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Search All Research Studies
Topics
- Cancer (1)
- Clinician-Patient Communication (2)
- Communication (1)
- (-) Education: Patient and Caregiver (4)
- Electronic Health Records (EHRs) (1)
- Evidence-Based Practice (1)
- Health Information Technology (HIT) (1)
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- Shared Decision Making (1)
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 4 of 4 Research Studies DisplayedYanez B, Bouchard LC, Cella D
Patient-centered engagement and symptom/toxicity monitoring in the new era of tumor next-generation sequencing and immunotherapy: the OncoTool and OncoPRO platforms.
This paper describes the development of the OncoTool and OncoPRO platforms to help patients with late-stage cancer (stages III-IV) and their providers in providing patient-centered education and remote and routine monitoring of symptoms and toxicities after tumor next-generation sequencing testing and treatment. The OncoTool is a web-based educational resource tailored for people with advanced cancer. It aims to provide patients with easy-to-understand treatment options and associated toxicities as well as evidence-based strategies for managing symptoms and improving stress management. It is fully integrated with OncoPRO which provides feedback on patient-reported outcomes (PROs) to clinicians. The data from the platform can be integrated with the patient’s electronic health record (HER) and can provide an alert message. These systems are currently being tested with 4 trials – 1 for OncoTool and the other 3 for OncoPRO.
AHRQ-funded; HS023011.
Citation: Yanez B, Bouchard LC, Cella D .
Patient-centered engagement and symptom/toxicity monitoring in the new era of tumor next-generation sequencing and immunotherapy: the OncoTool and OncoPRO platforms.
Cancer 2019 Jul 15;125(14):2338-44. doi: 10.1002/cncr.32030..
Keywords: Cancer, Education: Patient and Caregiver, Electronic Health Records (EHRs), Evidence-Based Practice, Health Information Technology (HIT), Patient-Centered Healthcare, Patient-Centered Outcomes Research, Patient and Family Engagement
Wolinsky FD, Lou Y, Edmonds SW
Activating patients with a tailored bone density test results letter and educational brochure: the PAADRN Randomized Controlled Trial.
This study examined whether a tailored patient-activation letter communicating bone mineral density (BMD) test results plus an educational brochure improved patient activation scores and levels at 12 and 52 wk post-baseline as the mechanism leading to enhanced bone healthcare.
AHRQ-funded; HS023009.
Citation: Wolinsky FD, Lou Y, Edmonds SW .
Activating patients with a tailored bone density test results letter and educational brochure: the PAADRN Randomized Controlled Trial.
J Clin Densitom 2017 Oct/Dec;20(4):464-71. doi: 10.1016/j.jocd.2016.08.012..
Keywords: Education: Patient and Caregiver, Health Literacy, Patient-Centered Healthcare, Patient and Family Engagement, Clinician-Patient Communication
Lee JL, Frey M, Frey P
Seeing is engaging: vlogs as a tool for patient engagement.
This paper presents The Frey Life, an example of a patient video log (vlog), to show how the platform models and fosters engagement, and provides the patient perspective. The authors discuss potential concerns regarding health vlogs, and suggest implications for physicians, researchers, and medical institutions regarding how to use patient vlogs as a resource.
AHRQ-funded; HS000029.
Citation: Lee JL, Frey M, Frey P .
Seeing is engaging: vlogs as a tool for patient engagement.
Patient 2017 Jun;10(3):267-70. doi: 10.1007/s40271-017-0215-2..
Keywords: Education: Patient and Caregiver, Patient and Family Engagement, Patient-Centered Healthcare, Social Media
Spatz ES, Krumholz HM, Moulton BW
The new era of informed consent: getting to a reasonable-patient standard through shared decision making.
The authors discuss a range of issues associated with shared decision making. They see it as a collaborative communication process between clinicians and patients that integrates the best evidence available with the patients’ values and preferences, to promote high-quality health care decisions.
AHRQ-funded; HS023000.
Citation: Spatz ES, Krumholz HM, Moulton BW .
The new era of informed consent: getting to a reasonable-patient standard through shared decision making.
JAMA 2016 May 17;315(19):2063-4. doi: 10.1001/jama.2016.3070..
Keywords: Clinician-Patient Communication, Communication, Shared Decision Making, Education: Patient and Caregiver, Patient and Family Engagement, Patient-Centered Healthcare