National Healthcare Quality and Disparities Report
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Topics
- Adverse Events (1)
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- Asthma (8)
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- Elderly (15)
- Electronic Health Records (EHRs) (9)
- Evidence-Based Practice (8)
- Guidelines (1)
- Healthcare-Associated Infections (HAIs) (1)
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- Patient-Centered Outcomes Research (14)
- Patient Adherence/Compliance (21)
- Patient and Family Engagement (10)
- Patient Experience (4)
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- (-) Patient Self-Management (140)
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- Provider: Pharmacist (1)
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
101 to 125 of 140 Research Studies DisplayedZhang X, Pina LR, Fogarty J
Examining unlock journaling with diaries and reminders for in situ self-report in health and wellness.
The authors examined unlock journaling as an alternative to in situ self-report. They found that unlock journaling is less intrusive than reminders, dramatically improves frequency of journaling, and can provide equal or better timeliness.
AHRQ-funded; HS023654.
Citation: Zhang X, Pina LR, Fogarty J .
Examining unlock journaling with diaries and reminders for in situ self-report in health and wellness.
Proc SIGCHI Conf Hum Factor Comput Syst 2016 May 7;2016:5658-64. doi: 10.1145/2858036.2858360.
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Keywords: Health Information Technology (HIT), Patient Self-Management
Epstein DA, Caraway M, Johnston C
Beyond abandonment to next steps: understanding and designing for life after personal informatics tool use.
The authors extended recent research with new insights drawn from people reflecting on their experiences after they stop tracking, examining how designs continue to influence people even after abandonment. They connected their findings to models of personal informatics and identified six reasons why people stop tracking and five perspectives on life after tracking. In this article, they discussed these results and opportunities for design to consider life after self-tracking.
AHRQ-funded; HS023654.
Citation: Epstein DA, Caraway M, Johnston C .
Beyond abandonment to next steps: understanding and designing for life after personal informatics tool use.
Proc SIGCHI Conf Hum Factor Comput Syst 2016 May;2016:1109-13. doi: 10.1145/2858036.2858045.
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Keywords: Health Information Technology (HIT), Health Information Technology (HIT), Lifestyle Changes, Patient Self-Management
Epstein DA, Cordeiro F, Fogarty J
Crumbs: lightweight daily food challenges to promote engagement and mindfulness.
The authors introduced and examined crumbs: daily food challenges completed by consuming one food that meets the challenge. They found that crumbs supported engagement and mindfulness while offering opportunities to learn about food.
AHRQ-funded; HS023654.
Citation: Epstein DA, Cordeiro F, Fogarty J .
Crumbs: lightweight daily food challenges to promote engagement and mindfulness.
Proc SIGCHI Conf Hum Factor Comput Syst 2016 May;2016:5632-44. doi: 10.1145/2858036.2858044.
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Keywords: Nutrition, Health Information Technology (HIT), Health Information Technology (HIT), Lifestyle Changes, Patient Self-Management
McMahon LF, Tipimeni R, Chopra V
Health system loyalty programs: An innovation in customer care and service.
Loyalty programs could empower patients to manage their health in new and innovative ways while enhancing the business model for health systems. The authors argue that by providing both better appreciation/customer service and high-quality technical care, loyalty programs may offer a new way to attract and retain patients within a health system.
AHRQ-funded; HS022835.
Citation: McMahon LF, Tipimeni R, Chopra V .
Health system loyalty programs: An innovation in customer care and service.
JAMA 2016 Mar 1;315(9):863-4. doi: 10.1001/jama.2015.19463..
Keywords: Healthcare Delivery, Patient Experience, Primary Care, Patient Self-Management, Patient Adherence/Compliance
Chung CF, Dew K, Cole A
Boundary negotiating artifacts in personal informatics: patient-provider collaboration with patient-generated data.
This paper examines patient expectations and current collaboration practices around patient-generated data. It finds that collaboration occurs in every stage of self- tracking and that patients and providers create boundary negotiating artifacts to support the collaboration. Building upon current practices with patient-generated data, the authors use these theories of patient and provider collaboration to analyze misunderstandings and privacy concerns.
AHRQ-funded; HS023654.
Citation: Chung CF, Dew K, Cole A .
Boundary negotiating artifacts in personal informatics: patient-provider collaboration with patient-generated data.
CSCW 2016 Feb 27:770-86. doi: 10.1145/2818048.2819926..
Keywords: Chronic Conditions, Health Information Technology (HIT), Clinician-Patient Communication, Patient Self-Management
Speck AL, Hess M, Baptist AP
An electronic asthma self-management intervention for young African American adults.
The objective of this study was to develop and assess the feasibility of an electronic asthma self-management program for young African American adults. The researchers found that all subjects completing the 2-week postprogram survey reported that the program was helpful, and 97% would recommend it to others. Asthma control as measured by the Asthma Control Test improved, and asthma quality of life as measured by the Mini Asthma Quality of Life Questionnaire also improved. They concluded that the Breathe Michigan program is feasible for recruitment and retention, and demonstrated an improvement in asthma control and quality of life for young African American adults.
AHRQ-funded; HS020977.
Citation: Speck AL, Hess M, Baptist AP .
An electronic asthma self-management intervention for young African American adults.
J Allergy Clin Immunol Pract 2016 Jan-Feb;4(1):89-95.e2. doi: 10.1016/j.jaip.2015.08.007.
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Keywords: Asthma, Health Information Technology (HIT), Racial and Ethnic Minorities, Patient Self-Management, Young Adults
Wilcox L, Woollen J, Prey J
Interactive tools for inpatient medication tracking: a multi-phase study with cardiothoracic surgery patients.
This study explored the design and usefulness of patient-facing tools supporting inpatient medication management and tracking. Patients reported that the medication-tracking tools were useful. Patients' interview responses and audit logs revealed that they made frequent use of the hospital medications feature and found electronic reporting of questions and comments useful.
AHRQ-funded; HS021816; HS021393.
Citation: Wilcox L, Woollen J, Prey J .
Interactive tools for inpatient medication tracking: a multi-phase study with cardiothoracic surgery patients.
J Am Med Inform Assoc 2016 Jan;23(1):144-58. doi: 10.1093/jamia/ocv160..
Keywords: Electronic Health Records (EHRs), Inpatient Care, Medication, Patient Self-Management, Surgery
Quan J, Lee AK, Handley MA
Automated telephone self-management support for diabetes in a low-income health plan: a health care utilization and cost analysis.
The objective was to determine whether automated telephone self-management support for low-income, linguistically diverse health plan members with diabetes affects health care utilization or cost. It found no significant differences in emergency department visits and hospitalizations or in costs.
AHRQ-funded; HS020684; HS017261; HS022561.
Citation: Quan J, Lee AK, Handley MA .
Automated telephone self-management support for diabetes in a low-income health plan: a health care utilization and cost analysis.
Popul Health Manag 2015 Dec;18(6):412-20. doi: 10.1089/pop.2014.0154.
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Keywords: Diabetes, Chronic Conditions, Patient Self-Management, Low-Income, Healthcare Costs
Pillay J, Armstrong MJ, Butalia S
Behavioral programs for type 1 diabetes mellitus: a systematic review and meta-analysis.
The purpose of this review and meta-analysis was to determine the effects of behavioral programs for patients with type 1 diabetes on behavioral, clinical, and health outcomes and to investigate factors that might moderate effect. It concluded that behavioral programs for type 1 diabetes offer some benefit for glycemic control, at least at short-term follow-up, but improvement for other outcomes has not been shown.
AHRQ-funded; 2902012000131.
Citation: Pillay J, Armstrong MJ, Butalia S .
Behavioral programs for type 1 diabetes mellitus: a systematic review and meta-analysis.
Ann Intern Med 2015 Dec 1;163(11):836-47. doi: 10.7326/m15-1399..
Keywords: Diabetes, Education: Patient and Caregiver, Patient Self-Management, Patient-Centered Outcomes Research, Lifestyle Changes, Chronic Conditions
Pillay J, Armstrong MJ, Butalia S
Behavioral programs for type 2 diabetes mellitus: a systematic review and network meta-analysis.
The purpose of this review was to identify factors moderating the effectiveness of behavioral programs for adults with type 2 diabetes. It concluded that diabetes self-management education offering 10 or fewer hours of contact with delivery personnel provided little benefit. Behavioral programs seem to benefit persons with suboptimal or poor glycemic control more than those with good control.
AHRQ-funded; 2902012000131.
Citation: Pillay J, Armstrong MJ, Butalia S .
Behavioral programs for type 2 diabetes mellitus: a systematic review and network meta-analysis.
Ann Intern Med 2015 Dec 1;163(11):848-60. doi: 10.7326/m15-1400..
Keywords: Diabetes, Education: Patient and Caregiver, Patient Self-Management, Patient-Centered Outcomes Research, Lifestyle Changes, Chronic Conditions
Luo G, Stone BL, Fassl B
Predicting asthma control deterioration in children.
The researchers developed and tested the first set of models for predicting a child’s asthma control deterioration one week prior to occurrence. Their best model successfully predicted a child’s asthma control level one week ahead. With adequate accuracy, the model could be integrated into electronic asthma self-monitoring systems.
AHRQ-funded; HS018166; HS018678.
Citation: Luo G, Stone BL, Fassl B .
Predicting asthma control deterioration in children.
BMC Med Inform Decis Mak 2015 Oct 14;15:84. doi: 10.1186/s12911-015-0208-9..
Keywords: Asthma, Children/Adolescents, Health Information Technology (HIT), Patient Self-Management
Cherrington AL, Agne AA, Lampkin Y
Diabetes Connect: developing a mobile health intervention to link diabetes community health workers with primary care.
The authors tested a model for the integration of a community health worker-delivered mobile health technology intervention to improve diabetes self-management. They found that the integration of mobile health technology into community health worker programs was successfully achieved and readily accepted.
AHRQ-funded; HS019465.
Citation: Cherrington AL, Agne AA, Lampkin Y .
Diabetes Connect: developing a mobile health intervention to link diabetes community health workers with primary care.
J Ambul Care Manage 2015 Oct-Dec;38(4):333-45. doi: 10.1097/jac.0000000000000110.
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Keywords: Education: Patient and Caregiver, Diabetes, Primary Care, Patient Self-Management, Telehealth
Rangachari P, Mehta R, Rethemeyer RK
Short or long end of the lever? Associations between provider communication of the "asthma-action plan" and outpatient revisits for pediatric asthma.
This study addresses the gap in understanding the extent of leverage that healthcare providers may have in preventing hospital revisits for asthma through effective communication of the Asthma-Action Plan (AAP) in the outpatient setting. The Children's Hospital of Georgia survey results suggest limited potential of effective provider communication of AAP in reducing outpatient revisits for pediatric asthma and indicate a need for broader community-based interventions to address patient life variables impacting self-management and hospital revisits for pediatric asthma.
AHRQ-funded; HS019785.
Citation: Rangachari P, Mehta R, Rethemeyer RK .
Short or long end of the lever? Associations between provider communication of the "asthma-action plan" and outpatient revisits for pediatric asthma.
J Hosp Adm 2015 Oct;4(5):26-39. doi: 10.5430/jha.v4n5p26.
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Keywords: Asthma, Children/Adolescents, Ambulatory Care and Surgery, Clinician-Patient Communication, Patient Self-Management
Ancker JS, Witteman HO, Hafeez B
"You get reminded you're a sick person": personal data tracking and patients with multiple chronic conditions.
The researchers’ aim was to explore the perspectives of individuals with multiple chronic conditions (MCC) using a semistructured interview study. Their research questions were (1) How do individuals with MC track their own health and medical data? and (2) How do patients and providers perceive and use patient-tracked data? Their findings potentially explain relatively low adoption of consumer health information technology.
AHRQ-funded; HS021531.
Citation: Ancker JS, Witteman HO, Hafeez B .
"You get reminded you're a sick person": personal data tracking and patients with multiple chronic conditions.
J Med Internet Res 2015 Aug 19;17(8):e202. doi: 10.2196/jmir.4209..
Keywords: Chronic Conditions, Education: Patient and Caregiver, Health Information Technology (HIT), Patient Self-Management
Ratanawongsa N, Karter AJ, Quan J
Reach and validity of an objective medication adherence measure among safety net health plan members with diabetes: a cross-sectional study.
The objective of this study was to evaluate the performance of continuous medication gap (CMG) for diverse, low-income managed care members with diabetes. It concluded that CMG demonstrated acceptable inclusiveness and validity in a diverse, low-income safety net population, comparable with its performance in studies among other insured populations.
AHRQ-funded; HS020684; HS022561; HS017261.
Citation: Ratanawongsa N, Karter AJ, Quan J .
Reach and validity of an objective medication adherence measure among safety net health plan members with diabetes: a cross-sectional study.
J Manag Care Spec Pharm 2015 Aug;21(8):688-98. doi: 10.18553/jmcp.2015.21.8.688..
Keywords: Diabetes, Patient Adherence/Compliance, Patient Self-Management, Medication, Low-Income
Ancker JS, Witteman HO, Hafeez B
The invisible work of personal health information management among people with multiple chronic conditions: qualitative interview study among patients and providers.
The researchers conducted a semistructured interview study with 22 patients with multiple chronic conditions (MCC) with the objective of exploring their role in managing their personal health information. They concluded that personal health information management should be recognized as an additional burden that MCC places upon patients. Their findings suggest that both provider-centered and patient-centered information technologies will continue to be needed.
AHRQ-funded; HS021531.
Citation: Ancker JS, Witteman HO, Hafeez B .
The invisible work of personal health information management among people with multiple chronic conditions: qualitative interview study among patients and providers.
J Med Internet Res 2015 Jun 4;17(6):e137. doi: 10.2196/jmir.4381..
Keywords: Chronic Conditions, Education: Patient and Caregiver, Patient-Centered Healthcare, Health Information Technology (HIT), Patient Self-Management
Lepard MG, Joseph AL, Agne AA
Diabetes self-management interventions for adults with type 2 diabetes living in rural areas: a systematic literature review.
The authors systematically reviewed the evidence for the impact of diabetes self-management education interventions designed for patients living in rural areas on glycemic control and other diabetes outcomes. They were able to identify examples of both telehealth interventions and face-to-face interventions that resulted in improved behavioral, biologic, and diabetes knowledge-related outcomes in adults with T2DM living in rural areas.
AHRQ-funded; HS019465.
Citation: Lepard MG, Joseph AL, Agne AA .
Diabetes self-management interventions for adults with type 2 diabetes living in rural areas: a systematic literature review.
Curr Diab Rep 2015 Jun;15(6):608. doi: 10.1007/s11892-015-0608-3..
Keywords: Diabetes, Patient Self-Management, Rural Health, Telehealth, Health Information Technology (HIT)
Kuhn L, Reeves K, Taylor Y
Planning for action: the impact of an asthma action plan decision support tool integrated into an electronic health record (EHR) at a large health care system.
This project aimed to embed an electronic asthma action plan decision support tool (eAAP) into the medical record to streamline evidence-based guidelines for providers at the point of care, create individualized patient handouts, and evaluate effects on disease outcomes. Its findings supports existing evidence that patient self-management plays an important role in reducing asthma exacerbations.
AHRQ-funded; HS019946.
Citation: Kuhn L, Reeves K, Taylor Y .
Planning for action: the impact of an asthma action plan decision support tool integrated into an electronic health record (EHR) at a large health care system.
J Am Board Fam Med 2015 May-Jun;28(3):382-93. doi: 10.3122/jabfm.2015.03.140248..
Keywords: Electronic Health Records (EHRs), Clinical Decision Support (CDS), Asthma, Patient Self-Management, Evidence-Based Practice
O'Leary K, Eschler J, Kendall L
Understanding design tradeoffs for health technologies: a mixed-methods approach.
The researchers introduced a mixed-methods approach for determining how people weigh tradeoffs in values related to health and technologies for health self-management. Their approach provided these key advantages: a structured health sciences theoretical framework to guide data collection and analysis; the coding of unstructured data with statistical patterns of polarizing and consensus views; and participants to actively weigh competing values that are most personally significant to them.
AHRQ-funded; HS021590.
Citation: O'Leary K, Eschler J, Kendall L .
Understanding design tradeoffs for health technologies: a mixed-methods approach.
Proc SIGCHI Conf Hum Factor Comput Syst 2015 Apr 18;2015:4151-60. doi: 10.1145/2702123.2702576.
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Keywords: Health Information Technology (HIT), Health Information Technology (HIT), Patient Self-Management
Fuji KT, Abbott AA, Galt KA
A qualitative study of how patients with type 2 diabetes use an electronic stand-alone personal health record.
The authors explored how patients with type 2 diabetes used a personal health record (PHR) to manage their diabetes-related health information for self-care. They found that, despite some potential positive benefits resulting from PHR use, several barriers inhibited sustained and effective use over time. They concluded that provider and patient education about the benefits of PHR use and about the potential for filling in information gaps in the provider-based record is key to engage patients and stimulate PHR adoption and use.
AHRQ-funded; HS018625.
Citation: Fuji KT, Abbott AA, Galt KA .
A qualitative study of how patients with type 2 diabetes use an electronic stand-alone personal health record.
Telemed J E Health 2015 Apr;21(4):296-300. doi: 10.1089/tmj.2014.0084.
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Keywords: Diabetes, Electronic Health Records (EHRs), Patient Self-Management, Telehealth
Merlin JS, Walcott M, Kerns R
Pain self-management in HIV-infected individuals with chronic pain: a qualitative study.
The objective of this investigation is to develop an understanding of self-management strategies already used by persons living with these conditions. It found that the primary pain self-management strategies articulated by participants were: physical activity; cognitive and spiritual strategies; spending time with family and friends and social support; avoidance of physical/social activity; medication-centric pain management; and substance use.
AHRQ-funded; HS021694.
Citation: Merlin JS, Walcott M, Kerns R .
Pain self-management in HIV-infected individuals with chronic pain: a qualitative study.
Pain Med 2015 Apr;16(4):706-14. doi: 10.1111/pme.12701..
Keywords: Chronic Conditions, Human Immunodeficiency Virus (HIV), Pain, Patient Self-Management
Wellman BR, Frail CK, Zillich AJ
Pharmacists' experiences with a telephonic medication therapy management program for home health care patients.
This qualitative study involved interviewing four pharmacists on their experiences with a telephone medication therapy management (MTM) program. Several themes emerged from the analysis, including: communication and relationships, coordinating care and patient self-management, logistics, professional fulfillment, service delivery and content, and training opportunities. The researchers concluded that their study provides possible strategies to overcome barriers and facilitate service provision for future telephonic MTM services.
AHRQ-funded; HS022119.
Citation: Wellman BR, Frail CK, Zillich AJ .
Pharmacists' experiences with a telephonic medication therapy management program for home health care patients.
Consult Pharm 2015 Mar;30(3):163-74. doi: 10.4140/TCP.n.2015.163..
Keywords: Home Healthcare, Medication, Provider: Pharmacist, Patient Self-Management
Ejebe IH, Jacobs EA, Wisk LE
Persistent differences in asthma self-efficacy by race, ethnicity, and income in adults with asthma.
The objective of this population-based study was to determine if and to what extent there are differences in asthma self-efficacy by race/ethnicity and income, and whether health status, levels of acculturation, and health care factors may explain these differences. It found that racial/ethnic minorities and individuals living in poverty have the lowest levels of asthma self-efficacy.
AHRQ-funded; HS000063.
Citation: Ejebe IH, Jacobs EA, Wisk LE .
Persistent differences in asthma self-efficacy by race, ethnicity, and income in adults with asthma.
J Asthma 2015 Feb;52(1):105-13. doi: 10.3109/02770903.2014.947429..
Keywords: Asthma, Patient Self-Management, Social Determinants of Health, Low-Income, Racial and Ethnic Minorities
Dorn SD, Palsson OS, Woldeghebriel M
Development and pilot testing of an integrated, web-based self-management program for irritable bowel syndrome (IBS).
The researchers developed, assessed, and refined an integrated IBS self-management program (IBS Self-care) and then conducted a 12-week pilot test. They found that the IBS Self-Care program was well received by users who after 12 weeks reported improved knowledge about IBS, but no significant changes in self-efficacy or quality of life.
AHRQ-funded; HS019468.
Citation: Dorn SD, Palsson OS, Woldeghebriel M .
Development and pilot testing of an integrated, web-based self-management program for irritable bowel syndrome (IBS).
Neurogastroenterol Motil 2015 Jan;27(1):128-34. doi: 10.1111/nmo.12487..
Keywords: Patient Self-Management, Health Literacy, Education: Patient and Caregiver, Digestive Disease and Health
Casper GR, Flatley Brennan P, Perreault JO
vizHOME--a context-based home assessment: preliminary implications for informatics.
The focus of this paper is on the first phase of the vizHOME study, specifically on the exploration and documentation of the individual’s performance of self-management tasks including such things as medication management and use of a monitoring device. The researchers learned from the participants that while the tools may perform satisfactorily in usability assessment, they may not meet the needs of many users.
AHRQ-funded; HS022548.
Citation: Casper GR, Flatley Brennan P, Perreault JO .
vizHOME--a context-based home assessment: preliminary implications for informatics.
Stud Health Technol Inform 2015;216:842-6..
Keywords: Diabetes, Patient Self-Management, Home Healthcare, Health Information Technology (HIT), Medication