National Healthcare Quality and Disparities Report
Latest available findings on quality of and access to health care
Data
- Data Infographics
- Data Visualizations
- Data Tools
- Data Innovations
- All-Payer Claims Database
- Healthcare Cost and Utilization Project (HCUP)
- Medical Expenditure Panel Survey (MEPS)
- AHRQ Quality Indicator Tools for Data Analytics
- State Snapshots
- United States Health Information Knowledgebase (USHIK)
- Data Sources Available from AHRQ
Search All Research Studies
AHRQ Research Studies Date
Topics
- Access to Care (3)
- Adverse Drug Events (ADE) (4)
- Adverse Events (14)
- Ambulatory Care and Surgery (5)
- Antibiotics (13)
- Antimicrobial Stewardship (8)
- Anxiety (1)
- Arthritis (9)
- Asthma (5)
- Autism (2)
- Back Health and Pain (3)
- Behavioral Health (10)
- Blood Clots (6)
- Blood Pressure (7)
- Blood Thinners (5)
- Brain Injury (8)
- Burnout (1)
- Cancer (54)
- Cancer: Breast Cancer (29)
- Cancer: Cervical Cancer (1)
- Cancer: Colorectal Cancer (10)
- Cancer: Lung Cancer (6)
- Cancer: Prostate Cancer (8)
- Cardiovascular Conditions (23)
- Caregiving (22)
- Care Management (10)
- Case Study (7)
- Catheter-Associated Urinary Tract Infection (CAUTI) (2)
- Centers for Education and Research on Therapeutics (CERTs) (1)
- Central Line-Associated Bloodstream Infections (CLABSI) (2)
- Children/Adolescents (51)
- Chronic Conditions (31)
- Clinical Decision Support (CDS) (79)
- Clinician-Patient Communication (62)
- Clostridium difficile Infections (2)
- Colonoscopy (1)
- Communication (41)
- Community-Acquired Infections (2)
- Community-Based Practice (2)
- Comparative Effectiveness (13)
- Complementary and Alternative Medicine (2)
- Consumer Assessment of Healthcare Providers and Systems (CAHPS) (1)
- COVID-19 (5)
- Critical Care (12)
- Cultural Competence (3)
- Data (9)
- (-) Decision Making (583)
- Dementia (5)
- Dental and Oral Health (1)
- Depression (5)
- Diabetes (11)
- Diagnostic Safety and Quality (34)
- Dialysis (2)
- Digestive Disease and Health (8)
- Disabilities (4)
- Disparities (8)
- Domestic Violence (1)
- Education: Academic (1)
- Education: Continuing Medical Education (8)
- Education: Patient and Caregiver (35)
- Elderly (44)
- Electronic Health Records (EHRs) (31)
- Electronic Prescribing (E-Prescribing) (1)
- Emergency Department (40)
- Emergency Medical Services (EMS) (13)
- Emergency Preparedness (1)
- Evidence-Based Practice (58)
- Falls (5)
- Family Health and History (1)
- Genetics (12)
- Guidelines (40)
- Healthcare-Associated Infections (HAIs) (8)
- Healthcare Cost and Utilization Project (HCUP) (4)
- Healthcare Costs (22)
- Healthcare Delivery (26)
- Healthcare Utilization (18)
- Health Information Exchange (HIE) (1)
- Health Information Technology (HIT) (85)
- Health Insurance (4)
- Health Literacy (14)
- Health Promotion (2)
- Health Services Research (HSR) (13)
- Health Status (3)
- Health Systems (4)
- Heart Disease and Health (18)
- Hepatitis (1)
- Home Healthcare (4)
- Hospital Discharge (4)
- Hospitalization (5)
- Hospitals (17)
- Human Immunodeficiency Virus (HIV) (2)
- Imaging (27)
- Implementation (8)
- Infectious Diseases (7)
- Influenza (1)
- Injuries and Wounds (3)
- Inpatient Care (7)
- Intensive Care Unit (ICU) (13)
- Kidney Disease and Health (11)
- Labor and Delivery (4)
- Learning Health Systems (2)
- Long-Term Care (7)
- Low-Income (2)
- Maternal Care (1)
- Medicaid (1)
- Medical Devices (5)
- Medical Errors (6)
- Medical Expenditure Panel Survey (MEPS) (2)
- Medication (71)
- Medication: Safety (8)
- Men's Health (4)
- Mortality (7)
- Neonatal Intensive Care Unit (NICU) (2)
- Neurological Disorders (9)
- Newborns/Infants (10)
- Nursing (7)
- Nursing Homes (11)
- Obesity (2)
- Obesity: Weight Management (2)
- Opioids (5)
- Orthopedics (9)
- Osteoporosis (3)
- Outcomes (14)
- Pain (8)
- Palliative Care (6)
- Patient-Centered Healthcare (62)
- Patient-Centered Outcomes Research (53)
- Patient Adherence/Compliance (6)
- Patient and Family Engagement (69)
- Patient Experience (16)
- Patient Safety (45)
- Patient Self-Management (5)
- Payment (1)
- Pneumonia (1)
- Policy (11)
- Practice Patterns (22)
- Pregnancy (13)
- Pressure Ulcers (1)
- Prevention (23)
- Primary Care (29)
- Primary Care: Models of Care (5)
- Provider (16)
- Provider: Clinician (4)
- Provider: Health Personnel (2)
- Provider: Nurse (2)
- Provider: Pharmacist (2)
- Provider: Physician (22)
- Provider Performance (6)
- Public Health (1)
- Public Reporting (4)
- Quality Improvement (10)
- Quality Indicators (QIs) (2)
- Quality Measures (1)
- Quality of Care (29)
- Quality of Life (11)
- Racial and Ethnic Minorities (26)
- Registries (4)
- Rehabilitation (1)
- Research Methodologies (13)
- Respiratory Conditions (13)
- Risk (24)
- Rural Health (1)
- Screening (30)
- Sepsis (1)
- Sexual Health (2)
- Sickle Cell Disease (4)
- Simulation (3)
- Sleep Problems (3)
- Social Determinants of Health (5)
- Social Stigma (4)
- Stroke (8)
- Substance Abuse (4)
- Surgery (61)
- Teams (5)
- Tools & Toolkits (5)
- Training (6)
- Transitions of Care (7)
- Transplantation (16)
- Trauma (3)
- Treatments (6)
- U.S. Preventive Services Task Force (USPSTF) (4)
- Uninsured (1)
- Urban Health (1)
- Urinary Tract Infection (UTI) (4)
- Vaccination (7)
- Vulnerable Populations (8)
- Web-Based (5)
- Women (29)
- Workflow (1)
- Workforce (1)
- Young Adults (2)
AHRQ Research Studies
Sign up: AHRQ Research Studies Email updates
Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
51 to 75 of 583 Research Studies DisplayedKistler CE, Wretman Zimmerman, S S
Overdiagnosis of urinary tract infections by nursing home clinicians versus a clinical guideline.
The purpose of this study was to examine the concordance between clinicians' diagnosis of suspected urinary tract infection (UTI) with a clinical guideline treated as the gold standard, in order to inform overprescribing and antibiotic stewardship in nursing homes. The authors conducted a cross-sectional web-based survey of a national convenience sample of nursing-home clinicians, including a discrete choice experiment with 19 randomly selected scenarios of nursing-home residents with possible UTIs. Responses were compared to the guideline. The results indicated that nursing-home clinicians tend to over-diagnose UTI. The authors concluded that this necessitates systems-based interventions to augment clinical decisionmaking.
AHRQ-funded; HS024519.
Citation: Kistler CE, Wretman Zimmerman, S S .
Overdiagnosis of urinary tract infections by nursing home clinicians versus a clinical guideline.
J Am Geriatr Soc 2022 Apr;70(4):1070-81. doi: 10.1111/jgs.17638..
Keywords: Nursing Homes, Long-Term Care, Urinary Tract Infection (UTI), Guidelines, Diagnostic Safety and Quality, Decision Making
Jacobsohn GC, Leaf M, Liao F
Collaborative design and implementation of a clinical decision support system for automated fall-risk identification and referrals in emergency departments.
The authors used a collaborative and iterative approach to design and implement an automated clinical decision support system (CDS) for Emergency Department (ED) providers to identify and refer older adult ED patients at high risk of future falls. The system was developed using collaborative input from an interdisciplinary design team and integrated seamlessly into existing ED workflows. A key feature of development was the unique combination of patient experience strategies, human-centered design, and implementation science, which allowed for the CDS tool and intervention implementation strategies to be designed simultaneously. Challenges included: usability problems, data inaccessibility, time constraints, low appointment availability, high volume of patients, and others. The study concluded that using the collaborative, iterative approach was successful in achieving all project goals, and could be applied to other cases.
AHRQ-funded; HS024558.
Citation: Jacobsohn GC, Leaf M, Liao F .
Collaborative design and implementation of a clinical decision support system for automated fall-risk identification and referrals in emergency departments.
Healthc 2022 Mar;10(1):100598. doi: 10.1016/j.hjdsi.2021.100598..
Keywords: Elderly, Clinical Decision Support (CDS), Decision Making, Falls, Risk, Emergency Department, Health Information Technology (HIT)
Daley CN, Cornet VP, Toscos TR
Naturalistic decision making in everyday self-care among older adults with heart failure.
The purpose of this study was to explore the role of everyday decision-making on disease outcome in a group of older adults living with heart failure. The researchers describe such decisions as events of naturalistic decision-making which are influenced by factors such as the involvement of others, older adults’ social and physical environments, high stakes of the decision, and shifting goals. The researchers recruited 24 older adults with heart failure and 14 of their support persons from an ambulatory cardiology center, and conducted a qualitative field study. The study utilized a naturalistic decision-making model and critical incident technique to analyze health-related everyday decision making and determine how individuals make everyday health-related decisions. The study found that for various decisions, the decision-making of White, male, older adults aligned with the three phases of a preliminary model of naturalistic decision making: monitoring, interpreting, and acting. The researchers also determined that: health decisions are made in a context of personal variables such as emotions, priorities, and values; other people can play important roles; and the performance of the phases can be affected by barriers and strategies. The study concluded that the findings contribute to an expanded model of naturalistic decision-making with implications for not only future research, but for the design of interventions.
AHRQ-funded; HS025232.
Citation: Daley CN, Cornet VP, Toscos TR .
Naturalistic decision making in everyday self-care among older adults with heart failure.
J Cardiovasc Nurs 2022 Mar-Apr;37(2):167-76. doi: 10.1097/jcn.0000000000000778..
Keywords: Elderly, Patient Self-Management, Decision Making, Heart Disease and Health, Cardiovascular Conditions
Lin E, Uhler LM, Finley EP
Incorporating patient-reported outcomes into shared decision-making in the management of patients with osteoarthritis of the knee: a hybrid effectiveness-implementation study protocol.
This article describes a US-based 2-year, two-site hybrid type 1 study to assess clinical effectiveness and implementation of a machine learning-based patient decision aid integrating patient-reported outcomes and clinical variables to support shared decision-making for patients with knee osteoarthritis considering total knee replacement. Study results will be disseminated through conference presentations, publications and professional societies.
AHRQ-funded; HS027037.
Citation: Lin E, Uhler LM, Finley EP .
Incorporating patient-reported outcomes into shared decision-making in the management of patients with osteoarthritis of the knee: a hybrid effectiveness-implementation study protocol.
BMJ Open 2022 Feb 21;12(2):e055933. doi: 10.1136/bmjopen-2021-055933..
Keywords: Clinical Decision Support (CDS), Decision Making, Arthritis, Patient-Centered Outcomes Research, Orthopedics, Health Information Technology (HIT), Evidence-Based Practice
Reese TJ, Schlechter CR, Kramer H
Implementing lung cancer screening in primary care: needs assessment and implementation strategy design.
This study explored the implementation of lung cancer screening with low-dose computed tomography (CT) in primary care. The study’s two goals included exploring the implementation of lung cancer screening primary care in the context of integrating a decision aid into the electronic health record and a designing of implementation strategies that target hypothesized mechanics of change and context-specific barriers. The two phases included a Qualitative Analysis phase including semi-structured interviews with primary care physicians to elicit key task behaviors, and an Implementation Strategy Design phase consisting of defining implementation strategies and hypothesizing causal pathways to improve screening with a decision aid. Fourteen interviews were conducted and out of that 3 key task behaviors and four behavioral determinants emerged. Strategies included increasing provider self-efficacy toward performing shared decision making and using the decision aid, improving provider performance expectancy, increasing social influence, and addressing key facilitators to using the decision aid.
AHRQ-funded; HS026198.
Citation: Reese TJ, Schlechter CR, Kramer H .
Implementing lung cancer screening in primary care: needs assessment and implementation strategy design.
Transl Behav Med 2022 Feb 16;12(2):187-97. doi: 10.1093/tbm/ibab115..
Keywords: Cancer: Lung Cancer, Cancer, Primary Care, Screening, Implementation, Decision Making
Chen MM, Hughes TM, Dossett LA
Peace of mind: a role in unnecessary care?
This article discusses the role peace of mind plays in unnecessary cancer preventative care, including unnecessary screenings and surgeries. For example, shared-decision making is recommended by the USPSTF for PSA-based screening but if the decision to screen is emotion-based, then shared decision-making guidelines may not be effective. A number of studies have shown that peace of mind has been implicated as a key patient-centered outcome driving the increased utilization of contralateral prophylactic mastectomy (CPM). Overdiagnosis and overtreating of thyroid cancer have resulted in an accelerating rate of total thyroidectomies relative to lobectomies for small papillary cancers in the past decade even though there is no evidence showing better survival rates. Quality-of-life studies have not shown better outcomes to patients who do chose the more radical treatment. The authors recommend that clinicians undergo training in cognitive debiasing strategies and more training in empathic communication and risk communication techniques to decrease the potential negative influence of peace of mind.
AHRQ-funded; HS026030.
Citation: Chen MM, Hughes TM, Dossett LA .
Peace of mind: a role in unnecessary care?
J Clin Oncol 2022 Feb 10;40(5):433-37. doi: 10.1200/jco.21.01895..
Keywords: Patient-Centered Healthcare, Decision Making, Cancer
Schuttner L, Hockett Sherlock S, Simons C
Factors affecting primary care physician decision-making for patients with complex multimorbidity: a qualitative interview study.
Researchers sought to describe factors affecting physician decision-making when care planning for complex patients with multimorbidity within the team-based, patient-centered medical home setting in the integrated healthcare system of the U.S. Department of Veterans Affairs, the Veterans Health Administration (VHA). They found that primary care physicians described internal, external, and relationship-based factors that affected their care planning for high-risk and complex patients with multimorbidity in the VHA.
AHRQ-funded; HS026369.
Citation: Schuttner L, Hockett Sherlock S, Simons C .
Factors affecting primary care physician decision-making for patients with complex multimorbidity: a qualitative interview study.
BMC Prim Care 2022 Feb 5;23(1):25. doi: 10.1186/s12875-022-01633-x..
Keywords: Primary Care, Decision Making, Chronic Conditions, Patient-Centered Healthcare
Graber J, Lockhart S, Matlock DD
"This is not negotiable. You need to do this…": a directed content analysis of decision making in rehabilitation after knee arthroplasty.
In this qualitative study, researchers sought to understand patients' and physical therapists' perspectives related to decision making during outpatient rehabilitation after total knee arthroplasty (TKA) and further to describe potential barriers and opportunities for shared decision making (SDM) in this setting. They found that physical therapists described using decision-making strategies with varying levels of patient involvement, while both patients and physical therapists described barriers to routine use of SDM in the outpatient setting. They also presented actionable strategies for overcoming these barriers for providers and organizations seeking consistently to use SDM in outpatient TKA rehabilitation.
AHRQ-funded; HS025692.
Citation: Graber J, Lockhart S, Matlock DD .
"This is not negotiable. You need to do this…": a directed content analysis of decision making in rehabilitation after knee arthroplasty.
J Eval Clin Pract 2022 Feb;28(1):99-107. doi: 10.1111/jep.13591..
Keywords: Decision Making, Rehabilitation, Orthopedics, Surgery, Patient-Centered Healthcare
Kunneman M, Branda ME, Ridgeway JL
Making sense of diabetes medication decisions: a mixed methods cluster randomized trial using a conversation aid intervention.
The purpose of this trial was to determine the effectiveness of a shared decision-making (SDM) tool versus guideline-informed usual care in translating evidence into primary care, and to explore how use of the tool changed patient perspectives about diabetes medication decision making. Findings showed that using an SDM conversation aid improved patient knowledge and involvement in SDM without impacting treatment choice, encounter length, medication adherence, or improved diabetes control in patients with type 2 diabetes.
AHRQ-funded; HS018339.
Citation: Kunneman M, Branda ME, Ridgeway JL .
Making sense of diabetes medication decisions: a mixed methods cluster randomized trial using a conversation aid intervention.
Endocrine 2022 Feb;75(2):377-91. doi: 10.1007/s12020-021-02861-4..
Keywords: Diabetes, Medication, Decision Making, Patient-Centered Healthcare, Clinician-Patient Communication, Chronic Conditions
Rao BR, Merchant FM, Abernethy ER
The impact of government-mandated shared decision-making for implantable defibrillators: a natural experiment.
This study examined the impact of the 2018 Centers for Medicare and Medicaid Services (CMS) mandate that patients considering implantation of an implantable cardioverter-defibrillator (ICD) for primary prevention of sudden cardiac death undergo shared decision-making (SDM) using a decision-aid. The authors surveyed patients who underwent implantation of a primary prevention ICD within the Emory Healthcare system between 2017-2019 (pre and post SDM mandate). Survey domains included decisional conflict, knowledge about the ICD, values-choice concordance, and engagement in decision-making. Of 101 patients who completed the survey, 45 had an ICD placed before the mandate and 56 placed after. No major differences were found between any of the survey domains. Patients with ICDs after the mandate were more likely to subjectively feel more informed about the benefits of the procedure but were less likely to be able to correctly identify the frequency of complications.
AHRQ-funded; HS028558.
Citation: Rao BR, Merchant FM, Abernethy ER .
The impact of government-mandated shared decision-making for implantable defibrillators: a natural experiment.
Pacing Clin Electrophysiol 2022 Feb; 45(2):274-80. doi: 10.1111/pace.14414..
Keywords: Decision Making, Medical Devices, Policy, Cardiovascular Conditions
Dossett LA, Mott NM, Bredbeck BC
Using tailored messages to target overuse of Low-Value breast cancer care in older women.
The purpose of this study was to examine the role that an individual’s maximizing-minimizing trait, an inherent preference for more or less medical care, may influence the preference for low-value care in the omission of sentinel lymph node biopsy (SLNB) and post-lumpectomy radiotherapy in women 70 years of age or higher with early-stage, hormone-receptor positive invasive breast cancer. The researchers recruited women 70 years of age or higher (n=1600) who were maximizers (515), minimizers (550), or neutral (535), and presented them with a hypothetical breast cancer diagnosis and then randomized exposure to one of three follow-up messages. Messages included: 1) maximizer-tailored, 2) minimizer-tailored, or 3) neutral. The study reported that higher maximizing tendency correlated positively with electing both SLNB and radiotherapy on logistic regression. Any maximizer- or minimizer-tailoring decreased preference for SLNB in maximizing and neutral women but had no effect in minimizing women. Tailoring had no impact on radiotherapy decision, except for an increased probability of minimizers electing radiotherapy when presented with maximizer-tailored messaging. The study concluded that among women facing a hypothetical breast cancer diagnosis, tendencies for maximizing-minimizing are correlated with preferences for treatment.
AHRQ-funded; HS026030.
Citation: Dossett LA, Mott NM, Bredbeck BC .
Using tailored messages to target overuse of Low-Value breast cancer care in older women.
J Surg Res 2022 Feb;270:503-12. doi: 10.1016/j.jss.2021.10.005..
Keywords: Elderly, Cancer: Breast Cancer, Cancer, Women, Decision Making, Clinician-Patient Communication, Communication
Rosenthal M, Poling J, Wec A
"Medication is just one piece of the whole puzzle": how nursing homes change their use of antipsychotic medications.
This article investigated health professionals’ experiences with decision-making during changes under the National Partnership to Improve Dementia Care in Nursing Homes and its companion coalitions. These programs were introduced in 2012 for the purpose of encouraging reductions in antipsychotic use and increasing use of nonpharmacological treatments for dementia. Interviews were conducted with 40 nursing home physicians and staff in seven states. The authors found that reducing antipsychotics is more time and resource-intensive than relying on medication. However, respondents supported reductions in antipsychotic use. They indicated that with supported staffing, effective communications, and training, they could create or implement individualized treatments.
AHRQ-funded; HS023464.
Citation: Rosenthal M, Poling J, Wec A .
"Medication is just one piece of the whole puzzle": how nursing homes change their use of antipsychotic medications.
J Appl Gerontol 2022 Jan;41(1):62-72. doi: 10.1177/0733464820958919..
Keywords: Elderly, Medication, Nursing Homes, Dementia, Neurological Disorders, Long-Term Care, Decision Making
Chrenka EA, Solberg LI, Asche SE
Is shared decision-making associated with better patient-reported outcomes? A longitudinal study of patients undergoing total joint arthroplasty.
This study examined whether shared decision making (SDM) provides better outcomes using patients undergoing total joint arthroplasty as a test case. This observational longitudinal survey-based study surveyed patients receiving an initial THA or TKA from a large, multispecialty medical group in the Midwestern United States after they were scheduled for surgery and again at 12 months after their procedure. The majority of included patients were white (1255 of 1344) with only 3% using Medicaid benefits at the time of surgery. The three-item collaboRATE measure of SDM was added to existing patient surveys of patient-reported outcome measures (PROMs). Patient responses were analyzed in regression models to estimate the association between preoperative collaborate scores and Oxford knee or hip scores at 12 months postoperatively. There was a moderate, positive association between preoperative collaborate scores and the Oxford scores at 12 months. The association suggests that SDM could be one tool to encourage better outcomes.
AHRQ-funded; HS025618.
Citation: Chrenka EA, Solberg LI, Asche SE .
Is shared decision-making associated with better patient-reported outcomes? A longitudinal study of patients undergoing total joint arthroplasty.
Clin Orthop Relat Res 2022 Jan;480(1):82-91. doi: 10.1097/corr.0000000000001920..
Keywords: Decision Making, Patient-Centered Outcomes Research, Orthopedics, Surgery
Natarajan E, Florin TA, Constantinou C
What is the role of shared decision-making with parents of children with bronchiolitis?
The authors sought to study shared decision making (SDM) with parents of children with bronchiolitis. They discussed challenges to implementation and indicated that use of SDM with parents of children with bronchiolitis can improve patient-centered care by aligning medical decisions with informed parents’ values and preferences.
AHRQ-funded; HS026006.
Citation: Natarajan E, Florin TA, Constantinou C .
What is the role of shared decision-making with parents of children with bronchiolitis?
Hosp Pediatr 2022 Jan;12(1):e50-e53. doi: 10.1542/hpeds.2021-006245.
.
.
Keywords: Children/Adolescents, Decision Making, Respiratory Conditions
Kennedy EE, Bowles KH, Aryal S
Systematic review of prediction models for postacute care destination decision-making.
This article reported a systematic review of studies containing development and validation of models predicting post-acute care destination after adult inpatient hospitalization, summarized clinical populations and variables, evaluated model performance, assessed risk of bias and applicability, and made recommendations to reduce bias in future models. Findings indicated that prediction modeling studies for post-acute care destinations were becoming more prolific in the literature, but model development and validation strategies were inconsistent, and performance was variable. Most models were developed using regression, but machine learning methods were increasing in frequency.
AHRQ-funded; HS026599; HS027742.
Citation: Kennedy EE, Bowles KH, Aryal S .
Systematic review of prediction models for postacute care destination decision-making.
J Am Med Inform Assoc 2021 Dec 28;29(1):176-86. doi: 10.1093/jamia/ocab197..
Keywords: Decision Making, Transitions of Care
Ibemere SO, Tanabe P, Bonnabeau E
Awareness and use of the sickle cell disease toolbox by primary care providers in North Carolina.
The authors developed a decision support tool for sickle cell disease (SCD) for SCD management (SCD Toolbox) based on the National Heart, Lung, and Blood Institute's SCD guidelines. Using data from primary care providers (PCPs) in North Carolina, they found that PCPs rarely co-managed with a specialist, had low awareness and use of the SCD Toolbox, and requested multiple formats for the toolbox.
AHRQ-funded; HS024501.
Citation: Ibemere SO, Tanabe P, Bonnabeau E .
Awareness and use of the sickle cell disease toolbox by primary care providers in North Carolina.
J Prim Care Community Health 2021 Jan-Dec;12:21501327211049050. doi: 10.1177/21501327211049050..
Keywords: Sickle Cell Disease, Primary Care, Chronic Conditions, Decision Making, Evidence-Based Practice
Greenberg JK, Ahluwalia R, Hill M
Development and external validation of the KIIDS-TBI tool for managing children with mild traumatic brain injury and intracranial injuries.
This study's objectives were to develop a new risk model with improved sensitivity compared to the CHIIDA model for the post-neuroimaging management of children with mild traumatic brain injuries (mTBI) and intracranial injuries and further to validate externally the new model and CHIIDA model in a multicenter data set. Findings showed that the KIIDS-TBI model had high sensitivity and moderate specificity for risk stratifying children with mTBI and intracranial injuries. The researchers concluded that the use of their clinical decision support tool may help improve the safe, resource-efficient management of this important patient population.
AHRQ-funded; HS027075.
Citation: Greenberg JK, Ahluwalia R, Hill M .
Development and external validation of the KIIDS-TBI tool for managing children with mild traumatic brain injury and intracranial injuries.
Acad Emerg Med 2021 Dec;28(12):1409-20. doi: 10.1111/acem.14333..
Keywords: Children/Adolescents, Brain Injury, Clinical Decision Support (CDS), Decision Making, Health Information Technology (HIT)
Aronson PL, Schaeffer P, Niccolai LM
Parents' perspectives on communication and shared decision making for febrile infants ≤60 days old.
This study examined parents’ perceptions of receiving and understanding information in the emergency department (ED) and their perspectives on shared decision making (SDM) in the management of febrile infants 60 days of age or less. The authors conducted semistructured interviews with 23 parents of febrile infants ≤60 days old evaluated in the pediatric ED at an urban, academic medical center. Themes for parents’ perspectives on SDM included: 1) giving parents the opportunity to express their opinions and concerns builds confidence in the decision making process, 2) parents’ preferences for participation in decision making vary considerably, and 3) different perceptions about risk influence parents’ preferences about having their infant undergo a lumbar puncture (LP). Parents valued risk and benefits of having their infant undergo an LP differently, which influences their preferences.
AHRQ-funded; HS026006.
Citation: Aronson PL, Schaeffer P, Niccolai LM .
Parents' perspectives on communication and shared decision making for febrile infants ≤60 days old.
Pediatr Emerg Care 2021 Dec;37(12):e1213-e19. doi: 10.1097/pec.0000000000001977..
Keywords: Newborns/Infants, Clinician-Patient Communication, Communication, Decision Making, Emergency Department
Rao BR, Merchant FM, Howard DH
Shared decision-making for implantable cardioverter-defibrillators: policy goals, metrics, and challenges.
Researchers discussed shared decision-making for implantable cardioverter-defibrillators (ICDs), including the results from a case study implementing the shared decision-making mandate for ICDs, which involved providing patients with decision aids prior to or following the doctor consultation.
AHRQ-funded; HS028558.
Citation: Rao BR, Merchant FM, Howard DH .
Shared decision-making for implantable cardioverter-defibrillators: policy goals, metrics, and challenges.
J Law Med Ethics 2021 Win;49(4):622-29. doi: 10.1017/jme.2021.85..
Keywords: Decision Making, Medical Devices, Policy, Cardiovascular Conditions
Xiong KZ, Shah S, Stone JA
Using a scenario-based hybrid approach to understand participant health behavior.
This study described a scenario-based hybrid approach that included a simulation exercise and a situational interview to understand how older adults first select and then take OTC medication. The authors concluded that the scenario-based hybrid approach not only yielded detailed information about behavior, but also allowed investigators to discern participants' decision-making, influences, and the rationales they used when selecting and taking OTC medications.
AHRQ-funded; HS024490.
Citation: Xiong KZ, Shah S, Stone JA .
Using a scenario-based hybrid approach to understand participant health behavior.
Res Social Adm Pharm 2021 Dec;17(12):2070-74. doi: 10.1016/j.sapharm.2021.02.020..
Keywords: Elderly, Medication, Decision Making
Morris AO, Gilson A, Chui MA
Utilizing a cognitive engineering approach to conduct a hierarchical task analysis to understand complex older adult decision-making during over-the-counter medication selection.
This study characterized older adults' cognitive decision-making process when seeking to self-medicate with over-the-counter (OTC) medications from their community pharmacy, and demonstrated how hierarchical task analysis (HTA) can be used to evaluate a pharmacy intervention's impact on their decision-making. Findings showed that, while selecting an OTC, older adults considered quantity, cost, form, regimen, safety, strength, appropriateness of OTC safety, generic/name-brand, past experiences, and ingredients. The study intervention reduced by half the number of factors considered. Findings suggested that HTA-informed decision profiles may provide pharmacists with critical insights into safety issues that older adults may not be considering so that pharmacists can support their decision-making.
AHRQ-funded; HS024490.
Citation: Morris AO, Gilson A, Chui MA .
Utilizing a cognitive engineering approach to conduct a hierarchical task analysis to understand complex older adult decision-making during over-the-counter medication selection.
Res Social Adm Pharm 2021 Dec;17(12):2116-26. doi: 10.1016/j.sapharm.2021.07.005..
Keywords: Elderly, Decision Making, Medication
Fowler FJ, Sepucha KR, Stringfellow V
Validation of the SDM Process scale to evaluate shared decision-making at clinical sites.
The Shared Decision-Making (SDM) Process scale utilizes 4 questions about decision-making behaviors: discussion of options, pros, cons, and preferences. The purpose of this study was to utilize data from mail surveys of patients who made surgical decisions at nine clinical sites and a national web survey to evaluate the reliability and validity of this measure for assessing shared decision-making at clinical sites. The study found that patients at sites employing decision aids to promote shared decision-making for surgeries involving the hip, knee, back, or breast cancer exhibited significantly higher scores compared to national cross-section samples of surgical patients in three of the four comparisons and significantly higher scores in both comparisons with "usual care sites". The reliability was demonstrated by an intra-class correlation of 0.93 at the clinical site level and an average correlation of SDM scores for knee and hip surgery patients treated at the same sites of 0.56.
AHRQ-funded; HS025718.
Citation: Fowler FJ, Sepucha KR, Stringfellow V .
Validation of the SDM Process scale to evaluate shared decision-making at clinical sites.
J Patient Exp 2021 Nov 26; 8:23743735211060811. doi: 10.1177/23743735211060811..
Keywords: Decision Making, Patient-Centered Healthcare
Whitebird RR, Solberg LI, Ziegenfuss JY
Personalized outcomes for hip and knee replacement: the patients point of view.
Patient reported outcome measures (PROMs) are increasingly being incorporated into clinical and surgical care for assessing outcomes. This study examined outcomes important to patients in their decision to have hip or knee replacement surgery, their perspectives on PROMs and shared decision-making, and factors they considered important for postoperative care.
AHRQ-funded; HS025618.
Citation: Whitebird RR, Solberg LI, Ziegenfuss JY .
Personalized outcomes for hip and knee replacement: the patients point of view.
J Patient Rep Outcomes 2021 Nov 4;5(1):116. doi: 10.1186/s41687-021-00393-z..
Keywords: Orthopedics, Surgery, Patient-Centered Outcomes Research, Patient Experience, Decision Making
Chartash D, Sharifi M, Emerson B
Documentation of shared decisionmaking in the emergency department.
Patient-centered communication and shared decision making is a vital element of clinical practice, but little is known about its impact or value in the emergency department (ED) setting. The researchers of this study developed a natural language processing tool using regular expressions to identify shared decision making, patient-centered communications, and to describe visit-, site-, and temporal-level patterns within a large health system. The study took place in two parts: part 1 was the development and validation of the natural language processing tool, and part 2 was a retrospective analysis of shared decision making and patient discussion using the processing tool to assess ED physician and advanced practitioner documentation from 2013 to 2020. Compared to chart review of 600 ED notes, the accuracy rates of the natural language processing tool were 96.7% and 88.9% respectively. Between 2013 to 2020 the researchers observed greater likelihood of shared decision-making documentation among physicians vs advanced practice providers, higher likelihood among female vs male patients, and lower likelihood of shared decision-making in Black patients compared with White patients. The researchers also found that patient discussion and shared decision-making were associated with higher levels of commercial insurance status and level of triage. The study concluded that a natural language processing tool was developed, validated, and utilized to identify incidences of shared decision making from ED documentation, with the researchers finding multiple possible factors which contribute to variation in shared decision making.
AHRQ-funded; HS025701.
Citation: Chartash D, Sharifi M, Emerson B .
Documentation of shared decisionmaking in the emergency department.
Ann Emerg Med 2021 Nov;78(5):637-49. doi: 10.1016/j.annemergmed.2021.04.038..
Keywords: Decision Making, Emergency Department, Patient-Centered Healthcare, Electronic Health Records (EHRs), Health Information Technology (HIT)
Shipe ME, Baechle JJ, Deppen SA
Modeling the impact of delaying surgery for early esophageal cancer in the era of COVID-19.
Surgical society guidelines have recommended changing the treatment strategy for early esophageal cancer during the novel coronavirus (COVID-19) pandemic. Delaying resection can allow for interim disease progression, but the impact of this delay on mortality is unknown. The COVID-19 infection rate at which immediate operative risk exceeds benefit is unknown. In this study, the investigators sought to model immediate versus delayed surgical resection in a T1b esophageal adenocarcinoma.
AHRQ-funded; HS026122.
Citation: Shipe ME, Baechle JJ, Deppen SA .
Modeling the impact of delaying surgery for early esophageal cancer in the era of COVID-19.
Surg Endosc 2021 Nov;35(11):6081-88. doi: 10.1007/s00464-020-08101-6..
Keywords: COVID-19, Cancer, Surgery, Decision Making, Risk