National Healthcare Quality and Disparities Report
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Topics
- Cancer (1)
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 3 of 3 Research Studies DisplayedAnderson JB, Brown DW, Lihn S
Power of a learning network in congenital heart disease.
This paper discusses the efforts of the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC). The collaborative formed to improve outcomes in infants with hypoplastic left heart syndrome. It sought to (1) decrease mortality, (2) reduce growth failure, and (3) reduce hospital readmissions due to major medical problems during the interstage period between discharge following stage 1 palliation (S1P) and admission for stage 2 palliation (S2P).
AHRQ-funded; HS016957.
Citation: Anderson JB, Brown DW, Lihn S .
Power of a learning network in congenital heart disease.
World J Pediatr Congenit Heart Surg 2019 Jan;10(1):66-71. doi: 10.1177/2150135118815023..
Keywords: Cardiovascular Conditions, Children/Adolescents, Education: Continuing Medical Education, Palliative Care, Quality Improvement, Registries
Kamal AH, Kirkland KB, Meier DE
A person-centered, registry-based learning health system for palliative care: a path to coproducing better outcomes, experience, value, and science.
In this paper, the authors discuss measurement of the impact of palliative care, which is critical for determining what works for which patients in what settings, to learn, improve care, and ensure access to high value care for people with serious illness. The authors described an approach to codesigning and implementing a palliative care registry that functions as a learning health system, by combining patient and family inputs and clinical data to support person-centered care, quality improvement, accountability, transparency, and scientific research.
AHRQ-funded; HS023681.
Citation: Kamal AH, Kirkland KB, Meier DE .
A person-centered, registry-based learning health system for palliative care: a path to coproducing better outcomes, experience, value, and science.
J Palliat Med 2018 Mar;21(S2):S61-s67. doi: 10.1089/jpm.2017.0354..
Keywords: Palliative Care, Patient-Centered Healthcare, Patient-Centered Outcomes Research, Outcomes, Learning Health Systems, Registries, Patient and Family Engagement
Kamal AH, Nipp RD, Bull JH
Quality of palliative care for patients with advanced cancer in a community consortium.
The authors formed the Carolinas Consortium for Palliative Care and collected a quality data registry to monitor their practice and to inform quality improvement efforts. They demonstrated that measures evaluating process assessment, as opposed to interventions, are better documented. They concluded that analyzing data on quality is feasible and valuable in community-based palliative care and that, overall, processes to collect data on quality using nontechnology methods may underestimate true adherence to quality measures.
AHRQ-funded; HS022763.
Citation: Kamal AH, Nipp RD, Bull JH .
Quality of palliative care for patients with advanced cancer in a community consortium.
J Pain Symptom Manage 2015 Feb;49(2):289-92. doi: 10.1016/j.jpainsymman.2014.05.024.
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Keywords: Cancer, Healthcare Delivery, Quality of Care, Palliative Care, Registries