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Exhibit 13. Examples of Patient and Family Advisory Councils

Guide to Patient and Family Engagement: Environmental Scan Report

HospitalParticipantsRoles/Responsibilities
Dana Farber Cancer Institute and Brigham & Women's Hospital131,208,210,21615 patients and family members, nurses, and physician staff members
  • Has an office in the hospital.
  • Involved with three committees.
  • Involved in conducting patient rounds and an educational program for first-year oncology fellows.
John Nasseff Hear Hospital, St. Paul, MN212Membership includes previous patients and family members
  • Primary focus is to improve the access and availability of education materials for patients covering a wide variety of health problems within the critical care and heart hospital units.
  • Offered input in comfort carts, orientation program for new critical care nurses; provided family journals in waiting areas.
  • Can collect information and make recommendations to hospital leadership, but leadership makes decisions.
Medical College of Georgia Hospital and Clinics—"Patient / Family-Centered Care Committee" / "Family Forum Advisory Council" / "Children's Advisory Group"213Parents and interdisciplinary sample of staff
  • Redirect the philosophy of care.
  • Input in issues affecting patient's values, preferences, and expressed needs and families' experiences of care.
  • Ongoing input and insights from patients' and/or family members' perspectives.
  • Elicits information from and builds relationships with patients and families for many design and planning processes throughout the hospital.
Children's Hospitals and Clinics of Minnesota214Parents of children who have had inpatient or outpatient experiences at facilities
  • Developing, implementing, and evaluating services and facilities.
  • Input into hospital policies and initiatives.
  • Interact with other patients and families by fielding concerns and suggestions.
Children's Hospital of Philadelphia—"Youth Advisory Council"220Group of frequently hospitalized adolescents and their siblings
  • Provide feedback to staff on a "range of care issues."

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Current as of May 2012
Internet Citation: Exhibit 13. Examples of Patient and Family Advisory Councils: Guide to Patient and Family Engagement: Environmental Scan Report. May 2012. Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/research/findings/final-reports/ptfamilyscan/ptfamilyex13.html