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Search All Research Studies
Topics
- Caregiving (2)
- Children/Adolescents (4)
- Clinician-Patient Communication (1)
- Communication (2)
- Critical Care (2)
- Electronic Health Records (EHRs) (3)
- Health Information Technology (HIT) (3)
- Hospitals (1)
- (-) Intensive Care Unit (ICU) (8)
- Neonatal Intensive Care Unit (NICU) (1)
- Newborns/Infants (2)
- Nursing (1)
- Patient-Centered Healthcare (2)
- (-) Patient and Family Engagement (8)
- Patient Experience (1)
- Shared Decision Making (2)
AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 8 of 8 Research Studies DisplayedBoltey EM, Wright N, Mosley EA
Exploring the process of information sharing in an adult intensive care unit: an ethnographic study.
The purpose of this study was to examine how the process of information sharing takes place in the ICU from the perspectives of the professional team and family members. The researchers conducted ethnographic fieldwork focusing on behaviors and interactions of the interprofessional team and family members. Fieldwork of 17.5 observation hours, 6 shadowing sessions, and 12 semi-structured interviews with 17 total participants took place in a 20-bed medical ICU from May 2016 - October 2016. Three themes about the information sharing process were identified: 1) family factors influence information sharing; 2) clinician strategies can support engagement in the process of information sharing; and 3) the process of information sharing allows for trust building between ICU team and families. The researchers concluded that information sharing is a critical process that may act as a stimulus for effective ICU engagement with the patient and family.
AHRQ-funded; HS024552.
Citation: Boltey EM, Wright N, Mosley EA .
Exploring the process of information sharing in an adult intensive care unit: an ethnographic study.
J Interprof Care 2022 Mar-Apr;36(2):168-76. doi: 10.1080/13561820.2021.1899147..
Keywords: Intensive Care Unit (ICU), Clinician-Patient Communication, Patient and Family Engagement, Communication, Critical Care
Neu M, Klawetter S, Greenfield JC
Mothers' experiences in the NICU before family-centered care and in NICUs where it is the standard of care.
Family-centered care (FCC) in neonatal intensive care units (NICUs) was initiated in 1992 to promote a respectful response to individual family needs and support parental participation in care and decision-making for their infants. Although benefits of FCC have been reported, changes in the maternal experience in the NICU are unknown. The purpose of this study was to compare mothers' experiences in NICUs where FCC is the standard of care and to compare these with the experiences of mothers 2 decades ago.
AHRQ-funded; HS026370.
Citation: Neu M, Klawetter S, Greenfield JC .
Mothers' experiences in the NICU before family-centered care and in NICUs where it is the standard of care.
Adv Neonatal Care 2020 Feb;20(1):68-79. doi: 10.1097/anc.0000000000000671.
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Keywords: Newborns/Infants, Patient-Centered Healthcare, Neonatal Intensive Care Unit (NICU), Intensive Care Unit (ICU), Caregiving, Shared Decision Making, Patient Experience, Patient and Family Engagement
Klawetter S, Neu M, Roybal KL S, Neu M, Roybal KL
Mothering in the NICU: a qualitative exploration of maternal engagement.
This qualitative study reflected a transdisciplinary research partnership between social work, nursing, and neonatology. Maternal experiences in the NICU, from the perspectives of mothers of preterm infants hospitalized in two NICUs, are collected. Results support an ecological systems framework to understanding barriers and facilitators to maternal engagement in the NICU and the utilization of a trauma-informed health care approach in NICU settings.
AHRQ-funded; HS026370.
Citation: Klawetter S, Neu M, Roybal KL S, Neu M, Roybal KL .
Mothering in the NICU: a qualitative exploration of maternal engagement.
Soc Work Health Care 2019 Sep;58(8):746-63. doi: 10.1080/00981389.2019.1629152..
Keywords: Newborns/Infants, Intensive Care Unit (ICU), Patient and Family Engagement
Kruser JM, Benjamin BT, Gordon EJ
Patient and family engagement during treatment decisions in an ICU: a discourse analysis of the electronic health record.
This study looked at patient and family engagement during treatment decisions with patients in a medical ICU. A total of 52 patients were included who had been admitted to a hospital ICU during 2016. Half of them met a consensus definition of chronic critical illness, and the other half either died or had transitioned to hospice care in the ICU. Clinical electronic health records (EHRs) were used to document decision points. The phrase “goals of care” was frequently found in the HER and was used to indicate poor prognosis.
AHRQ-funded; HS000078.
Citation: Kruser JM, Benjamin BT, Gordon EJ .
Patient and family engagement during treatment decisions in an ICU: a discourse analysis of the electronic health record.
Crit Care Med 2019 Jun;47(6):784-91. doi: 10.1097/ccm.0000000000003711..
Keywords: Critical Care, Shared Decision Making, Electronic Health Records (EHRs), Health Information Technology (HIT), Intensive Care Unit (ICU), Patient and Family Engagement
Asan O, Scanlan MC, Crotty B
Parental perceptions of displayed patient data in a PICU: an example of unintentional empowerment.
The objective of this study was to explore the perceptions of parents of pediatric patients in a PICU regarding real-time open electronic health record data displayed in patient rooms. The investigators suggest that a new health information technology system providing continuous access to open electronic health record data may be an effective way to empower and engage parents in the PICU, but also note potential drawbacks.
AHRQ-funded; HS023626.
Citation: Asan O, Scanlan MC, Crotty B .
Parental perceptions of displayed patient data in a PICU: an example of unintentional empowerment.
Pediatr Crit Care Med 2019 May;20(5):435-41. doi: 10.1097/pcc.0000000000001895..
Keywords: Caregiving, Children/Adolescents, Communication, Electronic Health Records (EHRs), Health Information Technology (HIT), Hospitals, Intensive Care Unit (ICU), Patient and Family Engagement
Asan O, Flynn KE, Azam L
Nurses’ perceptions of a novel health information technology: a qualitative study in the pediatric intensive care unit.
The purpose of this study was to evaluate the use of a novel health information technology (HIT), a large customizable interactive monitor (LCIM), implemented in a pediatric intensive care unit (PICU). The study collected and analyzed data from 55 PICU nurses in seven focus groups. Six major themes emerged including familiarity and use routines, positive perceptions with the LCIM, negative perceptions with the LCIM, privacy, training, and suggestions for improvement.
AHRQ-funded; HS023626.
Citation: Asan O, Flynn KE, Azam L .
Nurses’ perceptions of a novel health information technology: a qualitative study in the pediatric intensive care unit.
Int J Hum Comput Interact 2017;33(4):258-64. doi: 10.1080/10447318.2017.1279828.
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Keywords: Health Information Technology (HIT), Intensive Care Unit (ICU), Patient and Family Engagement, Children/Adolescents, Nursing
Asan O, Holden RJ, Flynn KE
Provider use of a novel EHR display in the pediatric intensive care unit. Large Customizable Interactive Monitor (LCIM).
The purpose of this study was to explore providers' perspectives on the use of a novel technology, "Large Customizable Interactive Monitor" (LCIM), a novel application of the electronic health record system implemented in a Pediatric Intensive Care Unit. The study revealed this next generation HIT might have great potential for family-centered rounds, team education during rounds, and family education/engagement in their child's health in the patient room.
AHRQ-funded; HS023626.
Citation: Asan O, Holden RJ, Flynn KE .
Provider use of a novel EHR display in the pediatric intensive care unit. Large Customizable Interactive Monitor (LCIM).
Appl Clin Inform 2016 Jul 20;7(3):682-92. doi: 10.4338/aci-2016-02-ra-0030.
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Keywords: Children/Adolescents, Electronic Health Records (EHRs), Intensive Care Unit (ICU), Patient and Family Engagement, Children/Adolescents
Baird J, Davies B, Hinds PS
What impact do hospital and unit-based rules have upon patient and family-centered care in the pediatric intensive care unit?
This qualitative, grounded theory study identified the existence of explicit and implicit rules in a pediatric intensive care unit, all of which negatively affected the family's ability to receive care that was attentive to their needs. The rules also placed the registered nurse in the challenging position of serving as rule enforcer and facilitator of patient and family-centered care.
AHRQ-funded; HS000063.
Citation: Baird J, Davies B, Hinds PS .
What impact do hospital and unit-based rules have upon patient and family-centered care in the pediatric intensive care unit?
J Pediatr Nurs 2015 Jan-Feb;30(1):133-42. doi: 10.1016/j.pedn.2014.10.001.
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Keywords: Children/Adolescents, Intensive Care Unit (ICU), Patient and Family Engagement, Patient-Centered Healthcare, Children/Adolescents