Finding Information and Support

Where to Find More Information

Next Steps After Your Diagnosis

On This Page

Get the Support You Need

American Self-Help Group Clearinghouse

http://mentalhelp.net/selfhelp/

National Board for Certified Counselors (NBCC)

3 Terrace Way, Suite D

Greensboro, NC 27403-3660

336-547-0607

http://www.nbcc.org

National Institute of Mental Health

Public Information and Communications Branch

6001 Executive Boulevard, Room 8184, MSC 9663

Bethesda, MD 20892-9663

Phone: 866-615-6464 (toll-free)

TTY: 301-443-8431

http://www.nimh.nih.gov/HealthInformation/GettingHelp.cfm

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Talk With Your Doctor

Be an Active Member of Your Health Care Team

Food and Drug Administration, 2007

http://www.fda.gov/Drugs/ResourcesForYou/ucm079480.htm

Phone: 888-INFO-FDA (888-463-6332) [Last updated 4/30/2009]

Having Surgery? What You Need to Know

Agency for Healthcare Research and Quality,, 2005

http://www.ahrq.gov/consumer/surgery/surgery.htm

Phone: 800-358-9295

Getting a Second Opinion Before Surgery

Centers for Medicare & Medicaid Services, 2004

http://www.medicare.gov/Publications/Pubs/pdf/02173.pdf 

Phone: 800-MEDICARE (800-633-4227)

How to Get a Second Opinion

National Women's Health Information

Center, 2003

http://www.4woman.gov/pub/secondopinion.cfm

Phone: 1-800-994-WOMAN

Quick Tips—When Planning for Surgery

Agency for Healthcare Research and Quality, 2002

http://www.ahrq.gov/consumer/quicktips/tipsurgery.htm

Phone: 800-358-9295

Talking with Your Doctor: A Guide for Older People

National Institute on Aging, 2002

http://www.nia.nih.gov/HealthInformation/Publications/TalkingWithYourDoctor/

Phone: 800-222-2225

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Seek Out Information

2005 Toll-Free Numbers for Health Information

National Health Information Center

http://www.health.gov/nhic/pubs/tollfree.htm

Phone: 800-336-4797

HON Code of Conduct (HONcode) for Medical and Health Web Sites

Health on the Net Foundation

http://www.hon.ch/HONcode/

How to Evaluate Health Information on the Internet: Questions and Answers

National Cancer Institute, 2003

http://www.cancer.gov/cancertopics/factsheet/Information/internet

Phone: 800-4-CANCER (800-422-6237)

MEDLINEplus Guide to Healthy Web Surfing

National Library of Medicine

http://www.nlm.nih.gov/medlineplus/healthywebsurfing.html

Evaluating Internet Health Information: A Tutorial from the National Library of Medicine

http://www.nlm.nih.gov/medlineplus/weveval/weveval.html

National Guideline Clearinghouse™

Agency for Healthcare Research and Quality

http://www.guideline.gov

NOAH: New York Online Access to Health

http://www.noah-health.org/

A User's Guide to Finding and Evaluating Health Information on the Web

Medical Library Association, 2010

http://www.mlanet.org/resources/userguide.html#1

Virtual Treatments Can Be Real-World Deceptions

Federal Trade Commission, 2001

http://www.ftc.gov/bcp/conline/pubs/alerts/mrclalrt.htm

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Specific Diseases and Conditions

Allergies

ALS

Alzheimer's Disease

Arthritis

Asthma

Cancer

Cerebral Palsy

Chronic Fatigue Syndrome

Chronic Obstructive Pulmonary Disease

Craniofacial and Skeletal Diseases

Deafness and Hearing Disorders

Diabetes

Digestive Diseases

Eye Diseases and Disorders

Fibromyalgia

Heart Disease

 
High Blood Pressure

HIV/AIDS

Immunodeficiency Disorders

Infectious Diseases

Kidney Diseases

Lung Diseases

Mental Health

Multiple Sclerosis

Muscular Dystrophy

Neurologic Disorders

Obesity

Parkinson's Disease

Rare Diseases and Disorders

Skin Diseases

Sleep Disorders

Stroke

Urologic Diseases

Allergies

Publications

Allergies

National Institute of Allergies and Infectious Diseases

http://www3.niaid.nih.gov/PubsOrderForm/default.asp

Return to Specific Diseases and Conditions

ALS

Organizations/Information

ALS Association

27001 Agoura Road, Suite 150

Calabasas Hills, CA 91301-5104

Phone: 800-782-4747

http://www.alsa.org/

Publications

Newly Diagnosed

ALS Association, 2004

http://www.alsa.org/patient/diagnosed.cfm? CFID=162302&CFTOKEN=7741544

Return to Specific Diseases and Conditions

Alzheimer's Disease

Organizations/Information

Alzheimer's Association

225 N. Michigan Avenue, Fl. 17

Chicago, IL 60601-7633

Phone: 800-272-3900 (Nationwide Contact Center Helpline)

http://www.alz.org

Alzheimer's Disease Education and Referral Center

P.O. Box 8250

Silver Spring, MD 20907-8250

Phone: 800-438-4380

http://www.alzheimers.org

Return to Specific Diseases and Conditions

Arthritis

Organizations/Information

National Institute of Arthritis and Musculoskeletal and Skin Diseases

1 AMS Circle

Bethesda, MD 20892-3675

Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267) (toll-free)

http://www.niams.nih.gov/hi/index.htm

Return to Specific Diseases and Conditions

Asthma

Organizations/Information

Asthma

National Heart, Lung, and Blood Institute

http://www.nhlbi.nih.gov/health/dci/Diseases/ Asthma/Asthma_WhatIs.html

National Heart, Lung, and Blood Institute

NHLBI Information Center

Attn: Web Site

P.O. Box 30105

Bethesda, MD 20824-0105

Phone: 301-592-8573

http://www.nhlbi.nih.gov/health/index.htm

Return to Specific Diseases and Conditions

Cancer

Organizations/Information

American Cancer Society

1599 Clifton Road, NE

Atlanta, GA 30329

Phone: 800-ACS-2345 (800-227-2345)

http://www.cancer.org

National Cancer Institute, Public Inquiries Office

6116 Executive Boulevard, Room 3036A

Bethesda, MD 20892-8322

Phone: 1-800-4-CANCER (1-800-422-6237)

TTY: 1-800-332-8615

http://cancer.gov/help

National Organizations that Offer Services to People with Cancer and Their Families

National Cancer Institute

http://www.cancer.gov/aboutnci/cis

Publications

After the Diagnosis (For women living with cancer)

Gillette Cancer Connection, 2004

http://www.gillettecancerconnect.org/women/after_diagnosis.asp

How to Talk to Health Care Professionals

National Breast Cancer Coalition

http://breastcancerdeadline2020.org/know/31-myths-and-truths/talk-to-health-care.html

Questions for Your Doctor: Your First Visit

Testicular Cancer Resource Center, 2004

http://tcrc.acor.org/startquest.html

Using Evidence-Based Information

National Breast Cancer Coalition, 2003

http://www.natlbcc.org/nbccf/info/evidence.html

What You Need to Know About Cancer

National Cancer Institute

http://www.cancer.gov/cancertopics/wyntk/cancer/AllPages

Support

Association of Cancer Online Resources

http://www.acor.org

National Organizations That Offer Cancer-Related Services

National Cancer Institute

https://cissecure.nci.nih.gov/factsheet/FactSheetSearch8_1.aspx

CancerCare: Get Help

http://www.cancercare.org/get_help/

National Coalition for Cancer Survivorship

http://www.canceradvocacy.org

Return to Specific Diseases and Conditions

Cerebral Palsy

Organizations/Information

United Cerebral Palsy

1660 L Street, NW, Suite 700

Washington, DC 20036

http://www.ucp.org

Return to Specific Diseases and Conditions

Chronic Fatigue Syndrome

Organizations/Information

Chronic Fatigue Syndrome

National Center for Infectious Diseases

Centers for Disease Control and Prevention

http://www.cdc.gov/ncidod/diseases/cfs/

Support

Support Groups

Centers for Disease Prevention and Control

http://www.cdc.gov/ncidod/diseases/cfs/support/

Return to Specific Diseases and Conditions

Chronic Obstructive Pulmonary Disease

Organizations/Information

Diseases and Conditions Index: COPD

National Heart, Lung, and Blood Institute

http://www.nhlbi.nih.gov/health/dci/Diseases/Copd/Copd_WhatIs.html

National Heart, Lung, and Blood Institute

NHLBI Information Center

Attn: Web Site

P.O. Box 30105

Bethesda, MD 20824-0105

Phone: 301-592-8573

http://www.nhlbi.nih.gov/health/index.htm

Return to Specific Diseases and Conditions

Craniofacial and Skeletal Diseases

Organizations/Information

Syndromes

Children's Craniofacial Association

http://www.ccakids.com/syn.asp

Return to Specific Diseases and Conditions

Page last reviewed October 2012
Internet Citation: Where to Find More Information. October 2012. Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/patients-consumers/diagnosis-treatment/diagnosis/diaginfo/diaginf7.html