The Community Quality Collaborative Leader's Guide to Engaging Consumer Advocates

Prepared for the Agency for Healthcare Research and Quality Contract No: HHSA290200710022T

Prepared for the Agency for Healthcare Research and Quality
Contract No: HHSA290200710022T

Prepared by the Center for Health Improvement
The National Partnership for Women & Families
November 2008 

Contents

Introduction
   The First Question: Why Consumer Advocates?
   Next Question: How to Involve Consumer Advocates?
   Overview of the Guide
Section 1: Understanding Consumer Advocates
   Defining Advocates
   What Advocates Care About
   Typical Constraints That Advocates Face
Section 2: Getting the Lay of the Land
   Identifying Likely Collaborators
   Examples of Consumer Advocacy Organizations to Contact
   Doing Your Homework: Potential Partners
   Doing Your Homework: Key Issues
Section 3: Recruiting Advocates
   What You May Want to Find Out
   Suggested Messaging: Engaging and Educating
   Advice About Communicating With Advocates
   Important Considerations
Section 4: Educating Advocates
   Why Quality Should Concern Consumer Advocates
   What Others Are Doing
   Tips for Community Quality Collaborative Leaders Regarding the Education of Advocates
Section 5: Activating Advocates
   Supporting Activated Advocates
   Moving Forward
Section 6: Resources
   Resources for Community Quality Collaborative Leaders
   Suggested Reading
   National Health Care Quality Entities

 

Acknowledgments

The author wishes to thank the following people for reviewing this report: Roxanne Andrews, PhD, Agency for Healthcare Research and Quality; Cindy Brach, MPP, Agency for Healthcare Research and Quality; Jeff Brady, MD, Agency for Healthcare Research and Quality; Katherine Crosson, MPH, Agency for Healthcare Research and Quality; Jan De La Mare, MPAff, Agency for Healthcare Research and Quality; Joyce Dubow, AARP Public Policy Institute; Rosa Fraga, MA, Principal, Holy Name of Jesus School, Michigan - Alliance for Health; Lissette Leijnieks, MBA, Inherent Systems & Consulting; Lise Rybowski, The Severyn Group; Karen Shore, PhD, Center for Health Improvement; Peggy McNamara, MSPH, Agency for Healthcare Research and Quality; Karen Migdail, Agency for Healthcare Research and Quality; Betsy Mulvey, Project Coordinator, New York Quality Alliance; and Nancy Brands Ward, Center for Health Improvement.

AHRQ appreciates citation as to source. Suggested format follows: Sweeney, J. The Community Quality Collaborative Leader's Guide to Engaging Consumers. Rockville, MD: Agency for Healthcare Research and Quality, November 2008.

We consider our Learning Network tools to be works in progress and always welcome your comments. Please forward suggestions to AHRQ's Peggy McNamara at peggy.mcnamara@ahrq.hhs.gov.

Current as of November 2008
Internet Citation: The Community Quality Collaborative Leader's Guide to Engaging Consumer Advocates. November 2008. Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/professionals/quality-patient-safety/quality-resources/value/caguide/index.html