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- Autism (1)
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 5 of 5 Research Studies DisplayedBurstin H, Curry S, Ranney ML
AHRQ Author: Jain A
Identifying credible sources of health information in social media: phase 2-considerations for non-accredited nonprofit organizations, for-profit entities, and individual sources.
This paper (which included an AHRQ author) objective was to develop principles and attitudes to guide social media and other digital platforms to rigorously identify credible sources of health information. This paper was partially funded by YouTube. Phase 1 of this study was completed in 2021 by an expert advisory group convened by the National Academy of Medicine (NAM) which yielded foundational principles and attributes for determining credibility of health information sources, but only for US sources. This paper describes Phase 2, which was carried out by a multidisciplinary, independent advisory committee convened by the Council of Medical Specialty Societies (CMSS) in collaboration with NAM and WHO and expanded from Phase 1 to include global sources. The Phase 2 advisory committee examined and deliberated on the three principles established during Phase 1 and their defining attributes in individual breakout groups. The focus was on one of three potential sources of credible health information: for-profit organizations, non-accredited nonprofit organizations, and individuals. A draft of the proposed new attributes, a related questionnaire and a preliminary draft of this paper was posted for public comment from September 9 to 19, 2022. A final virtual meeting was convened so the entire committee could discuss and incorporate feedback from the public comments. The principles of diversity, equity, and inclusion (DEI) was identified as of sufficient importance to elevate it as a new principle. A table showing the four principles and the attributes for each of the sources is included.
AHRQ-authored.
Citation: Burstin H, Curry S, Ranney ML .
Identifying credible sources of health information in social media: phase 2-considerations for non-accredited nonprofit organizations, for-profit entities, and individual sources.
NAM Perspect 2023 May 23; 2023. doi: 10.31478/202305b..
Keywords: Social Media, Education: Patient and Caregiver, Health Information Technology (HIT)
Narayanaswami P, Gronseth G, Dubinsky R
The impact of social media on dissemination and implementation of clinical practice guidelines: a longitudinal observational study.
The researchers’ aim was to develop and evaluate an innovative dissemination strategy by adding social media-based dissemination methods to traditional methods for the clinical practice guidelines (CPGs) “Complementary and alternative medicine in multiple sclerosis.” They found that social media-based dissemination methods did not confer additional benefit over print-, email-, and Internet-based methods in increasing CPG awareness and changing intent in physicians or patients.
AHRQ-funded; HS022004.
Citation: Narayanaswami P, Gronseth G, Dubinsky R .
The impact of social media on dissemination and implementation of clinical practice guidelines: a longitudinal observational study.
J Med Internet Res 2015 Aug 13;17(8):e193. doi: 10.2196/jmir.4414..
Keywords: Communication, Complementary and Alternative Medicine, Evidence-Based Practice, Guidelines, Social Media, Implementation
Shoup JA, Wagner NM, Kraus CR
Development of an interactive social media tool for parents with concerns about vaccines.
The researchers describe a process for designing, building, and evaluating a theory-driven social media intervention tool to help reduce parental concerns about vaccination. Based on focus groups, interviews, and usability evaluations, they made revisions to the tool’s content, design, functionality, and overall look and feel. They concluded that engaging parents at all stages of development is critical when designing a tool to address concerns about childhood vaccines.
AHRQ-funded; HS021492; HS019760.
Citation: Shoup JA, Wagner NM, Kraus CR .
Development of an interactive social media tool for parents with concerns about vaccines.
Health Educ Behav 2015 Jun;42(3):302-12. doi: 10.1177/1090198114557129..
Keywords: Vaccination, Social Media, Health Information Technology (HIT), Education: Patient and Caregiver
Guillory J, Chang P, Henderson CR
Piloting a text message-based social support intervention for patients with chronic pain: establishing feasibility and preliminary efficacy.
This pilot study examined the effectiveness of a short message service (SMS) text message–based social support intervention through mobile technology for pain attenuation and improving positive affect in a sample of patients with chronic noncancer pain. Findings show that this novel social support intervention reduced perceptions of pain and pain interference and improved positive affect among patients randomized to the intervention condition.
AHRQ-funded; HS020648.
Citation: Guillory J, Chang P, Henderson CR .
Piloting a text message-based social support intervention for patients with chronic pain: establishing feasibility and preliminary efficacy.
Clin J Pain 2015 Jun;31(6):548-56. doi: 10.1097/ajp.0000000000000193..
Keywords: Comparative Effectiveness, Chronic Conditions, Health Information Technology (HIT), Social Media
Mohd Roffeei SH, Abdullah N, Basar SK
Seeking social support on Facebook for children with autism spectrum disorders (ASDs).
This study examined the types of social support messages exchanged between parents and/or caregivers of children with Autism Spectrum Disorders (ASDs) who communicate via Facebook. It found that the highest percentage of messages offered dealt with informational support (30.7 percent) followed by emotional support (27.8 percent). Network and esteem support messages were responsible for 20.97 percent and 20.2 percent, respectively.
AHRQ-funded; HS018809.
Citation: Mohd Roffeei SH, Abdullah N, Basar SK .
Seeking social support on Facebook for children with autism spectrum disorders (ASDs).
Int J Med Inform 2015 May;84(5):375-85. doi: 10.1016/j.ijmedinf.2015.01.015..
Keywords: Social Media, Children/Adolescents, Caregiving, Telehealth, Autism