Developing the Registry of Patient Registries (Text Version)

Slide presentation from the AHRQ 2011 conference.

On September 19, 2011, Dan Levy made this presentation at the 2011 Annual Conference. Select to access the PowerPoint® presentation (1.5 MB). Plugin Software Help.


Slide 1

Developing the Registry of Patient Registries

Developing the Registry of Patient Registries

September 19, 2011
Dan Levy—Chief Technology Officer
Outcome Sciences, Inc

Slide 2

Primary Objective

Primary Objective

  • Task 1—Develop the Registry of Patient Registries.
    • Engage stakeholders in the design and development of the RoPR, a searchable central listing of patient registries in the U.S. that is compatible with ClinicalTrials.gov.

Slide 3

Topics

Topics

  • Goals of the RoPR System.
  • Stakeholder engagement process.
  • Implementation plans for the system.

Slide 4

RoPR Goals

RoPR Goals

  • Provide a voluntary, searchable, central listing of patient registries in the U.S.
  • Encourage and facilitate the use of common data elements and definitions in similar conditions (to improve opportunities for sharing, comparing, and linkage) through the listing and searching of such elements.
  • Provide a central repository of searchable summary results.
  • Offer researchers a search tool to locate existing data to request for use in new studies (secondary analyses, linkage studies).
  • Serve as a recruitment tool for researchers and patients interested in participating in patient registries.

Slide 5

Stakeholder Engagement Process

Stakeholder Engagement Process

Use-Centered Design: Design a system that is responsive to user needs.

Approach:

  • Involve users throughout all stages of the development lifecycle: formulating the requirements, designing the system, and building the system.
  • Involve users seeking to perform various tasks, such as:
    • Developing registries.
    • Using data from registries.
    • Evaluating registries.
    • Reviewing manuscripts based on registry data.
    • Participating in a registry.

Slide 6

Stakeholder Groups

Stakeholder Groups

  • Patients/consumers.
  • Physicians, hospitals, other health care providers, and physician associations.
  • Payers, including private health plans, employers, and public insurance programs (e.g., Medicare, State Medicaid, State Children's Health Insurance Program).
  • Funding agencies (e.g., NIH).
  • Government regulatory and public health agencies, (e.g., FDA, CDC, state health departments).
  • Researchers.
  • Industry, including pharmaceutical and device manufacturers.
  • Journal editors.

Slide 7

Stakeholder Participation (>320)  

Stakeholder Participation (>320)

TopicWeb ConferencesIn-person Meetings
General RequirementsNov.  18, 23, 30May 3
Use CasesDecember 9, 10, 14Jan. 13
Policies and Procedures Jan. 13, 18
Data ElementsJanuary 4, 6Jan. 13
Feb. 15
March 7, 17, 24
Search and Search ResultsFebruary 3, 8, 10 
Standardized Outcome Measures and Data Elements Feb. 15
March 7, 17, 24
April 11

Slide 8

RoPR Development Lifecycle

RoPR Development Lifecycle

Flowchart of the development lifecycle.

  1. Requirements:
    • Actor Catalog.
    • Use Case Catalog.
    • Detailed Use Cases.
    • System Requirements.
    • Data Elements.
  2. Design:
    • System Design.
    • Usability Testing.
    • Test Plan.
    • Test Scripts.
    • Traceability Matrix.
  3. Build:
    • Develop.
    • Test.
    • UAT.
    • User Documentation.
    • Deploy.

Slide 9

Actors

Actors

  1. Funding Agency.
  2. Government Regulatory.
  3. Industry Representative.
  4. Journal Editor.
  5. Patient/Consumer.
  6. Payer.
  7. Pharmacist.
  8. Healthcare Provider.
  9. Physician Association.
  10. Public Health Agency.
  11. Researcher.
  12. Hospital.
  13. Social Worker.
  14. Patient Advocacy Group.
  15. Legal Representative.
  16. Registry Administrator.
  17. Registry Reviewer.

Slide 10

Actor Catalog

Actor Catalog

Actor IDNameDescriptionRole
RoPR AC1Funding AgencyResponsible for providing funding in the form of grants, bonds, research grants, scholarships, or through some other financing option.

* Funding agencies exist at the federal and state level.
Registry Seeker
RoPR AC2Government RegulatoryResponsible for providing overall jurisdiction responsibility over the legislation (acts and regulations) for a given sector.

* Regulatory agencies exist at the federal and state level.
Registry Seeker
RoPR AC3Healthcare ProviderResponsible for providing all aspects of medical care, treatment, diagnosis, counseling, or referral of a patient.Registry Holder
Registry Seeker
RoPR AC4HospitalResponsible for providing patient treatment by specialized staff and equipment.Registry Holder
Registry Seeker
RoPR AC5Industry RepresentativeResponsible for representing processes and procedures that specific industry currently has in place and the changes that will be made.Registry Holder
Registry Seeker
RoPR AC6Journal EditorResponsible for reviewing and editing submissions to a professional journal for a professional association.Registry Seeker
RoPR AC7Legal RepresentativeResponsible for representing the legal rights of patients and providers.Registry Seeker
RoPR AC8Patient Advocacy GroupResponsible for ensuring that ongoing projects and those being considered for funding will directly impact patients' lives, improving delivery of care and support for tertiary care.  Also responsible to analyze cost containment and act as a proponent for best practices, advocating better protection for patients and providers for the greater good of society.Registry Holder
Registry Seeker

Slide 11

Roles

Roles

RolesPurposeFunctionsActors
Registry
Seeker
Users seeking information about registries for a wide variety of purposes such as identifying registries for patient enrollment, finding existing registries, and collaborating with registry holders.Search
View Results Listings
Link to Registry Details
Healthcare Provider, Patient, Researcher, Payer, Government Regulatory, Journal Editor, Funding Agency, Industry Representative, Pharmacist, Physician Association, Public Health Agency, Hospital, Social Worker, Patient Advocacy Group, Legal Representative
Registry
Holder
Users interested in posting a registry to the RoPR database for the purpose of sharing information about their work, recruiting patients, and collaborating with others.Enter Registry DetailsIndustry Representative, Healthcare Provider, Physician Association, Public Health Agency, Researcher, Hospital, Patient Advocacy Group
AdministratorUsers tasked with managing RoPR accounts, and ensuring registry profiles are kept up to date.Manage Accounts
Monitor Registries
Registry Administrator
ReviewerUsers tasked with reviewing posted registries.Review/Approve Posted RegistriesRegistry Reviewer

Slide 12

Use Cases

Use Cases

  1. Registry Holder Account Management.
  2. Account Management.
  3. Registry Profile Update Administration.
  4. Approve Registry Profile.
  5. Create a Registry Profile.
  6. Modify a Registry Profile.
  7. Registry Profile Management.
  8. Submit Registry Profiles.
  9. Delete a Registry Profile.
  10. Search for Information.
  11. Search for Participation.
  12. Search for Collaboration.
  13. Evaluating Registry-Based Studies.
  14. Search to Validate Funding Opportunity.
  15. Notifications.
  16. Data Audit.
  17. Search to Verify Commitment.
  18. Search for Progress Report.
  19. Search to Validate Payment.
  20. Search for Legal Information.
  21. Search for Redundancy.
  22. Search for Duplication.
  23. Search for Best Practices.
  24. ClinicalTrials.gov Integration.

Slide 13

Use Case-Registry Seeker Workflow

Use Case—Registry Seeker Workflow

  • Search.
  • Results Listing.
  • Registry Details.

The Search and Results Listing workflow can be repeated as you refine the search.

Slide 14

Use Case-Registry Holder Workflow

Use Case—Registry Holder Workflow

Circular flowchart.  Registry Holder Login → Upload or Web Entry. Upload → Posted Registry. Web Entry → Posted Registry.

Slide 15

Use Case Catalog

Use Case Catalog

UC IDNameDescriptionFunctional AreaActor (s)
RoPR UC1Registry Holder Account ManagementA Registry Holder shall be able to request a new account, and manage the personal profile information for that account.AdministrationAll Registry Holders: Healthcare Provider, Hospital, Industry Representative, Patient Advocacy Group, Physician Association, Public Health Agency, Researcher
RoPR UC2Account ManagementA Registry Administrator shall be able to create, modify and delete RoPR accounts, as well as assign permissions to accounts, so as to allow users to create, modify and delete registries.AdministrationRegistry Administrator
RoPR UC3Registry Profile Update AdministrationA Registry Administrator shall be able to view all registry profiles that require updating, so that their owners can be contacted if the recommended time period for updating is near or past.AdministrationRegistry Administrator
RoPR UC4Approve Registry ProfileA Registry Reviewer shall be able to approve a registry profile to ensure data integrity before it is released to search.ReviewRegistry Reviewer
RoPR UC5Create a Registry ProfileA Registry Holder shall be able to create a registry profile so as to post their registry data.RegistrationAll Registry Holders: Healthcare Provider, Hospital, Industry Representative, Patient Advocacy Group, Physician Association, Public Health Agency, Researcher
RoPR UC6Modify a Registry ProfileA Registry Holder shall be able to modify a registry profile when changes to their registry data occur.RegistrationAll Registry Holders: Healthcare Provider, Hospital, Industry Representative, Patient Advocacy Group, Physician Association, Public Health Agency, Researcher
RoPR UC7Registry Profile ManagementA Registry Holder shall be able to view and manage all registry profiles that they have created or own.RegistrationAll Registry Holders: Healthcare Provider, Hospital, Industry Representative, Patient Advocacy Group, Physician Association, Public Health Agency, Researcher

Slide 16

Detailed Use Case

Detailed Use Case

  • UC ID.
  • Basic Flow.
  • Alternate Flow
  • Exceptions.

Flowchart showing the flow is to the right of the text.

Slide 17

Detailed Use Case-Search

Detailed Use Case—Search

Use Case IDRoPR UC10
Use Case NameSearch for Information
Description/GoalA Registry Seeker that is a potential registry developer shall be able to search for registries that are relevant to a specific disease, condition, procedure and/or symptom to understand what types of registries exist, their purposes, and what information is being collected.
Functional AreaSearch
Actor(s)Patient, Pharmacist, Healthcare Provider, Physician Association, Public Health Agency, Hospital, Social Worker, Patient Advocacy Group
Pre-conditionsN/A
Post-conditionsN/A
Frequency of UseFrequent

RoPR UC10
Basic FlowDescriptionExceptions (E) & Alternate Flows (AF)
Step 1Registry Seeker accesses RoPRE1
Step 2Registry Seeker navigates to Basic Search pageE2
AF 2.1, AF 2.2
Step 3Registry Seeker enters in search criteria relevant to the disease or conditionE5, E6
Step 4Summary results are displayed with links to more detailed informationAF4.1, AF4.2, AF4.3, AF4.4
Step 5Registry Seeker clicks on a resultE7
Step 6Registry Seeker contacts the registry holderE10
AF6.1

Slide 18

Search UC-Alternate Flows

Search UC—Alternate Flows

Alternate Flow 2.1DescriptionExceptions (E) & Alternate Flows (AF)
Step 2.1.1Registry Seeker navigates to Advanced Search pageE3
Step 2.1.2Registry Seeker enters in text based search criteria, as well as selecting other detailed options from within required data elements in registry profilesN/A
Alternate Flow 2.2DescriptionExceptions (E) & Alternate Flows (AF)
Step 2.2.1Registry Seeker navigates to Topic Search pageE4
Step 2.2.2Registry Seeker browses through registry profile summaries grouped by Topic, then listed by sub-topicN/A
Step 2.2.3Registry Seeker browses through registry profile summaries grouped by Topic, then listed alphabeticallyN/A

Slide 19

Search UC-Exceptions

Search UC—Exceptions

ExceptionsDescription
E1RoPR Web site unavailable
E2Basic Search page unavailable
E3Advanced Search page unavailable
E4Topic Search page unavailable
E5Registry Seeker is unable to enter in detailed search criteria
E6Registry Seeker is unable to enter basic search criteria
E7Clicking on a link displays a blank page
E8Registry Seeker is unable to download results
E9Registry Seeker is unable to download results in a usable format
E10The listed contact information is incorrect

Slide 20

RoPR-System Components

RoPR—System Components

  • Search.
  • Registration.
  • Admin.
  • Review.

Circular flowchart with 2-way arrows between each action.

Slide 21

Requirements Breakdown (104)

Requirements Breakdown (104)

  • Search (46):
    • All Search:
      • Basic Search.
      • Advanced Search.
      • Topic Sear.
      • Registration.
    • Search Results:
      • Results Display.
      • Detailed Registry Profile.
      • Notifications.
  • Registration (30):
    • Registry Profile Data Entry:
      • Create.
      • Update.
      • Registry Profile Upload.
  • Administration (22):
    • Account Create.
    • Account Update.
  • Review (6):
    • Registry Profile Review.

Slide 22

Requirements-Registration (High)

Requirements—Registration (High)

TitleReq IDUC IDRequirement NameRequirement DescriptionPriority
(H-M-L)
Registry Profile Management 01R29UC1Account LoginAs a Registry Holder, I want to be able to log in to my account.High
Registry Profile Management 02R30UC1Account LogoutAs a Registry Holder, I want to be able to log out of my account.High
Registry Profile Management 03R31UC5, UC7Registry Profile Modification AccessAs a Registry Holder, I want to be able to create and manage registry profiles tied to my user account.High
Registry Profile Management 04R32UC5In-Progress Registry ProfileAs a Registry Holder, I want to be able to save a partially completed registry profile.High
Registry Profile Management 05R33UC6In-Progress Registry Profile EditingAs a Registry Holder, I want to be able to edit a partially completed registry profile at any time.High
Registry Profile Management 06R34UC9In-Progress Registry Profile DeletionAs a Registry Holder, I want to be able to delete a partially completed profile at any time.High
Registry Profile Management 09R37UC5-6Registry Profile Business RulesAs a Registry Holder, I want business rules applied automatically to my inputs in the registry profile, to ensure integrity of the registry profile record.High
Registry Profile Management 15R43UC5-6Registry Profile UIDAs a Registry Holder, I want each of my registry profiles to have a unique and uneditable identifier so that I have a way to find and link to it.High
Registry Profile Management 17R45UC5-6Registry Required DataAs a Registry Holder, I want to be able to see what data elements are required vs. optional to complete my registry profile. (see Data Elements document for complete list of required data elements)High
Registry Profile Management 18R46UC5-6Registry Distinct DataAs a Registry Holder, I want distinct language used to label registry specific data elements, so that I can easily differentiate them from ClinicalTrials.gov study data elements.High
Registry Profile Management 23R51UC8Registry Profile SubmissionAs a Registry Holder, I want to be able to submit my registry profile for approval, once all required data elements are completed. (see Data Elements document for complete list of required data elements)High
Registry Profile Management 24R52UC5-6Derivative Registry CaptureAs a Registry Holder, I want to be able to input a derivative study or studies into my registry profile.High
Registry Profile Management 25R53UC5-6Registry Quality MetricsAs a Registry Holder, I want to be able to input key registry quality assurance procedures into my registry profile.High
Registry Profile Management 26R54UC5-6Progress Report CaptureAs a Registry Holder, I want to be able to input progress report data into my registry profile.High
Registry Profile Update 03R58UC8Updated Registry ApprovalAs a Registry Holder, I want to be able to submit my updated registry profile for approval, so the update will appear in search results.High

Slide 23

Requirements-Search (High)

Requirements—Search (High)

TitleReq IDUC IDRequirement NameRequirement DescriptionPriority
(H-M-L)
All Search Types 01R59UC10-14, UC17-23Search AccessAs a Registry Seeker, I want to be able to search all approved registry profiles.High
All Search Types 03R61UC10-14, UC17-23NavigationAs a Registry Seeker, I want to be able to navigate between search options using a tabular interface.High
Basic Search 01R62UC10-14, UC17-23Basic Text SearchAs a Registry Seeker, I want to input free text to search and find specific registry profiles.High
Advanced Search 01R64UC10-14, UC17-23Advanced Search Data PointsAs a Registry Seeker, I want to be able to search using data elements which are required in all registry profiles. (see Data Elements document for definition of required data elements)High
Search Results 01R77UC10-14, UC17-23Search Return SummaryAs a Registry Seeker, I want my search to return a summary list of results.High
Detailed Registry Profile 02R91UC10-14, UC17-23System URLsAs a Registry Seeker, I want to be able to share links to detailed registry information with others.High
Detailed Registry Profile 03R92UC10-14, UC17-23Registry Profile DataAs a Registry Seeker, I want the detailed registry profile to contain all data in the registry profile. (see Data Elements document for data elements definitions)High
Detailed Registry Profile 08R97UC10-14, UC17-23Detailed Profile Data ElementsAs a Registry Seeker, I want the detailed registry profile to show me data elements that are unique to patient registries.High
Detailed Registry Profile 09R98UC10-14, UC17-23Detailed Profile Registry VersionAs a Registry Seeker, I want the detailed registry profile to show me the registry version.High
Detailed Registry Profile 10R99UC10-14, UC17-23Detailed Profile Registry GeographyAs a Registry Seeker, I want the detailed registry profile to show me the registry geography.High
Detailed Registry Profile 11R100UC10-14, UC17-23Contact Registry HolderAs a Registry Seeker, I want the detailed registry profile to identify the interest and availability of a registry holder to be contacted.High

Slide 24

RoPR Data Element Sections

RoPR Data Element Sections

  1. Registry Description.
  2. Registry Classification and Purpose.
  3. Sponsor and Conditions of Access.
  4. Registry Design.
  5. Eligibility.
  6. Conditions, Exposures, and Keywords.
  7. Common Data Element Groups by Condition.
  8. Status.
  9. Quality Procedures.
  10. Progress Report.
  11. Related Information.

Slide 25

1. Registry Description

1. Registry Description

  1. Registry Description

This section contains Registry identification and description information.

Data Element NameFormatRequired / OptionalDescription
Registry TitleTEXTRequiredRegistry title intended for the lay public.
Registry VersionTEXTOptionalRegistry version identifier.
Date of EntryDATERequired (auto-populated)Original date of Registry data entry into the RoPR.
Date of UpdateDATERequired (auto-populated)Date of update of any Registry information.
Brief DescriptionTEXTRequiredShort description of the Registry intended for the lay public.
Long DescriptionTEXTOptionalExtended description of the Registry, including more technical information (as compared to the Brief Description).
Registry GeographySELECT
Single Institution/Practice,
State, Regional,
National, Global
OptionalIdentify geographic area of Registry providers. Select one.
Registry IDTEXTRequiredUnique identification assigned to the Registry by the sponsoring organization.
Secondary ID(s)TEXTOptionalOther identification numbers assigned to the Registry.
Derivative Study ID(s)TEXTOptionalStudy or studies derived from the Registry.

Slide 26

2. Registry Classification and Purpose

2. Registry Classification and Purpose

2. Registry Classification and Purpose
This section contains information about the type of Registry and intended purpose.
Data Element NameFormatRequired/OptionalDescription
Registry ClassificationMULTI-SELECT
Disease/Disorder/Condition
Service, Procedure
Service, Encounter (office)
Service, Hospitalization
Product, Drug
Product, Device
Product, Biologic
Pregnancy
Vaccine
Transplant
Tumor
Other (TEXT)
RequiredType of Registry.
Select all that apply.
Enter Other if none or additional Classifications apply.
Registry PurposeMULTI-SELECT
Natural History of Disease
Clinical Effectiveness
Cost Effectiveness
Comparative Effectiveness
Safety or Harm
Quality Improvement
Clinical Practice Assessment
Public Health Surveillance
Payment/Certification
Other (TEXT)
RequiredPurpose of Registry.
Select all that apply.
Enter Other if none or additional Purposes apply.

Slide 27

3. Sponsor and Conditions of Access

3. Sponsor and Conditions of Access

3. Sponsor and Conditions of Access
This section contains information about the sponsor, collaborators, conditions of access, and related contact information.
Data Element NameFormatRequired/OptionalDescription
SponsorTEXTRequiredName of primary organization that oversees implementation of the Registry.
CollaboratorsTEXTOptionalOther organizations (if any) providing support, including funding, design, implementation, data analysis, and reporting.
Responsible Party (name, title, E-mail, phone, organization)TEXTRequiredThe sponsor of the Registry or the Principal Investigator of the Registry if so designated by the sponsor.
Interest in being contacted?SELECT
Yes
No
RequiredIdentify if the sponsor is interested in being contacted for reasons listed below.
Reasons for being contacted?MULTI-SELECT
Data Access
More Information
Collaboration
Participation, Investigator
Participation, Participant
Other (TEXT)
RequiredIdentify sponsor's reasons for being contacted.  Enter Other if none or additional Reasons apply.
Contact Person
(name, title, E-mail, phone, organization)
TEXTRequiredThe primary contact person, as designated by the sponsor, able to respond to interested parties.
Link to Conditions of AccessTEXT (URL)Optional A link, including http://, to a document describing conditions of access required by sponsor.
Uploaded file containing Conditions of AccessFILEOptionalAn uploaded document describing conditions of access required by sponsor.

Slide 28

9. Quality Procedures

9. Quality Procedures

9. Quality Procedures
This section contains information about the quality procedures being conducted for the described Registry.
Data Element NameFormatRequired/OptionalDescription
Registry Procedures

MULTI-SELECT

  1. Quality plan.
  2. Data checks are employed using range and consistency checks.
  3. Data is compared to medical record or other external data sources for accuracy, completeness, or representativeness.
  4. Data encoding dictionary with clear definitions.
  5. Number of participants or participant years needed to demonstrate an effect has been specified.
  6. There is a plan to address missing data.
  7. There is a statistical analysis plan.
OptionalIdentify all quality procedures implemented as part of the Registry.
Other

MULTI-SELECT

  1. 3rd party certifications.
  2. On-site audit performed.
  3. External use of data for research.
  4. Other (TEXT).
OptionalIdentify other factors that contribute to the quality of the Registry.

Slide 29

10. Progress Report

10. Progress Report

This section describes progress information associated with the Registry and includes information about the growth of the Registry and any relevant references to available progress reports.
Data Element NameFormatRequired/OptionalDescription
Date of Progress UpdateDATERequired (auto-populated)Date that this progress report section is updated. 
Progress Report SummaryTEXTRequiredSummary of all relevant progress report information.  May include summary of interim reports, annual reports, and/or other related Registry progress reports.
Link to Progress ReportTEXT (URL)OptionalLink to relevant Registry progress report(s).
Progress ReportFILEOptionalUpload of relevant Registry progress report(s).
Number of Participants in RegistryNUMBERRequiredProgress data identifying the current number of participants in the Registry.
Length of Follow-upTEXTOptionalProgress data identifying the length of follow-up data currently available within the Registry.

Slide 30

Integrating with ClinicalTrials.gov

Integrating with ClinicalTrials.gov

  • Stakeholders wish to leverage ClinicalTrials.gov (awareness, existing investment, infrastructure and capabilities).
    • In use since 2000.
    • Over 100,000 studies listed.
  • Modify ClinicalTrials.gov to accommodate patient registries.
    • Add new �Patient Registry' study type.
    • Add ~6 new patient registry specific data elements to �Design' section.
  • Introduce links between ClinicalTrials.gov and to RoPR.
    • Link to RoPR record Registration System (RRS).
    • Link to RoPR Public Search Web Site.
    • Link between ClinicalTrials.gov record (NCT#) and RoPR record (RoPR#).

Slide 31

Integration Pathways

Integration Pathways

Image: A flow chart of Integration Pathways from the ClinicalTrials.gov System to the RoPR System is shown.

Slide 32

Wireframes

Wireframes

  • Registering a Registry.
  • Searching.

Slide 33

ClinicalTrials.gov-Patient Registry

ClinicalTrials.gov—Patient Registry

Image: A screen shot of the clinicaltrials.gov Patient Registry System page is shown.

Slide 34

ClinicalTrials.gov-link to RoPR Data Entry

ClinicalTrials.gov—link to RoPR Data Entry

Image: A screenshot of the clinicaltrials.gov Protocol Registration System page is shown. The Design Section, new Patient Registry Data Elements and Link to RoPR Record sections are highlighted.

Slide 35

RoPR Data Entry

RoPR Data Entry

Image: A screenshot of the ROPR Registry Profile Overview page is shown.

Slide 36

RoPR-Registry Description

RoPR—Registry Description

Image: A screenshot of the ROPR Registry Description page is shown. The RoPR Data Elements and RoPR Sections are highlighted.

Slide 37

RoPR-Registry Classification and Purpose

RoPR—Registry Classification and Purpose

Image: A screenshot of the ROPR Registry Classification and Purpose page is shown.

Slide 38

RoPR-Preview Registry Profile

RoPR—Preview Registry Profile

Image: A screenshot of the ROPR Registry Profile Preview page is shown

Slide 39

RoPR-Save and Release

RoPR—Save and Release

Image: A screenshot of the RoPR Save/Release RoPR Registry Profile page is shown.

Slide 40

Searching-Basic Search

Searching—Basic Search

Image: A screenshot of the RoPR Basic Search page is shown

Slide 41

Searching-Advanced Search

Searching—Advanced Search

Image: A screenshot of the RoPR Advanced Search page shown

Slide 42

Searching-Topic Search

Searching—Topic Search

Image: A screenshot of the RoPR Topic Search page is shown

Slide 43

Searching-Search Results

Searching—Search Results

Image: A screenshot of the ROPR Basic Search search results page is shown

Slide 44

Information about the RoPR Project

Information about the RoPR Project

Slide 45

Thank you!

Thank you!

Page last reviewed March 2012
Internet Citation: Developing the Registry of Patient Registries (Text Version). March 2012. Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/news/events/conference/2011/levy/index.html