Finding Information and Support
Step 2: Get the Support You Need
Next Steps After Your Diagnosis
You Do Not Have To Go Through It Alone
Sometimes the emotional side of illness can be just as hard to deal with as the physical side. You may have fears or concerns. You may feel overwhelmed. No matter what your situation, having other people to turn to will help you know you are not alone.
Here are the kinds of support you might want to seek:
Family and friends
Talking to family and friends you feel close to can help you cope with your illness or condition. Just knowing that someone is there can be a comfort.
Sometimes it is hard to ask for help. And sometimes your family and friends want to help, but they do not want to intrude, or they do not know how to ask or what to offer. Think about specific ways people can help you. One idea is to ask someone to come with you to a doctor's appointment to help ask questions, take notes, and talk with you afterward.
If you do not have family or friends who can provide support, other people or groups can.
Support or self-help groups
Support groups are made up of people with the same disease or condition who get together to share information and concerns and to help one another.
Support groups may or may not be led by experts. Self-help groups are similar to support groups but usually are led by the participants. The names "support group" and "self-help group" sometimes are used to refer to either kind.
Research on support groups shows that participants feel less anxious, experience less depression, have a better quality of life, and have more success coping with their disease or condition. Similar findings have been reported for self-help groups.
Online support or self-help groups
The Internet has support or self-help groups for people whose concerns and situations may be similar to yours. You can also find "message boards," where you can post questions and get answers. These online communities can help you connect with people who can give you support and provide information.
But be careful. Not every idea or treatment you come across in these groups will be scientifically proven to be safe and effective. If you read about something interesting and new, check it out with your doctor.
Counselor or therapist
A good counselor or therapist can help you cope with sadness, depression, and feelings of being overwhelmed. If you think this kind of help might be right for you, ask your doctor or other health care professional to recommend someone in your area.
People like you
You might want to meet and talk with someone in your own situation. Someone who has "been there" can talk about the real-life outcomes of their treatment choices as well as how they have learned to live with their disease or condition. Some advocacy or support groups can help you make this kind of contact.
If only I had known what it would be like to live with the after-effects of this type of surgery, I might have chosen a different kind.
—Susan, who underwent surgery for a digestive disease
Help is available
Take advantage of the support that is available to you. Go to Where to Find More Information for specific places to find support.