The Community Quality Collaborative Leader's Guide to Engaging Consumer Advocates Prepared for the Agency for Healthcare Research and Quality Contract No: HHSA290200710022T Prepared for the Agency for Healthcare Research and QualityContract No: HHSA290200710022TPrepared by the Center for Health ImprovementThe National Partnership for Women & FamiliesNovember 2008 ContentsIntroduction The First Question: Why Consumer Advocates? Next Question: How to Involve Consumer Advocates? Overview of the GuideSection 1: Understanding Consumer Advocates Defining Advocates What Advocates Care About Typical Constraints That Advocates FaceSection 2: Getting the Lay of the Land Identifying Likely Collaborators Examples of Consumer Advocacy Organizations to Contact Doing Your Homework: Potential Partners Doing Your Homework: Key IssuesSection 3: Recruiting Advocates What You May Want to Find Out Suggested Messaging: Engaging and Educating Advice About Communicating With Advocates Important ConsiderationsSection 4: Educating Advocates Why Quality Should Concern Consumer Advocates What Others Are Doing Tips for Community Quality Collaborative Leaders Regarding the Education of AdvocatesSection 5: Activating Advocates Supporting Activated Advocates Moving ForwardSection 6: Resources Resources for Community Quality Collaborative Leaders Suggested Reading National Health Care Quality Entities AcknowledgmentsThe author wishes to thank the following people for reviewing this report: Roxanne Andrews, PhD, Agency for Healthcare Research and Quality; Cindy Brach, MPP, Agency for Healthcare Research and Quality; Jeff Brady, MD, Agency for Healthcare Research and Quality; Katherine Crosson, MPH, Agency for Healthcare Research and Quality; Jan De La Mare, MPAff, Agency for Healthcare Research and Quality; Joyce Dubow, AARP Public Policy Institute; Rosa Fraga, MA, Principal, Holy Name of Jesus School, Michigan - Alliance for Health; Lissette Leijnieks, MBA, Inherent Systems & Consulting; Lise Rybowski, The Severyn Group; Karen Shore, PhD, Center for Health Improvement; Peggy McNamara, MSPH, Agency for Healthcare Research and Quality; Karen Migdail, Agency for Healthcare Research and Quality; Betsy Mulvey, Project Coordinator, New York Quality Alliance; and Nancy Brands Ward, Center for Health Improvement.AHRQ appreciates citation as to source. Suggested format follows: Sweeney, J. The Community Quality Collaborative Leader's Guide to Engaging Consumers. Rockville, MD: Agency for Healthcare Research and Quality, November 2008.We consider our Learning Network tools to be works in progress and always welcome your comments. Please forward suggestions to AHRQ's Peggy McNamara at peggy.mcnamara@ahrq.hhs.gov. Current as of November 2008 Internet Citation: The Community Quality Collaborative Leader's Guide to Engaging Consumer Advocates. November 2008. Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/professionals/quality-patient-safety/quality-resources/value/caguide/index.html
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