National Healthcare Quality and Disparities Report
Latest available findings on quality of and access to health care
Data
- Data Infographics
- Data Visualizations
- Data Tools
- Data Innovations
- All-Payer Claims Database
- Healthcare Cost and Utilization Project (HCUP)
- Medical Expenditure Panel Survey (MEPS)
- AHRQ Quality Indicator Tools for Data Analytics
- State Snapshots
- United States Health Information Knowledgebase (USHIK)
- Data Sources Available from AHRQ
Search All Research Studies
AHRQ Research Studies Date
Topics
- Adverse Drug Events (ADE) (1)
- Adverse Events (7)
- Ambulatory Care and Surgery (4)
- Antibiotics (1)
- Antimicrobial Stewardship (1)
- Arthritis (4)
- Asthma (1)
- Autism (1)
- Back Health and Pain (1)
- Behavioral Health (13)
- Breast Feeding (1)
- Burnout (1)
- Cancer (14)
- Cancer: Breast Cancer (3)
- Cancer: Colorectal Cancer (1)
- Cancer: Prostate Cancer (2)
- Cardiovascular Conditions (7)
- Care Coordination (7)
- Caregiving (29)
- Care Management (3)
- Case Study (1)
- Centers for Education and Research on Therapeutics (CERTs) (1)
- Children/Adolescents (38)
- Chronic Conditions (22)
- Clinical Decision Support (CDS) (1)
- Clinician-Patient Communication (71)
- Communication (39)
- Community-Based Practice (1)
- Comparative Effectiveness (2)
- Consumer Assessment of Healthcare Providers and Systems (CAHPS) (4)
- COVID-19 (2)
- Critical Care (4)
- Cultural Competence (4)
- Dementia (4)
- Depression (4)
- Diabetes (11)
- Diagnostic Safety and Quality (3)
- Digestive Disease and Health (3)
- Disabilities (3)
- Disparities (5)
- Education: Continuing Medical Education (2)
- Education: Patient and Caregiver (24)
- Elderly (15)
- Electronic Health Records (EHRs) (31)
- Emergency Department (9)
- Evidence-Based Practice (21)
- Eye Disease and Health (1)
- Falls (2)
- Family Health and History (4)
- Genetics (3)
- Guidelines (8)
- Healthcare Costs (3)
- Healthcare Delivery (23)
- Healthcare Utilization (3)
- Health Information Exchange (HIE) (1)
- Health Information Technology (HIT) (64)
- Health Insurance (1)
- Health Literacy (14)
- Health Promotion (6)
- Health Services Research (HSR) (6)
- Health Status (1)
- Health Systems (3)
- Heart Disease and Health (3)
- Hospital Discharge (6)
- Hospitalization (12)
- Hospital Readmissions (1)
- Hospitals (18)
- Human Immunodeficiency Virus (HIV) (5)
- Implementation (2)
- Infectious Diseases (2)
- Injuries and Wounds (2)
- Inpatient Care (15)
- Intensive Care Unit (ICU) (8)
- Kidney Disease and Health (2)
- Learning Health Systems (1)
- Lifestyle Changes (4)
- Long-Term Care (3)
- Low-Income (3)
- Maternal Care (2)
- Medical Devices (2)
- Medical Errors (4)
- Medical Expenditure Panel Survey (MEPS) (1)
- Medical Liability (1)
- Medicare (2)
- Medication (13)
- Medication: Safety (3)
- Neonatal Intensive Care Unit (NICU) (2)
- Neurological Disorders (5)
- Newborns/Infants (6)
- Nursing (2)
- Nursing Homes (5)
- Nutrition (1)
- Obesity (1)
- Obesity: Weight Management (1)
- Opioids (2)
- Orthopedics (2)
- Osteoporosis (2)
- Outcomes (2)
- Pain (1)
- Palliative Care (2)
- Patient-Centered Healthcare (62)
- Patient-Centered Outcomes Research (27)
- Patient Adherence/Compliance (5)
- (-) Patient and Family Engagement (277)
- Patient Experience (28)
- Patient Safety (19)
- Patient Self-Management (10)
- Policy (2)
- Practice Patterns (2)
- Pregnancy (3)
- Prevention (5)
- Primary Care (13)
- Primary Care: Models of Care (3)
- Provider (3)
- Provider: Clinician (2)
- Provider: Health Personnel (2)
- Provider: Nurse (2)
- Provider: Pharmacist (2)
- Provider: Physician (6)
- Provider Performance (1)
- Public Health (2)
- Public Reporting (1)
- Quality Improvement (10)
- Quality Measures (1)
- Quality of Care (16)
- Quality of Life (1)
- Racial and Ethnic Minorities (5)
- Registries (1)
- Rehabilitation (1)
- Research Methodologies (9)
- Respiratory Conditions (1)
- Risk (1)
- Screening (1)
- Sex Factors (1)
- Shared Decision Making (69)
- Sickle Cell Disease (1)
- Social Media (3)
- Social Stigma (1)
- Stroke (1)
- Substance Abuse (3)
- Surgery (7)
- Teams (3)
- Telehealth (7)
- Tobacco Use (1)
- Tobacco Use: Smoking Cessation (1)
- Tools & Toolkits (3)
- Training (3)
- Transitions of Care (6)
- Transplantation (2)
- Urban Health (2)
- Vaccination (1)
- Vulnerable Populations (4)
- Web-Based (10)
- Women (8)
- Workflow (1)
AHRQ Research Studies
Sign up: AHRQ Research Studies Email updates
Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
101 to 125 of 277 Research Studies DisplayedGressler LE, Natafgi NM, DeForge BR
What motivates people with substance use disorders to pursue treatment? A patient-centered approach to understanding patient experiences and patient-provider interactions.
The purpose of this study was to identify and define potential positive and negative factors in patient experiences and patient-provider interactions that are associated with the pursuit and maintenance of treatment by those suffering from substance use disorders (SUD). The investigators conducted two focus groups with patients in treatment for SUD and four in-depth interviews with healthcare providers involved in the treatment of patients with SUD.
AHRQ-funded; HS022135.
Citation: Gressler LE, Natafgi NM, DeForge BR .
What motivates people with substance use disorders to pursue treatment? A patient-centered approach to understanding patient experiences and patient-provider interactions.
J Subst Use 2019;24(6):587-99. doi: 10.1080/14659891.2019.1620891..
Keywords: Clinician-Patient Communication, Shared Decision Making, Healthcare Utilization, Patient-Centered Healthcare, Patient Experience, Patient and Family Engagement, Substance Abuse
Johnston FM, Beckman M
Navigating difficult conversations.
In this paper, the authors discussed breaking bad news and navigating difficult conversations in surgical oncology practice. They note that mounting evidence supports a patient-centered communication approach and models of shared decisionmaking. Physician training in patient-centered cancer communication also continues to evolve.
AHRQ-funded; HS024736.
Citation: Johnston FM, Beckman M .
Navigating difficult conversations.
J Surg Oncol 2019 Jul;120(1):23-29. doi: 10.1002/jso.25472..
Keywords: Cancer, Clinician-Patient Communication, Communication, Shared Decision Making, Patient-Centered Healthcare, Patient and Family Engagement, Provider: Physician, Surgery
Hall TL, Knierim KE, Nease DE
Primary care practices' implementation of patient-team partnership: findings from EvidenceNOW Southwest.
The authors reported on practice characteristics associated with greater patient-team partnership scores. Using EvidenceNOW Southwest data, they found that practices can improve efforts to partner with patients to assess social needs, gather meaningful input on practice improvement and patient experience, and offer resource connections. These findings supplement recent evidence that patient registries and evidence-based guidelines may effectively prevent and manage cardiovascular disease.
AHRQ-funded; HS023904.
Citation: Hall TL, Knierim KE, Nease DE .
Primary care practices' implementation of patient-team partnership: findings from EvidenceNOW Southwest.
J Am Board Fam Med 2019 Jul-Aug;32(4):490-504. doi: 10.3122/jabfm.2019.04.180361..
Keywords: Cardiovascular Conditions, Clinician-Patient Communication, Evidence-Based Practice, Patient-Centered Healthcare, Patient-Centered Outcomes Research, Patient and Family Engagement, Primary Care, Quality of Care, Quality Improvement
Schoenfeld EM, Mader S, Houghton C
The effect of shared decisionmaking on patients' likelihood of filing a complaint or lawsuit: a simulation study.
This study examined the effect of shared decisionmaking on the likelihood of a patient filing a complaint or lawsuit after an adverse event. A simulation experiment using clinical vignettes was conducted. The participants, adults from the US were recruited from an online crowd-sourcing platform. They were randomized to vignettes with 1-3 levels of shared decision making. A total of 804 participants were recruited. Those who were exposed to shared decisionmaking were 80% less like to report a plan to contact a lawyer than those not exposed. They also showed higher levels of physician trust, and less likely to fault their physicians for an adverse outcome.
AHRQ-funded; HS024311.
Citation: Schoenfeld EM, Mader S, Houghton C .
The effect of shared decisionmaking on patients' likelihood of filing a complaint or lawsuit: a simulation study.
Ann Emerg Med 2019 Jul;74(1):126-36. doi: 10.1016/j.annemergmed.2018.11.017..
Keywords: Adverse Events, Shared Decision Making, Medical Errors, Patient-Centered Healthcare, Patient and Family Engagement
Parikh K, Hinds PS, Teach SJ
Using stakeholder engagement to develop a hospital-initiated, patient-centered intervention to improve hospital-to-home transitions for children with asthma.
The authors demonstrated that multidisciplinary stakeholder engagement can meaningfully influence intervention design. They presented a model of efficient yet substantive engagement of parents and health professionals in developing a hospital-to-home transition intervention for children hospitalized with asthma. Their results suggest that multidimensional stakeholder engagement can meaningfully shape intervention development, and they hope that these tools can be used or adapted to other hospital-based quality improvement, education, or research efforts.
AHRQ-funded; HS024554.
Citation: Parikh K, Hinds PS, Teach SJ .
Using stakeholder engagement to develop a hospital-initiated, patient-centered intervention to improve hospital-to-home transitions for children with asthma.
Hosp Pediatr 2019 Jun;9(6):460-63. doi: 10.1542/hpeds.2018-0261.
.
.
Keywords: Children/Adolescents, Patient-Centered Healthcare, Patient and Family Engagement, Hospital Discharge, Transitions of Care, Asthma, Respiratory Conditions
Pavlo AJ, O'Connell M, Olsen S
Missing ingredients in shared decision-making?
This article discusses the practice of shared decision making (SDM) for clinicians when making decisions in health care. This widespread practice is considered the best approach for person-centered care, but for individuals diagnosed with serious mental illness there are still many barriers to effective collaboration. The authors suggest that more emphasis needs to be placed on the doctor-patient relationship itself conducting SDM.
AHRQ-funded; HS023000.
Citation: Pavlo AJ, O'Connell M, Olsen S .
Missing ingredients in shared decision-making?
Psychiatr Q 2019 Jun;90(2):333-38. doi: 10.1007/s11126-019-9624-9..
Keywords: Chronic Conditions, Clinician-Patient Communication, Communication, Shared Decision Making, Behavioral Health, Patient-Centered Healthcare, Patient-Centered Outcomes Research, Patient and Family Engagement
Kruser JM, Benjamin BT, Gordon EJ
Patient and family engagement during treatment decisions in an ICU: a discourse analysis of the electronic health record.
This study looked at patient and family engagement during treatment decisions with patients in a medical ICU. A total of 52 patients were included who had been admitted to a hospital ICU during 2016. Half of them met a consensus definition of chronic critical illness, and the other half either died or had transitioned to hospice care in the ICU. Clinical electronic health records (EHRs) were used to document decision points. The phrase “goals of care” was frequently found in the HER and was used to indicate poor prognosis.
AHRQ-funded; HS000078.
Citation: Kruser JM, Benjamin BT, Gordon EJ .
Patient and family engagement during treatment decisions in an ICU: a discourse analysis of the electronic health record.
Crit Care Med 2019 Jun;47(6):784-91. doi: 10.1097/ccm.0000000000003711..
Keywords: Critical Care, Shared Decision Making, Electronic Health Records (EHRs), Health Information Technology (HIT), Intensive Care Unit (ICU), Patient and Family Engagement
Asan O, Scanlan MC, Crotty B
Parental perceptions of displayed patient data in a PICU: an example of unintentional empowerment.
The objective of this study was to explore the perceptions of parents of pediatric patients in a PICU regarding real-time open electronic health record data displayed in patient rooms. The investigators suggest that a new health information technology system providing continuous access to open electronic health record data may be an effective way to empower and engage parents in the PICU, but also note potential drawbacks.
AHRQ-funded; HS023626.
Citation: Asan O, Scanlan MC, Crotty B .
Parental perceptions of displayed patient data in a PICU: an example of unintentional empowerment.
Pediatr Crit Care Med 2019 May;20(5):435-41. doi: 10.1097/pcc.0000000000001895..
Keywords: Caregiving, Children/Adolescents, Communication, Electronic Health Records (EHRs), Health Information Technology (HIT), Hospitals, Intensive Care Unit (ICU), Patient and Family Engagement
Armstrong MJ, Rastgardani T, Gagliardi AR
Barriers and facilitators of communication about off periods in Parkinson's disease: qualitative analysis of patient, carepartner, and physician Interviews.
This article discusses barriers and facilitators of communication with Parkinson’s disease patients, care partners, and their physicians specifically during off periods. Twenty persons with Parkinson’s and their care partners, and 20 physicians participated in interviews using a semi-structured questionnaire. Communication barrier levels were identified as patient-level, caregiver-level, and physician-level. For patients cognitive impairment and reluctance to discuss symptoms was the largest barrier. Caregiver absence was also a barrier. For physicians barriers were distraction by technology and lack of appreciation of off period burdens. Various tools such as home diaries, questionnaires and mobile phone videos can be used to aid communication regarding off periods. Patients and their caregivers stressed the need for more formal educational materials and improved educational tools.
AHRQ-funded; HS024159.
Citation: Armstrong MJ, Rastgardani T, Gagliardi AR .
Barriers and facilitators of communication about off periods in Parkinson's disease: qualitative analysis of patient, carepartner, and physician Interviews.
PLoS One 2019 Apr 18;14(4):e0215384. doi: 10.1371/journal.pone.0215384..
Keywords: Communication, Clinician-Patient Communication, Neurological Disorders, Caregiving, Education: Patient and Caregiver, Health Literacy, Patient and Family Engagement
Grob R, Darien G, Meyers D
AHRQ Author: Meyers D
Why physicians should trust in patients.
This viewpoint article explores shifting the patient-physician relationship from simply emphasizing patients’ adherence to cultivating patients’ ability to contribute to the development of care plans that reflect their own values and preferences.
AHRQ-authored.
Citation: Grob R, Darien G, Meyers D .
Why physicians should trust in patients.
JAMA 2019 Apr 9;321(14):1347-48. doi: 10.1001/jama.2019.1500..
Keywords: Clinician-Patient Communication, Patient and Family Engagement, Communication
Ita AJ, Olden HA, Kippen KE
A flexible model for patient engagement: achieving quality outcomes and building a research agenda for head and neck cancer.
This article describes the work of a head and neck cancer survivors who became advisors on a multidisciplinary team of providers. The survivors provided feedback to providers on areas of improvement for clinical flow and they also have provided advice on efforts to increase public awareness. They have also been very active at cancer symposiums and other local presentations.
AHRQ-funded; HS022417.
Citation: Ita AJ, Olden HA, Kippen KE .
A flexible model for patient engagement: achieving quality outcomes and building a research agenda for head and neck cancer.
Head Neck 2019 Apr;41(4):1087-93. doi: 10.1002/hed.25584..
Keywords: Cancer, Health Services Research (HSR), Patient-Centered Outcomes Research, Patient and Family Engagement
Brand McCarthy SR, Kang TI, Mack JW
Inclusion of children in the initial conversation about their cancer diagnosis: impact on parent experiences of the communication process.
The current study examined the frequency and impact of child presence during a serious medical conversation on the parent's communication experience in pediatric oncology. The investigators concluded that the parent's communication experience is not diminished by the choice to include the child. They suggest that given the bioethical imperative to include children in conversations about serious illness whenever possible, this concern should not be used to exclude children, but rather to give parents additional time of their own when needed to fully process decisions.
AHRQ-funded; HS000063.
Citation: Brand McCarthy SR, Kang TI, Mack JW .
Inclusion of children in the initial conversation about their cancer diagnosis: impact on parent experiences of the communication process.
Support Care Cancer 2019 Apr;27(4):1319-24. doi: 10.1007/s00520-019-4653-3..
Keywords: Cancer, Caregiving, Children/Adolescents, Clinician-Patient Communication, Patient and Family Engagement
Maurer M, Carman KL, Yang M
Increasing the use of comparative quality information in maternity care: results from a randomized controlled trial.
The authors tested an intervention to increase uptake of hospital-level maternity care quality reports among 245 pregnant women in North Carolina. They found that intervention participants were significantly more likely to report adopting behaviors to inform care, such as thinking through preferences, talking with their doctor, or creating a birth plan. They concluded that reports designed to put quality information into the larger context of what consumers want and need to know, along with targeted and timely communications, can increase consumer use of quality information and prompt them to talk with providers about care preferences and evidence-based practices.
AHRQ-funded; HS021873.
Citation: Maurer M, Carman KL, Yang M .
Increasing the use of comparative quality information in maternity care: results from a randomized controlled trial.
Med Care Res Rev 2019 Apr;76(2):208-28. doi: 10.1177/1077558717712290.
.
.
Keywords: Maternal Care, Patient and Family Engagement, Quality Improvement, Women, Pregnancy
Ashcraft LE, Asato M, Houtrow AJ
Parent empowerment in pediatric healthcare settings: a systematic review of observational studies.
The objective of this systematic review was to synthesize potential antecedents and consequences of parent empowerment in healthcare settings. The authors identified six themes within consequences of empowerment: increased parent involvement in daily care, improved symptom management, enhanced informational needs and tools, increased involvement in care decisions, increased advocacy for child, and engagement in empowering others. Six themes summarizing antecedents of empowerment also emerged: parent-provider relationships.
AHRQ-funded; HS022989.
Citation: Ashcraft LE, Asato M, Houtrow AJ .
Parent empowerment in pediatric healthcare settings: a systematic review of observational studies.
Patient 2019 Apr;12(2):199-212. doi: 10.1007/s40271-018-0336-2..
Keywords: Caregiving, Children/Adolescents, Clinician-Patient Communication, Shared Decision Making, Patient and Family Engagement
Sadasivaiah S, Lyles CR, Kyoi S
Disparities in patient-reported interest in web-based patient portals: survey at an urban academic safety-net hospital.
Offering hospitalized patients' enrollment into a health system's patient portal may improve patient experience and engagement throughout the care continuum, especially across care transitions, but this process is less studied than portal engagement in the ambulatory setting. The objective of this study was to evaluate sociodemographic characteristics associated with interest in a health care system's portal among hospitalized patients and reasons for no interest.
AHRQ-funded; HS022408; HS022561; HS023558.
Citation: Sadasivaiah S, Lyles CR, Kyoi S .
Disparities in patient-reported interest in web-based patient portals: survey at an urban academic safety-net hospital.
J Med Internet Res 2019 Mar 26;21(3):e11421. doi: 10.2196/11421..
Keywords: Disparities, Patient-Centered Healthcare, Electronic Health Records (EHRs), Health Information Technology (HIT), Healthcare Delivery, Hospitals, Patient and Family Engagement, Urban Health
Huerta T, Fareed N, Hefner JL
Patient engagement as measured by inpatient portal use: methodology for log file analysis.
This study aimed to describe how inpatients are using inpatient portals (IPPs) at the first academic medical center to implement a system-wide IPP and document the challenges and choices associated with this analytic process. This study presented data visualizations to illustrate a series of data-cleaning issues. In the presence of these robust approaches to data cleaning, the investigators presented the baseline usage patterns associated with their patient panel.
AHRQ-funded; HS024379; HS024091; HS024349.
Citation: Huerta T, Fareed N, Hefner JL .
Patient engagement as measured by inpatient portal use: methodology for log file analysis.
J Med Internet Res 2019 Mar 25;21(3):e10957. doi: 10.2196/10957..
Keywords: Health Information Technology (HIT), Patient and Family Engagement
Powell KR, Alexander GL, Madsen R
A national assessment of access to technology among nursing home residents: a secondary analysis.
The purpose of this study was to report findings from a secondary analysis of data from a national nursing home study of information technology (IT) adoption, called IT sophistication. The investigators found that resident access to technology was a significant predictor of the nursing home IT sophistication (P<.001). The inclusion of covariates-nursing home location, bed size, and ownership-with their interactions produced a nonsignificant effect in the model.
AHRQ-funded; HS022497.
Citation: Powell KR, Alexander GL, Madsen R .
A national assessment of access to technology among nursing home residents: a secondary analysis.
JMIR Aging 2019 Mar 5;2(1):e11449. doi: 10.2196/11449..
Keywords: Elderly, Health Information Technology (HIT), Nursing Homes, Patient and Family Engagement, Patient-Centered Healthcare
Holmes E, Thompson D, Michell D
An inpatient HIV support nurse to promote engagement in outpatient HIV care.
In this paper, the investigators describe an inpatient HIV support nurse to promote engagement in outpatient HIV care. It provides two case reports and a discussion. The investigators indicate that their hospital has employed an RN specializing in HIV care coordination for more than a decade on their dedicated HIV unit and has recently created a position to extend this work to PLWH who have been admitted to the 42 other adult units in their hospital.
AHRQ-funded; R01 HS024079.
Citation: Holmes E, Thompson D, Michell D .
An inpatient HIV support nurse to promote engagement in outpatient HIV care.
J Assoc Nurses AIDS Care 2019 Mar-Apr;30(2):245-48. doi: 10.1097/jnc.0000000000000017..
Keywords: Human Immunodeficiency Virus (HIV), Patient and Family Engagement, Care Coordination, Nursing, Healthcare Delivery
Masterson Creber RM, Grossman LV, Ryan B
Engaging hospitalized patients with personalized health information: a randomized trial of an inpatient portal.
This study examined the effects of an inpatient portal intervention on patient activation, patient satisfaction, patient engagement with health information, and 30-day hospital admissions. A randomized trial was conducted from March 2014 to May 2017 with 426 English- or Spanish-speaking patients from 2 cardiac medical-surgical units at an urban academic medical center. Patients were randomized into 3 groups: 1) usual care, 2) tablet with general Internet access, and 3) tablet with an inpatient portal. There was a difference in patient activation between the 3 groups, but the inpatient portal group had lower 30-day hospital admissions. There was also a difference with patient engagement with health information between the inpatient portal and tablet-only groups.
AHRQ-funded; HS021816.
Citation: Masterson Creber RM, Grossman LV, Ryan B .
Engaging hospitalized patients with personalized health information: a randomized trial of an inpatient portal.
J Am Med Inform Assoc 2019 Feb;26(2):115-23. doi: 10.1093/jamia/ocy146..
Keywords: Patient and Family Engagement, Electronic Health Records (EHRs), Health Information Technology (HIT), Hospitalization, Patient Experience, Inpatient Care
Xiao Y, Abebe E, Gurses AP
Engineering a foundation for partnership to improve medication safety during care transitions.
Current approaches to safe, self-medication management for patients and caregivers after hospital discharge tend to focus on adding isolated strategies. Positing the concept that medication safety during care transition and at patient homes is the property of a "work system," in which the patient and caregivers are in collaboration with health professionals, this article argues that system thinking can enable a fundamental transformation that redesigns professionals' interactions with patients and caregivers, with the explicit goal of developing patients and caregivers into true partners with targeted roles. The authors describe a set of recommendations based on human factors principles that creates an engineering partnership with patients and their caregivers at different stages during a care episode, to enable productive interactions.
AHRQ-funded; HS024436.
Citation: Xiao Y, Abebe E, Gurses AP .
Engineering a foundation for partnership to improve medication safety during care transitions.
J Patient Saf Risk Manag 2019 Feb 1;24(1):30-36. doi: 10.1177/2516043518821497..
Keywords: Medication, Medication: Safety, Patient and Family Engagement, Patient Safety, Transitions of Care
Misra-Hebert AD, Rose S, Clayton C
Implementation of patient and family advisory councils in primary care practices in a large, integrated health system.
This paper was presented as part of a poster presentation at the Comprehensive Primary Care Plus national meeting in Baltimore, MD on May 8, 2018. It describes the formation of patient and family advisory councils (PFAC) at the Cleveland Clinic Health System (CCHS). A steering committee was first created and then staff and patients were recruited. Patients were recruited through a survey and provider nominations. No monetary incentives were provided. Forty PFAC meetings were conducted between July and December 2017. A total of 151 patients were included, but there was only 35% retention of patient advisors in both quarters. Most meetings were held at the practice sites, although they were first offered at hub sites. The CFACs included a volunteer clinic lead and a group facilitator. Topics discussed varied by site but included communication with the office between visits, team-based care, access to care, financial issues, and clinical decisions such as antibiotic use. The authors concluded that these meetings were successful and they will continue to hold quarter meetings. Work will be done to improve patient recruitment and retention along with better representation of patient populations.
AHRQ-funded; HS024128.
Citation: Misra-Hebert AD, Rose S, Clayton C .
Implementation of patient and family advisory councils in primary care practices in a large, integrated health system.
J Gen Intern Med 2019 Feb;34(2):190-91. doi: 10.1007/s11606-018-4660-y..
Keywords: Health Systems, Patient-Centered Healthcare, Patient and Family Engagement, Primary Care
McAlearney AS, Fareed N, Gaughan A
Empowering patients during hospitalization: perspectives on inpatient portal use.
This study looked at the effects of instituting an inpatient portal at hospitals and its impact on feelings of patient empowerment. Patients (n=120) who used an inpatient portal were interviewed at day 15 of hospitalization or 6 months after discharge. They also interviewed care team members (n=331) at 4 weeks, 6 months, and 1 year after implementation about their perspectives on patient use of the portal. Three features were most commonly used: 1) ordering meals, 2) looking up health information, and 3) viewing the care team. Most patients did not feel comfortable using the secure message feature. The inpatient portal promoted independence, reduced anxiety, informed families, and increased empowerment. The findings suggest that hospitals should encourage implementation of inpatient portals in their institution.
AHRQ-funded; HS024091; HS024767; HS024379.
Citation: McAlearney AS, Fareed N, Gaughan A .
Empowering patients during hospitalization: perspectives on inpatient portal use.
Appl Clin Inform 2019 Jan;10(1):103-12. doi: 10.1055/s-0039-1677722..
Keywords: Health Information Technology (HIT), Patient and Family Engagement, Hospitalization, Hospitals
McCarron HR, Finlay JM, Sims T
Stakeholder engagement to enhance interventions for family caregivers of people with dementia: a case study of care to plan.
This study discusses a case study that uses a community advisory board (CAB) to help interventions for family caregivers of people with dementia. The intervention used is an online dementia caregiver resource called Care to Plan. Transcripts of seven CAB meetings over a 3-year period were reviewed. They looked at: how meetings were conducted and issues that arose; and Care to Plan improvements, how CAB members provided key stakeholder perspectives that resulted in changes in language, functionality, substance and dissemination.
AHRQ-funded; HS022445.
Citation: McCarron HR, Finlay JM, Sims T .
Stakeholder engagement to enhance interventions for family caregivers of people with dementia: a case study of care to plan.
J Gerontol Soc Work 2019 Jan;62(1):29-47. doi: 10.1080/01634372.2018.1505797..
Keywords: Caregiving, Dementia, Neurological Disorders, Patient and Family Engagement
Haldar S, Mishra SR, Khelifi M
Exploring the design of an inpatient peer support tool: views of adult patients.
To better understand the opportunities for an inpatient peer support tool, the investigators surveyed 100 adult patients and caregivers, and conducted follow-up, semi-structured interviews with 15 adult patients. In this paper, the investigators describe five key peer support needs that their adult patient participants expressed: (1) adjusting to the hospital environment, (2) understanding and normalizing medical care, (3) communicating with providers, (4) reporting and preventing medical errors, and (5) empowering peers.
AHRQ-funded; HS022894.
Citation: Haldar S, Mishra SR, Khelifi M .
Exploring the design of an inpatient peer support tool: views of adult patients.
AMIA Annu Symp Proc 2018 Dec 5;2018:1282-91..
Keywords: Inpatient Care, Patient and Family Engagement
Khan A, Spector ND, Baird JD
Patient safety after implementation of a coproduced family centered communication programme: multicenter before and after intervention study.
The objective of this prospective, multicenter before and after intervention was to determine whether medical errors, family experience, and communication processes improved after implementation of the intervention to standardize the structure of healthcare provider-family communication on family centered rounds. The investigators concluded that although overall errors were unchanged, harmful medical errors decreased and family experience and communication processes improved.
AHRQ-funded; HS00063.
Citation: Khan A, Spector ND, Baird JD .
Patient safety after implementation of a coproduced family centered communication programme: multicenter before and after intervention study.
BMJ 2018 Dec 5;363:k4764. doi: 10.1136/bmj.k4764..
Keywords: Adverse Events, Clinician-Patient Communication, Communication, Medical Errors, Patient and Family Engagement, Patient Safety