Appendix C: Workshop Agendas

Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement

Committee on Future Directions for the National Healthcare Quality and Disparities Reports and Subcommittee on Standardized Collection of Race/Ethnicity Data for Healthcare Quality Improvement

National Academy of Sciences' Keck Building
500 Fifth Street, NW, Room 100, Washington, DC

Day 1—Monday, February 9, 2009
Room 100

Closed Session (Committee and Subcommittee Members and IOM Staff Only).

7:45-10:30 AM

End Closed Session-Start Open Session

Public Workshop

11:00     Welcome and Introductory Remarks
              Sheila Burke, Chair and Moderator

Session 1: Setting Future Directions for the National Healthcare Quality Report (NHQR) and National Healthcare Disparities Report (NHDR)

11:05     Lessons Learned in Developing NHQR and NHDR
              Earnest Moy, MD, MPH, Team Lead, NHQR & NHDR, Center for Quality Improvement and Patient Safety, Agency for Healthcare Research and Quality (AHRQ), HHS.

11:45     Remarks from Study Sponsor
              Carolyn Clancy, MD, Director, AHRQ, HHS.

End Open Session-Start Closed Session

12:25 PM  Working Lunch, Committee Members Only

End Closed Session-Start Open Session

Session 2: Race/Ethnicity/Language Data Categories: Definitions, Collection, Aggregation, and Reporting for Quality Improvement

1:00     Welcome
             David Nerenz, Subcommittee Chair and Moderator.

1:05     Rationale for Expanded Race/Ethnicity Data Collection and Lessons from the National Health Plan Collaborative
             Nicole Lurie, MD, MSPH, Director, RAND Center for Population Health and Health Disparities.

1:40     Standardizing Race/Ethnicity Categories Across a State and Within a Health Plan

  • Kalahn Taylor-Clark, PhD, MPH, Senior Associate, Engelberg Center for Healthcare Reform, High Value Health Care Initiative, The Brookings Institution.
  • Kathryn L. Coltin, MPH, Director, External Quality Data Initiatives, Harvard Pilgrim Health Care.

2:20     Break

2:30     Incorporating Language Needs into Quality Improvement

  • Mara Youdelman, JD, LLM, Staff Attorney, National Health Law Program (NHeLP).
  • Marsha Regenstein, PhD, Associate Research Professor and Co-Director Center for Health Care Quality, George Washington University.

3:00     Current and Future Federal Standards for Race/Ethnicity/Language Data

  • Katherine K. Wallman, BA, Chief Statistician, U.S. Office of Management and Budget.
  • Karen Humes, MA, Assistant Division Chief for Special Population Statistics, Population Division, U.S. Census Bureau.

3:50     The HRET Toolkit and Hospital Data Collection
             Romana Hasnain-Wynia, PhD (Subcommittee Member), Director, Center for Healthcare Equity and Associate Professor, Institute for Healthcare Studies, Northwestern University, Feinberg School of Medicine.

4:15     Experiences of SEER and NHIS.

  • Brenda Edwards, PhD, Associate Director, Surveillance Research Program, Division of Cancer Control & Population Sciences, National Cancer Institute.
  • Jennifer Madans, PhD, Associate Director for Science, National Center for Health Statistics.

5:00     Gathering Data on Subpopulations Beyond OMB Categories
             Deeana Jang, JD, Policy Director, Asian & Pacific Islander American Health Forum, presenting for Out of Many, One (OMO) Health Data Taskforce.

5:25     Questions from the Public

5:35     Adjourn

End Open Session-Start Closed Session

Day 2—Tuesday, February 10, 2009
Room 100

Closed Session (Committee and Subcommittee Members and IOM Staff Only)

7:45 AM    Continental Breakfast

End Closed Session-Start Open Session

Public Workshop

8:05     Welcome
            Sheila Burke, Chair and Moderator

Session 3: Initiatives in Data Aggregation and Quality Measurement

8:10     Roadmap for Coordinated Quality Measurement and Reporting
            Joachim Roski, PhD, MPH, Managing Director, High-Value Health Care Project, Engelberg Center for Health Care Reform, The Brookings Institution.

            Physician-level Quality Measurement and Reporting
            Karen Kmetik, PhD, Director, Clinical Performance Evaluation, American Medical Association and The Physician Consortium for Performance Improvement.

9:15     National Priorities Partnership's Priority Areas and Corresponding Goals
            Karen Adams, PhD, MT, Vice President, National Priorities, National Quality Forum.

10:00     Advancing Quality Improvement
             Don Berwick, MD, MPP, President and CEO, Institute for HealthCare Improvement.

10:35      Break

Session 4: Select Federal Data Improvement Efforts

10:50     CMS' Recommendations for NHQR and NHDR and for Data Improvement

  • Thomas Reilly, PhD, Deputy Director, Office of Research, Development and Information, Centers for Medicare and Medicaid Services (CMS).
  • Paul McGann, MD, Deputy Chief Medical Officer, Office of Clinical Standards and Quality, CMS.

             Lessons from Healthcare Cost and Utilization Project
            Irene Fraser, PhD, Director Center for Delivery, Organization, and Markets, AHRQ.

End Open Session—Start Closed Session

12:00-3:00 PM

Committee on Future Directions for the National Healthcare Quality and Disparities Reports and Subcommittee on Standardized Collection of Race/Ethnicity Data for Healthcare Quality Improvement

Hyatt Regency Newport Beach
1107 Jamboree Road, Terrace Room, Newport Beach, CA

Day 1—Wednesday, March 11, 2009
Terrace Room

Closed Session (Committee and Subcommittee Members and IOM Staff Only)

7:45 AM-12:45 PM

End Closed Session-Start Open Session

Public Workshop

12:45     Welcome
               Sheila Burke, Chair and Moderator

12:50     Defining Race, Ethnicity and Language Populations

  • Marjorie Kagawa-Singer, PhD, MN, RN, Professor, UCLA School of Public Health and Professor, Department of Asian American Studies.
  • Gayle Tang, MSN, RN, Director, National Linguistic & Cultural Programs, National Diversity, Kaiser Permanente.

1:35     Accounting for Diversity in Quality Improvement

  • Michael Rodriguez, MD, MP, Associate Professor and Vice Chair of Research, George F. Kneller Endowed Chair in Family Medicine, Department of Family Medicine, David Geffen School of Medicine, UCLA.
  • Ron Hays, PhD, Professor, Division of General Internal Medicine and Health Services Research, UCLA.

2:20     Quality Measurement

  • Andrew Bindman, MD, Professor of Medicine, Health Policy Epidemiology and Biostatistics, UCSF and Director of CaMRI (CA Medicaid Research Institute).
  • Patrick Romano, MD, MPH, Professor, Divisions of General Medicine and General Pediatrics, Center for Healthcare Policy and Research, UC Davis.

3:05     Public Comment

3:15     Break

End Open Session-Start Closed Session

3:25-5:15

5:15     Adjourn

Day 2—Thursday, March 12, 2009
Terrace Room

Closed Session (Committee and Subcommittee Members and IOM Staff Only)

7:45-8:40 AM

End Closed Session-Start Open Session

Public Workshop

8:40     Welcome
             Sheila Burke, Chair and Moderator

8:45     Direct Collection and Indirect Estimation of Race/Ethnicity/Language Data

  • Marc Elliott, PhD, Senior Statistician, RAND.
  • Allen Fremont, MD, PhD, Natural Scientist and Sociologist RAND Corporation.
  • Grace Ting, MHA, Health Services Director, Health Equities Programs, Wellpoint, Inc.

9:50     Break

10:00    Priorities for Quality Improvement and Ways to Leverage Collected Information

  • David Lansky, PhD, President and CEO, Pacific Business Group on Health.
  • Maribeth Shannon, MS, Director, Market and Policy Monitor Program, California Healthcare Foundation.
  • Thomas Williams, MPH, MBA, Executive Director, Integrated Healthcare Association.

11:15     Public Comment

End Open Session-Start Closed Session

11:30 AM-3:00 PM

Current as of March 2010
Internet Citation: Appendix C: Workshop Agendas: Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement. March 2010. Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/research/findings/final-reports/iomracereport/reldataapc.html