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Search All Research Studies
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 10 of 10 Research Studies DisplayedRolbiecki AJ, Teti M, Crenshaw B
Exploring lived experiences of chronic pain through photo-elicitation and social networking.
The purpose of this study was to understand how patients' use of photo-elicitation and online social networks (Facebook) enhances their understanding of what it means to live with pain. The investigators concluded that photo-elicitation is an innovative way to shed light on patients' lived experience with chronic pain. Despite some technical challenges, Facebook support groups utilizing photo-elicitation can provide a readily available platform that can facilitate interchange of patient experiences and might help patients communicate with their providers.
AHRQ-funded; HS022140.
Citation: Rolbiecki AJ, Teti M, Crenshaw B .
Exploring lived experiences of chronic pain through photo-elicitation and social networking.
Pain Med 2019 Jun;20(6):1202-11. doi: 10.1093/pm/pny175..
Keywords: Pain, Chronic Conditions, Social Media, Communication
Henderson ML, Adler JT, Van Pilsum Rasmussen SE
How should social media be used in transplantation? A survey of the American Society of Transplant Surgeons.
The authors investigated how social media-driven communication is perceived by providers in the field of transplantation. 299 members of the American Society of Transplant Surgeons were surveyed regarding their use of, attitudes toward, and perceptions of social media; the authors analyzed relationships between their responses and participant characteristics. The authors found that individual characteristics influence opinions about the role and clinical usefulness of social media. They concluded that increasing use of social media among transplant professionals may provide an opportunity to deliver high-quality information to patients.
AHRQ-funded; HS024600.
Citation: Henderson ML, Adler JT, Van Pilsum Rasmussen SE .
How should social media be used in transplantation? A survey of the American Society of Transplant Surgeons.
Transplantation 2019 Mar;103(3):573-80. doi: 10.1097/tp.0000000000002243..
Keywords: Transplantation, Social Media, Clinician-Patient Communication, Communication, Provider: Physician
Margolis MA, Brewer NT, Shah PD
Stories about HPV vaccine in social media, traditional media, and conversations.
To understand how stories from media and social interactions shape parents' HPV vaccination decisions, the authors sought to characterize parents' exposure to these stories, as well as associations between story exposure and vaccination behavior. They found that stories of HPV vaccine harms may be associated more strongly with vaccination behavior than stories of HPV vaccine preventable diseases. They recommended that communication campaigns consider strategies to elevate stories of preventable diseases in social and traditional media.
AHRQ-funded; HS000032.
Citation: Margolis MA, Brewer NT, Shah PD .
Stories about HPV vaccine in social media, traditional media, and conversations.
Prev Med 2019 Jan;118:251-56. doi: 10.1016/j.ypmed.2018.11.005..
Keywords: Caregiving, Children/Adolescents, Communication, Education: Patient and Caregiver, Health Promotion, Infectious Diseases, Prevention, Sexual Health, Social Media, Vaccination
Ruck JM, Henderson ML, Eno AK
Use of Twitter in communicating living solid organ donation information to the public: an exploratory study of living donors and transplant professionals.
As transplant centers start leveraging Twitter for information dissemination and public engagement, it is important to understand current living solid organ donation-related Twitter use. This paper investigated use of Twitter in communicating living solid organ donation information to the public. It provides insight into how the social media platform may be used to communicate about and disseminate information about living donation.
AHRQ-funded; HS023876.
Citation: Ruck JM, Henderson ML, Eno AK .
Use of Twitter in communicating living solid organ donation information to the public: an exploratory study of living donors and transplant professionals.
Clin Transplant 2019 Jan;33(1):e13447. doi: 10.1111/ctr.13447..
Keywords: Transplantation, Social Media, Communication, Education: Patient and Caregiver
Mogul DB, Henderson ML, Bridges JFP
Expanding the Facebook platform to engage and educate online communities.
This article discusses the development and use of a mobile application (app) called Liver Space that was developed through Facebook’s platform. This app is for the pediatric liver community including patients and caregivers. Unlike most Facebook health groups, this one is vetted by healthcare providers who are specialists. The app provides up-to-date information and includes emerging news, summaries from important scholarly journals and human interest stories. There is an “ask an expert” function incorporated into Liver Space. Also included in the app is the ability for users to track their labs and weight and to graph the data.
AHRQ-funded; HS023876.
Citation: Mogul DB, Henderson ML, Bridges JFP .
Expanding the Facebook platform to engage and educate online communities.
Am J Gastroenterol 2018 Apr;113(4):457-58. doi: 10.1038/ajg.2017.450..
Keywords: Social Media, Education: Patient and Caregiver, Clinician-Patient Communication, Communication, Health Information Technology (HIT), Patient and Family Engagement, Patient Self-Management
Mogul DB, Nagy PG, Bridges JFP
Building stronger online communities through the creation of Facebook-integrated health applications.
Social media, such as Facebook, provides a powerful mechanism to connect individuals with similar diseases, but current platforms do not achieve their full potential to help patients communicate with one another or with the medical community. The authors of this viewpoint article believe that an opportunity exists for health care professionals to strengthen online communities by creating apps that use the Facebook platform or a programming interface. Development of such apps are discussed, with an eye toward the needs of the patient, parent, or caregiver as end-users and involving their input.
AHRQ-funded; HS023876.
Citation: Mogul DB, Nagy PG, Bridges JFP .
Building stronger online communities through the creation of Facebook-integrated health applications.
JAMA Pediatr 2017 Oct;171(10):933-34. doi: 10.1001/jamapediatrics.2017.2300..
Keywords: Clinician-Patient Communication, Communication, Education: Patient and Caregiver, Health Information Technology (HIT), Social Media, Web-Based
Naslund JA, Aschbrenner KA, Bartels SJ
How people with serious mental illness use smartphones, mobile apps, and social media.
The researchers surveyed individuals with serious mental illness to explore their use of mobile devices or whether they access social media. Among respondents (n = 70), 93 percent owned cellphones, 78 percent used text messaging, 50 percent owned smartphones, and 71 percent used social media such as Facebook. Most respondents reported daily use of text messaging, mobile apps, and social media.
AHRQ-funded; HS021695.
Citation: Naslund JA, Aschbrenner KA, Bartels SJ .
How people with serious mental illness use smartphones, mobile apps, and social media.
Psychiatr Rehabil J 2016 Dec;39(4):364-67. doi: 10.1037/prj0000207.
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Keywords: Communication, Community-Based Practice, Health Promotion, Behavioral Health, Social Media
Menefee HK, Thompson MJ, Guterbock TM
Mechanisms of communicating health information through Facebook: implications for consumer health information technology design.
The authors aimed to characterize patients' use of communication mechanisms within Facebook for health information communication to provide insight into how consumer HIT solutions may be better designed to meet patients' communication needs and preferences. They found that participants consider multiple factors, including what information they intended to share, what they were trying to accomplish, attributes of technology, and attributes and communication practices of their social networks.
AHRQ-funded; HS022930.
Citation: Menefee HK, Thompson MJ, Guterbock TM .
Mechanisms of communicating health information through Facebook: implications for consumer health information technology design.
J Med Internet Res 2016 Aug 11;18(8):e218. doi: 10.2196/jmir.5949.
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Keywords: Communication, Education: Patient and Caregiver, Health Information Technology (HIT), Social Media, Web-Based
Narayanaswami P, Gronseth G, Dubinsky R
The impact of social media on dissemination and implementation of clinical practice guidelines: a longitudinal observational study.
The researchers’ aim was to develop and evaluate an innovative dissemination strategy by adding social media-based dissemination methods to traditional methods for the clinical practice guidelines (CPGs) “Complementary and alternative medicine in multiple sclerosis.” They found that social media-based dissemination methods did not confer additional benefit over print-, email-, and Internet-based methods in increasing CPG awareness and changing intent in physicians or patients.
AHRQ-funded; HS022004.
Citation: Narayanaswami P, Gronseth G, Dubinsky R .
The impact of social media on dissemination and implementation of clinical practice guidelines: a longitudinal observational study.
J Med Internet Res 2015 Aug 13;17(8):e193. doi: 10.2196/jmir.4414..
Keywords: Communication, Complementary and Alternative Medicine, Evidence-Based Practice, Guidelines, Social Media, Implementation
Robinson MN, Tansil KA, Elder RW
AHRQ Author: Miller T
Mass media health communication campaigns combined with health-related product distribution: a community guide systematic review.
The researchers conducted a systematic review to evaluate the effectiveness of health communication campaigns that use multiple channels, including mass media, and distribute health-related products. They concluded that health communication campaigns that combine mass media and other communication channels with distribution of free or reduced-price health-related products are effective in improving healthy behaviors. They expect this intervention to be applicable across U.S. demographic groups, with appropriate population targeting.
AHRQ-authored.
Citation: Robinson MN, Tansil KA, Elder RW .
Mass media health communication campaigns combined with health-related product distribution: a community guide systematic review.
Am J Prev Med 2014 Sep;47(3):360-71. doi: 10.1016/j.amepre.2014.05.034.
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Keywords: Communication, Education: Patient and Caregiver, Health Promotion, Lifestyle Changes, Social Media, Tobacco Use