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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
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1 to 3 of 3 Research Studies DisplayedBauer NS, Ofner S, Moore C
Assessment of the effects of pediatric attention deficit hyperactivity disorder on family stress and well-being: development of the IMPACT 1.0 scale.
This paper describes the IMPACT (Impact Measure of Parenting-Related ADHD Challenges and Treatment) 1.0 Scale which was codeveloped with input from parent advisors and administered to 79 parents of children with ADHD. It is a brief measure to assess ADHD impacts on family in the context of everyday family life. Exploratory factor analysis, correlations with validated instruments, and test-retest reliability were examined in the study.
AHRQ-funded; HS022434.
Citation: Bauer NS, Ofner S, Moore C .
Assessment of the effects of pediatric attention deficit hyperactivity disorder on family stress and well-being: development of the IMPACT 1.0 scale.
Glob Pediatr Health 2019 Mar 15;6:2333794x19835645. doi: 10.1177/2333794x19835645..
Keywords: Children/Adolescents, Behavioral Health, Family Health and History, Patient-Centered Outcomes Research, Quality of Life
Simon NJ, Richardson J, Ahmad A
Health utilities and parental quality of life effects for three rare conditions tested in newborns.
The purposes of this study were to estimate health utilities for three rare, heritable conditions currently recommended for newborn screening - Krabbe disease, phenylketonuria, and Pompe disease - and to estimate the spillover effects experienced by the parents of infants diagnosed with these disorders. A survey elicited health utilities for the three conditions at varying stages and onset of symptoms. Respondents valued disease specific health states in three question frames: adult, child, and parent spillover state. Results reported that more severe conditions and infant health states received lower estimated utility, and estimates of greater disutility among parents.
AHRQ-funded; HS020644.
Citation: Simon NJ, Richardson J, Ahmad A .
Health utilities and parental quality of life effects for three rare conditions tested in newborns.
J Patient Rep Outcomes 2019 Jan 22;3(1):4. doi: 10.1186/s41687-019-0093-6..
Keywords: Caregiving, Family Health and History, Newborns/Infants, Quality of Life, Screening
Prosser LA, Lamarand K, Gebremariam A
Measuring family HRQoL spillover effects using direct health utility assessment.
The researchers evaluated the loss in health-related quality of life of having a family member with a chronic illness by condition and relationship type. They found that the effects of illness extend beyond the individual patient to include effects on caregivers of patients, parents of ill children, spouses, and other close family and household members. They recommended that cost-effectiveness analyses consider the inclusion of health-related quality of life spillover effects in addition to caregiving time costs incurred by family members of ill individuals.
AHRQ-funded; HS014010.
Citation: Prosser LA, Lamarand K, Gebremariam A .
Measuring family HRQoL spillover effects using direct health utility assessment.
Med Decis Making 2015 Jan;35(1):81-93. doi: 10.1177/0272989x14541328.
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Keywords: Caregiving, Chronic Conditions, Family Health and History, Healthcare Costs, Quality of Life