National Healthcare Quality and Disparities Report
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- Caregiving (1)
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 10 of 10 Research Studies DisplayedBush RA, Richardson AC, Cardona-Grau D
Patient portal usage in pediatric urology: is it meaningful use for everyone?
This study examined pediatric urology patient portal enrollment and activation patterns at a tertiary pediatric hospital in Southern California by race/ethnicity, preferred language, gender, and residential region. The study concluded that primary language and socioeconomic factors may be significant barriers to portal adoption. Patient education to reduce these barriers may increase portal acceptance and increase meaningfulness to the portal for patients/parents and providers.
AHRQ-funded; HS022404.
Citation: Bush RA, Richardson AC, Cardona-Grau D .
Patient portal usage in pediatric urology: is it meaningful use for everyone?
Urol Pract 2018 Jul;5(4):279-85. doi: 10.1016/j.urpr.2017.05.002..
Keywords: Education: Patient and Caregiver, Electronic Health Records (EHRs), Health Information Technology (HIT), Patient and Family Engagement, Web-Based
Giardina TD, Baldwin J, Nystrom DT
Patient perceptions of receiving test results via online portals: a mixed-methods study.
The researchers conducted a mixed-methods study to explore patients' experiences and preferences when accessing their test results via online portals. They found that nearly two-thirds (63 percent) did not receive any explanatory information or test result interpretation at the time they received the result. Patients experienced negative emotions often with abnormal results, but sometimes even with normal results.
AHRQ-funded; HS023602; HS022087.
Citation: Giardina TD, Baldwin J, Nystrom DT .
Patient perceptions of receiving test results via online portals: a mixed-methods study.
J Am Med Inform Assoc 2018 Apr;25(4):440-46. doi: 10.1093/jamia/ocx140.
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Keywords: Electronic Health Records (EHRs), Patient Experience, Patient and Family Engagement, Clinician-Patient Communication, Web-Based
Yen PY, Walker DM, Smith JMG
Usability evaluation of a commercial inpatient portal.
The authors aimed to understand how users interact with, learn to use, and communicate with their providers through an inpatient portal. They found that participants frequently made operational errors in navigation and assuming non-existent functionalities; participants' learning styles varied, with age as a potential factor that influenced how they learned MyChart Bedside; and participants preferred to message providers individually and wanted feedback on status. They concluded that, for inpatient portals to be effective in promoting patient engagement, it remains critical for technology developers and hospital administrators to understand how users interact with this technology and the resources that may be necessary to support its use.
AHRQ-funded; HS024091.
Citation: Yen PY, Walker DM, Smith JMG .
Usability evaluation of a commercial inpatient portal.
Int J Med Inform 2018 Feb;110:10-18. doi: 10.1016/j.ijmedinf.2017.11.007.
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Keywords: Electronic Health Records (EHRs), Health Information Technology (HIT), Inpatient Care, Patient and Family Engagement, Web-Based
Runaas L, Hanauer D, Maher M
BMT roadmap: a user-centered design health information technology tool to promote patient-centered care in pediatric HCT.
“BMT Roadmap" is a web-based application that integrates patient-specific information and includes several domains. In this study, BMT Roadmap was provided to 10 caregivers of patients undergoing first-time hematopoietic cell transplant (HCT) . Caregivers found the tool useful and easy-to-use, leading them to want even greater access to information. BMT Roadmap was feasible, with no disruption to inpatient care.
AHRQ-funded; HS023613.
Citation: Runaas L, Hanauer D, Maher M .
BMT roadmap: a user-centered design health information technology tool to promote patient-centered care in pediatric HCT.
Biol Blood Marrow Transplant 2017 May;23(5):813-19. doi: 10.1016/j.bbmt.2017.01.080.
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Keywords: Caregiving, Health Information Technology (HIT), Patient and Family Engagement, Children/Adolescents, Web-Based
Smith MA, Bednarz L, Nordby PA
Increasing consumer engagement by tailoring a public reporting website on the quality of diabetes care: a qualitative study.
The goal of this study was to determine if tailoring quality reports to persons with diabetes mellitus and co-occurring chronic conditions would increase user engagement with a website that publicly reports the quality of diabetes care. It concluded that tailoring can be used to improve public reporting sites for individuals with chronic conditions, ultimately allowing consumers to make more informed health care decisions.
AHRQ-funded; HS021899.
Citation: Smith MA, Bednarz L, Nordby PA .
Increasing consumer engagement by tailoring a public reporting website on the quality of diabetes care: a qualitative study.
J Med Internet Res 2016 Dec 21;18(12):e332. doi: 10.2196/jmir.6555.
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Keywords: Chronic Conditions, Decision Making, Diabetes, Patient and Family Engagement, Web-Based
Masterson Creber R, Prey J, Ryan B
Engaging hospitalized patients in clinical care: study protocol for a pragmatic randomized controlled trial.
The purpose of this paper is to describe the protocol for a study to assess how patients' information needs during hospitalization can be addressed with health information technologies using a personalized inpatient portal. The study is designed to test whether the portal will improve patient engagement.
AHRQ-funded; HS021816.
Citation: Masterson Creber R, Prey J, Ryan B .
Engaging hospitalized patients in clinical care: study protocol for a pragmatic randomized controlled trial.
Contemp Clin Trials 2016 Mar;47:165-71. doi: 10.1016/j.cct.2016.01.005.
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Keywords: Health Information Technology (HIT), Hospitalization, Inpatient Care, Patient and Family Engagement, Web-Based
Arcia A, Suero-Tejeda N, Bales ME
Sometimes more is more: iterative participatory design of infographics for engagement of community members with varying levels of health literacy.
The study objective was to collaborate with community members to develop tailored infographics that support comprehension of health information, engage the viewer, and may have the potential to motivate health-promoting behaviors. It concluded that carefully designed infographics can be useful tools to support comprehension and thus help patients engage with their own health data.
AHRQ-funded; HS019853; HS022961
Citation: Arcia A, Suero-Tejeda N, Bales ME .
Sometimes more is more: iterative participatory design of infographics for engagement of community members with varying levels of health literacy.
J Am Med Inform Assoc 2016 Jan;23(1):174-83. doi: 10.1093/jamia/ocv079.
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Keywords: Education: Patient and Caregiver, Health Literacy, Health Promotion, Patient and Family Engagement, Web-Based
Mirsky JB, Tieu L, Lyles C
A mixed-methods study of patient-provider e-mail content in a safety-net setting.
The researchers explored the content of patient-provider e-mails in a safety-net primary care clinic, by conducting a content analysis using inductive and deductive coding of e-mail exchanges. Their results showed that patients in safety-net clinics are capable of safely and effectively using electronic messaging for between-visit communication with providers.
AHRQ-funded; HS022408; HS023558.
Citation: Mirsky JB, Tieu L, Lyles C .
A mixed-methods study of patient-provider e-mail content in a safety-net setting.
J Health Commun 2016;21(1):85-91. doi: 10.1080/10810730.2015.1033118..
Keywords: Communication, Health Information Technology (HIT), Patient and Family Engagement, Primary Care, Web-Based
Dalal AK, Dykes PC, Collins S
A web-based, patient-centered toolkit to engage patients and caregivers in the acute care setting: a preliminary evaluation.
The researchers implemented a web-based, patient-centered toolkit that engages patients/caregivers in the hospital plan of care by facilitating education and patient-provider communication. Of the 585 eligible patients approached on medical intensive care and oncology units, 239 were enrolled (119 patients, 120 caregivers). They found that the average system usability scores and satisfaction ratings of a sample of surveyed enrollees were favorable.
AHRQ-funded; HS023535.
Citation: Dalal AK, Dykes PC, Collins S .
A web-based, patient-centered toolkit to engage patients and caregivers in the acute care setting: a preliminary evaluation.
J Am Med Inform Assoc 2016 Jan;23(1):80-7. doi: 10.1093/jamia/ocv093.
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Keywords: Critical Care, Patient and Family Engagement, Clinician-Patient Communication, Tools & Toolkits, Web-Based
Lyles C, Schillinger D, Sarkar U
Connecting the dots: health information technology expansion and health disparities.
The authors argue that early evidence links EHR and portal use to better healthcare processes and health outcomes. Promoting patient engagement with health technology such as portals is challenging, and rapid expansion of portals could exacerbate existing healthcare disparities if only well-resourced individuals use these websites.
AHRQ-funded; HS023558; HS022408; HS022047.
Citation: Lyles C, Schillinger D, Sarkar U .
Connecting the dots: health information technology expansion and health disparities.
PLoS Med 2015 Jul 14;12(7):e1001852. doi: 10.1371/journal.pmed.1001852..
Keywords: Disparities, Electronic Health Records (EHRs), Health Information Technology (HIT), Patient and Family Engagement, Web-Based