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Search All Research Studies
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- Cancer (1)
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 6 of 6 Research Studies DisplayedQuintana Y, Crotty B, Fahy D
Information sharing across generations and environments (InfoSAGE): study design and methodology protocol.
This open prospective cohort study aimed to assess a novel, Internet based, family-centric communication and collaboration platform created to address the information needs of elders and their informal caregivers in a community setting. It used a mixed methods approach, utilizing qualitative survey data along with website usage analytic data.
AHRQ-funded; HS021495.
Citation: Quintana Y, Crotty B, Fahy D .
Information sharing across generations and environments (InfoSAGE): study design and methodology protocol.
BMC Med Inform Decis Mak 2018 Nov 20;18(1):105. doi: 10.1186/s12911-018-0697-4.
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BMC Med Inform Decis Mak 2018 Nov 20;18(1):105. doi: 10.1186/s12911-018-0697-4.
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Keywords: Caregiving, Communication, Decision Making, Elderly, Health Information Technology (HIT), Patient-Centered Healthcare, Clinician-Patient Communication, Web-Based
Daley MF, Narwaney KJ, Shoup JA
Addressing parents' vaccine concerns: a randomized trial of a social media intervention.
Successful strategies are needed to address parental vaccine hesitancy, a significant public health issue. The study objective was to assess whether an Internet-based platform with vaccine information and interactive social media components improved parents' vaccine-related attitudes. The authors concluded that among vaccine-hesitant parents, an Internet-based intervention improved parents' attitudes about vaccines.
AHRQ-funded; HS021492.
Citation: Daley MF, Narwaney KJ, Shoup JA .
Addressing parents' vaccine concerns: a randomized trial of a social media intervention.
Am J Prev Med 2018 Jul;55(1):44-54. doi: 10.1016/j.amepre.2018.04.010..
Keywords: Caregiving, Patient Safety, Social Media, Vaccination, Web-Based
Gustafson DH, DuBenske LL, Atwood AK
Reducing symptom distress in patients with advanced cancer using an e-alert system for caregivers: Pooled analysis of two randomized clinical trials.
The aim of this paper was to assess the effects on cancer patient symptom distress of an eHealth system that alerts clinicians to significant changes in the patient's symptoms, as reported by a family caregiver. It found that when severe caregiver-reported symptoms were shared with clinicians, the symptoms were more likely to be subsequently reported as improved than when the symptoms were not shared with clinicians.
AHRQ-funded; HS019917.
Citation: Gustafson DH, DuBenske LL, Atwood AK .
Reducing symptom distress in patients with advanced cancer using an e-alert system for caregivers: Pooled analysis of two randomized clinical trials.
J Med Internet Res 2017 Nov 14;19(11):e354. doi: 10.2196/jmir.7466.
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Keywords: Cancer, Caregiving, Communication, Telehealth, Web-Based
Runaas L, Hanauer D, Maher M
BMT roadmap: a user-centered design health information technology tool to promote patient-centered care in pediatric HCT.
“BMT Roadmap" is a web-based application that integrates patient-specific information and includes several domains. In this study, BMT Roadmap was provided to 10 caregivers of patients undergoing first-time hematopoietic cell transplant (HCT) . Caregivers found the tool useful and easy-to-use, leading them to want even greater access to information. BMT Roadmap was feasible, with no disruption to inpatient care.
AHRQ-funded; HS023613.
Citation: Runaas L, Hanauer D, Maher M .
BMT roadmap: a user-centered design health information technology tool to promote patient-centered care in pediatric HCT.
Biol Blood Marrow Transplant 2017 May;23(5):813-19. doi: 10.1016/j.bbmt.2017.01.080.
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Keywords: Caregiving, Health Information Technology (HIT), Patient and Family Engagement, Children/Adolescents, Web-Based
Holroyd LE, Anders S, Robinson JR
This study examined the relationships among Multidimensional Health Locus of Control (MHLC) scores, information-seeking behaviors, and health-related needs in 71 pregnant women and 29 caregivers.
This study examined the relationships among Multidimensional Health Locus of Control (MHLC) scores, information-seeking behaviors, and health-related needs in 71 pregnant women and 29 caregivers.
AHRQ-funded; HS021496.
Citation: Holroyd LE, Anders S, Robinson JR .
This study examined the relationships among Multidimensional Health Locus of Control (MHLC) scores, information-seeking behaviors, and health-related needs in 71 pregnant women and 29 caregivers.
AMIA Annu Symp Proc 2017 Apr 16;2017:902-11..
Keywords: Caregiving, Education: Patient and Caregiver, Health Information Technology (HIT), Pregnancy, Web-Based
Gaugler JE, Reese M, Tanler R
Care to Plan: an online tool that offers tailored support to dementia caregivers.
This study developed and tested the feasibility of "Care to Plan" (CtP), an online resource for dementia caregivers (e.g., relatives or unpaid nonrelatives) that generates tailored support recommendations. It concluded that, based on the integrated qualitative and quantitative data, CtP was simple and easy to understand. The streamlined visual layout facilitated utility and the individualized recommendations could meet the needs of users.
AHRQ-funded; HS20948; HS22445.
Citation: Gaugler JE, Reese M, Tanler R .
Care to Plan: an online tool that offers tailored support to dementia caregivers.
Gerontologist 2016 Dec;56(6):1161-74. doi: 10.1093/geront/gnv150.
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Keywords: Caregiving, Dementia, Elderly, Web-Based, Tools & Toolkits