National Healthcare Quality and Disparities Report
Latest available findings on quality of and access to health care
Data
- Data Infographics
- Data Visualizations
- Data Tools
- Data Innovations
- All-Payer Claims Database
- Healthcare Cost and Utilization Project (HCUP)
- Medical Expenditure Panel Survey (MEPS)
- AHRQ Quality Indicator Tools for Data Analytics
- State Snapshots
- United States Health Information Knowledgebase (USHIK)
- Data Sources Available from AHRQ
Search All Research Studies
AHRQ Research Studies Date
Topics
- Behavioral Health (3)
- Caregiving (2)
- Children/Adolescents (8)
- Clinician-Patient Communication (1)
- Communication (1)
- Comparative Effectiveness (1)
- Diabetes (1)
- Diagnostic Safety and Quality (1)
- Digestive Disease and Health (1)
- Domestic Violence (1)
- Evidence-Based Practice (1)
- (-) Family Health and History (14)
- Genetics (1)
- Health Promotion (1)
- Injuries and Wounds (1)
- Lifestyle Changes (3)
- Low-Income (1)
- Medicaid (1)
- Medical Expenditure Panel Survey (MEPS) (1)
- Neurological Disorders (1)
- Newborns/Infants (1)
- Obesity (2)
- Obesity: Weight Management (1)
- Outcomes (1)
- Patient-Centered Outcomes Research (3)
- Patient and Family Engagement (1)
- Pregnancy (1)
- Prevention (1)
- Quality of Life (2)
- Racial and Ethnic Minorities (3)
- Risk (2)
- Screening (2)
- Social Determinants of Health (1)
- Stress (2)
- Telehealth (1)
- Uninsured (1)
- Vulnerable Populations (2)
- Women (1)
AHRQ Research Studies
Sign up: AHRQ Research Studies Email updates
Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 14 of 14 Research Studies DisplayedAnderson AC, Akre E, Chen J
Exploring national trends of patient- and family-centered care among US children.
This study examined national trends in the receipt of high-quality patient-physician communication and patient empowerment through behavioral health counseling among children in the United States. They used Medical Expenditure Panel Survey (MEPS) data from 2010 to 2014. Two measures of patient- and family-centered care (PFCC) were analyzed: 1) a composite measure of high-quality patient-physician communication, and 2) patient empowerment through behavioral health counseling about healthy eating and exercise. There were high rates of receiving high-quality physician-patient communication (92-93%) as opposed to behavioral counseling about healthy eating (53-60%) and exercise (37-42%). There was a higher rate of high-quality physician-patient communication in 2014 than in 2010, but there was not a similar increase in receiving behavioral health counseling. Lower odds of receiving behavioral health counseling were found for parents with low income and low educational attainment as well as lack of insurance.
AHRQ-funded; HS022135.
Citation: Anderson AC, Akre E, Chen J .
Exploring national trends of patient- and family-centered care among US children.
J Child Health Care 2019 Jun;23(2):200-12. doi: 10.1177/1367493518786015..
Keywords: Medical Expenditure Panel Survey (MEPS), Children/Adolescents, Clinician-Patient Communication, Communication, Patient and Family Engagement, Patient-Centered Outcomes Research, Family Health and History, Lifestyle Changes
Adrian M, McCauley E, Berk MS
Predictors and moderators of recurring self-harm in adolescents participating in a comparative treatment trial of psychological interventions.
This study compared outcomes for treatment of adolescents who have engaged in self-harm including suicide attempts and nonsuicidal self-injury. This randomized controlled tiral compared results with dialectical behavior therapy (DBT) to treatment with individual/group supportive therapy (IGST). 173 adolescents were randomized to receive 6 months of DBT or IGST. Assessments were made at baseline, midtreatment (3 months), and end of treatment at 6 months using the Suicide Attempt and Self –Injury Interview. Overall, DBT showed better rates of improvement than IGST. These was especially true of adolescents with higher levels of emotion dysregulation and parental psychopathology.
AHRQ-funded; HS022982.
Citation: Adrian M, McCauley E, Berk MS .
Predictors and moderators of recurring self-harm in adolescents participating in a comparative treatment trial of psychological interventions.
J Child Psychol Psychiatry 2019 Oct;60(10):1123-32. doi: 10.1111/jcpp.13099..
Keywords: Children/Adolescents, Behavioral Health, Comparative Effectiveness, Evidence-Based Practice, Patient-Centered Outcomes Research, Family Health and History, Outcomes
Sohn H
Fraying families: demographic divergence in the parental safety net.
Improving life expectancies and health allows parents to provide for their children longer, but greater union dissolution among parents can weaken the safety net they can create for their adult children. Greater mortality, nonmarital childbearing, and divorce among families with lower socioeconomic status may be reinforcing inequalities across generations. This article examines two cohorts aged 25-49 from the 1988 (n = 7,246) and 2013 (n = 7,014) Panel Study of Income Dynamics Roster and Transfers Files.
AHRQ-funded; HS000046.
Citation: Sohn H .
Fraying families: demographic divergence in the parental safety net.
Demography 2019 Aug;56(4):1519-40. doi: 10.1007/s13524-019-00802-5..
Keywords: Family Health and History
Baskind MJ, Taveras EM, Gerber MW
Parent-perceived stress and its association with children's weight and obesity-related behaviors.
Psychosocial stress is associated with obesity in adult and pediatric populations, but few studies have examined the relationship between parent-perceived stress and risk of child obesity and related behaviors. In this study, the investigators studied 689 pairs of parents and children aged 2 to 12 in Massachusetts with a body mass index (BMI) at or above the 85th percentile. The investigators found that among children with overweight or obesity, parent-perceived stress was associated with fast-food consumption and physical activity.
AHRQ-funded; HS024332; HS022986.
Citation: Baskind MJ, Taveras EM, Gerber MW .
Parent-perceived stress and its association with children's weight and obesity-related behaviors.
Prev Chronic Dis 2019 Mar 28;16:E39. doi: 10.5888/pcd16.180368..
Keywords: Children/Adolescents, Family Health and History, Lifestyle Changes, Obesity, Obesity: Weight Management, Risk, Stress
Bauer NS, Ofner S, Moore C
Assessment of the effects of pediatric attention deficit hyperactivity disorder on family stress and well-being: development of the IMPACT 1.0 scale.
This paper describes the IMPACT (Impact Measure of Parenting-Related ADHD Challenges and Treatment) 1.0 Scale which was codeveloped with input from parent advisors and administered to 79 parents of children with ADHD. It is a brief measure to assess ADHD impacts on family in the context of everyday family life. Exploratory factor analysis, correlations with validated instruments, and test-retest reliability were examined in the study.
AHRQ-funded; HS022434.
Citation: Bauer NS, Ofner S, Moore C .
Assessment of the effects of pediatric attention deficit hyperactivity disorder on family stress and well-being: development of the IMPACT 1.0 scale.
Glob Pediatr Health 2019 Mar 15;6:2333794x19835645. doi: 10.1177/2333794x19835645..
Keywords: Children/Adolescents, Behavioral Health, Family Health and History, Patient-Centered Outcomes Research, Quality of Life
Faye AS, Polubriaginof F, Green PHR
Low rates of screening for celiac disease among family members.
This study determined how many family members of patients diagnosed with celiac disease were screened. Even among those patients with a family history, nearly 30% of symptomatic first-degree relatives were not tested. These tests are recommended in guidelines for all relatives with a documented family history.
AHRQ-funded; HS021816.
Citation: Faye AS, Polubriaginof F, Green PHR .
Low rates of screening for celiac disease among family members.
Clin Gastroenterol Hepatol 2019 Feb;17(3):463-68. doi: 10.1016/j.cgh.2018.06.016..
Keywords: Diagnostic Safety and Quality, Digestive Disease and Health, Family Health and History, Screening
Simon NJ, Richardson J, Ahmad A
Health utilities and parental quality of life effects for three rare conditions tested in newborns.
The purposes of this study were to estimate health utilities for three rare, heritable conditions currently recommended for newborn screening - Krabbe disease, phenylketonuria, and Pompe disease - and to estimate the spillover effects experienced by the parents of infants diagnosed with these disorders. A survey elicited health utilities for the three conditions at varying stages and onset of symptoms. Respondents valued disease specific health states in three question frames: adult, child, and parent spillover state. Results reported that more severe conditions and infant health states received lower estimated utility, and estimates of greater disutility among parents.
AHRQ-funded; HS020644.
Citation: Simon NJ, Richardson J, Ahmad A .
Health utilities and parental quality of life effects for three rare conditions tested in newborns.
J Patient Rep Outcomes 2019 Jan 22;3(1):4. doi: 10.1186/s41687-019-0093-6..
Keywords: Caregiving, Family Health and History, Newborns/Infants, Quality of Life, Screening
Kim DH, Bassett SM, So S
Family stress and youth mental health problems: self-efficacy and future orientation mediation.
This study assessed whether future orientation and self-esteem affected the relationship between family stress and mental health problems among African American youth in predominantly low-income neighborhoods. Youths (mainly female, average age 15.83 years old) were sampled for family stress, self-esteem, future orientation, mental health and other covariates such as gender and sexual orientation. A correlation was found between future orientation and self-esteem levels and family stress and mental health problems.
AHRQ-funded; HS000078.
Citation: Kim DH, Bassett SM, So S .
Family stress and youth mental health problems: self-efficacy and future orientation mediation.
Am J Orthopsychiatry 2019;89(2):125-33. doi: 10.1037/ort0000371..
Keywords: Children/Adolescents, Family Health and History, Low-Income, Behavioral Health, Racial and Ethnic Minorities, Stress, Vulnerable Populations
Heerman WJ, Perrin EM, Sanders LM
Racial and ethnic differences in injury prevention behaviors among caregivers of infants.
The objective of this study is to evaluate the association between caregiver race/ethnicity and adherence to injury prevention recommendations. It concluded that a high prevalence of non-adherence to recommended injury prevention behaviors is common across racial/ethnic categories for caregivers of infants among a diverse sample of families from low-SES backgrounds.
AHRQ-funded; HS022990.
Citation: Heerman WJ, Perrin EM, Sanders LM .
Racial and ethnic differences in injury prevention behaviors among caregivers of infants.
Am J Prev Med 2016 Oct;51(4):411-8. doi: 10.1016/j.amepre.2016.04.020.
.
.
Keywords: Caregiving, Family Health and History, Injuries and Wounds, Prevention, Racial and Ethnic Minorities
Oreskovic NM, Fletcher R, Sharifi M
Design and rationale of the STRIVE trial to improve cardiometabolic health among children and families.
The researchers described the design and rationale for the Study for using Technology to Reach Individual Excellence (STRIVE), which incorporates patient-generated mobile health technology (mHealth) data on health behaviors and provides clinical recommendations to help manage cardiometabolic risk and disease (CMRD) among at-risk families. They concluded that the STRIVE trial will test the use of mHealth to improve health behaviors among families at-risk for or with established CMRD.
AHRQ-funded; HS022986; HS024001.
Citation: Oreskovic NM, Fletcher R, Sharifi M .
Design and rationale of the STRIVE trial to improve cardiometabolic health among children and families.
Contemp Clin Trials 2016 Jul;49:149-54. doi: 10.1016/j.cct.2016.07.012.
.
.
Keywords: Children/Adolescents, Family Health and History, Health Promotion, Lifestyle Changes, Telehealth
Raghavan R, Allaire BT, Brown DS
Medicaid disenrollment patterns among children coming into contact with child welfare agencies.
The authors examined retention of Medicaid coverage over time for children in the child welfare system. Using Medicaid claims files from 36 states, they found that half retained Medicaid coverage across 4 years of follow up, with most disenrollments happening in year 4. They recommend finding ways to promote entry of child welfare-involved children into health insurance coverage in order to assure services.
AHRQ-funded; HS020269.
Citation: Raghavan R, Allaire BT, Brown DS .
Medicaid disenrollment patterns among children coming into contact with child welfare agencies.
Matern Child Health J 2016 Jun;20(6):1280-7. doi: 10.1007/s10995-016-1929-9.
.
.
Keywords: Children/Adolescents, Family Health and History, Medicaid, Uninsured, Vulnerable Populations
McCloskey LA
The effects of gender-based violence on women's unwanted pregnancy and abortion.
The authors sought to understand how gender-based violence across the life-course affects the likelihood of abortion and studied four different forms of gender-based abuse. They found that no single form of abuse predicted abortion; however, the cumulative effect of multiple forms of abuse did increase the odds of abortion. The authors suggested that priority in future research should be given to screening for multiple forms of victimization in reproductive healthcare settings.
AHRQ-funded; HS011088.
Citation: McCloskey LA .
The effects of gender-based violence on women's unwanted pregnancy and abortion.
Yale J Biol Med 2016 Jun;89(2):153-9.
.
.
Keywords: Domestic Violence, Family Health and History, Pregnancy, Women
Williams RC, Elston RC, Kumar P
Selecting SNPs informative for African, American Indian and European Ancestry: application to the Family Investigation of Nephropathy and Diabetes (FIND).
The researchers studied individual genetic ancestry (IGA) in four samples in the Family Investigation of Nephropathy and Diabetes (FIND). They found that the identified set of ancestry informtive markers (AIMs) may be particularly useful for estimating genetic admixture in populations from the Americas. They concluded that odds ratios for the associations of IGA with disease are consistent with what is known about the incidence and prevalence of diabetic nephropathy in these populations.
AHRQ-funded; HS008365.
Citation: Williams RC, Elston RC, Kumar P .
Selecting SNPs informative for African, American Indian and European Ancestry: application to the Family Investigation of Nephropathy and Diabetes (FIND).
BMC Genomics 2016 May 4;17:325. doi: 10.1186/s12864-016-2654-x.
.
.
Keywords: Diabetes, Family Health and History, Genetics, Neurological Disorders, Racial and Ethnic Minorities
Heerman WJ, Krishnaswami S, Barkin SL
Adverse family experiences during childhood and adolescent obesity.
The researchers evaluated the association between adverse family experiences (AFEs) during childhood and adolescent obesity and determined populations at highest risk for AFEs. They found that adolescents in this national sample who were exposed to greater numbers of AFEs in childhood also had higher rates of overweight and obesity, and also that geographic variation and differential associations based on race/ethnicity identified children at greatest risk.
AHRQ-funded; HS022990.
Citation: Heerman WJ, Krishnaswami S, Barkin SL .
Adverse family experiences during childhood and adolescent obesity.
Obesity 2016 Mar;24(3):696-702. doi: 10.1002/oby.21413..
Keywords: Children/Adolescents, Family Health and History, Obesity, Risk, Social Determinants of Health