National Healthcare Quality and Disparities Report
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
51 to 73 of 73 Research Studies DisplayedCrossman MK, Warfield ME, Kotelchuck M
Associations between early intervention home visits, family relationships and competence for mothers of children with developmental disabilities.
The researchers examined the association between intensity of home visits in early intervention (EI), perceived helpfulness of home visits in EI, and positive family relationships as predictors of maternal competence at age 3, as well as moderating effects of predictors, controlling for child characteristics, family demographics, and negative life events. They found that the intensity of home visits was not significantly associated with maternal competence at age 3.
AHRQ-funded; HS000063.
Citation: Crossman MK, Warfield ME, Kotelchuck M .
Associations between early intervention home visits, family relationships and competence for mothers of children with developmental disabilities.
Matern Child Health J 2018 Apr;22(4):599-607. doi: 10.1007/s10995-018-2429-x.
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Keywords: Children/Adolescents, Disabilities, Family Health and History, Patient and Family Engagement
Lindly O, Thorburn S, Zuckerman K
Use and nondisclosure of complementary health approaches among US children with developmental disabilities.
The researchers aimed to profile the use and nondisclosure of complementary health approaches (CHAs) among US children with developmental disabilities (DDs). They found that nearly one-quarter (23 percent) of US children with DDs used CHAs. Among those with a personal health provider, 42 percent of parents did not disclose some or all CHAs used to the child's provider.
AHRQ-funded; HS000063.
Citation: Lindly O, Thorburn S, Zuckerman K .
Use and nondisclosure of complementary health approaches among US children with developmental disabilities.
J Dev Behav Pediatr 2018 Apr;39(3):217-27. doi: 10.1097/dbp.0000000000000536.
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Keywords: Children/Adolescents, Complementary and Alternative Medicine, Decision Making, Disabilities
Lewis AH, Chugh A, Sobotka SA
Behavioral outbursts in a child with a deletion syndrome, generalized epilepsy, global developmental delay, and failure to thrive.
This paper presents the case of a 7-year-old girl with 20q13.33 deletion and a history of generalized convulsive epilepsy who presented to the Developmental and Behavioral Pediatrics Clinic due to concerns about her behavioral outbursts in the context of overall delayed development.
AHRQ-funded; HS023007.
Citation: Lewis AH, Chugh A, Sobotka SA .
Behavioral outbursts in a child with a deletion syndrome, generalized epilepsy, global developmental delay, and failure to thrive.
Pediatr Ann 2018 Mar;47(3):e130-e34. doi: 10.3928/19382359-20180223-01..
Keywords: Case Study, Children/Adolescents, Disabilities, Genetics, Neurological Disorders
Graham JE, Middleton A, Roberts P
Health services research in rehabilitation and disability-the time is now.
In this Special Communication, the authors discuss the role of rehabilitation researchers in health services research (HSR). They also provide information on current resources available in our field for conducting HSR and identify gaps for capacity building and future research. Health care reforms are a reality, and through HSR, researchers can give rehabilitation a strong voice during these transformative times.
AHRQ-funded; HS022134.
Citation: Graham JE, Middleton A, Roberts P .
Health services research in rehabilitation and disability-the time is now.
Arch Phys Med Rehabil 2018 Jan;99(1):198-203. doi: 10.1016/j.apmr.2017.06.026.
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Keywords: Disabilities, Health Services Research (HSR), Patient-Centered Healthcare, Rehabilitation
Magnusson DM, Minkovitz CS, Kuhlthau KA
AHRQ Author: Mistry KB
Beliefs regarding development and early intervention among low-income African American and Hispanic mothers.
This study sought to understand the role of health beliefs in shaping maternal decisions regarding help-seeking for children with developmental delay (DD) and explore differences between African American and Hispanic mothers. Five major themes emerged describing the role of maternal health beliefs in shaping key stages of the help-seeking pathway for children with DD. Differences between African American and Hispanic mothers are also described.
AHRQ-authored.
Citation: Magnusson DM, Minkovitz CS, Kuhlthau KA .
Beliefs regarding development and early intervention among low-income African American and Hispanic mothers.
Pediatrics 2017 Nov;140(5):pii: e20172059. doi: 10.1542/peds.2017-2059.
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Keywords: Children/Adolescents, Decision Making, Disabilities, Low-Income, Racial and Ethnic Minorities
Ing C, Wall MM, DiMaggio CJ
Latent class analysis of neurodevelopmental deficit after exposure to anesthesia in early childhood.
Although some studies have reported an association between early exposure to anesthesia and surgery and long-term neurodevelopmental deficit, the clinical phenotype of children exposed to anesthesia is still unknown. This study’s results suggest that in evaluating children exposed to surgery and anesthesia at an early age, the phenotype of interest may be children with deficits primarily in language and cognition, and not children with broad neurodevelopmental delay or primarily behavioral deficits.
AHRQ-funded; HS022941.
Citation: Ing C, Wall MM, DiMaggio CJ .
Latent class analysis of neurodevelopmental deficit after exposure to anesthesia in early childhood.
J Neurosurg Anesthesiol 2017 Jul;29(3):264-73. doi: 10.1097/ana.0000000000000303.
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Keywords: Adverse Drug Events (ADE), Children/Adolescents, Disabilities, Medication, Patient Safety
Horner-Johnson W, Kulkarni-Rajasekhara S, Darney BG
Live birth, miscarriage, and abortion among U.S. women with and without disabilities.
Researchers compared proportions of live birth, miscarriage, and abortion among women with basic action difficulties, women with complex activity limitations, and women without disabilities in a nationally representative sample. They found few differences between women with and without disabilities, and good likelihood of live birth among women with disabilities experiencing pregnancy.
AHRQ-funded; HS022981.
Citation: Horner-Johnson W, Kulkarni-Rajasekhara S, Darney BG .
Live birth, miscarriage, and abortion among U.S. women with and without disabilities.
Disabil Health J 2017 Jul;10(3):382-86. doi: 10.1016/j.dhjo.2017.02.006.
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Keywords: Disabilities, Labor and Delivery, Medical Expenditure Panel Survey (MEPS), Pregnancy
Horner-Johnson W, Biel FM, Darney BG
Time trends in births and cesarean deliveries among women with disabilities.
This study assessed time trends in births by any mode and in primary cesarean deliveries among women with physical, sensory, or intellectual/developmental disabilities. Among all women giving birth, the proportion with a disability increased from 0.27 percent in 2000 to 0.80 percent in 2010. Women with disabilities had significantly elevated odds of primary cesarean delivery in each year, but the magnitude of the odds ratio decreased over time.
AHRQ-funded; HS022981.
Citation: Horner-Johnson W, Biel FM, Darney BG .
Time trends in births and cesarean deliveries among women with disabilities.
Disabil Health J 2017 Jul;10(3):376-81. doi: 10.1016/j.dhjo.2017.02.009.
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Keywords: Disabilities, Labor and Delivery, Pregnancy
Darney BG, Biel FM, Quigley BP
Primary cesarean delivery patterns among women with physical, sensory, or intellectual disabilities.
This study sought to determine whether physical, sensory, or intellectual and developmental disabilities are independently associated with primary cesarean delivery. It found that women across disability subgroups have higher odds of cesarean delivery, and there is heterogeneity by disability type.
AHRQ-funded; HS022981.
Citation: Darney BG, Biel FM, Quigley BP .
Primary cesarean delivery patterns among women with physical, sensory, or intellectual disabilities.
Womens Health Issues 2017 May - Jun;27(3):336-44. doi: 10.1016/j.whi.2016.12.007.
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Keywords: Disabilities, Labor and Delivery, Patient-Centered Outcomes Research, Pregnancy, Women
Meddings J, Reichert H, Smith SN
The impact of disability and social determinants of health on condition-specific readmissions beyond Medicare risk adjustments: a cohort study.
This study assessed the impact of disability and social determinants of health on condition-specific readmissions beyond current risk adjustment. Outcomes measured were readmissions </=30 days after hospitalizations for pneumonia, heart failure, or acute myocardial infarction. The study concluded that disability and social determinants of health influence readmission risk when added to the current Medicare risk adjustment models, but the effect varies by condition.
AHRQ-funded; HS018334.
Citation: Meddings J, Reichert H, Smith SN .
The impact of disability and social determinants of health on condition-specific readmissions beyond Medicare risk adjustments: a cohort study.
J Gen Intern Med 2017 Jan;32(1):71-80. doi: 10.1007/s11606-016-3869-x.
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Keywords: Disabilities, Hospital Readmissions, Outcomes, Social Determinants of Health
Coyle CE, Putman M, Kramer J
The role of aging and disability resource centers in serving adults aging with intellectual disabilities and their families: findings from seven states.
The purpose of this project was to assess the activities of aging and disability resource centers (ADRCs) as they seek to serve older adults with intellectual disabilities and their family caregivers. Results of this qualitative analysis indicate that ADRCs are not focusing explicitly on adults aging with intellectual and developmental disabilities and their family caregivers.
AHRQ-funded; HS017589.
Citation: Coyle CE, Putman M, Kramer J .
The role of aging and disability resource centers in serving adults aging with intellectual disabilities and their families: findings from seven states.
J Aging Soc Policy 2016;28(1):1-14. doi: 10.1080/08959420.2015.1096142.
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Keywords: Caregiving, Disabilities, Elderly, Long-Term Care
Barile JP, Horner-Johnson W, Krahn G
Measurement characteristics for two health-related quality of life measures in older adults: the SF-36 and the CDC Healthy Days items.
This study assessed the extent to which the SF-36 and the Centers for Disease Control and Prevention (CDC) Healthy Days items measure the same aspects of health. It found that the CDC Healthy Days items measure similar domains as the SF-36 but appear to assess health-related quality of life without regard to limitations in functioning.
AHRQ-funded; HS022981.
Citation: Barile JP, Horner-Johnson W, Krahn G .
Measurement characteristics for two health-related quality of life measures in older adults: the SF-36 and the CDC Healthy Days items.
Disabil Health J 2016 Oct;9(4):567-74. doi: 10.1016/j.dhjo.2016.04.008.
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Keywords: Disabilities, Elderly, Health Status, Quality of Life
Carmody D, Pastore AN, Landmeier KA
Patients with KCNJ11-related diabetes frequently have neuropsychological impairments compared with sibling controls.
This study compared neurodevelopmental outcomes in patients with KCNJ11 mutations and their sibling controls. It found that patients with KCNJ11-related diabetes without global developmental delay had significant differences compared with sibling controls on a range of assessments including IQ, measures of academic achievement and executive function.
AHRQ-funded; HS023007.
Citation: Carmody D, Pastore AN, Landmeier KA .
Patients with KCNJ11-related diabetes frequently have neuropsychological impairments compared with sibling controls.
Diabet Med 2016 Oct;33(10):1380-6. doi: 10.1111/dme.13159.
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Keywords: Children/Adolescents, Diabetes, Disabilities, Neurological Disorders, Newborns/Infants
Horner-Johnson W, Dobbertin K
Dental insurance and dental care among working-age adults: differences by type and complexity of disability.
The purpose of this study was to examine differences in dental insurance, receipt of dental checkups, and delayed and unmet needs for dental care by type and complexity of disability. It found that all disability types except hearing had significantly higher adjusted odds of being without dental insurance, as did people with complex activity limitations. Further, disparities in care were apparent even when controlling for presence of dental insurance.
AHRQ-funded; HS022981.
Citation: Horner-Johnson W, Dobbertin K .
Dental insurance and dental care among working-age adults: differences by type and complexity of disability.
J Public Health Dent 2016 Sep;76(4):330-39. doi: 10.1111/jphd.12160.
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Keywords: Access to Care, Dental and Oral Health, Disabilities, Health Insurance, Medical Expenditure Panel Survey (MEPS)
Navarra AM, Schlau R, Murray M
Assessing nursing care needs of children with complex medical conditions: The Nursing-Kids Intensity of Care Survey (N-KICS).
The researchers designed and tested the Nursing-Kids Intensity of Care Survey (N-KICS) tool and describe intensity of nursing care for children with complex medical conditions. Their psychometric evaluation confirmed an acceptable standard for reliability and validity and feasibility. Intensity scores were highest for nursing care related to infection control, medication administration, nutrition, diaper changes, hygiene, neurological and respiratory support, and standing program.
AHRQ-funded; HS021470.
Citation: Navarra AM, Schlau R, Murray M .
Assessing nursing care needs of children with complex medical conditions: The Nursing-Kids Intensity of Care Survey (N-KICS).
J Pediatr Nurs 2016 May-Jun;31(3):299-310. doi: 10.1016/j.pedn.2015.11.012.
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Keywords: Children/Adolescents, Chronic Conditions, Disabilities, Long-Term Care, Nursing, Vulnerable Populations
Johnco C, Lewin AB, Salloum A
Adverse prenatal, perinatal and neonatal experiences in children with anxiety disorders.
The authors examined the incidence of adverse prenatal, perinatal, and neonatal experiences among children with anxiety disorders. They found several associations between neonatal complications and subsequent clinical symptomology, including attention deficit hyperactivity disorder and depressive comorbidity, anxiety severity and functional impairment.
AHRQ-funded; HS018665.
Citation: Johnco C, Lewin AB, Salloum A .
Adverse prenatal, perinatal and neonatal experiences in children with anxiety disorders.
Child Psychiatry Hum Dev 2016 Apr;47(2):317-25. doi: 10.1007/s10578-015-0569-4.
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Keywords: Anxiety, Children/Adolescents, Disabilities, Pregnancy
Horner-Johnson W, Darney BG, Kulkarni-Rajasekhara S
Pregnancy among US women: differences by presence, type, and complexity of disability.
The purpose of this study was to describe the occurrence of pregnancy among women with various types of disability and with differing levels of disability complexity, compared with women without disabilities, in a nationally representative sample. Women with the most complex disabilities (those that impact activities such as self-care and work) were less likely to have been pregnant, but women whose disabilities affected only basic actions did not differ significantly from women with no disabilities.
AHRQ-funded; HS022981.
Citation: Horner-Johnson W, Darney BG, Kulkarni-Rajasekhara S .
Pregnancy among US women: differences by presence, type, and complexity of disability.
Am J Obstet Gynecol 2016 Apr;214(4):529.e1-9. doi: 10.1016/j.ajog.2015.10.929.
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Keywords: Disabilities, Medical Expenditure Panel Survey (MEPS), Pregnancy, Women
Okumura MJ, Saunders M, Rehm RS
The role of health advocacy in transitions from pediatric to adult care for children with special health care needs: bridging families, provider and community services.
The aim of this study was to develop a theoretical understanding of how family, healthcare providers, and community supports can assist youth and young adults with special healthcare needs (YASHCN) during the transition from pediatric to adult healthcare and services. Transition Advocacy consists of the presence of, or need for, a healthcare advocate who did or can assist the YASHCN with the healthcare transition, particularly to navigate complex health or community services. If advocates were identified, youth were more likely to obtain needed services.
AHRQ-funded; HS017716.
Citation: Okumura MJ, Saunders M, Rehm RS .
The role of health advocacy in transitions from pediatric to adult care for children with special health care needs: bridging families, provider and community services.
J Pediatr Nurs 2015 Sep-Oct;30(5):714-23. doi: 10.1016/j.pedn.2015.05.015.
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Keywords: Children/Adolescents, Community-Based Practice, Disabilities, Health Services Research (HSR), Young Adults
Horner-Johnson W, Dobbertin K, Iezzoni LI
Disparities in receipt of breast and cervical cancer screening for rural women age 18 to 64 with disabilities.
The authors examined the combination of disability status and rurality in association with receipt of breast and cervical cancer screening among women age 18 to 64 in the United States. They found that women with disabilities were less likely to be up to date with mammograms and Pap tests compared with women with no disabilities, and women in rural areas were less likely to have received breast or cervical cancer screening within recommended timeframes. Women with a disability who lived in a rural area were the least likely to be current with screening.
AHRQ-funded; HS022981.
Citation: Horner-Johnson W, Dobbertin K, Iezzoni LI .
Disparities in receipt of breast and cervical cancer screening for rural women age 18 to 64 with disabilities.
Womens Health Issues 2015 May-Jun;25(3):246-53. doi: 10.1016/j.whi.2015.02.004.
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Keywords: Cancer, Disabilities, Medical Expenditure Panel Survey (MEPS), Rural Health, Screening
Bennett WE, Jr., Hendrix KS, Thompson-Fleming RT
Early cow's milk introduction is associated with failed personal-social milestones after 1 year of age.
The researchers used a novel computerized decision support system to gather data from multiple general pediatrics offices.They found an association between the introduction of cow's milk before 1 year of age and the rate of delayed developmental milestones after 1 year of age, adding strength to the recommendations from the AAP and IOM to delay cow's milk introduction until after 1 year of age.
AHRQ-funded; HS017939; HS018453; HS020640.
Citation: Bennett WE, Jr., Hendrix KS, Thompson-Fleming RT .
Early cow's milk introduction is associated with failed personal-social milestones after 1 year of age.
Eur J Pediatr 2014 Jul;173(7):887-92. doi: 10.1007/s00431-014-2265-y.
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Keywords: Clinical Decision Support (CDS), Disabilities, Health Information Technology (HIT), Newborns/Infants, Nutrition
Davidoff AJ, Gardner LD, Zuckerman IH
AHRQ Author: Davidoff AJ
Validation of disability status, a claims-based measure of functional status for cancer treatment and outcomes studies.
The researchers implemented and validated a disability status (DS) measure in 4 cohorts of cancer patients. They found that the DS measure is a significant independent predictor of cancer-directed treatment, but unobserved factors continue to play a role in determining treatments.
AHRQ-authored.
Citation: Davidoff AJ, Gardner LD, Zuckerman IH .
Validation of disability status, a claims-based measure of functional status for cancer treatment and outcomes studies.
Med Care 2014 Jun;52(6):500-10. doi: 10.1097/mlr.0000000000000122.
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Keywords: Cancer, Cancer: Breast Cancer, Disabilities, Health Status, Cancer: Lung Cancer
Rowland M, Peterson-Besse J, Dobbertin K
Health outcome disparities among subgroups of people with disabilities: a scoping review.
The authors described recent research activity that has examined health outcome disparities within populations of people with disabilities. They found that the health outcomes most frequently examined were diabetes and heart disease, and the most frequently examined disparity factors were the type of disabling condition and gender. Identifying that there are significant gaps in available research, they concluded that building a body of research that identifies disparities and potentially vulnerable subgroups may improve understanding of the causes of disparities and contribute to efforts to improve quality of life and health outcomes for individuals with disabilities.
AHRQ-funded.
Citation: Rowland M, Peterson-Besse J, Dobbertin K .
Health outcome disparities among subgroups of people with disabilities: a scoping review.
Disabil Health J 2014 Apr;7(2):136-50. doi: 10.1016/j.dhjo.2013.09.003.
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Keywords: Disabilities, Disparities, Health Status, Patient-Centered Outcomes Research
Bettger JP, Zhao X, Bushnell C
The association between socioeconomic status and disability after stroke: findings from the Adherence eValuation After Ischemic stroke Longitudinal (AVAIL) registry.
The authors examined the association of three indicators of SES--educational attainment, working status, and perceived adequacy of household income--with disability 3-months following an acute ischemic stroke. They found that 58% of the Adherence eValuation After Ischemic stroke--Longitudinal study patients had a high school or less education, 61% were not working, and 27% perceived their household income as inadequate prior to their stroke. Thirty five percent of patients were disabled at 3-months. They concluded that, in this cohort of stroke survivors, socioeconomic status was associated with disability following acute ischemic stroke.
AHRQ-funded; HS019479; HS016964.
Citation: Bettger JP, Zhao X, Bushnell C .
The association between socioeconomic status and disability after stroke: findings from the Adherence eValuation After Ischemic stroke Longitudinal (AVAIL) registry.
BMC Public Health 2014 Mar 26;14:281. doi: 10.1186/1471-2458-14-281.
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Keywords: Disabilities, Patient-Centered Outcomes Research, Social Determinants of Health, Stroke