 Jun;13(5):883-96.
C. Patient-centered care measures for the National Health Care Quality Report.
Foundation for Accountability; 2000.
Bickman L, Slazer M. Measuring quality in mental health services.
Eval Rev 1997 Jun;21(3):285-91.
Bonomi AE, Wagner EH, Glasgow RE, et al. Assessment of chronic
illness care (ACIC): a practical tool to measure quality improvement. Health
Serv Res 2002 Jun;37(3):791-820.
V, Moseley C. National core indicators:
ten years of collaborative performance measurement. Intellect Dev Disabil 2007 Oct;45(5):354-8.
B, Fries JF. The Health Assessment Questionnaire (HAQ). Clin Exp Rheumatol 2005
Sep-Oct;23(5 (Suppl 39):S14-8.
Burckhardt CS, Anderson KL, Archenholtz B, et al.
The Flanagan Quality of
Life Scale: evidence of construct validity. Health Qual Life Outcomes 2003 Oct
CS, Anderson KL.
The Quality of Life Scale (QOLS): reliability, validity, and utilization.
Health Qual Life Outcomes 2003 Oct 23;1:60.
Capitman J, Abrahams R, Ritter G. Measuring
the adequacy of home care for
frail elders. Gerontologist 1997 Jun;37(3):303-13.
Center for Disability Issues and the Health Professions. Performance
standards for Medi-Cal managed care organizations serving people with
disabilities and chronic conditions. (Funded by the California HealthCare Foundation).
Center for Health Care Strategies, The Lewin Group; 2005. Available at: http://www.chcs.org/publications3960/publications_show.htm?doc_id=323343.
Center for Health
Policy and Research. Promising practices: managing care for people with
disabilities. Shrewsbury, MA:
University of Massachusetts Medical School;
A, Stucki G. Content comparison of health-related quality of life (HRQOL)
instruments based on the International Classification of Functioning, Disability
and Health (ICF). Qual Life Res 2005 Jun;14(5):1225-37.
Teare G, McGilton KS, et al. Reliability and construct validity of the Client-Centred Rehabilitation
Questionnaire. Disabil Rehabil 2006 Nov;28(22):1387-97.
Dassow P L. Measuring performance in primary care: what
patient outcome indicators do physicians value? J Am Board Fam Med 2007
De Mendonça Lima
CA, Kühne N, Bertolote JM.
Quality assurance: the experience of a geriatric psychiatry day hospital. Arch
Gerontol Geriatr Suppl 2001;7:111-20.
Druss BG, Rosenheck RA, Stolar M. Patient satisfaction and
administrative measures as indicators of the quality of mental health care. Psychiatr
Serv 1999 Aug;50(8):1053-8.
Eisenberg J, Power E. Transforming insurance coverage into
quality health care: voltage drops from potential to delivered quality. JAMA 2000;284(16):2100-7.
Erwin-Toth P, Spencer M. A survey of patient perception of
quality of care. J ET Nurs 1991 Jul-Aug;18(4):122-5.
Ettema TP, Dröes
RM, de Lange J, et al. A review of quality of life instruments used in dementia.
Qual Life Res 2005 Apr;14(3):675-86.
D, Coleman B. Home care quality: emerging state strategies to deliver
person-centered services. Washington,
DC: AARP Public Policy Institute;
2006. http://assets.aarp.org/rgcenter/il/2006_07_hcc.pdf. [Plugin Software Help]
J, Bratesman S. Quality indicators for home and community-based services.
Portland, ME: Muskie School of Public Policy,
University of Southern Maine; 2004. http://www.hcbs.org/files/71/3548/HCBS_Quality_Report_final.pdf. [Plugin Software Help]
S, Jackson B. Final report: development of the Participant Experience Survey
(PES). (Prepared for Center for Medicaid and State Operations, Centers for
Medicare & Medicaid Services, under Contract No. 500-96-0006, Task Order 2).
Cambridge, MA: The MEDSTAT Group; 2005.
JF, Nudler S, Chapman MS. Personal outcomes as measures of quality. Ment Retard
Geron SM, Smith K,
Tennstedt S, et al. The home care satisfaction measure: a client-centered
approach to assessing satisfaction of frail older adults with home care services.
J Gerontol B Psychol Sci Soc Sci 2000 Sep;55(5):S259-70.
L, Feinberg LF. Survey of Californians about in-home care services.
San Francisco, CA: National Center on Caregiving at the Family Caregiver Alliance; March 2003.
Hébert R, Guilbault J, Desrosiers J, et al. The Functional
Autonomy Measurement System (SMAF): a clinical-based instrument for measuring
disabilities and handicaps in older people. J Can Geriatr Soc 2001 Sep(4):141-7.
Hekkink CF. QUOTE-HIV: an instrument for assessing quality of
HIV care from the patients' perspective. Qual Saf Health Care 2003 Jun;12(3):188-93.
Hedrick SC, Sales AE, Sullivan JH, et al. Resident outcomes of Medicaid-funded community residential care.
Gerontologist 2003 Aug;43(4):473-82.
Hermann RC, Chan JA, Provost SE, et
al. Statistical benchmarks for process measures of quality of care for mental
and substance use disorders. Psychiatr Serv
Hermann RC, Palmer H, Leff S, et
al. Achieving consensus across diverse stakeholders on quality measures for
mental healthcare. Med Care 2004 Dec;42(12):1246-53.
Hirdes JP, Fries BE, Morris JN, et al.
Home Care Quality
Indicators (HCQIs) based on the MDS-HC. Gerontologist 2004 Oct;44 (5):665-79.
Holstein BE, Avlund K, Due P, et al. The measurement of change in functional
ability: dealing with attrition and the floor/ceiling effect. Arch
Gerontol Geriatr 2006 Nov-Dec;43(3):337-50.
Howe R, Greenberg L.
Performance measurement for case management: principles and objectives for
developing standard measures. Case Manager 2005 Sep-Oct;16(5):52-56.
Jette AM, Haley SM, Ni P. Comparison of functional status
tools used in post-acute care. Health Care Financ Rev 2003 Spring;24(3):13-24.
Kahn KL, Malin JL, Adams J,
et al. Developing a reliable, valid, and feasible plan for quality-of-care
measurement for cancer: how should we measure? Med Care 2002 Jun;40(6 Suppl):III73-85.
Kane RL, Homyak
P, Bershadsky B, et al. Outcomes of managed care of dually eligible
older persons. Gerontologist 2003 Apr;43(2):165-74.
Keepnews D. Using patient satisfaction data to improve home
healthcare. J Healthc Qual 2004 May-Jun;26(3):4-9.
M, Ng T, Miller N, et al. Institutional
and community-based long-term care: a comparative estimate of public costs. J
Health Soc Policy 2006;22(2):31-50.
Lake T, Kvam C, Gold M. Literature review: using
quality information for health care decisions and quality improvement. Final
Report. (Submitted by Mathematica Policy Research, under Contract No.
233-02-0086). Rockville, MD: Agency for Healthcare Research and
Quality; May 6, 2005.
Lalonde B. The General Symptom Distress Scale: a home care outcome
measure. QRB Qual Rev Bull 1987 Jul;13(7):243-50.
Lehman AF. Measures of quality of life among persons with
severe and persistent mental disorders. Soc Psychiatry Psychiatr Epidemiol 1996
Leonard KJ, Wilson D, Malott O. Measures of quality in
long-term care facilities. Leadership Health Serv 2001;14 (2):1-8.
W, Capitman J. Met needs, unmet needs, and satisfaction among Social HMO members.
J Aging Soc Policy 2007;19(1):1-19.
Mangione-Smith R, McGlynn EA. Assessing the quality of healthcare provided to children.
Health Serv Res 1998 Oct;33(4 Pt 2):1059-90.
McCall N, Korb J, Petersons A, et al.
Decreased home health
use: does it decrease satisfaction? Med Care Res Rev 2004 Mar;61(1):64-88.
McGlynn EA, Asch
SM, Adams J, et al. The quality of health care delivered to adults in
the United States.
New Engl J Med 2003 Jun 26;348(26):2635-45.
McGlynn EA. Selecting common measures of quality and systems
performance. Med Care 2003 Jan;41(1 Suppl):I39-47.
quality measures in home health. In Report to the Congress: increasing the value
of Medicare. Washington, DC: MedPAC; June 2006.
The MEDSTAT Group. Indiana's
quality improvement process. (Prepared under contract to the Centers for
Medicare & Medicaid Services.) HCBS Quality Reports Vol. 1, No. 5, June 2003.
The MEDSTAT Group. Wisconsin's
Consumer Outcomes Survey. (Prepared under contract to the Centers for Medicare
& Medicaid Services.) HCBS Quality Reports Vol. 1, No.6, June 2003.
Memorial Fund. Implementing the Resident Assessment Instrument: case studies of
policymaking for long-term care in eight countries. Milbank Memorial Fund Electronic
Reports; May 2003.
W, Sloper P. Quality indicators: disabled children's and parents'
prioritizations and experiences of quality criteria when using different types
of support services. Brit J Soc Work 2003;33(8):1063-80.
Mor V, Morris J, Lipsitz L, et al. The Q-Metrics system for long-term
care outcomes management. Nutrition 1997 Mar;13(3):242-4.
L, White E, Eales J, et al. Evaluating consumer satisfaction in residential
continuing care settings. J Aging Soc Policy 2002;14(2):85-109.
Naglie G, Tomlinson G, Tansey C, et al.
Utility-based quality of
life measures in Alzheimer's disease. Qual Life Res 2006 May;15(4):631-43.
assurance in home and community-based services waiver programs: a guide for
States. Washington, DC: National Association of State Medicaid
The Council on Quality and Leadership in Supports for People
With Disabilities personal outcomes chartbook. National Center
on Outcomes Research; June 1999.
Quality Forum compendium 2000-2005. Washington,
DC: NQF; 2006.
Nota L, Soresi S, Perry J. Quality of life in adults with intellectual disability: the Evaluation of
Quality of Life Instrument. J Intellect Disabil Res 2006 May;50 (Pt 5):371-85.
Office of Inspector General. States' requirements for
Medicaid-funded personal care service attendants. Publication No. OEI-07-05-00250.
Department of Health and Human Services; 2006. Available at: http://oig.hhs.gov/oei/reports/oei-07-05-00250.pdf. [Plugin Software Help]
Office of Mental Retardation. Report of independent
monitoring for quality in the Pennsylvania Mental Retardation System: 2002. Harrisburg: Pennsylvania
Department of Public Welfare; 2002.
Oliva G, et al. Children with special health care needs
(CSHCN): issues and options in selecting health indicators. (Funded through a
cooperative agreement with the Maternal and Child Health Bureau, Award No. MCU-06D501). San Francisco:
Family Health Outcomes Project; 1999.
Ottenbacher KJ, Msall ME, Lyon
N, et al. The WeeFIM instrument: its
utility in detecting change in children with developmental disabilities. Arch
Phys Med Rehabil 2000 Oct;81(10):1317-26.
Palmer L, Lance K, Tobias C, et al. Integrated Care Program:
recommended performance measures. Hamilton,
NJ: Center for Health Care
Palmer RH. Using clinical performance measures to drive
quality improvement. Total Qual Manage 1997;8(5):305-11.
Peruselli C, Marinari M, Brivio B, et al. Evaluating a home
palliative care service: development of indicators for a continuous quality
improvement program. J Palliat Care 1997 Autumn;13(3):34-42.
Reeder PJ, Chen SP. A client satisfaction survey in home
health care. J Nurs Qual Assur 1990 Nov;5(1):16-24.
Reuland CP, Bethell C. Measuring and evaluating developmental
services: strategies and lessons from the ABCD II Consortium States. Child and
Adolescent Health Measurement Initiative. (Funded by the Commonwealth Fund.) Portland, ME:
National Academy of State Health Policy; 2006.
Available at: http://www.nashp.org/files/Measuring_Dev_Ser_ABCDII.pdf. [Plugin Software Help]
Rohland B. Quality assessment in a Medicaid managed mental health care
plan: an Iowa
case study. Am J Orthopsychiatry 1999 Jul;69(3):410-4.
Ross EC. Managed behavioral health care premises, accountable systems of
care, and AMBHA's PERMS. American Managed Behavioral Healthcare Association. Eval
Rev 1997 Jun;21(3):318-21.
Schwab AJ, DiNitto DM, Aureala W, et al. The dimensions of
client satisfaction with rehabilitation services. J Vocat Rehabil 1999;13(3):183-94.
Sheppard-Jones K, Thompson
Prout H, Kleinert H. Quality of life dimensions for adults with developmental
disabilities: a comparative study. Ment Retard 2005 Aug;43(4):281-91.
AK, Kitch BT, Weissman JS, et al. Assessing
patient safety culture: a review and synthesis of the measurement tools. J
Patient Saf 2006;2(3):105-15.
Smith KL, Soriano TA, Boal J. Brief communication: national quality-of-care
standards in home-based primary care. Ann Intern Med 2007 Feb 6;146(3):188-92.
Smith V, Gifford K, Ellis E, et al. Low Medicaid spending growth amid
rebounding State revenues: results from a 50-State Medicaid budget survey, State
fiscal years 2006 and 2007. Report No. 7569.
Kaiser Commission on Medicaid and the Uninsured; October 2006. Available
Snell LP, Zhao Z, Lu C, et al. Study of Medicaid Home and Community-Based
Services waiver program survey methodology. (Prepared by Mathematica Policy
Research under Contract No. TLG98-014-1690.03 to The Lewin Group for the
Centers for Medicare & Medicaid Services.)
Spillman BC, Black KJ, Ormond BA. Beyond cash and
counseling: the second generation of individual budget-based community
long-term care programs for the elderly. (Prepared by the Urban Institute for
the Kaiser Commission on Medicaid and the Uninsured.) Publication No. 7579.
Kaiser Commission on Medicaid and the Uninsured; January 19, 2007. Available
at: http://www.kff.org/medicaid/upload/7579.pdf. [Plugin Software Help]
Stancliffe RJ. Proxy respondents and the reliability of the Quality
of Life Questionnaire Empowerment factor. J Intellect Disabil Res 1999 Jun;43(Pt
Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity
of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy
and patient populations. Med Care 2001 Aug;39(8):800-12.
Wagner C, De Bakker DH, Groenewegen PP. A measuring instrument
for evaluation of quality systems. Int J Qual Health Care 1999 Apr;11(2):119-30.
DL, Newton-Curtis L, Lyons KS. Development and initial testing of a
measure of person-directed care. Gerontologist 2008 Jul;48 Spec. No. 1:114-23.
Wilde B, Starrin B, Larsson G, et al. Quality of care from a
patient perspective-a grounded theory study. Scandinav J Caring Sci 1993;7:113-20.
JE, Culpepper L, Cerreto M. Screening tests for adults with intellectual disabilities.
J Am Board Fam Med 2007 Jul-Aug;20(4):399-407.
Wu V, Gifford V, Asch S. Quality of care indicators for HIV/AIDS: a discussion paper for the
Foundation for Accountability. Washington,
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Wunderlich GS, Kohler PO. Improving the quality of long-term care. Institute of Medicine.
Washington, DC: National Academy Press; 2001.
Available at: http://books.nap.edu/openbook.php?isbn=0309064988.
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List of Search Engines Included in Literature
AgeLine is produced by the American Association of Retired
Persons (AARP) and provides bibliographic coverage of social gerontology, which
is the study of aging in social, psychological, health-related, and economic
contexts. The delivery of health care for the older population and its
associated costs and policies is particularly well covered, as are public
policy, employment, and consumer issues.
Cumulative Index to
Nursing & Allied Health Literature (CINAHL)
CINAHL is a comprehensive and authoritative source of
information for nurses, allied health professionals, and others interested in
health care. CINAHL covers all aspects of nursing and 17 allied health
disciplines. Journals from biomedicine, alternative therapy, health sciences,
health promotion, and consumer health are included.
Google Scholar is a search engine for scholarly literature. It
aims to sort articles the way researchers do, weighing the full text of each
article, the author, the publication in which the article appears, and the
frequency of the article being cited in other scholarly literature. Results are
listed in order of relevance.
Health Reference Center—Academic
Available 24 hours a day via the Internet,
Center—Academic on InfoTrac Web provides a one-stop, full service resource for health-related research. It provides an integrated collection of general interest health and fitness magazines, medical and professional periodicals, reference books, and pamphlets. Records are available in a combination of indexed, abstract, or full-text formats. The site is designed for nursing and allied health students, as well as consumer health researchers.
Medline, produced by the U.S. National Library of Medicine
(NLM), is one of the major sources for biomedical literature. Medline indexes
international literature in medicine, dentistry, and nursing. It uses NLM's
controlled vocabulary, MeSH (Medical Subject Headings). Approximately 400,000
records are added yearly, with more than 85 percent in English.
New York Academy of Medicine Grey Literature Reports
New York Academy of Medicine Grey Literature Report
is a bimonthly publication of The New York Academy of
Medicine Library alerting readers to new grey literature publications in health
services research and selected public health topics. In addition to this alert
service, all resources are added and indexed in an online catalog.
PsycINFO is an electronic bibliographic database that
provides abstracts and citations of scholarly literature in the behavioral
sciences and mental health. The database includes material of relevance to
psychologists and professionals in related fields such as psychiatry,
management, business, education, social science, neuroscience, law, medicine,
and social work. The database had more than 2.3 million records as of April
2007, including references from more than 2,000 relevant journals.
Sage Database of Social
Sage Database of Social Research Methods (SRM) includes more
than 45,000 references, most with abstracts, to the literature on social and
behavioral research methodology, statistical analysis, and computer software.
International in scope, the SRM Database includes journal articles, books,
research reports, and proceedings from 1970 to the present, with 10 updates a
* Note: Modifiers and keywords differed according to the
search engine used and according to number of hits for each keyword. For example,
some search engines provide suggested modifier words, while some do not. Some
keywords were entered as groups of words and some standalone, depending on the
number of hits received.
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