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Topics
- Arthritis (2)
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 25 of 32 Research Studies DisplayedNair D, Cukor D, Taylor WD
Applying a biopsychosocial framework to achieve durable behavior change in kidney disease.
This scoping review uses the biopsychological model of health to identify individual, interpersonal, and systems-level drivers of kidney disease self-management behaviors. The authors also highlight factors that may serve as novel, impactful targets of theory-based behavioral interventions to understand and sustain behavior change in kidney disease.
AHRQ-funded; HS026395.
Citation: Nair D, Cukor D, Taylor WD .
Applying a biopsychosocial framework to achieve durable behavior change in kidney disease.
Semin Nephrol 2021 Nov;41(6):487-504. doi: 10.1016/j.semnephrol.2021.10.002..
Keywords: Kidney Disease and Health, Chronic Conditions, Patient Self-Management
Fuji KT, Abbott AA, Galt KA
A mixed-methods evaluation of standalone personal health record use by patients with type 2 diabetes.
The purpose of this study was to compare use of a standalone personal health records (PHRs) by patients with Type 2 diabetes to usual care through assessment of self-care behaviors, and short-term impact on social cognitive outcomes and hemoglobin A1c (HbA1c). Five themes emerged from the qualitative analysis describing participants' experiences with the PHR and identifying reasons for lack of engagement. Study findings revealed low PHR uptake and minimal impact on study outcomes, including lack of communication and information-sharing between patients and providers.
AHRQ-funded; HS018625.
Citation: Fuji KT, Abbott AA, Galt KA .
A mixed-methods evaluation of standalone personal health record use by patients with type 2 diabetes.
Perspect Health Inf Manag 2021 Fall;18(4):1e..
Keywords: Electronic Health Records (EHRs), Health Information Technology (HIT), Diabetes, Patient Self-Management, Chronic Conditions, Patient and Family Engagement
Lopez-Olivo MA, Lin H, Rizvi T
Randomized controlled trial of patient education tools for patients with rheumatoid arthritis.
This randomized controlled trial compared results of patient education tools for patients with rheumatoid arthritis using a written booklet or a written booklet along with a newly developed video tool. Outcomes were measured immediately before and after review of the materials, and 3 and 6 months later. One-hundred eleven participants received an educational video and booklet and one-hundred ten a booklet alone. Mean age of participants was 50.8 years, mean disease duration 4.8 years, 85% were female, and 24% had limited health literacy levels. Both groups had improved outcomes up to 6 months after educational materials were delivered and used, with no statistically significant difference between the two groups. Patients receiving the video and booklet were more likely to rate the presentation as “excellent".
AHRQ-funded; HS0193554.
Citation: Lopez-Olivo MA, Lin H, Rizvi T .
Randomized controlled trial of patient education tools for patients with rheumatoid arthritis.
Arthritis Care Res 2021 Oct;73(10):1470-78. doi: 10.1002/acr.24362..
Keywords: Education: Patient and Caregiver, Health Literacy, Arthritis, Patient Self-Management
Smith BM, Sharma R, Das A
Patient and family engagement strategies for children and adolescents with chronic diseases: a review of systematic reviews.
Patient and family engagement is important for family-centered care, particularly for children and adolescents with chronic disease. In this study the investigators aimed to 1) identify available evidence from systematic reviews on engagement strategies used to help children, adolescents, and their caregivers manage chronic conditions, and 2) identify gaps in the literature. They searched PubMed and CINAHL from January 2015 to January 2020 for systematic reviews on patient and family engagement strategies in the pediatrics population (<18 years).
AHRQ-funded; 290201500006I.
Citation: Smith BM, Sharma R, Das A .
Patient and family engagement strategies for children and adolescents with chronic diseases: a review of systematic reviews.
Patient Educ Couns 2021 Sep;104(9):2213-23. doi: 10.1016/j.pec.2021.02.026..
Keywords: Children/Adolescents, Patient and Family Engagement, Chronic Conditions, Patient-Centered Healthcare, Evidence-Based Practice, Patient Self-Management
Oikonomidi T, Ravaud P, James A
AHRQ Author: Montori V
An international, mixed-methods study of the perceived intrusiveness of remote digital diabetes monitoring.
This paper describes an international online vignette-based survey to assess the relationship between remote digital monitoring (RDM) modalities for diabetes and intrusiveness in patients’ lives. The survey was conducted from February-June 2019 in 30 countries with 1010 participants. A total of 2680 vignette-assessments were completed with 52% on type 1 diabetes. Increased intrusiveness was associated with food monitoring compared with glucose- and PA-monitoring alone and permanent monitoring with real-time physician-generated feedback compared with monitoring for a week with feedback. Public-sector data handling was associated with decreased intrusiveness as compared with the private sector.
AHRQ-authored.
Citation: Oikonomidi T, Ravaud P, James A .
An international, mixed-methods study of the perceived intrusiveness of remote digital diabetes monitoring.
Mayo Clin Proc 2021 May;96(5):1236-47. doi: 10.1016/j.mayocp.2020.07.040..
Keywords: Telehealth, Health Information Technology (HIT), Diabetes, Chronic Conditions, Lifestyle Changes, Patient Self-Management
Lopez-Olivo MA, des Bordes JK, Lin H
A randomized controlled trial comparing two self-administered educational strategies for patients with knee osteoarthritis.
The authors conducted a randomized clinical trial in patients with knee osteoarthritis to assess the efficacy of providing a video for entertainment education, in combination with two booklets, compared with providing the booklets alone. They found that, although both education strategies were associated with improved knowledge and reduced decisional conflict at 6 months, receiving the video + booklets in combination, compared with receiving the booklets alone, proved to be more effective in changing behaviors and appeared to have some advantages for Spanish speakers and those who were less educated.
AHRQ-funded; HS019354.
Citation: Lopez-Olivo MA, des Bordes JK, Lin H .
A randomized controlled trial comparing two self-administered educational strategies for patients with knee osteoarthritis.
ACR Open Rheumatol 2021 Mar;3(3):185-95. doi: 10.1002/acr2.11222..
Keywords: Arthritis, Orthopedics, Education: Patient and Caregiver, Patient Self-Management, Patient Adherence/Compliance, Shared Decision Making, Health Promotion
Ozkaynak M, Valdez R, Hannah K
Understanding gaps between daily living and clinical settings in chronic disease management: qualitative study.
This study’s objective was to characterize gaps from the patient’s perspective between health-related activities across home-based and clinical settings in the management of chronic conditions. Patients were recruited from an anticoagulation clinic of an urban, western mountain system and primary interviews were conducted with 39 patients and 4 providers. The causes of gaps included clinician recommendations not fitting into patients’ daily routines; recommendations not fitting into a patients’ living contexts; and no information transfer across settings. Consequences of these gaps included increased cognitive and physical workload on the patient, poor patient satisfaction, and compromised adherence to the therapy plan.
AHRQ-funded; HS024092.
Citation: Ozkaynak M, Valdez R, Hannah K .
Understanding gaps between daily living and clinical settings in chronic disease management: qualitative study.
J Med Internet Res 2021 Feb 25;23(2):e17590. doi: 10.2196/17590..
Keywords: Chronic Conditions, Care Management, Care Coordination, Patient Self-Management, Health Information Technology (HIT)
Oikonomidi T, Ravaud P, Cosson E
AHRQ Author: Montori V
Evaluation of patient willingness to adopt remote digital monitoring for diabetes management.
Investigators sought to identify the minimum effectiveness patients report they require to adopt 36 different remote digital monitoring (RDM) scenarios. Adults with type 1 or type 2 diabetes living in 30 countries assessed three randomly selected scenarios from a total of 36 that described different combinations of digital monitoring tools. The investigators found that patients required greater health benefits to adopt more intrusive RDM modalities, food monitoring, and real-time feedback by a health care professional. They recommended that patient monitoring devices be designed to be minimally intrusive.
AHRQ-authored.
Citation: Oikonomidi T, Ravaud P, Cosson E .
Evaluation of patient willingness to adopt remote digital monitoring for diabetes management.
JAMA Netw Open 2021 Jan;4(1):e2033115. doi: 10.1001/jamanetworkopen.2020.33115..
Keywords: Telehealth, Health Information Technology (HIT), Diabetes, Chronic Conditions, Care Management, Patient Self-Management, Patient Adherence/Compliance
Howland C, Despins L, Sindt J
Primary care clinic nurse activities with a telehealth monitoring system.
The purpose of this study was to evaluate differences in the types of nursing activities and communication processes reported in a primary care clinic between patients using a home-based monitoring system to electronically communicate self-monitored blood glucose and blood pressure values and those assuming usual care. Significant differences were identified for the direct care nursing activities of providing lifestyle and health education, medication adjustments, and patient follow-up, providing evidence of greater nursing activity reported in a primary care clinic in patients who utilized a home-based monitoring system.
AHRQ-funded; HS017035.
Citation: Howland C, Despins L, Sindt J .
Primary care clinic nurse activities with a telehealth monitoring system.
West J Nurs Res 2021 Jan;43(1):5-12. doi: 10.1177/0193945920923082..
Keywords: Telehealth, Health Information Technology (HIT), Blood Pressure, Primary Care, Clinician-Patient Communication, Communication, Patient Self-Management, Nursing, Patient-Centered Healthcare, Diabetes
Broecker M, Ponto K, Tredinnick R
SafeHOME: promoting safe transitions to the home.
This paper introduces the SafeHome Simulator system, a set of immersive Virtual Reality Training tools and display systems to train patients in safe discharge procedures in captured environments of their actual houses. The aim is to lower patient readmission by significantly improving discharge planning and training. The SafeHOME Simulator is a project currently under review.
AHRQ-funded; HS022548.
Citation: Broecker M, Ponto K, Tredinnick R .
SafeHOME: promoting safe transitions to the home.
Stud Health Technol Inform 2016;220:51-4.
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Keywords: Transitions of Care, Health Information Technology (HIT), Patient Safety, Patient Self-Management, Hospital Discharge
Mayberry LS, Berg CA, Harper KJ
The design, usability, and feasibility of a family-focused diabetes self-care support mHealth intervention for diverse, low-income adults with type 2 diabetes.
Through user-centered design and iterative usability/feasibility testing, the researchers developed a mobile Health intervention for disadvantaged adults with type 2 diabetes (T2D) called FAMS. FAMS delivers phone coaching to set self-care goals and improve patient participant's (PP) ability to identify and address family actions that support/impede self-care. PPs reported FAMS increased self-care and both PPs and support persons reported FAMS improved support for and communication about diabetes.
AHRQ-funded; HS022990.
Citation: Mayberry LS, Berg CA, Harper KJ .
The design, usability, and feasibility of a family-focused diabetes self-care support mHealth intervention for diverse, low-income adults with type 2 diabetes.
J Diabetes Res 2016;2016:7586385. doi: 10.1155/2016/7586385.
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Keywords: Diabetes, Low-Income, Patient and Family Engagement, Patient Self-Management, Telehealth
Sarkar U, Gourley GI, Lyles CR
Usability of commercially available mobile applications for diverse patients.
The objective of this study was to investigate the usability of existing mobile health applications ("apps") for diabetes, depression, and caregiving, in order to facilitate development and tailoring of patient-facing apps for diverse populations. Participants completed 43 percent of tasks across 11 apps without assistance. Three themes emerged from participant comments: lack of confidence with technology, frustration with design features and navigation, and interest in having technology to support their self-management.
AHRQ-funded; HS022408.
Citation: Sarkar U, Gourley GI, Lyles CR .
Usability of commercially available mobile applications for diverse patients.
J Gen Intern Med 2016 Dec;31(12):1417-26. doi: 10.1007/s11606-016-3771-6.
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Keywords: Chronic Conditions, Health Information Technology (HIT), Patient Self-Management, Telehealth, Vulnerable Populations
McAlearney AS, Sieck CJ, Hefner JL
High touch and high tech (HT2) proposal: transforming patient engagement throughout the continuum of care by engaging patients with portal technology at the bedside.
This study measures how access to a patient portal tailored to the inpatient stay can improve patient experience and increase patient engagement by (1) improving patients' perceptions of the process of care while in the hospital; (2) increasing patients' self-efficacy for managing chronic conditions; and (3) facilitating continued use of a patient portal for care management after discharge.
AHRQ-funded; HS024091.
Citation: McAlearney AS, Sieck CJ, Hefner JL .
High touch and high tech (HT2) proposal: transforming patient engagement throughout the continuum of care by engaging patients with portal technology at the bedside.
JMIR Res Protoc 2016 Nov 29;5(4):e221. doi: 10.2196/resprot.6355.
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Keywords: Electronic Health Records (EHRs), Patient and Family Engagement, Patient Experience, Patient Experience, Patient Self-Management
Brewer NT, DeFrank JT, Gilkey MB
Anticipated regret and health behavior: a meta-analysis.
The authors sought better understanding of anticipated regret's role in motivating health behaviors. They found that anticipated inaction regret has a stronger and more stable association with health behavior than previously thought and recommended giving greater attention to understanding how anticipated regret differs from similar constructs.
AHRQ-funded; HS021133.
Citation: Brewer NT, DeFrank JT, Gilkey MB .
Anticipated regret and health behavior: a meta-analysis.
Health Psychol 2016 Nov;35(11):1264-75. doi: 10.1037/hea0000294.
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Keywords: Behavioral Health, Patient Adherence/Compliance, Patient Self-Management
Carballo NJ, Alessi CA, Martin JL
Perceived effectiveness, self-efficacy, and social support for oral appliance therapy among older veterans with obstructive sleep apnea.
Adherence to oral appliance therapy may be influenced by patients' perceived effectiveness of the therapy, self-efficacy, and availability of social support. The researchers examined these perceptions among older adults with obstructive sleep apnea who were prescribed oral appliance therapy. They concluded that only about one third of older adults perceived it as an effective treatment, were confident about oral appliance use, and/or believed that they would receive needed support.
AHRQ-funded; HS024379.
Citation: Carballo NJ, Alessi CA, Martin JL .
Perceived effectiveness, self-efficacy, and social support for oral appliance therapy among older veterans with obstructive sleep apnea.
Clin Ther 2016 Nov;38(11):2407-15. doi: 10.1016/j.clinthera.2016.09.008.
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Keywords: Elderly, Patient Adherence/Compliance, Sleep Problems, Patient Self-Management
Kirby JS, Sisic M, Tan J
Exploring coping strategies for patients with hidradenitis suppurativa.
The authors explored the coping strategies of individuals with hidradenitis suppurativa (HS). They found that negative coping included behavioral disengagement and social isolation, while positive coping included use of humor and positive reframing as well as the support of others.
AHRQ-funded; HS024585.
Citation: Kirby JS, Sisic M, Tan J .
Exploring coping strategies for patients with hidradenitis suppurativa.
JAMA Dermatol 2016 Oct;152(10):1166-67. doi: 10.1001/jamadermatol.2016.1942.
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Keywords: Health Status, Quality of Life, Patient Self-Management, Skin Conditions
Masterson Creber RM, Hickey KT, Maurer MS
Gerontechnologies for older patients with heart failure: what is the role of smartphones, tablets, and remote monitoring devices in improving symptom monitoring and self-care management?
The authors discussed the role of gerontechnologies, specifically the use of mobile applications available on smartphones and tablets as well as remote monitoring systems, for outpatient disease management among older adults with heart failure.
AHRQ-funded; HS021816.
Citation: Masterson Creber RM, Hickey KT, Maurer MS .
Gerontechnologies for older patients with heart failure: what is the role of smartphones, tablets, and remote monitoring devices in improving symptom monitoring and self-care management?
Curr Cardiovasc Risk Rep 2016 Oct;10(10). doi: 10.1007/s12170-016-0511-8.
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Keywords: Elderly, Telehealth, Health Information Technology (HIT), Heart Disease and Health, Cardiovascular Conditions, Patient Self-Management
Epstein DA, Kang JH, Pina LR
Reconsidering the device in the drawer: lapses as a design opportunity in personal informatics.
The authors used a survey of 141 people who had lapsed in using Fitbit and identified three use patterns and four perspectives on tracking. Participant Fitbit use and perspective on tracking influenced the preference of those surveyed, and the authors surfaced these preferences in a series of contrasts. They concluded by discussing how these contrasts suggest new designs and opportunities in other tracking domains.
AHRQ-funded; HS023654.
Citation: Epstein DA, Kang JH, Pina LR .
Reconsidering the device in the drawer: lapses as a design opportunity in personal informatics.
Proc ACM Int Conf Ubiquitous Comput 2016 Sep 12:829-40. doi: 10.1145/2971648.2971656..
Keywords: Health Information Technology (HIT), Health Information Technology (HIT), Lifestyle Changes, Patient Self-Management
Darlow S, Wen KY
Development testing of mobile health interventions for cancer patient self-management: a review.
The purpose of the current study was to conduct a review of published articles that describe the development process of mobile health interventions for patients’ cancer care self-management. The following trends emerged: importance of stakeholder engagement during the development process, addressing the unique needs and experiences of cancer patients and care providers, ensuring user satisfaction with the system, and identifying perceived benefits and limitations of the system.
AHRQ-funded; HS019001.
Citation: Darlow S, Wen KY .
Development testing of mobile health interventions for cancer patient self-management: a review.
Health Informatics J 2016 Sep;22(3):633-50. doi: 10.1177/1460458215577994..
Keywords: Patient Self-Management, Cancer, Chronic Conditions, Telehealth, Health Information Technology (HIT)
Mayberry LS, Harper KJ, Osborn CY
Family behaviors and type 2 diabetes: what to target and how to address in interventions for adults with low socioeconomic status.
The researchers studied adults with type 2 diabetes at a Federally Qualified Health Center to better understand experiences with diabetes-specific family behaviors and willingness to engage family members in diabetes interventions. They found that some participants (40 percent) said engaging family in interventions would positively affect all members; others (27 percent) did not want to involve family.
AHRQ-funded; HS022990.
Citation: Mayberry LS, Harper KJ, Osborn CY .
Family behaviors and type 2 diabetes: what to target and how to address in interventions for adults with low socioeconomic status.
Chronic Illn 2016 Sep;12(3):199-215. doi: 10.1177/1742395316644303.
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Keywords: Diabetes, Patient Self-Management, Social Determinants of Health, Lifestyle Changes, Education: Patient and Caregiver
Ritchie CS, Houston TK, Richman JS
The E-Coach technology-assisted care transition system: a pragmatic randomized trial.
The researchers sought to evaluate the impact of a technology-supported care transition support program (E-Coach) on hospitalizations, days out of the community, and mortality. for patients with congestive heart failure (CHF) and chronic obstructive pulmonary disease (COPD). They found that rehospitalization rates did not differ between E-Coach and usual care groups; however, E-Coach was associated with fewer days in the hospital with the COPD subgroup, suggesting that E-Coach may be more beneficial among those with COPD but not those with CHF.
AHRQ-funded; HS017786.
Citation: Ritchie CS, Houston TK, Richman JS .
The E-Coach technology-assisted care transition system: a pragmatic randomized trial.
Transl Behav Med 2016 Sep;6(3):428-37. doi: 10.1007/s13142-016-0422-8.
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Keywords: Respiratory Conditions, Heart Disease and Health, Hospitalization, Patient Self-Management, Telehealth
Kenzik KM, Kvale EA, Rocque GB
Treatment summaries and follow-up care instructions for cancer survivors: improving survivor self-efficacy and health care utilization.
The researchers examined the association of receiving summaries and care plans with cancer survivor self-efficacy for chronic illness management. They found that explanation of the follow-up care plan, beyond the written component, enhances survivor self-efficacy for managing cancer as a chronic condition-an important mediator for improving health care utilization outcomes.
AHRQ-funded; HS023009; HS013852.
Citation: Kenzik KM, Kvale EA, Rocque GB .
Treatment summaries and follow-up care instructions for cancer survivors: improving survivor self-efficacy and health care utilization.
Oncologist 2016 Jul;21(7):817-24. doi: 10.1634/theoncologist.2015-0517.
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Keywords: Cancer, Chronic Conditions, Education: Patient and Caregiver, Elderly, Patient Self-Management
Ridner SH, Rhoten BA, Radina ME
Breast cancer survivors' perspectives of critical lymphedema self-care support needs.
The purpose of this paper was to solicit breast cancer survivors' perspectives on the variety of issues they face related to lymphedema self-care and to identify support needs perceived as critical for managing their chronic medical condition. The authors found that lack of support and the failure of others to recognize lymphedema as a chronic condition set this patient population apart from other patients with chronic diseases and decreases the amount of help needed to manage the condition.
AHRQ-funded; HS022990.
Citation: Ridner SH, Rhoten BA, Radina ME .
Breast cancer survivors' perspectives of critical lymphedema self-care support needs.
Support Care Cancer 2016 Jun;24(6):2743-50. doi: 10.1007/s00520-016-3089-2.
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Keywords: Cancer: Breast Cancer, Chronic Conditions, Patient-Centered Outcomes Research, Patient Self-Management
Heerman WJ, Wallston KA, Osborn CY
Food insecurity is associated with diabetes self-care behaviours and glycaemic control.
The objective of the study was to examine the association between food insecurity, diabetes self-care and glycaemic control. It concluded that there was a high rate of food insecurity in a sample of patients with Type 2 diabetes who were of low socio-economic status. Food insecurity was associated with less adherence to recommended self-care behaviours and worse glycaemic control.
AHRQ-funded; HS022990.
Citation: Heerman WJ, Wallston KA, Osborn CY .
Food insecurity is associated with diabetes self-care behaviours and glycaemic control.
Diabet Med 2016 Jun;33(6):844-50. doi: 10.1111/dme.12896.
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Keywords: Diabetes, Nutrition, Patient Adherence/Compliance, Patient-Centered Outcomes Research, Patient Self-Management
Hong MK, Wilcox L, Machado D
Care partnerships: toward technology to support teens' participation in their health care.
The authors conducted 38 in-depth interviews along with nine non-participant observations of clinical consultations to better understand common challenges and needs that could be supported through design. They drew their findings to propose design goals for sociotechnical systems to support teens in partnering in their care, highlighting the need for design to support gradually evolving partnerships in care.
AHRQ-funded; HS021393.
Citation: Hong MK, Wilcox L, Machado D .
Care partnerships: toward technology to support teens' participation in their health care.
Proc SIGCHI Conf Hum Factor Comput Syst 2016 May 7;2016:5337-49. doi: 10.1145/2858036.2858508.
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Keywords: Children/Adolescents, Chronic Conditions, Patient and Family Engagement, Patient Self-Management