Disparities in Health Care: Issues for National Reporting Slide presentation from the AHRQ 2009 conference. On September 19, 2009, Kalahn Taylor-Clark made this presentation at the 2009 Annual Conference. Select to access the PowerPoint® presentation (460 KB) (Plugin Software Help).Slide 1 Disparities in Health Care: Issues for National ReportingKalahn Taylor-Clark, PhD, MPHResearch Director, Racial/Ethnic Health Care Equity InitiativeThe Brookings InstitutionAHRQ 2009 Annual Conference Slide 2 OverviewIntegrating equity in the data environmentOverview of key IOM recommendationsHigh Value Health Care Project/Equity InitiativeConsiderations for implementation of recommendations Slide 3 Advancing Health Care Equity: Integrating the Data Environment Slide 4 Institute of Medicine (IOM) ReportKey RecommendationsSubcommittee on Standardized Collection of Race/Ethnicity Data forHealthcare Quality ImprovementAugust 31, 2009Entities should collect data on granular ethnicity and elicit race responses consistent with current OMB standardsCollect data on preferred language and level of English proficiencyDevelop standards to support data exchange of race/ethnicity/language across multiple entitiesUtilize indirect estimation where self-reported data are unavailable Slide 5 Racial/ethnic Health Care Equity Initiative Motivation and GoalsMotivationFindingsConsistent body of research demonstrates significant variation in the rates of medical procedures by race, even when insurance status, income, age, and severity of conditions are comparable.RecommendationsHealth care organizations should collect, report, and monitor patient-care data to build a foundation for solutions to racial/ethnic disparities in careIncrease equity in care by increasing accountability and monitoring and improving clinical care qualityChallengesDespite continued attention to data concerns, inadequate information continues to limit the analyses of health care-related disparities and their outcomes.Goals of Racial/ethnic Health Care Equity InitiativePromulgate best practices for collecting, monitoring, and disclosure of race/ethnicity data to promote equity in care across all groups. Slide 6 Massachusetts Quality and Cost Council Uniform Reporting System for Health Care Claims Data Sets 129 CMR 2.00 Race CodeCode DescriptionR1 American Indian/Alaska NativeR2 AsianR3 Black/African AmericanR4 Native Hawaiian or other Pacific IslanderR5 WhiteR9 Other RaceUNKNOW Unknown/not specifiedEthnicity CodeCode Description2182-4 Cuban2184-0 Dominican2148-5 Mexican, Mexican American, Chicano2180-8 Puerto Rican2161-8 Salvadoran2155-0 Central American (not otherwise specified)2165-9 South American (not otherwise specified)2060-2 African2058-6 African AmericanAMERCN American2028-9 Asian2029-7 Asian IndianBRAZIL Brazilian2033-9 CambodianCVERDN Cape VerdeanCARIBI Caribbean Island2034-7 Chinese2169-1 Columbian2108-9 European2036-2 Filipino2157-6 Guatemalan2071-9 Haitian2158-4 Honduran2039-6 Japanese2040-4 Korean2041-2 Laotian2118-8 Middle EasternPORTUG PortugueseRUSSIA RussianEASTEU Eastern European2047-9 VietnameseOTHER Other EthnicityUNKNOW Unknown/not specified Slide 7 Suggested Categories for Collecting RACE/LATINO ETHNICITY IDENTIFIER(QCC)* Check All That ApplyAmerican Indian/Alaska NativeAsianBlackHispanic/Latino/WhiteHispanic/Latino/BlackHispanic/Latino/OtherNative Hawaiian/Pacific IslanderWhiteDeclined* If organization does not have space to collect more than one race/Latino ethnicity category, health plan may submit a waiver to include “multiracial” as a category. Slide 8 LANGUAGE REPORTINGTop Ten Spoken Languages inMassachusetts by Census Top Ten Most FrequentlyEncountered by MA Acute CareHospitals Top Ten Languages FLNE Spanish Spanish Spanish Portuguese Portuguese Portuguese French Russian Chinese Italian Chinese Haitian Creole Chinese Haitian Creole Vietnamese French Creole Cape Verdean Khmer Russian Vietnamese Cape Verdean Vietnamese Arabic Russian Greek American Sign Language (ASL) Arabic Polish Albanian Korean *U.S. Census Report: http://www.fairus.org/site/PageNavigator/facts/state_data_MA**FLNE - a bi-annual publication of MDPH with language data collected by the Massachusetts Department of Education for students whose primary language is not English. Slide 9 Advancing Health Care Equity: Integrating the Data Environment Slide 10 Considerations forDeveloping GuidelinesConsumer preferences. What are consumers' concerns about direct data collection by plans? What are consumer preferences for reporting race/ethnicity (e.g. available response categories)? To what messages about data collection activities/benefits do various consumer populations respond? What information on health care equity do consumers want to know?Modes of data collection. What are organizations' capabilities for acquiring directly collected or third party source data? What are cost effective modes of data collection for organizations?Use of data. How will organizations and State analyze data? What will (goals of) interventions be (i.e. quality advancement v. disparities reduction)? Who will be involved? Slide 11 Considerations forDeveloping RequirementsDeveloping standard categories and thresholds for reportingAcquiring third party source data Submission protocols/file formatsIncorporating indirectly estimated data Submission protocols/File formatsIncorporating directly collected and indirectly estimated data Slide 12 Thank You!!ktclark@brookings.edu Current as of December 2009 Internet Citation: Disparities in Health Care: Issues for National Reporting. December 2009. Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/news/events/conference/2009/taylor-clark2/index.html