National Healthcare Quality and Disparities Report
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Topics
- Autism (1)
- Caregiving (1)
- Children/Adolescents (1)
- Clinician-Patient Communication (1)
- Communication (2)
- Cultural Competence (1)
- Diagnostic Safety and Quality (1)
- Disparities (1)
- (-) Education: Patient and Caregiver (21)
- Electronic Health Records (EHRs) (4)
- Health Information Technology (HIT) (11)
- Health Insurance (1)
- Health Literacy (2)
- Health Promotion (1)
- Low-Income (1)
- Nursing Homes (1)
- Patient Adherence/Compliance (1)
- Patient and Family Engagement (2)
- Patient Experience (1)
- Pregnancy (2)
- Public Reporting (2)
- Quality Measures (1)
- Quality of Care (2)
- Racial and Ethnic Minorities (5)
- Shared Decision Making (2)
- Social Determinants of Health (1)
- Social Media (2)
- Telehealth (2)
- Uninsured (1)
- Urban Health (1)
- (-) Web-Based (21)
- Women (1)
AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 21 of 21 Research Studies DisplayedShorten A, Shorten B, Fagerlin A
A study to assess the feasibility of implementing a web-based decision aid for birth after cesarean to increase opportunities for shared decision making in ethnically diverse settings.
This article describes a study that tested the feasibility and acceptability of implementing a Health Insurance Portability and Accountability Act-secure, Web-based decision aid tool that supports shared decisionmaking with regard to birth choices after cesarean in urban, ethnically diverse outpatient settings. Sixty-eight women participated in the study; the measures included the women's knowledge, decisional conflict, birth preferences and outcomes, decision aid use and acceptability ratings, and views on how the decision aid supported shared decisionmaking. The women rated the content, features, and functions as good or excellent. Most indicated they would recommend it to others. The researchers conclude that while the decision aid is feasible, strategies are needed to improve women's access and to encourage timely decision aid usage to prepare them for decision discussions with health care providers.
AHRQ-funded; HS022114.
Citation: Shorten A, Shorten B, Fagerlin A .
A study to assess the feasibility of implementing a web-based decision aid for birth after cesarean to increase opportunities for shared decision making in ethnically diverse settings.
J Midwifery Womens Health 2019 Jan;64(1):78-87. doi: 10.1111/jmwh.12908..
Keywords: Shared Decision Making, Education: Patient and Caregiver, Health Information Technology (HIT), Pregnancy, Racial and Ethnic Minorities, Web-Based, Women
Millenson ML, Baldwin JL, Zipperer L
Beyond Dr. Google: the evidence on consumer-facing digital tools for diagnosis.
Direct-to-consumer (DTC), interactive, diagnostic apps with information personalization capabilities beyond those of static search engines are rapidly proliferating. Little is known about the state of the evidence on the performance of these apps or the methods used to evaluate them. In this paper, the authors conducted a scoping review of the peer-reviewed and gray literature for the period January 1, 2014-June 30, 2017 to examine the current evidence base on DTC, interactive diagnostic apps.
AHRQ-funded; HS022087.
Citation: Millenson ML, Baldwin JL, Zipperer L .
Beyond Dr. Google: the evidence on consumer-facing digital tools for diagnosis.
Diagnosis 2018 Sep 25;5(3):95-105. doi: 10.1515/dx-2018-0009..
Keywords: Diagnostic Safety and Quality, Education: Patient and Caregiver, Health Information Technology (HIT), Web-Based
Bush RA, Richardson AC, Cardona-Grau D
Patient portal usage in pediatric urology: is it meaningful use for everyone?
This study examined pediatric urology patient portal enrollment and activation patterns at a tertiary pediatric hospital in Southern California by race/ethnicity, preferred language, gender, and residential region. The study concluded that primary language and socioeconomic factors may be significant barriers to portal adoption. Patient education to reduce these barriers may increase portal acceptance and increase meaningfulness to the portal for patients/parents and providers.
AHRQ-funded; HS022404.
Citation: Bush RA, Richardson AC, Cardona-Grau D .
Patient portal usage in pediatric urology: is it meaningful use for everyone?
Urol Pract 2018 Jul;5(4):279-85. doi: 10.1016/j.urpr.2017.05.002..
Keywords: Education: Patient and Caregiver, Electronic Health Records (EHRs), Health Information Technology (HIT), Patient and Family Engagement, Web-Based
Harris VC, Links AR, Hong P
Consulting Dr. Google: quality of online resources about tympanostomy tube placement.
The authors of this study evaluate the quality of leading Internet resources describing tympanostomy tube (TT) placement. They concluded that Internet resources about TT placement varied in quality pertaining to health literacy, principles of shared decision making, and consistency with practice guidelines.
AHRQ-funded; HS022932.
Citation: Harris VC, Links AR, Hong P .
Consulting Dr. Google: quality of online resources about tympanostomy tube placement.
Laryngoscope 2018 Feb;128(2):496-501. doi: 10.1002/lary.26824..
Keywords: Children/Adolescents, Education: Patient and Caregiver, Health Information Technology (HIT), Health Literacy, Web-Based
Mogul DB, Nagy PG, Bridges JFP
Building stronger online communities through the creation of Facebook-integrated health applications.
Social media, such as Facebook, provides a powerful mechanism to connect individuals with similar diseases, but current platforms do not achieve their full potential to help patients communicate with one another or with the medical community. The authors of this viewpoint article believe that an opportunity exists for health care professionals to strengthen online communities by creating apps that use the Facebook platform or a programming interface. Development of such apps are discussed, with an eye toward the needs of the patient, parent, or caregiver as end-users and involving their input.
AHRQ-funded; HS023876.
Citation: Mogul DB, Nagy PG, Bridges JFP .
Building stronger online communities through the creation of Facebook-integrated health applications.
JAMA Pediatr 2017 Oct;171(10):933-34. doi: 10.1001/jamapediatrics.2017.2300..
Keywords: Clinician-Patient Communication, Communication, Education: Patient and Caregiver, Health Information Technology (HIT), Social Media, Web-Based
Lyles CR, Fruchterman J, Youdelman M
Legal, practical, and ethical considerations for making online patient portals accessible for all.
The authors argue that there are potential legal mandates for improving portal accessibility (e.g., the Civil Rights and the Rehabilitation Acts), as well as ethical considerations to prevent the exacerbation of existing health and health care disparities. To address these legal, practical, and ethical considerations, they present standards and broad recommendations that could greatly improve the reach and impact of portal Web sites.
AHRQ-funded; HS022408.
Citation: Lyles CR, Fruchterman J, Youdelman M .
Legal, practical, and ethical considerations for making online patient portals accessible for all.
Am J Public Health 2017 Oct;107(10):1608-11. doi: 10.2105/ajph.2017.303933.
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Keywords: Health Information Technology (HIT), Web-Based, Education: Patient and Caregiver, Electronic Health Records (EHRs)
Holroyd LE, Anders S, Robinson JR
This study examined the relationships among Multidimensional Health Locus of Control (MHLC) scores, information-seeking behaviors, and health-related needs in 71 pregnant women and 29 caregivers.
This study examined the relationships among Multidimensional Health Locus of Control (MHLC) scores, information-seeking behaviors, and health-related needs in 71 pregnant women and 29 caregivers.
AHRQ-funded; HS021496.
Citation: Holroyd LE, Anders S, Robinson JR .
This study examined the relationships among Multidimensional Health Locus of Control (MHLC) scores, information-seeking behaviors, and health-related needs in 71 pregnant women and 29 caregivers.
AMIA Annu Symp Proc 2017 Apr 16;2017:902-11..
Keywords: Caregiving, Education: Patient and Caregiver, Health Information Technology (HIT), Pregnancy, Web-Based
Ancker JS, Mauer E, Hauser D
Expanding access to high-quality plain-language patient education information through context-specific hyperlinks.
A federally qualified health center (FQHC) sought to help patients interpret their records by embedding context-specific hyperlinks to plain-language patient education materials in its portal. Black patients, Latino patients comfortable using English, and patients covered by Medicaid were more likely to use the informational hyperlinks than other patients.
AHRQ-funded; HS021531.
Citation: Ancker JS, Mauer E, Hauser D .
Expanding access to high-quality plain-language patient education information through context-specific hyperlinks.
AMIA Annu Symp Proc 2017 Feb 10;2016:277-84.
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Keywords: Education: Patient and Caregiver, Electronic Health Records (EHRs), Health Information Technology (HIT), Web-Based
Bjarnadottir RI, Millery M, Fleck E
Correlates of online health information-seeking behaviors in a low-income Hispanic community.
The authors explored the correlates of online health information-seeking behaviors among Hispanic residents of a low-income urban neighborhood. They found that age and Spanish as preferred language were negatively associated with online health information-seeking, whereas education and health literacy were positively associated. They concluded that their findings have implications for designing online health information resources and interventions appropriate for the populations they are likely to reach.
AHRQ-funded; HS019853.
Citation: Bjarnadottir RI, Millery M, Fleck E .
Correlates of online health information-seeking behaviors in a low-income Hispanic community.
Inform Health Soc Care 2016 Dec;41(4):341-9. doi: 10.3109/17538157.2015.1064429.
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Keywords: Education: Patient and Caregiver, Low-Income, Racial and Ethnic Minorities, Urban Health, Web-Based
Furtado KS, Kaphingst KA, Perkins H
Health insurance information-seeking behaviors among the uninsured.
In order to better understand how to reach the uninsured and support their health insurance decision making, this study examined where the uninsured collect information about health insurance and the extent to which they trust those sources and media. Its findings suggest that strategies that pair health care professionals, lay health advisors, or community liaisons with the ubiquity of the Internet may be a strong approach for delivering quality health insurance information to the uninsured.
AHRQ-funded; HS020309.
Citation: Furtado KS, Kaphingst KA, Perkins H .
Health insurance information-seeking behaviors among the uninsured.
J Health Commun 2016;21(2):148-58. doi: 10.1080/10810730.2015.1039678.
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Keywords: Uninsured, Health Insurance, Education: Patient and Caregiver, Web-Based
Bush RA, Stahmer AC, Connelly CD
Exploring perceptions and use of the electronic health record by parents of children with autism spectrum disorder: a qualitative study.
This study used structured interviews with nine parents to examine perceptions of electronic health records and related patient portals in the treatment of their children. The authors recommend further research to increase portal registration and integration in patient care.
AHRQ-funded; HS022404.
Citation: Bush RA, Stahmer AC, Connelly CD .
Exploring perceptions and use of the electronic health record by parents of children with autism spectrum disorder: a qualitative study.
Health Informatics J 2016 Sep;22(3):702-11. doi: 10.1177/1460458215581911.
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Keywords: Autism, Electronic Health Records (EHRs), Web-Based, Patient Experience, Education: Patient and Caregiver
Menefee HK, Thompson MJ, Guterbock TM
Mechanisms of communicating health information through Facebook: implications for consumer health information technology design.
The authors aimed to characterize patients' use of communication mechanisms within Facebook for health information communication to provide insight into how consumer HIT solutions may be better designed to meet patients' communication needs and preferences. They found that participants consider multiple factors, including what information they intended to share, what they were trying to accomplish, attributes of technology, and attributes and communication practices of their social networks.
AHRQ-funded; HS022930.
Citation: Menefee HK, Thompson MJ, Guterbock TM .
Mechanisms of communicating health information through Facebook: implications for consumer health information technology design.
J Med Internet Res 2016 Aug 11;18(8):e218. doi: 10.2196/jmir.5949.
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Keywords: Communication, Education: Patient and Caregiver, Health Information Technology (HIT), Social Media, Web-Based
Perez SL, Kravitz RL, Bell RA
Characterizing internet health information seeking strategies by socioeconomic status: a mixed methods approach.
The authors investigated how the Internet is used to obtain health-related information and how individuals with differing socioeconomic resources navigate it when presented with a health decision. Their findings suggest that individuals with different levels of socioeconomic status vary in the heuristics and search patterns they rely upon to direct their searches and that the influence and use of credible information in the process of making a decision is associated with education and prior experiences with healthcare services.
AHRQ-funded; HS022236.
Citation: Perez SL, Kravitz RL, Bell RA .
Characterizing internet health information seeking strategies by socioeconomic status: a mixed methods approach.
BMC Med Inform Decis Mak 2016 Aug 9;16:107. doi: 10.1186/s12911-016-0344-x.
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Keywords: Education: Patient and Caregiver, Health Information Technology (HIT), Social Determinants of Health, Web-Based
Konetzka RT, Perraillon MC
Use of Nursing Home Compare website appears limited by lack of awareness and initial mistrust of the data.
The researchers used a qualitative assessment of how consumers select nursing homes and of the role of information about quality, using semistructured interviews of people who recently placed a family member or friend in a nursing home. They found that consumers had a positive reaction when shown Nursing Home Compare; however, its use appeared to be limited by lack of awareness and, to some extent, initial lack of trust of the data.
AHRQ-funded; HS021877.
Citation: Konetzka RT, Perraillon MC .
Use of Nursing Home Compare website appears limited by lack of awareness and initial mistrust of the data.
Health Aff 2016 Apr;35(4):706-13. doi: 10.1377/hlthaff.2015.1377.
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Keywords: Nursing Homes, Public Reporting, Web-Based, Quality of Care, Education: Patient and Caregiver
Arcia A, Suero-Tejeda N, Bales ME
Sometimes more is more: iterative participatory design of infographics for engagement of community members with varying levels of health literacy.
The study objective was to collaborate with community members to develop tailored infographics that support comprehension of health information, engage the viewer, and may have the potential to motivate health-promoting behaviors. It concluded that carefully designed infographics can be useful tools to support comprehension and thus help patients engage with their own health data.
AHRQ-funded; HS019853; HS022961
Citation: Arcia A, Suero-Tejeda N, Bales ME .
Sometimes more is more: iterative participatory design of infographics for engagement of community members with varying levels of health literacy.
J Am Med Inform Assoc 2016 Jan;23(1):174-83. doi: 10.1093/jamia/ocv079.
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Keywords: Education: Patient and Caregiver, Health Literacy, Health Promotion, Patient and Family Engagement, Web-Based
Lee YJ, Boden-Albala B, Jia H
The association between online health information-seeking behaviors and health behaviors among Hispanics in New York City: a community-based cross-sectional study.
The specific aim of this study was to examine the association between online health information-seeking behaviors and health behaviors (physical activity, fruit and vegetable consumption, alcohol use, and hypertension medication adherence) among Hispanics. It concluded that given the promising, although modest, associations between online health information-seeking behaviors and some health behaviors, efforts are needed to improve Hispanics' ability to access and understand health information.
AHRQ-funded; HS022961; HS019853.
Citation: Lee YJ, Boden-Albala B, Jia H .
The association between online health information-seeking behaviors and health behaviors among Hispanics in New York City: a community-based cross-sectional study.
J Med Internet Res 2015 Nov 26;17(11):e261. doi: 10.2196/jmir.4368.
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Keywords: Education: Patient and Caregiver, Web-Based, Telehealth, Patient Adherence/Compliance, Racial and Ethnic Minorities
Perez SL, Paterniti DA, Wilson M
Characterizing the processes for navigating internet health information using real-time observations: a mixed-methods approach.
The researchers aimed to describe the processes by which users navigate the Internet for information about a hypothetical acute illness and to identify individual characteristics predictive of their information-seeking strategies. They identified and classified two approaches to processing Internet health information: System 1(41 percent, 32/78) unconscious, rapid, automatic, and high capacity processing and System 2 (59 percent, 46/78) conscious, slow, and deliberative processing.
AHRQ-funded; HS022236.
Citation: Perez SL, Paterniti DA, Wilson M .
Characterizing the processes for navigating internet health information using real-time observations: a mixed-methods approach.
J Med Internet Res 2015 Jul 20;17(7):e173. doi: 10.2196/jmir.3945..
Keywords: Education: Patient and Caregiver, Web-Based, Telehealth
Bardach NS, Hibbard JH, Greaves F
Sources of traffic and visitors' preferences regarding online public reports of quality: web analytics and online survey results.
Online public reports of quality exist, but little is known about how visitors find reports or about their purpose in visiting. To address this gap,the researchers gathered website analytics data from a national group of online public reports of hospital or physician quality and surveyed real-time visitors to those websites. They found that consumers were frequently interested in using the information to choose providers or assess the quality of their provider.
AHRQ-funded; 290200600023I.
Citation: Bardach NS, Hibbard JH, Greaves F .
Sources of traffic and visitors' preferences regarding online public reports of quality: web analytics and online survey results.
J Med Internet Res 2015 May;17(5):e102. doi: 10.2196/jmir.3637.
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Keywords: Web-Based, Public Reporting, Quality Measures, Education: Patient and Caregiver
Lee YJ, Boden-Albala B, Larson E
Online health information seeking behaviors of Hispanics in New York City: a community-based cross-sectional study.
The authors examined factors associated with online health-information-seeking behaviors (HISBs) of the Hispanic population. This large survey identified factors meriting closer examination, such as cultural context. Health care providers and policymakers need to understand the cultural context of this population and develop informatics-based interventions to improve their health.
AHRQ-funded; HS019853; HS022961
Citation: Lee YJ, Boden-Albala B, Larson E .
Online health information seeking behaviors of Hispanics in New York City: a community-based cross-sectional study.
J Med Internet Res. 2014 Jul 22;16(7):e176. doi: 10.2196/jmir.3499..
Keywords: Education: Patient and Caregiver, Racial and Ethnic Minorities, Racial and Ethnic Minorities, Web-Based
Longo DR, Woolf HS
Rethinking the information priorities of patients.
Efforts have intensified to provide consumers with online data tools and consumer reports that offer profiles and statistics for evaluating specialists, hospitals, and other clinical facilities. In this article, the authors examine two key questions: what should these resources look like and do patients really want them?
AHRQ-funded; HS021902
Citation: Longo DR, Woolf HS .
Rethinking the information priorities of patients.
JAMA. 2014 May 14;311(18):1857-8. doi: 10.1001/jama.2014.3038..
Keywords: Education: Patient and Caregiver, Shared Decision Making, Quality of Care, Health Information Technology (HIT), Web-Based
Liu KY, Haukoos JS, Sasson C
Availability and quality of cardiopulmonary resuscitation information for Spanish-speaking population on the Internet.
The goal of this study was to evaluate the availability and quality of CPR-related literature for Spanish-speaking-only individuals on the Internet. It found that only 1 in 7 websites on the Internet has quality hands-only CPR education for this population.
AHRQ-funded; HS017526.
Citation: Liu KY, Haukoos JS, Sasson C .
Availability and quality of cardiopulmonary resuscitation information for Spanish-speaking population on the Internet.
Resuscitation. 2014 Jan;85(1):131-7. doi: 10.1016/j.resuscitation.2013.08.274..
Keywords: Education: Patient and Caregiver, Cultural Competence, Disparities, Racial and Ethnic Minorities, Web-Based