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AHRQ Research Studies Date
Topics
- Cancer: Prostate Cancer (1)
- Caregiving (2)
- Centers for Education and Research on Therapeutics (CERTs) (1)
- Children/Adolescents (2)
- Clinician-Patient Communication (5)
- Dementia (1)
- Diabetes (1)
- Digestive Disease and Health (1)
- Education: Patient and Caregiver (2)
- Evidence-Based Practice (2)
- Healthcare Delivery (2)
- Health Insurance (1)
- Health Services Research (HSR) (1)
- Heart Disease and Health (1)
- Medical Devices (1)
- Medication (2)
- Nursing Homes (1)
- Patient-Centered Healthcare (3)
- Patient-Centered Outcomes Research (2)
- (-) Patient and Family Engagement (16)
- Practice Patterns (1)
- Primary Care: Models of Care (1)
- Quality of Care (1)
- (-) Shared Decision Making (16)
- Sickle Cell Disease (1)
- Transplantation (1)
- Women (1)
AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 16 of 16 Research Studies DisplayedSpatz ES, Krumholz HM, Moulton BW
Prime time for shared decision making.
To guide the implementation of high-quality and achievable shared decision making, policy makers and health systems may consider the following key steps: 1) clearly define shared decision making; 2) certify decision aids and provide incentives for their evaluation and maintenance; 3) promote competency in shared decision making; 4) develop measures of shared decisionmaking; and 5) foster a culture of shared decisionmaking through easy additions to work flow and positive incentives.
AHRQ-funded; HS023000.
Citation: Spatz ES, Krumholz HM, Moulton BW .
Prime time for shared decision making.
JAMA 2017 Apr;317(13):1309-10. doi: 10.1001/jama.2017.0616.
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Keywords: Shared Decision Making, Clinician-Patient Communication, Patient and Family Engagement, Patient-Centered Outcomes Research
Jolles MP, Wells R
Does caregiver participation in decision making within child welfare agencies influence children's primary and mental health care service use?
This study uses a national sample of children involved with child welfare to compare their health service use between those children served through a participatory decision making (PDM) practice and those who did not experience it. It concluded that lower-risk families were more likely to be served through PDM which was positively associated with child use of primary health services.
AHRQ-funded; HS000032.
Citation: Jolles MP, Wells R .
Does caregiver participation in decision making within child welfare agencies influence children's primary and mental health care service use?
Child Care Health Dev 2017 Mar;43(2):192-201. doi: 10.1111/cch.12384.
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Keywords: Caregiving, Children/Adolescents, Shared Decision Making, Health Services Research (HSR), Patient and Family Engagement
Raj M, Choi SW, Platt J
A qualitative exploration of the informed consent process in hematopoietic cell transplantation clinical research and opportunities for improvement.
This study found that providers understand informed consent to be a collaborative process requiring engagement and participation of providers, patients and caregivers. 'Markers of success' were identified including cognitive, affective and procedural markers focusing on patient understanding and comfort with the decision to participate. Opportunities for innovating the process included use of decision aids and tablet-based technology, and better use of patient portals.
AHRQ-funded; HS023613.
Citation: Raj M, Choi SW, Platt J .
A qualitative exploration of the informed consent process in hematopoietic cell transplantation clinical research and opportunities for improvement.
Bone Marrow Transplant 2017 Feb;52(2):292-98. doi: 10.1038/bmt.2016.252.
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Keywords: Shared Decision Making, Patient and Family Engagement, Transplantation
Armstrong MJ, Mullins CD
Value assessment at the point of care: incorporating patient values throughout care delivery and a draft taxonomy of patient values.
In this commentary, the authors propose a taxonomy of values underlying patient decision making and provide examples of how these impact provision of health care. Their draft taxonomy describes four categories of patient values: global, decisional, situational, and external, highlights different values impacting decision making and facilitates a more complete value assessment at the point of care.
AHRQ-funded; HS024159.
Citation: Armstrong MJ, Mullins CD .
Value assessment at the point of care: incorporating patient values throughout care delivery and a draft taxonomy of patient values.
Value Health 2017 Feb;20(2):292-95. doi: 10.1016/j.jval.2016.11.008.
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Keywords: Shared Decision Making, Healthcare Delivery, Patient and Family Engagement
Makam AN, Nguyen OK
An evidence-based medicine approach to antihyperglycemic therapy in diabetes mellitus to overcome overtreatment.
This article discusses the importance of (1) using absolute rather than relative estimates of benefits to inform treatment decisions; (2) considering the time horizon to benefit of treatments; (3) balancing potential harms and benefits; and (4) using shared decision making by physicians to incorporate the patient's values and preferences into treatment decisions.
AHRQ-funded; HS022418.
Citation: Makam AN, Nguyen OK .
An evidence-based medicine approach to antihyperglycemic therapy in diabetes mellitus to overcome overtreatment.
Circulation 2017 Jan 10;135(2):180-95. doi: 10.1161/circulationaha.116.022622.
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Keywords: Shared Decision Making, Diabetes, Evidence-Based Practice, Patient and Family Engagement, Patient-Centered Outcomes Research
Cohen MD
AHRQ Author: Cohen MD
Engaging patients in understanding and using evidence to inform shared decision making.
The authors discuss various issues surrounding effective shared decision making, a collaborative process in which patients and members of their clinical teams work together to make health care decisions. These issues include some of the barriers – and facilitators – to engaging patients in understanding and using evidence to inform shared decision making and strategies that organizations can use to fully engage patients in creating and using evidence in decision making.
AHRQ-authored.
Citation: Cohen MD .
Engaging patients in understanding and using evidence to inform shared decision making.
Patient Educ Couns 2017 Jan;100(1):2-3. doi: 10.1016/j.pec.2016.11.013.
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Keywords: Shared Decision Making, Evidence-Based Practice, Patient and Family Engagement, Clinician-Patient Communication
Tjia J, Lemay CA, Bonner A
Informed family member involvement to improve the quality of dementia care in nursing homes.
Researchers described the extent to which nursing homes engaged families in antipsychotic initiation decisions in the year before surveyor guidance revisions were implemented. Under existing federal regulations but before guidance revisions were implemented in 2013, more than 40 percent of families reported being involved in nonpharmacological behavior management of family members, but fewer than one in four reported being involved throughout the entire antipsychotic prescribing process.
AHRQ-funded; HS019351.
Citation: Tjia J, Lemay CA, Bonner A .
Informed family member involvement to improve the quality of dementia care in nursing homes.
J Am Geriatr Soc 2017 Jan;65(1):59-65. doi: 10.1111/jgs.14299.
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Keywords: Shared Decision Making, Dementia, Medication, Nursing Homes, Patient and Family Engagement
Scherr KA, Fagerlin A, Hofer T
Physician recommendations trump patient preferences in prostate cancer treatment decisions.
This study assessed the influence of patient preferences and urologist recommendations in treatment decisions for clinically localized prostate cancer. It found that patients' initial treatment preferences did not predict receipt of active treatment versus surveillance. Instead, receipt of active treatment was predicted primarily by urologists' recommendations.
AHRQ-funded; HS021764.
Citation: Scherr KA, Fagerlin A, Hofer T .
Physician recommendations trump patient preferences in prostate cancer treatment decisions.
Med Decis Making 2017 Jan;37(1):56-69. doi: 10.1177/0272989x16662841.
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Keywords: Cancer: Prostate Cancer, Shared Decision Making, Patient and Family Engagement, Patient-Centered Healthcare, Clinician-Patient Communication
Hajizadeh N, Uhler LM, Perez Figueroa RE
Understanding patients' and doctors' attitudes about shared decision making for advance care planning.
The authors sought to gain general insights into the current practice of shared decision making (SDM) and attitudes about patient involvement, and also to gain specific insights into experience with, and attitudes about, SDM for advance care planning. They found that patients were generally open to having end-of-life discussions with their doctors, although their openness sometimes depended on the circumstance. Doctors reported engaging in end-of-life treatment decisions with their patients, although they expressed the need for conversations to take place earlier, in advance of acute illness.
AHRQ-funded; HS022061; HS019473.
Citation: Hajizadeh N, Uhler LM, Perez Figueroa RE .
Understanding patients' and doctors' attitudes about shared decision making for advance care planning.
Health Expect 2015 Dec;18(6):2054-65. doi: 10.1111/hex.12285.
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Keywords: Clinician-Patient Communication, Shared Decision Making, Patient and Family Engagement, Patient-Centered Healthcare
Shortell SM, Sehgal NJ, Bibi S
An early assessment of accountable care organizations' efforts to engage patients and their families.
The authors sought to examine the extent to which ACOs actively engage patients and their families, explore challenges involved, and consider approaches for dealing with those challenges. They identified important practices associated with greater patient activation and engagement, including high-level leadership commitment, goal-setting supported by adequate resources, extensive provider training, use of interdisciplinary care teams, and frequent monitoring and reporting on progress.
AHRQ-funded; HS022241.
Citation: Shortell SM, Sehgal NJ, Bibi S .
An early assessment of accountable care organizations' efforts to engage patients and their families.
Med Care Res Rev 2015 Oct;72(5):580-604. doi: 10.1177/1077558715588874.
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Keywords: Shared Decision Making, Quality of Care, Patient and Family Engagement, Clinician-Patient Communication
Blumenthal-Barby JS, Kostick KM, Delgado ED
Assessment of patients' and caregivers' informational and decisional needs for left ventricular assist device placement: implications for informed consent and shared decision-making.
The authors investigated the decision-making process and informational and decisional needs of patients and their caregivers regarding left ventricular assist device (LVAD) placement. They found that participants easily and clearly identified their values: life extension; family; and mobility. Participants reported the need to meet other patients and caregivers before device placement and to have an involved caregiver to synthesize information. They further found that some participants demonstrated a lack of clarity regarding transplant probability.
AHRQ-funded; HS024849.
Citation: Blumenthal-Barby JS, Kostick KM, Delgado ED .
Assessment of patients' and caregivers' informational and decisional needs for left ventricular assist device placement: implications for informed consent and shared decision-making.
J Heart Lung Transplant 2015 Sep;34(9):1182-9. doi: 10.1016/j.healun.2015.03.026.
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Keywords: Caregiving, Shared Decision Making, Heart Disease and Health, Medical Devices, Patient and Family Engagement
Singh JA, Qu H, Yazdany J
Barriers to medication decision making in women with lupus nephritis: a formative study using nominal group technique.
The researchers assessed the perspectives of women with lupus nephritis on barriers to medication decision making. The most salient perceived barriers, as indicated by percent-weighted votes assigned, were known/anticipated side effects (15.6 percent), medication expense/ability to afford medications (8.2 percent), and the fear that the medication could cause other diseases (7.8 percent).
AHRQ-funded; HS021110.
Citation: Singh JA, Qu H, Yazdany J .
Barriers to medication decision making in women with lupus nephritis: a formative study using nominal group technique.
J Rheumatol 2015 Sep;42(9):1616-23. doi: 10.3899/jrheum.150168.
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Keywords: Centers for Education and Research on Therapeutics (CERTs), Shared Decision Making, Education: Patient and Caregiver, Medication, Patient and Family Engagement
Siegel CA, Lofland JH, Naim A
Gastroenterologists' views of shared decision making for patients with inflammatory bowel disease.
The researchers examined gastroenterologists' perspectives about shared decision making (SDM) with patients with inflammatory bowel disease (IBD). They found three key barriers to practicing SDM were lack of time, reimbursement, and tools. They concluded that gastroenterologists lack the systematic approaches and tools for implementing SDM within their IBD practices.
AHRQ-funded; HS021747.
Citation: Siegel CA, Lofland JH, Naim A .
Gastroenterologists' views of shared decision making for patients with inflammatory bowel disease.
Dig Dis Sci 2015 Sep;60(9):2636-45. doi: 10.1007/s10620-015-3675-z.
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Keywords: Shared Decision Making, Digestive Disease and Health, Patient and Family Engagement, Practice Patterns
DeCamp M, Sugarman J, Berkowitz SA
Meaningfully engaging patients in ACO decision making.
In this article, the authors describe how ACOs can achieve meaningful system-level patient engagement. They specify a three-step engagement framework: identifying beneficiary representatives, cultivating relationships, and evaluating engagement. They conclude that their proposed three-step framework can help accountable care organizations (ACOs) conceptualize a plan for meaningfully engaging patients in ACO governance.
AHRQ-funded; HS023684.
Citation: DeCamp M, Sugarman J, Berkowitz SA .
Meaningfully engaging patients in ACO decision making.
Am J Accountable Care 2015 Jun;3(2):30-33.
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Keywords: Patient and Family Engagement, Shared Decision Making, Health Insurance, Healthcare Delivery
Moore JE, Titler MG, Kane Low L
AHRQ Author: Moore JE
Transforming patient-centered care: development of the evidence informed decision making through engagement model.
The purpose of this article is to set forth a new patient-centered implementation model informed by a qualitative study that explored women’s decisions, perceptions, and experiences of elective induction of labor. Through a process of theory evaluation and development, the authors explore patient-centered concepts (patient activation and shared decision making) within an implementation model by mapping qualitative data from an elective induction of labor study to assess the model’s ability to capture these key concepts.
AHRQ-authored.
Citation: Moore JE, Titler MG, Kane Low L .
Transforming patient-centered care: development of the evidence informed decision making through engagement model.
Womens Health Issues 2015 May-Jun;25(3):276-82. doi: 10.1016/j.whi.2015.02.002..
Keywords: Shared Decision Making, Patient and Family Engagement, Patient-Centered Healthcare, Primary Care: Models of Care, Women
Crosby LE, Shook LM, Ware RE
Shared decision making for hydroxyurea treatment initiation in children with sickle cell anemia.
While decision aids and tools are being developed, the authors recommended six strategies providers can use to facilitate discussions concerning the NHLBI clinical guidelines to recommend hydroxyurea for young patients with sickle cell anemia.
AHRQ-funded; HS021114.
Citation: Crosby LE, Shook LM, Ware RE .
Shared decision making for hydroxyurea treatment initiation in children with sickle cell anemia.
Pediatr Blood Cancer 2015 Feb;62(2):184-85. doi: 10.1002/pbc.25124.
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Keywords: Children/Adolescents, Shared Decision Making, Education: Patient and Caregiver, Patient and Family Engagement, Sickle Cell Disease