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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 3 of 3 Research Studies DisplayedWhite VanGompel E, Lai JS, Davis DA
Psychometric validation of a patient-reported experience measure of obstetric racism© (The PREM-OB Scale™ suite).
This study sought to develop a valid patient-reported experience measure (PREM) of Obstetric Racism(©) in hospital-based intrapartum care designed for, by, and with Black women as patient, community, and content experts. The study was conducted using PROMIS© instrument development standards adapted with cultural rigor methodology. The study had 2 phases: Phase 1 included item pool generation, modified Delphi method, and cognitive interviews and Phase 2 evaluated the item pool using factor analysis and item response theory. Items were identified or written to cover 7 previously identified theoretical domains with 806 Black mothers and birthing people completing the pilot test. Good fit indices were indicated with factor analysis. Factor 1 was “Humanity” which had 31 items measuring experiences of safety and accountability, autonomy, communication, and empathy; Factor 2 “Racism” which had 12 items measuring experiences of neglect and mistreatment; and Factor 3 “Kinship” which had 7 items measuring hospital denial and disruption of relationships between Black mothers and their child or support system.
AHRQ-funded; HS028028.
Citation: White VanGompel E, Lai JS, Davis DA .
Psychometric validation of a patient-reported experience measure of obstetric racism© (The PREM-OB Scale™ suite).
Birth 2022 Sep;49(3):514-25. doi: 10.1111/birt.12622..
Keywords: Racial and Ethnic Minorities, Women, Patient Experience
Fowler FJ, Brenner PS, Cosenza C
How responding in Spanish affects CAHPS results.
The purpose of this study was to examine the associations of language and ethnicity with responses to CAHPS surveys and assess the effect of responding to CAHPS surveys in Spanish. The researchers surveyed patients who had received care at a Connecticut community health center within 6 or 12 months of being sent a CAHPS survey that asks about care experiences. Three hypotheses were tested: 1. Spanish speakers are more likely to choose extreme response options. 2. The meaning of the Spanish translation is different than the English version of the questions, with Spanish speakers providing different answers because of meaning differences. 3. Spanish speakers have different expectations regarding their health care than those who answer in English. Researchers evaluated any differences by ethnicity and language. The study found that those answering in Spanish gave significantly more positive reports than the other two groups on three of the five measures, and higher than the non-Hispanic respondents on a fourth. The study concluded that subjects answering in Spanish gave more positive reports of their medical experiences than Hispanics and non-Hispanics answering in English.
AHRQ-funded; HS016978.
Citation: Fowler FJ, Brenner PS, Cosenza C .
How responding in Spanish affects CAHPS results.
BMC Health Serv Res 2022 Jul 8;22(1):884. doi: 10.1186/s12913-022-08262-1..
Keywords: Consumer Assessment of Healthcare Providers and Systems (CAHPS), Cultural Competence, Patient Experience, Quality of Care, Racial and Ethnic Minorities
Dos Santos Marques IC, Herbey II, Theiss LM
Understanding the surgical experience for Black and White patients with inflammatory bowel disease (IBD): the importance of health literacy.
The purpose of this qualitative study was to describe the surgical experience for Black and White inflammatory bowel disease patients. Same race, semi-structured qualitative interviews with patients with IBD who had undergone surgery were conducted to explore barriers and facilitators to a positive or negative surgical experience. The study reported that 6 focus groups were conducted with 10 Black and 17 White IBD participants with a mean age of 44.8 years, 52% of whom were male and 65% of whom had Crohn’s disease. Four themes were identified that most characterized the surgical experience: the impact of the IBD diagnosis, the quality of the information that was provided, disease management, and the surgery. Within these theme groupings, identified barriers to a positive surgical experience included inadequate personal knowledge of IBD, ineffective written and verbal communication, lack of a support system and complications after surgery. Both groups indicated that information was provided inconsistently which led to unclear expectations of surgical outcomes. The study concluded that surgical experiences vary between Black and White patients, but both groups emphasized the need for understandable, accurate, and trustworthy health information.
AHRQ-funded; HS023009; HS013852.
Citation: Dos Santos Marques IC, Herbey II, Theiss LM .
Understanding the surgical experience for Black and White patients with inflammatory bowel disease (IBD): the importance of health literacy.
Am J Surg 2022 Feb;223(2):303-11. doi: 10.1016/j.amjsurg.2021.06.003..
Keywords: Health Literacy, Surgery, Racial and Ethnic Minorities, Racial and Ethnic Minorities, Digestive Disease and Health, Patient Experience