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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
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1 to 2 of 2 Research Studies DisplayedCrosby LE, Walton A, Shook LM
Development of a hydroxyurea decision aid for parents of children with sickle cell anemia.
This study developed a decision aid for use of hydroxyurea for parents of children with sickle cell anemia. There are national evidence-based guidelines, but they do not offer strategies for implementation. A multicomponent decision aid was developed via a needs assessment, clinic observations and iterative feedback. The decision aid was considered useful by the 75 parents and 28 clinicians who participated in all phases of the study.
AHRQ-funded; HS021114.
Citation: Crosby LE, Walton A, Shook LM .
Development of a hydroxyurea decision aid for parents of children with sickle cell anemia.
J Pediatr Hematol Oncol 2019 Jan;41(1):56-63. doi: 10.1097/mph.0000000000001257..
Keywords: Caregiving, Children/Adolescents, Chronic Conditions, Shared Decision Making, Education: Patient and Caregiver, Medication, Patient-Centered Healthcare, Patient-Centered Outcomes Research, Sickle Cell Disease
Greenzang KA, Dauti A, Mack JW
Parent perspectives on information about late effects of childhood cancer treatment and their role in initial treatment decision making.
The authors’ objective was to explore how parents of children with cancer consider late effects in initial treatment decision making and during active cancer treatment. Through interviews, they found that parents desire detailed information about late effects to make informed treatment decisions and to prepare for the future. Despite the role of late effects in treatment decision making, some parents feel that late effects are either inadequately addressed or too overwhelming to process at diagnosis. They suggested that parents may benefit from early assessment of their information needs and a return to these issues over time.
AHRQ-funded; HS022986.
Citation: Greenzang KA, Dauti A, Mack JW .
Parent perspectives on information about late effects of childhood cancer treatment and their role in initial treatment decision making.
Pediatr Blood Cancer 2018 Jun;65(6):e26978. doi: 10.1002/pbc.26978.
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Keywords: Cancer, Children/Adolescents, Shared Decision Making, Education: Patient and Caregiver, Patient-Centered Healthcare