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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
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1 to 3 of 3 Research Studies DisplayedRivard SJ, Vitous CA, Bamdad MC
"I wish there had been resources": a photo-elicitation study of rectal cancer survivorship care needs.
Prior research reveals that healthcare providers are not skilled at identifying the most relevant rectal cancer survivorship issues. As a result, survivorship care is inadequate with most rectal cancer survivors reporting at least one unmet posttherapy need. The purpose of this photo-elicitation study was to explore rectal cancer survivors’ lived experiences using participant-submitted photographs and minimally structured qualitative interviews. Twenty rectal cancer survivors from a single center submitted photographs illustrative of their life after rectal cancer therapy. The study found that rectal cancer survivors’ recommendations to improve their survivorship care fell into three primary themes: 1) informational needs; 2) continued multidisciplinary follow up care; and 3) suggestions for support services. The study concluded that rectal cancer survivors want information that is more detailed and individualized, access to multidisciplinary follow-up care over time, and resources to alleviate the challenges of daily life.
AHRQ-funded; HS026772; HS000053.
Citation: Rivard SJ, Vitous CA, Bamdad MC .
"I wish there had been resources": a photo-elicitation study of rectal cancer survivorship care needs.
Ann Surg Oncol 2023 Jun; 30(6):3530-37. doi: 10.1245/s10434-022-13042-6..
Keywords: Cancer: Colorectal Cancer, Cancer, Quality of Life, Patient Experience
Roydhouse JK, Gutman R, Keating NL
The association of proxy care engagement with proxy reports of patient experience and quality of life.
The purpose of this study was to assess the association of proxy-specific covariates with proxy-reported patient cancer care experience, quality rating, and quality of life. The investigators concluded that collecting data on proxy engagement in care is warranted if proxy responses are used.
AHRQ-funded; HS000011.
Citation: Roydhouse JK, Gutman R, Keating NL .
The association of proxy care engagement with proxy reports of patient experience and quality of life.
Health Serv Res 2018 Oct;53(5):3809-24. doi: 10.1111/1475-6773.12980..
Keywords: Cancer, Patient Experience, Patient and Family Engagement, Quality of Life
Sohn W, Resnick MJ, Greenfield S
Impact of adherence to quality measures for localized prostate cancer on patient-reported health-related quality of life outcomes, patient satisfaction, and treatment-related complications.
Given the small number of narrowly focused measures in prostate cancer care, the researchers sought to determine whether adherence to any of the available payer-driven quality measures influences patient-centered outcomes, including health-related quality of life (HRQOL), patient satisfaction, and treatment-related complications. They concluded that compliance with available nationally endorsed quality indicators was not associated with clinically important changes in patient-centered outcomes (HRQOL, satisfaction, or complications) within 1-year.
AHRQ-funded; HS019356; HS022640.
Citation: Sohn W, Resnick MJ, Greenfield S .
Impact of adherence to quality measures for localized prostate cancer on patient-reported health-related quality of life outcomes, patient satisfaction, and treatment-related complications.
Med Care 2016 Aug;54(8):738-44. doi: 10.1097/mlr.0000000000000562.
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Keywords: Cancer, Cancer: Prostate Cancer, Quality of Life, Comparative Effectiveness, Patient Experience