Where to Find More Information (cont.) Next Steps After Your Diagnosis Deafness and Hearing DisordersOrganizations/InformationDirectory of OrganizationsNational Institute on Deafness and Other Communication Disordershttp://www.nidcd.nih.gov/health/directory/index.aspNational Institute on Deafness and Other Communication DisordersPhone: 800-241-1044TTY: 800-241-1055E-mail: nidcdinfo@nidcd.nih.govhttp://www.nidcd.nih.gov/index.aspPublicationsDeaf or Hard-of-Hearing: Tips for Working with Your DoctorAmerican Academy of Family Physicians, 2011http://familydoctor.org/x1875.xmlReturn to Specific Diseases and ConditionsDiabetesOrganizations/InformationAmerican Diabetes Association1701 North Beauregard StreetAlexandria, VA 22311Phone: 800-DIABETES (800-342-2383)http://www.diabetes.orgDirectory of Diabetes OrganizationsNational Diabetes Information Clearinghousehttp://diabetes.niddk.nih.gov/resources/organizations.htmNational Diabetes Information Clearinghouse1 Information WayBethesda, MD 20892-3560Phone: 800-860-8747http://diabetes.niddk.nih.govReturn to Specific Diseases and ConditionsDigestive DiseasesOrganizations/InformationDirectory of Digestive Diseases Organizations for PatientsNational Digestive Diseases Information Clearinghousehttp://digestive.niddk.nih.gov/resources/patient.htmNational Digestive Diseases Information Clearinghouse2 Information WayBethesda, MD 20892-3570Phone: 800-891-5389http://digestive.niddk.nih.gov/about/contact.htmReturn to Specific Diseases and ConditionsEye Diseases and DisordersOrganizations/InformationNational Eye InstituteInformation Office31 Center Drive MSC 2510Bethesda, MD 20892-2510Phone: 301-496-5248http://www.nei.nih.gov/healthEye Health Organizations DatabaseNational Eye Institutehttp://www.nei.nih.gov/health/resourceSearch.aspReturn to Specific Diseases and ConditionsFibromyalgiaOrganizations/InformationNational Fibromyalgia Association2200 N. Glassell Street, Suite AOrange, CA 92865Phone: 714-921-0150http://www.fmaware.orgNational Institute of Arthritis and Musculoskeletal and Skin Diseases1 AMS CircleBethesda, MD 20892-3675Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267) (toll-free)http://www.niams.nih.govPublicationsQuestions and Answers About FibromyalgiaNational Institute of Arthritis and Musculoskeletal and Skin Disease, 2004http://www.niams.nih.gov/Health_Info/Fibromyalgia/default.aspReturn to Specific Diseases and ConditionsHeart DiseaseOrganizations/InformationAmerican Heart AssociationNational Center7272 Greenville AvenueDallas, TX 75231Phone: 800-AHA-USA1 (800-242-8721)http://www.heart.org/HEARTORG/Heart and Vascular DiseasesNational Heart, Lung, and Blood Institutehttp://www.nhlbi.nih.gov/health/public/heart/index.htmHeart Health & StrokeNational Women's Health Information Centerhttp://www.womenshealth.gov/heart-stroke/Heart Health OnlineFood and Drug Administrationhttp://www.fda.gov/hearthealthNational Heart, Lung, and Blood InstituteNHLBI Information CenterAttn: Web SiteP.O. Box 30105Bethesda, MD 20824-0105Phone: 301-592-8573http://www.nhlbi.nih.gov/health/index.htmPublicationsHow to Talk to Your Health Care Provider about Heart Disease and Heart HealthNational Women's Health Information Center, 2003http://www.womenshealth.gov/tools/howtotalk.cfmCommunicating with ProfessionalsAmerican Heart Association, 2011http://www.heart.org/HEARTORG/conditions/CardiacRehab/Communicating-with-Professionals_UCM_307052_Article.jspReturn to Specific Diseases and ConditionsHigh Blood PressureOrganizations/InformationNational Heart, Lung, and Blood InstituteNHLBI Information CenterAttn: Web SiteP.O. Box 30105Bethesda, MD 20824-0105Phone: 301-592-8573http://www.nhlbi.nih.gov/health/index.htmPublicationsYour Guide to Lowering High Blood PressureNational Heart, Lung, and Blood Institutehttp://www.nhlbi.nih.gov/hbp/index.htmlReturn to Specific Diseases and ConditionsHIV/AIDSOrganizations/InformationAIDSinfoU.S. Department of Health and Human Serviceshttp://www.aidsinfo.nih.govReturn to Specific Diseases and ConditionsImmunodeficiency DisordersPublicationsLiving with Primary Immunodeficiencies, Section 1: What Happens After the DiagnosisInternational Patient Organisation for Patients with Primary Immunodeficiencies, 2004http://www.ipopi.org/publications/living-with-pid/01.htmlReturn to Specific Diseases and ConditionsInfectious DiseasesOrganizations/PublicationsPublicationsNational Institute of Allergy and Infectious Diseases, National Institutes of Healthhttp://www3.niaid.nih.gov/PubsOrderForm/default.aspReturn to Specific Diseases and ConditionsKidney DiseasesOrganizations/InformationDirectory of Kidney and Urologic Diseases OrganizationsNational Kidney and Urologic Diseases Information Clearinghousehttp://kidney.niddk.nih.gov/resources/organizations.htmNational Kidney and Urologic Diseases Information Clearinghouse3 Information WayBethesda, MD 20892-3580Phone: 800-891-5390http://kidney.niddk.nih.govReturn to Specific Diseases and ConditionsLung DiseasesOrganizations/InformationLung Diseases InformationNational Heart, Lung, and Blood Institutehttp://www.nhlbi.nih.gov/health/public/lung/index.htmNational Heart, Lung, and Blood InstituteNHLBI Information CenterAttn: Web SiteP.O. Box 30105Bethesda, MD 20824-0105Phone: 301-592-8573http://www.nhlbi.nih.gov/health/index.htmReturn to Specific Diseases and ConditionsMental HealthOrganizations/InformationHealth InformationNational Institute of Mental Healthhttp://www.nimh.nih.gov/health/index.shtmlMental Health America!2001 Beauregard Street, 12th FloorAlexandria, VA 22311Phone: 800-969-NMHA (800-969-6642)http://www.mentalhealthamerica.orgPublicationsDialogue for Recovery: "After a Diagnosis"Mental Health America!http://www.mentalhealthamerica.net/go/dialogue-for-recoverySupportGetting Help: Locate ServicesNational Institute of Mental Healthhttp://www.nimh.nih.gov/health/topics/getting-help-locate-services/index.shtmlReturn to Specific Diseases and ConditionsMultiple SclerosisOrganizations/InformationNational Multiple Sclerosis Society733 Third AvenueNew York, NY 10017Phone: 800-Fight-MS (800-344-4867)http://www.nmss.orgPublicationsLiving with MS: For People Newly DiagnosedNational Multiple Sclerosis Society, 2004http://nationalmssociety.org/about-multiple-sclerosis/newly-diagnosed/index.aspxReturn to Specific Diseases and ConditionsMuscular DystrophyOrganizations/InformationMuscular Dystrophy Association3300 East Sunrise DriveTucson, AZ 85718-3208Phone: 800-572-1717http://www.mdausa.orgNational Institute of Arthritis and Musculoskeletal and Skin Diseases1 AMS CircleBethesda, MD 20892-3675Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267) (toll-free)http://www.niams.nih.govNINDS Muscular Dystrophy Information PageNational Institute of Neurological Disorders and Strokehttp://www.ninds.nih.gov/disorders/md/md.htmReturn to Specific Diseases and ConditionsNeurologic DisordersOrganizations/InformationNational Institute of Neurological Disorders and Strokehttp://www.ninds.nih.gov/disorders/disorder_index.htmReturn to Specific Diseases and ConditionsObesityOrganizations/InformationAim for a Healthy WeightNational Heart, Lung, and Blood Institutehttp://www.nhlbi.nih.gov/health/public/heart/obesity/lose_wt/patmats.htmBMI—Body Mass Index: IntroductionCenters for Disease Control and Preventionhttp://www.cdc.gov/nccdphp/dnpa/bmi/index.htmNational Heart, Lung, and Blood InstituteNHLBI Information CenterAttn: Web SiteP.O. Box 30105Bethesda, MD 20824-0105Phone: 301-592-8573http://www.nhlbi.nih.gov/health/index.htmWeight-control Information Network (WIN)National Institute of Diabetes and Digestive and Kidney Diseaseshttp://win.niddk.nih.gov/publications/index.htmSupportOvereaters AnonymousWorld Service OfficeP.O. Box 44020Rio Rancho, NM 87174-4020Phone: 505-891-2664E-mail: info@oa.orghttp://www.overeatersanonymous.orgReturn to Specific Diseases and ConditionsParkinson's DiseaseOrganizations/InformationNational Parkinson Foundation, Inc.1501 NW 9th AvenueBob Hope RoadMiami, FL 33136-1494Phone: 800-327-4545http://www.parkinson.orgPublicationsLiving WellNational Parkinson Foundation, Inc.http://www.parkinson.org/Parkinson-s-Disease/Living-WellWhat do the Newly Diagnosed Need to Know (video)National Parkinson Foundation, Inc.http://www.parkinson.org/Video-Library/What-do-the-Newly-Diagnosed-Need-to-Know-Return to Specific Diseases and ConditionsRare Diseases and DisordersOrganizations/InformationOffice of Rare Diseases ResearchNational Institutes of Healthhttp://rarediseases.info.nih.gov/Default.aspxNational Organization for Rare Disorders55 Kenosia AvenueP.O. Box 1968Danbury, CT 06813-1968Phone: 800-999-6673 (voicemail only)http://www.rarediseases.orgToll-Free Numbers for Health InformationNational Health Information Centerhttp://www.health.gov/nhic/pubs/2005tollfreenumbers/2005toll freenumbers4.htm#RAREReturn to Specific Diseases and ConditionsSkin DiseasesOrganizations/InformationNational Institute of Arthritis and Musculoskeletal and Skin Diseases1 AMS CircleBethesda, MD 20892-3675Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267) (toll-free)http://www.niams.nih.gov/Health_Info/defauslt.aspReturn to Specific Diseases and ConditionsSleep DisordersOrganizations/InformationNational Heart, Lung, and Blood InstituteNHLBI Information CenterAttn: Web SiteP.O. Box 30105Bethesda, MD 20824-0105Phone: 301-592-8573http://www.nhlbi.nih.gov/health/index.htmSleep Disorders InformationNational Heart, Lung, and Blood Institutehttp://www.nhlbi.nih.gov/health/public/sleep/index.htmReturn to Specific Diseases and ConditionsStrokeOrganizations/InformationNational Stroke Association9707 E. Easter LaneEnglewood, CO 80112Phone: 800-787-6537http://www.stroke.orgNINDS Stroke Information PageNational Institute of Neurological Disorders and Strokehttp://www.ninds.nih.gov/disorders/stroke/stroke.htmSupportLife After Stroke-Stroke Support Groups: Find a Support Group Near YouAmerican Stroke Association (affiliated with the American Heart Association)Phone: 888-4-STROKE (888-478-7653)http://strokegroup.americanheart.org/strokegroup/public/zipfinder.jspReturn to Specific Diseases and ConditionsUrologic DiseasesOrganizations/InformationDirectory of Kidney and Urologic Diseases OrganizationsNational Kidney and Urologic Diseases Information Clearinghousehttp://kidney.niddk.nih.govresources/organizations.htmNational Kidney and Urologic Diseases Information Clearinghouse3 Information WayBethesda, MD 20892-3580Phone: 800-891-5390http://kidney.niddk.nih.govReturn to Specific Diseases and ConditionsTop of PageHealth Care Quality and SafetyConsumer Publications from AHRQThe following publications are part of AHRQ's health care quality materials, which include Spanish translations:20 Tips to Help Prevent Medical Errors—Practical tips and questions to askGo to: http://www.ahrq.gov/consumer/20tips.htmAHRQ Pub. No. 00-P038Five Steps to Safer Health Care—Shorter version of 20 TipsGo to: http://www.ahrq.gov/consumer/5steps.htmAHRQ Pub. No. 04-M005 (Feb. 2004)Quick Checks for Quality—Checklist to use when choosing health plans, doctors, treatments, hospitals, and long-term careGo to: http://www.ahrq.gov/consumer/quick.htmAHRQ Pub. No. 99-R027Taking Care of Myself: A Guide for When I Leave the HospitalGo to: http://www.ahrq.gov/qual/goinghomeguide.htmQuestions Are the AnswerGo to: http://www.ahrq.gov/questionsaretheanswer/Select from topics:Talking with Your Clinician.Getting Medical Tests.Planning for Surgery.Getting a Prescription.Build Your Question List.Resources.Glossary.To Order AHRQ Publications:For print copies, contact the AHRQ Publications Clearinghouse at 800-358-9295.Top of PageNext Steps After Your Diagnosis: Finding Information and Support includes selected organizations and other resources that provide information and support to people with a wide range of diseases and disorders. The listings are not intended to be comprehensive. Nor does inclusion of any particular resource, outside of those sponsored by the Federal Government, imply endorsement by AHRQ or the Department of Health and Human Services. AHRQ advises that no information from any resource in this document should take the place of medical advice from your doctor. Current as of October 2012 Internet Citation: Where to Find More Information (cont.): Next Steps After Your Diagnosis. October 2012. Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/patients-consumers/diagnosis-treatment/diagnosis/diaginfo/diaginf8.html
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