National Healthcare Quality and Disparities Report
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
26 to 36 of 36 Research Studies DisplayedKrishnan S, Pappadis MR, Weller SC
Patient-centered mobility outcome preferences according to individuals with stroke and caregivers: a qualitative analysis.
This study explored the mobility-related preferences among stroke survivors and caregivers following post-acute rehabilitation at inpatient or skilled nursing facilities. Frequently mentioned outcome preferences by survivors were ability to walk (88 percent), move, and balance. They also wanted to acquire assistive devices to move independently. Caregivers were concerned with the survivor's safety and wanted them to drive (53 percent), prevent falls, have home accommodations, and transfer independently.
AHRQ-funded; HS022134; HS024711.
Citation: Krishnan S, Pappadis MR, Weller SC .
Patient-centered mobility outcome preferences according to individuals with stroke and caregivers: a qualitative analysis.
Disabil Rehabil 2018 Jun;40(12):1401-09. doi: 10.1080/09638288.2017.1297855.
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Keywords: Caregiving, Patient-Centered Outcomes Research, Patient Safety, Rehabilitation, Stroke
Gilmore-Bykovskyi A, Johnson R, Walljasper L
Underreporting of gender and race/ethnicity differences in NIH-funded dementia caregiver support interventions.
The objective of this study was to determine the inclusion and reporting rates among NIH-funded dementia caregiver support interventions. Findings suggested limited NIH guideline compliance that may reflect a lack of awareness regarding potential gender disparities in caregiving roles. In order to ensure NIH guideline compliance, shared investments from researchers, editors, and reviewers to make certain that group differences are systematically identified and reported are recommended.
AHRQ-funded; HS022548.
Citation: Gilmore-Bykovskyi A, Johnson R, Walljasper L .
Underreporting of gender and race/ethnicity differences in NIH-funded dementia caregiver support interventions.
Am J Alzheimers Dis Other Demen 2018 May;33(3):145-52. doi: 10.1177/1533317517749465..
Keywords: Caregiving, Sex Factors, Racial and Ethnic Minorities, Guidelines, Dementia, Disparities
Favier LA, Taylor J, Loiselle Rich K
Barriers to adherence in juvenile idiopathic arthritis: a multicenter collaborative experience and preliminary results.
The purpose of our study was to design and implement a standardized approach to identifying adherence barriers for youth with juvenile idiopathic arthritis (JIA) and to assess the frequency of adherence barriers in patients and their caregivers across treatment modalities. It concluded that implementing a standardized tool assessing adherence barriers in the JIA population across multiple clinical settings is feasible.
AHRQ-funded; HS021114.
Citation: Favier LA, Taylor J, Loiselle Rich K .
Barriers to adherence in juvenile idiopathic arthritis: a multicenter collaborative experience and preliminary results.
J Rheumatol 2018 May;45(5):690-96. doi: 10.3899/jrheum.171087.
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Keywords: Caregiving, Patient Adherence/Compliance, Quality Improvement, Arthritis, Children/Adolescents
Couture B, Lilley E, Chang F
Applying user-centered design methods to the development of an mHealth application for use in the hospital setting by patients and care partners.
This article describes user-centered design methods and results for developing the patient and family facing user interface and functionality of MySafeCare, a safety reporting tool for hospitalized patients and their family members. Results showed that user-centered design should focus on workflow functionality, terminology, and user interface issues for mHealth applications.
AHRQ-funded; HS023535.
Citation: Couture B, Lilley E, Chang F .
Applying user-centered design methods to the development of an mHealth application for use in the hospital setting by patients and care partners.
Appl Clin Inform 2018 Apr;9(2):302-12. doi: 10.1055/s-0038-1645888..
Keywords: Telehealth, Health Information Technology (HIT), Hospitals, Caregiving
Parast L, Bardach NS, Burkhart Q
Development of new quality measures for hospital-based care of suicidal youth.
This study researched the value of 4 new quality measures developed to assess hospital-based care for suicidal youth. The four quality measures focused on counseling caregivers about restricting access to lethal means of self-harm, and the benefits and risks of antidepressant medications. They were divided into measures for the emergency department (ED) and inpatient measures. Survey field tests were conducted with caregivers of youth who were admitted to the ED or inpatient care for suicidality at 1 of 2 children’s hospitals between July 2013 and June 2014. Most caregivers did receive counseling about restricting their child’s access to lethal means of self-harm and also reported higher rates of counseling of benefits on antidepressants both in the ED and in the inpatient setting than the risks.
AHRQ-funded; HS020506.
Citation: Parast L, Bardach NS, Burkhart Q .
Development of new quality measures for hospital-based care of suicidal youth.
Acad Pediatr 2018 Apr;18(3):248-55. doi: 10.1016/j.acap.2017.09.017..
Keywords: Caregiving, Children/Adolescents, Consumer Assessment of Healthcare Providers and Systems (CAHPS), Education: Patient and Caregiver, Emergency Department, Hospitalization, Hospitals, Inpatient Care, Behavioral Health, Prevention, Quality of Care, Quality Measures
Shah AN, Beck AF, Sucharew HJ
Parental adverse childhood experiences and resilience on coping after discharge.
Researchers sought to quantify adverse childhood experiences (ACEs) and resilience scores for parents of hospitalized children and evaluate their associations to parental coping after discharge. They concluded that more parental adversity and less resilience are associated with parental coping difficulties after discharge, representing potentially important levers for transition-focused interventions.
AHRQ-funded; HS024735.
Citation: Shah AN, Beck AF, Sucharew HJ .
Parental adverse childhood experiences and resilience on coping after discharge.
Pediatrics 2018 Apr;141(4). doi: 10.1542/peds.2017-2127.
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Keywords: Caregiving, Children/Adolescents, Domestic Violence, Family Health and History, Hospitalization
Wisk LE, Gray SH, Gooding HC
I thought you said this was confidential?-Challenges to protecting privacy for teens and young adults.
In this opinion paper, the authors discuss challenges to protecting privacy for teens and young adults. They specifically examine the implications of the dependent coverage expansion provision of the Affordable Care Act.
AHRQ-funded; HS022986.
Citation: Wisk LE, Gray SH, Gooding HC .
I thought you said this was confidential?-Challenges to protecting privacy for teens and young adults.
JAMA Pediatr 2018 Mar;172(3):209-10. doi: 10.1001/jamapediatrics.2017.3927..
Keywords: Caregiving, Children/Adolescents, Clinician-Patient Communication, Communication, Policy, Young Adults
Irwin MM, Dudley W, Northouse L
Oncology nurses' knowledge, confidence, and practice in addressing caregiver strain and burden.
An email survey of 2,055 Oncology Nursing Society members was conducted to determine their attitudes and knowledge of caregiver strain and burden. The results show that they tended to overestimate the strength of evidence of their knowledge based more on anecdotal evidence from being or having received care from an informal caregiver.
AHRQ-funded; HS021957.
Citation: Irwin MM, Dudley W, Northouse L .
Oncology nurses' knowledge, confidence, and practice in addressing caregiver strain and burden.
Oncol Nurs Forum 2018 Mar 1;45(2):187-96. doi: 10.1188/18.onf.187-196..
Keywords: Cancer, Caregiving, Provider: Nurse
Sun CJ, Seloilwe ES, Magowe M
Gender differences in sexual and reproductive health protective and risk factors of Batswana adolescents: implications for parent and adolescent interventions.
The HIV epidemic continues in sub-Saharan Africa and Botswana and adolescents there have borne the brunt. This analysis assessed gender differences in sexual and reproductive health protective and risk factors in 228 Batswana adolescents. Although three-quarters of adolescents prefer to have their parents teach them about sex, it is the fourth most common source of information.
AHRQ-funded; HS022981.
Citation: Sun CJ, Seloilwe ES, Magowe M .
Gender differences in sexual and reproductive health protective and risk factors of Batswana adolescents: implications for parent and adolescent interventions.
AIDS Educ Prev 2018 Feb;30(1):35-46. doi: 10.1521/aeap.2018.30.1.35..
Keywords: Caregiving, Children/Adolescents, Human Immunodeficiency Virus (HIV), Prevention, Risk, Sex Factors, Sexual Health
Blackburn J, Albright KC, Haley WE
Men lacking a caregiver have greater risk of long-term nursing home placement after stroke.
The purpose of this study was to understand how the availability of a caregiver can affect nursing home placement after ischemic stroke and how this affects different subgroups differently. The investigators found that in men aged 65 and older who have survived an ischemic stroke, the lack of an available caregiver is associated with triple the risk of NHP within 5 years.
AHRQ-funded; HS023009.
Citation: Blackburn J, Albright KC, Haley WE .
Men lacking a caregiver have greater risk of long-term nursing home placement after stroke.
J Am Geriatr Soc 2018 Jan;66(1):133-39. doi: 10.1111/jgs.15166..
Keywords: Cardiovascular Conditions, Caregiving, Elderly, Long-Term Care, Men's Health, Nursing Homes, Stroke
Greenhawt M, DunnGalvin A
Preliminary psychometric analyses and clinical performance of a caregiver self-efficacy scale for food allergy self-management.
The researchers examined the preliminary reliability, validity, and clinical performance of a novel 8-item Food Allergy Self-Efficacy Questionnaire (FASEQ). They present preliminary evidence that the FASEQ is a valid tool to assess caregiver food allergy self-efficacy.
AHRQ-funded; HS024599.
Citation: Greenhawt M, DunnGalvin A .
Preliminary psychometric analyses and clinical performance of a caregiver self-efficacy scale for food allergy self-management.
Ann Allergy Asthma Immunol 2018 Jan;120(1):73-79. doi: 10.1016/j.anai.2017.09.060.
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Keywords: Caregiving, Nutrition, Patient Self-Management, Tools & Toolkits