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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
226 to 250 of 275 Research Studies DisplayedMasterson Creber R, Prey J, Ryan B
Engaging hospitalized patients in clinical care: study protocol for a pragmatic randomized controlled trial.
The purpose of this paper is to describe the protocol for a study to assess how patients' information needs during hospitalization can be addressed with health information technologies using a personalized inpatient portal. The study is designed to test whether the portal will improve patient engagement.
AHRQ-funded; HS021816.
Citation: Masterson Creber R, Prey J, Ryan B .
Engaging hospitalized patients in clinical care: study protocol for a pragmatic randomized controlled trial.
Contemp Clin Trials 2016 Mar;47:165-71. doi: 10.1016/j.cct.2016.01.005.
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Keywords: Health Information Technology (HIT), Hospitalization, Inpatient Care, Patient and Family Engagement, Web-Based
Harter G, Darden J, McMenemy N
Consent and enrollment process: achieving high enrollment rates for obstetric research.
The authors aimed to study the development, design, and implementation of a patient consent and enrollment initiative to identify strategies that enhanced participation. Over a three-year study period, there was an 85% enrollment rate the the five study sites. The researchers found that enrollment rates improved over time with increased nursing engagement in patient recruitment, site-specific adaptations, and patient education strategies.
AHRQ-funded; HS019608.
Citation: Harter G, Darden J, McMenemy N .
Consent and enrollment process: achieving high enrollment rates for obstetric research.
Appl Nurs Res 2016 Feb;29:101-6. doi: 10.1016/j.apnr.2015.05.011.
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Keywords: Patient and Family Engagement, Research Methodologies, Women
Prey JE, Polubriaginof F, Kuperman GJ
International perspectives on sharing clinical data with patients.
The researchers investigated the current state of approaches for providing patients with access to their own clinical information. Participants span 16 countries across six continents, and the authors found that there is considerable variability in the level of maturity, the degree of government involvement, the technical infrastructure, and the plans for future development across the world. They concluded that we are still in the early stages of deploying patient engagement technologies and have yet to identify optimal strategies in this arena.
AHRQ-funded; HS021393; HS21816.
Citation: Prey JE, Polubriaginof F, Kuperman GJ .
International perspectives on sharing clinical data with patients.
Int J Med Inform 2016 Feb;86:135-41. doi: 10.1016/j.ijmedinf.2015.11.007.
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Keywords: Clinician-Patient Communication, Communication, Electronic Health Records (EHRs), Health Information Technology (HIT), Patient and Family Engagement
Siegel CA, Lofland JH, Naim A
Novel statistical approach to determine inflammatory bowel disease: patients' perspectives on shared decision making.
The aim of this study was to examine patient insights regarding shared decision making among patients with inflammatory bowel disease (IBD) using novel statistical technology to analyze qualitative data. From the 355 patients surveyed, the researchers identified three unique patient clusters: satisfied, content, and dissatisfied. They concluded that patient perspectives in this study indicate an increased desire for shared decision making in determining an optimal IBD treatment plan.
AHRQ-funded; HS021747.
Citation: Siegel CA, Lofland JH, Naim A .
Novel statistical approach to determine inflammatory bowel disease: patients' perspectives on shared decision making.
Patient 2016 Feb;9(1):79-89. doi: 10.1007/s40271-015-0126-z.
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Keywords: Decision Making, Digestive Disease and Health, Patient and Family Engagement, Patient Experience, Clinician-Patient Communication
Miller AD, Mishra SR, Kendall L
Partners in care: Design considerations for caregivers and patients during a hospital stay.
The researchers described how caregivers and patients coordinate and collaborate to manage patients' care and wellbeing during a hospital stay. They defined and described five roles caregivers adopt: companion, assistant, representative, navigator, and planner, and show how patients and caregivers negotiate these roles and responsibilities throughout a hospital stay. Finally, they identified key design considerations for technology to support patients and caregivers during a hospital stay.
AHRQ-funded; HS022894.
Citation: Miller AD, Mishra SR, Kendall L .
Partners in care: Design considerations for caregivers and patients during a hospital stay.
Cscw 2016 Feb-Mar;2016:756-69. doi: 10.1145/2818048.2819983..
Keywords: Care Coordination, Caregiving, Hospitalization, Inpatient Care, Patient and Family Engagement
Chen J, Mullins CD, Novak P
Personalized strategies to activate and empower patients in health care and reduce health disparities.
The authors proposed a patient-centered, multilevel activation and empowerment framework to inform the development of culturally informed personalized patient activation and empowerment (P-PAE) interventions to improve population health and reduce racial and ethnic disparities. They believe the P-PAE model is timely and sustainable and will be critical to engaging patients in their treatment, developing patients' abilities to manage their health, helping patients express concerns and preferences regarding treatment, empowering patients to ask questions about treatment options, and building up strategic patient-provider partnerships through shared decision making.
AHRQ-funded; HS022135.
Citation: Chen J, Mullins CD, Novak P .
Personalized strategies to activate and empower patients in health care and reduce health disparities.
Health Educ Behav 2016 Feb;43(1):25-34. doi: 10.1177/1090198115579415.
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Keywords: Decision Making, Disparities, Patient and Family Engagement, Patient-Centered Healthcare, Racial and Ethnic Minorities
Flickinger TE, Saha S, Roter D
Respecting patients is associated with more patient-centered communication behaviors in clinical encounters.
The researchers investigated whether respect for patients was associated with communication behaviors during HIV care encounters. They found that respect is associated with positive and patient-centered communication behaviors during encounters. They recommended that clinicians should be mindful of their respectful attitudes and work to foster positive regard for patients.
AHRQ-funded; HS013903.
Citation: Flickinger TE, Saha S, Roter D .
Respecting patients is associated with more patient-centered communication behaviors in clinical encounters.
Patient Educ Couns 2016 Feb;99(2):250-5. doi: 10.1016/j.pec.2015.08.020.
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Keywords: Human Immunodeficiency Virus (HIV), Patient-Centered Healthcare, Patient and Family Engagement, Patient Experience, Clinician-Patient Communication
Stults CD, McCuistion MH, Frosch DL
Shared medical appointments: a promising innovation to improve patient engagement and ease the primary care provider shortage.
The authors examined the patient's perspective on participation in shared medical appointments (SMAs). They conducted five focus groups in the San Francisco Bay Area. They concluded that SMAs improve access, engagement with physicians and other patients, and knowledge of patients' health, as well as also helping to ease the workload for primary care physicians.
AHRQ-funded; HS019167.
Citation: Stults CD, McCuistion MH, Frosch DL .
Shared medical appointments: a promising innovation to improve patient engagement and ease the primary care provider shortage.
Popul Health Manag 2016 Feb;19(1):11-6. doi: 10.1089/pop.2015.0008.
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Keywords: Patient and Family Engagement, Primary Care, Healthcare Delivery
Maher M, Kaziunas E, Ackerman M
User-centered design groups to engage patients and caregivers with a personalized health information technology tool.
The researchers’ goal was to develop a tool that could be used in the real-world, daily practice of Hematopoietic Blood and Marrow Transplant (HCT) patients and caregivers (users) in the inpatient setting. To that end, they examined the views, needs, and wants of users in the design and development process of the Bone Marrow Transplant Roadmap through user-centered Design Groups.
AHRQ-funded; HS023613.
Citation: Maher M, Kaziunas E, Ackerman M .
User-centered design groups to engage patients and caregivers with a personalized health information technology tool.
Biol Blood Marrow Transplant 2016 Feb;22(2):349-58. doi: 10.1016/j.bbmt.2015.08.032..
Keywords: Caregiving, Health Information Technology (HIT), Patient and Family Engagement, Tools & Toolkits
Arcia A, Suero-Tejeda N, Bales ME
Sometimes more is more: iterative participatory design of infographics for engagement of community members with varying levels of health literacy.
The study objective was to collaborate with community members to develop tailored infographics that support comprehension of health information, engage the viewer, and may have the potential to motivate health-promoting behaviors. It concluded that carefully designed infographics can be useful tools to support comprehension and thus help patients engage with their own health data.
AHRQ-funded; HS019853; HS022961
Citation: Arcia A, Suero-Tejeda N, Bales ME .
Sometimes more is more: iterative participatory design of infographics for engagement of community members with varying levels of health literacy.
J Am Med Inform Assoc 2016 Jan;23(1):174-83. doi: 10.1093/jamia/ocv079.
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Keywords: Education: Patient and Caregiver, Health Literacy, Health Promotion, Patient and Family Engagement, Web-Based
Mirsky JB, Tieu L, Lyles C
A mixed-methods study of patient-provider e-mail content in a safety-net setting.
The researchers explored the content of patient-provider e-mails in a safety-net primary care clinic, by conducting a content analysis using inductive and deductive coding of e-mail exchanges. Their results showed that patients in safety-net clinics are capable of safely and effectively using electronic messaging for between-visit communication with providers.
AHRQ-funded; HS022408; HS023558.
Citation: Mirsky JB, Tieu L, Lyles C .
A mixed-methods study of patient-provider e-mail content in a safety-net setting.
J Health Commun 2016;21(1):85-91. doi: 10.1080/10810730.2015.1033118..
Keywords: Communication, Health Information Technology (HIT), Patient and Family Engagement, Primary Care, Web-Based
Dalal AK, Dykes PC, Collins S
A web-based, patient-centered toolkit to engage patients and caregivers in the acute care setting: a preliminary evaluation.
The researchers implemented a web-based, patient-centered toolkit that engages patients/caregivers in the hospital plan of care by facilitating education and patient-provider communication. Of the 585 eligible patients approached on medical intensive care and oncology units, 239 were enrolled (119 patients, 120 caregivers). They found that the average system usability scores and satisfaction ratings of a sample of surveyed enrollees were favorable.
AHRQ-funded; HS023535.
Citation: Dalal AK, Dykes PC, Collins S .
A web-based, patient-centered toolkit to engage patients and caregivers in the acute care setting: a preliminary evaluation.
J Am Med Inform Assoc 2016 Jan;23(1):80-7. doi: 10.1093/jamia/ocv093.
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Keywords: Critical Care, Patient and Family Engagement, Clinician-Patient Communication, Tools & Toolkits, Web-Based
Kanouse DE, Schlesinger M, Shaller D
How patient comments affect consumers' use of physician performance measures.
In order to evaluate the relationship between patient characteristics and the frequency and duration of incident steroid use, the researchers applied a 2-part hurdle model to Medicare data. Their study identified differences in predictors of frequency and duration of medication use and suggests the utility of two-part models to examine drug utilization patterns.
AHRQ-funded; HS016978; HS016980.
Citation: Kanouse DE, Schlesinger M, Shaller D .
How patient comments affect consumers' use of physician performance measures.
Med Care 2016 Jan;54(1):24-31. doi: 10.1097/mlr.0000000000000443..
Keywords: Consumer Assessment of Healthcare Providers and Systems (CAHPS), Quality of Care, Patient and Family Engagement, Patient Experience, Clinician-Patient Communication
Kaziunas E, Hanauer DA, Ackerman MS
Identifying unmet informational needs in the inpatient setting to increase patient and caregiver engagement in the context of pediatric hematopoietic stem cell transplantation.
The researchers conducted field observations and semi-structured interviews of pediatric hematopoietic stem cell transplantation (HSCT) caregivers and patients to identify informational challenges in the inpatient hospital setting. Theyn concluded that pediatric HSCT caregivers and patients have multiple informational needs that could be met with a health information technology system that integrates data from several sources, including electronic health records. Meeting these needs could reduce patients' and caregivers' anxiety surrounding the care process.
AHRQ-funded; HS023613.
Citation: Kaziunas E, Hanauer DA, Ackerman MS .
Identifying unmet informational needs in the inpatient setting to increase patient and caregiver engagement in the context of pediatric hematopoietic stem cell transplantation.
J Am Med Inform Assoc 2016 Jan;23(1):94-104. doi: 10.1093/jamia/ocv116.
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Keywords: Caregiving, Children/Adolescents, Electronic Health Records (EHRs), Patient and Family Engagement, Transplantation
Unertl KM, Schaefbauer CL, Campbell TR
Integrating community-based participatory research and informatics approaches to improve the engagement and health of underserved populations.
The authors compared 5 health informatics research projects that applied community-based participatory research (CBPR) approaches with the goal of extending existing CBPR principles to address issues specific to health informatics research. They identified benefits and challenges, and created several principles that extended an existing CBPR framework to specifically address health informatics research requirements.
AHRQ-funded; HS019853; HS022961.
Citation: Unertl KM, Schaefbauer CL, Campbell TR .
Integrating community-based participatory research and informatics approaches to improve the engagement and health of underserved populations.
J Am Med Inform Assoc 2016 Jan;23(1):60-73. doi: 10.1093/jamia/ocv094.
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Keywords: Community-Based Practice, Health Information Technology (HIT), Patient and Family Engagement, Patient-Centered Healthcare
Spehar B, Tye-Murray N, Myerson J
Real-time captioning for improving informed consent: Patient and physician benefits.
The goals of the study were to assess hearing-impaired patients' recall of an informed consent discussion about regional anesthesia using real-time captioning and to determine whether the physicians found the system useful for monitoring their own performance. It found that real-time speech-to-text captioning improved recall in hearing-impaired patients and proved useful for determining the information provided during an informed consent encounter.
AHRQ-funded; HS022265.
Citation: Spehar B, Tye-Murray N, Myerson J .
Real-time captioning for improving informed consent: Patient and physician benefits.
Reg Anesth Pain Med 2016 Jan-Feb;41(1):65-8. doi: 10.1097/aap.0000000000000347.
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Keywords: Clinician-Patient Communication, Decision Making, Health Information Technology (HIT), Patient and Family Engagement
Prey JE, Polubriaginof F, Kuperman GJ
A global analysis of approaches to sharing clinical data with patients.
The authors investigated the current state of approaches for providing patients with access to their own clinical information. They found that efforts to improve patient access to data are active on a global-scale; however, there are many open questions about best practices and much can be learned by adopting an international perspective to guide future implementation efforts.
AHRQ-funded; HS021816.
Citation: Prey JE, Polubriaginof F, Kuperman GJ .
A global analysis of approaches to sharing clinical data with patients.
Stud Health Technol Inform 2015;216:907.
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Keywords: Education: Continuing Medical Education, Electronic Health Records (EHRs), Health Information Technology (HIT), Patient and Family Engagement
Lemke AA, Harris-Wai JN
Stakeholder engagement in policy development: challenges and opportunities for human genomics.
The purpose of this paper is to examine how stakeholder engagement is used to develop policies in genomics research and public health areas, as well as to identify future priorities for conducting evidence-based stakeholder engagements. It concluded that several challenges of using stakeholder engagement as a tool for genomics policy development remain, and little evidence regarding how to best incorporate stakeholder feedback into policy-making processes is currently available.
AHRQ-funded; HS023547.
Citation: Lemke AA, Harris-Wai JN .
Stakeholder engagement in policy development: challenges and opportunities for human genomics.
Genet Med 2015 Dec;17(12):949-57. doi: 10.1038/gim.2015.8.
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Keywords: Evidence-Based Practice, Genetics, Patient and Family Engagement, Policy, Public Health
Hajizadeh N, Uhler LM, Perez Figueroa RE
Understanding patients' and doctors' attitudes about shared decision making for advance care planning.
The authors sought to gain general insights into the current practice of shared decision making (SDM) and attitudes about patient involvement, and also to gain specific insights into experience with, and attitudes about, SDM for advance care planning. They found that patients were generally open to having end-of-life discussions with their doctors, although their openness sometimes depended on the circumstance. Doctors reported engaging in end-of-life treatment decisions with their patients, although they expressed the need for conversations to take place earlier, in advance of acute illness.
AHRQ-funded; HS022061; HS019473.
Citation: Hajizadeh N, Uhler LM, Perez Figueroa RE .
Understanding patients' and doctors' attitudes about shared decision making for advance care planning.
Health Expect 2015 Dec;18(6):2054-65. doi: 10.1111/hex.12285.
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Keywords: Clinician-Patient Communication, Decision Making, Patient and Family Engagement, Patient-Centered Healthcare
Dykes PC, Stade D, Dalal A
Strategies for managing mobile devices for use by hospitalized inpatients.
The authors implemented the PROSPECT (Promoting Respect and Ongoing Safety through Patient-centeredness, Engagement, Communication and Technology) project at Brigham and Women's Hospital. The goal of PROSPECT is to transform the hospital environment by providing a suite of e-tools to facilitate teamwork. In this paper, the authors described decisions and challenges faced and related the strategies used and lessons learned.
AHRQ-funded; HS023535.
Citation: Dykes PC, Stade D, Dalal A .
Strategies for managing mobile devices for use by hospitalized inpatients.
AMIA Annu Symp Proc 2015 Nov 5;2015:522-31.
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Keywords: Communication, Inpatient Care, Patient and Family Engagement, Patient Safety, Teams
O'Leary K, Vizer L, Eschler J
Understanding patients' health and technology attitudes for tailoring self-management interventions.
The researchers elicited attitudes toward technology use and participation in care of 40 participants in a maximum variation sample. They found three participant clusters-"Proactive Techies," "Indie Self-Managers," and "Remind Me! Non-Techies"-that represent varying attitudes toward health behaviors and technologies that were independent of race, education level, and age. Their approach provides insight into how people prioritize important values related to health participation and technology.
AHRQ-funded; HS021590.
Citation: O'Leary K, Vizer L, Eschler J .
Understanding patients' health and technology attitudes for tailoring self-management interventions.
AMIA Annu Symp Proc 2015 Nov 5;2015:991-1000.
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Keywords: Chronic Conditions, Health Information Technology (HIT), Patient and Family Engagement, Clinician-Patient Communication
VanGompel EC, Jerant AF, Franks PM
Primary care attributes associated with receipt of preventive care services: a national study.
This study explored whether primary care attributes (PCAs) encompassed by patient-centered medical homes increase receipt of preventive care. Based ,on a nationally representative sample, greater reported exposure to key primary care attributes, with the exception of enhanced access, was associated with increased preventive care. These findings may inform best practices for maximizing preventive care delivery.
AHRQ-funded; HS022236.
Citation: VanGompel EC, Jerant AF, Franks PM .
Primary care attributes associated with receipt of preventive care services: a national study.
J Am Board Fam Med 2015 Nov-Dec;28(6):733-41. doi: 10.3122/jabfm.2015.06.150092.
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Keywords: Patient-Centered Healthcare, Patient and Family Engagement, Prevention, Primary Care
Shortell SM, Sehgal NJ, Bibi S
An early assessment of accountable care organizations' efforts to engage patients and their families.
The authors sought to examine the extent to which ACOs actively engage patients and their families, explore challenges involved, and consider approaches for dealing with those challenges. They identified important practices associated with greater patient activation and engagement, including high-level leadership commitment, goal-setting supported by adequate resources, extensive provider training, use of interdisciplinary care teams, and frequent monitoring and reporting on progress.
AHRQ-funded; HS022241.
Citation: Shortell SM, Sehgal NJ, Bibi S .
An early assessment of accountable care organizations' efforts to engage patients and their families.
Med Care Res Rev 2015 Oct;72(5):580-604. doi: 10.1177/1077558715588874.
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Keywords: Decision Making, Quality of Care, Patient and Family Engagement, Clinician-Patient Communication
Blumenthal-Barby JS, Kostick KM, Delgado ED
Assessment of patients' and caregivers' informational and decisional needs for left ventricular assist device placement: implications for informed consent and shared decision-making.
The authors investigated the decision-making process and informational and decisional needs of patients and their caregivers regarding left ventricular assist device (LVAD) placement. They found that participants easily and clearly identified their values: life extension; family; and mobility. Participants reported the need to meet other patients and caregivers before device placement and to have an involved caregiver to synthesize information. They further found that some participants demonstrated a lack of clarity regarding transplant probability.
AHRQ-funded; HS024849.
Citation: Blumenthal-Barby JS, Kostick KM, Delgado ED .
Assessment of patients' and caregivers' informational and decisional needs for left ventricular assist device placement: implications for informed consent and shared decision-making.
J Heart Lung Transplant 2015 Sep;34(9):1182-9. doi: 10.1016/j.healun.2015.03.026.
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Keywords: Caregiving, Decision Making, Heart Disease and Health, Medical Devices, Patient and Family Engagement
Singh JA, Qu H, Yazdany J
Barriers to medication decision making in women with lupus nephritis: a formative study using nominal group technique.
The researchers assessed the perspectives of women with lupus nephritis on barriers to medication decision making. The most salient perceived barriers, as indicated by percent-weighted votes assigned, were known/anticipated side effects (15.6 percent), medication expense/ability to afford medications (8.2 percent), and the fear that the medication could cause other diseases (7.8 percent).
AHRQ-funded; HS021110.
Citation: Singh JA, Qu H, Yazdany J .
Barriers to medication decision making in women with lupus nephritis: a formative study using nominal group technique.
J Rheumatol 2015 Sep;42(9):1616-23. doi: 10.3899/jrheum.150168.
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Keywords: Centers for Education and Research on Therapeutics (CERTs), Decision Making, Education: Patient and Caregiver, Medication, Patient and Family Engagement