Where to Find More Information

Next Steps After Your Diagnosis

On This Page

Get the Support You Need

American Self-Help Group Clearinghouse
http://mentalhelp.net/selfhelp/

National Board for Certified Counselors (NBCC)
3 Terrace Way, Suite D
Greensboro, NC 27403-3660
336-547-0607
http://www.nbcc.org

National Institute of Mental Health
Public Information and Communications Branch
6001 Executive Boulevard, Room 8184, MSC 9663
Bethesda, MD 20892-9663
Phone: 866-615-6464 (toll-free)
TTY: 301-443-8431
http://www.nimh.nih.gov/HealthInformation/GettingHelp.cfm

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Talk With Your Doctor

Be an Active Member of Your Health Care Team
Food and Drug Administration, 2007
http://www.fda.gov/Drugs/ResourcesForYou/ucm079480.htm
Phone: 888-INFO-FDA (888-463-6332) [Last updated 4/30/2009]

Having Surgery? What You Need to Know
Agency for Healthcare Research and Quality,, 2005
http://www.ahrq.gov/consumer/surgery/surgery.htm
Phone: 800-358-9295

Getting a Second Opinion Before Surgery
Centers for Medicare & Medicaid Services, 2004
http://www.medicare.gov/Publications/Pubs/pdf/02173.pdf (Plugin Software Help)
Phone: 800-MEDICARE (800-633-4227)

How to Get a Second Opinion
National Women's Health Information
Center, 2003
http://www.4woman.gov/pub/secondopinion.cfm
Phone: 1-800-994-WOMAN

Quick Tips—When Planning for Surgery
Agency for Healthcare Research and Quality, 2002
http://www.ahrq.gov/consumer/quicktips/tipsurgery.htm
Phone: 800-358-9295

Quick Tips—When Talking with Your Doctor
Agency for Healthcare Research and Quality, 2002
http://www.ahrq.gov/consumer/quicktips/doctalk.htm
Phone: 800-358-9295

Talking with Your Doctor: A Guide for Older People
National Institute on Aging, 2002
http://www.nia.nih.gov/HealthInformation/Publications/TalkingWithYourDoctor/
Phone: 800-222-2225

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Seek Out Information

2005 Toll-Free Numbers for Health Information
National Health Information Center
http://www.health.gov/nhic/pubs/tollfree.htm
Phone: 800-336-4797

HON Code of Conduct (HONcode) for Medical and Health Web Sites
Health on the Net Foundation
http://www.hon.ch/HONcode/

How to Evaluate Health Information on the Internet: Questions and Answers
National Cancer Institute, 2003
http://www.cancer.gov/cancertopics/factsheet/Information/internet
Phone: 800-4-CANCER (800-422-6237)

MEDLINEplus Guide to Healthy Web Surfing
National Library of Medicine
http://www.nlm.nih.gov/medlineplus/healthywebsurfing.html

Evaluating Internet Health Information: A Tutorial from the National Library of Medicine
http://www.nlm.nih.gov/medlineplus/weveval/weveval.html

National Guideline Clearinghouse™
Agency for Healthcare Research and Quality
http://www.guideline.gov

NOAH: New York Online Access to Health
http://www.noah-health.org/

A User's Guide to Finding and Evaluating Health Information on the Web
Medical Library Association, 2010
http://www.mlanet.org/resources/userguide.html#1

Virtual Treatments Can Be Real-World Deceptions
Federal Trade Commission, 2001
http://www.ftc.gov/bcp/conline/pubs/alerts/mrclalrt.htm

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Specific Diseases and Conditions

Allergies
ALS
Alzheimer's Disease
Arthritis
Asthma
Cancer
Cerebral Palsy
Chronic Fatigue Syndrome
Chronic Obstructive Pulmonary Disease
Craniofacial and Skeletal Diseases
Deafness and Hearing Disorders
Diabetes
Digestive Diseases
Eye Diseases and Disorders
Fibromyalgia
Heart Disease
 
High Blood Pressure
HIV/AIDS
Immunodeficiency Disorders
Infectious Diseases
Kidney Diseases
Lung Diseases
Mental Health
Multiple Sclerosis
Muscular Dystrophy
Neurologic Disorders
Obesity
Parkinson's Disease
Rare Diseases and Disorders
Skin Diseases
Sleep Disorders
Stroke
Urologic Diseases

Allergies

Publications

Allergies
National Institute of Allergies and Infectious Diseases
http://www3.niaid.nih.gov/PubsOrderForm/default.asp

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ALS

Organizations/Information

ALS Association
27001 Agoura Road, Suite 150
Calabasas Hills, CA 91301-5104
Phone: 800-782-4747
http://www.alsa.org/

Publications

Newly Diagnosed
ALS Association, 2004
http://www.alsa.org/patient/diagnosed.cfm? CFID=162302&CFTOKEN=7741544

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Alzheimer's Disease

Organizations/Information

Alzheimer's Association
225 N. Michigan Avenue, Fl. 17
Chicago, IL 60601-7633
Phone: 800-272-3900 (Nationwide Contact Center Helpline)
http://www.alz.org

Alzheimer's Disease Education and Referral Center
P.O. Box 8250
Silver Spring, MD 20907-8250
Phone: 800-438-4380
http://www.alzheimers.org

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Arthritis

Organizations/Information

National Institute of Arthritis and Musculoskeletal and Skin Diseases
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267) (toll-free)
http://www.niams.nih.gov/hi/index.htm

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Asthma

Organizations/Information

Asthma
National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/dci/Diseases/ Asthma/Asthma_WhatIs.html

National Heart, Lung, and Blood Institute
NHLBI Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
http://www.nhlbi.nih.gov/health/index.htm

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Cancer

Organizations/Information

American Cancer Society
1599 Clifton Road, NE
Atlanta, GA 30329
Phone: 800-ACS-2345 (800-227-2345)
http://www.cancer.org

National Cancer Institute, Public Inquiries Office
6116 Executive Boulevard, Room 3036A
Bethesda, MD 20892-8322
Phone: 1-800-4-CANCER (1-800-422-6237)
TTY: 1-800-332-8615
http://cancer.gov/help

National Organizations that Offer Services to People with Cancer and Their Families
National Cancer Institute
http://www.cancer.gov/aboutnci/cis

Publications

After the Diagnosis (For women living with cancer)
Gillette Cancer Connection, 2004
http://www.gillettecancerconnect.org/women/after_diagnosis.asp

How to Talk to Health Care Professionals
National Breast Cancer Coalition
http://breastcancerdeadline2020.org/know/31-myths-and-truths/talk-to-health-care.html

Questions for Your Doctor: Your First Visit
Testicular Cancer Resource Center, 2004
http://tcrc.acor.org/startquest.html

Using Evidence-Based Information
National Breast Cancer Coalition, 2003
http://www.natlbcc.org/nbccf/info/evidence.html

What You Need to Know About Cancer
National Cancer Institute
http://www.cancer.gov/cancertopics/wyntk/cancer/AllPages

Support

Association of Cancer Online Resources
http://www.acor.org

National Organizations That Offer Cancer-Related Services
National Cancer Institute
https://cissecure.nci.nih.gov/factsheet/FactSheetSearch8_1.aspx

CancerCare: Get Help
http://www.cancercare.org/get_help/

National Coalition for Cancer Survivorship
http://www.canceradvocacy.org

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Cerebral Palsy

Organizations/Information

United Cerebral Palsy
1660 L Street, NW, Suite 700
Washington, DC 20036
http://www.ucp.org

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Chronic Fatigue Syndrome

Organizations/Information

Chronic Fatigue Syndrome
National Center for Infectious Diseases
Centers for Disease Control and Prevention
http://www.cdc.gov/ncidod/diseases/cfs/

Support

Support Groups
Centers for Disease Prevention and Control
http://www.cdc.gov/ncidod/diseases/cfs/support/

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Chronic Obstructive Pulmonary Disease

Organizations/Information

Diseases and Conditions Index: COPD
National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/dci/Diseases/Copd/Copd_WhatIs.html

National Heart, Lung, and Blood Institute
NHLBI Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
http://www.nhlbi.nih.gov/health/index.htm

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Craniofacial and Skeletal Diseases

Organizations/Information

Syndromes
Children's Craniofacial Association
http://www.ccakids.com/syn.asp

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Current as of October 2012
Internet Citation: Where to Find More Information: Next Steps After Your Diagnosis. October 2012. Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/patients-consumers/diagnosis-treatment/diagnosis/diaginfo/diaginf7.html