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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
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1 to 3 of 3 Research Studies DisplayedChoi KR, Lotfizadah AD, Bhakta B
Concordance between patient-centered and adaptive behavior outcome measures after applied behavior analysis for autism.
In clinical trials, applied behavioral analysis (ABA) is an evidence-based approach to autism spectrum disorder that has been shown to improve child functional status. Setting and tracking individualized, patient-centered goals is a focus in ABA, yet there is little research on measuring progress on such goals. The purpose of this study was to observe and evaluate a clinical sample of children 3 to 16 years of age (N=154) receiving 24 months of ABA for autism spectrum disorder, and assess the concordance between patient-centered and standard outcome measures of treatment progress. The study found that there was limited concordance among measures at 12 and 24 months of ABA. The study also found that between 12 and 24 months of ABA, the percentage of children who achieved clinically meaningful gain on patient-centered goal measures increased, while the percentage of children who achieved clinically meaningful gains in adaptive behavior decreased. The study concluded that providers should have continuous dialogue with patients and caregivers to ensure that ASD programs and interventions progress toward meaningful goals and outcomes for patients and their caregivers.
AHRQ-funded; HS026407.
Citation: Choi KR, Lotfizadah AD, Bhakta B .
Concordance between patient-centered and adaptive behavior outcome measures after applied behavior analysis for autism.
BMC Pediatr 2022 May 27;22(1):314. doi: 10.1186/s12887-022-03383-2..
Keywords: Patient-Centered Healthcare, Autism, Behavioral Health
Feinberg E, Kuhn J, Eilenberg JS
Improving family navigation for children with autism: a comparison of two pilot randomized controlled trials.
This study looked at impacts of a modification to a pilot program called Family Navigation to help low-income, minority children needing autism-related diagnostic services receive those services. An advisory group recommended modifications to recruitment criteria and study conditions. 40 parent-child dyad participants were randomized between the two pilots to receive usual care (UC) or modified FN. Participant enrollment, satisfaction with clinical care, and timely completion of the diagnostic assessment were compared. Recruitment improved significantly with the modified protocol (4.8% vs. 19.5%) and no participants were excluded from study enrollment compared to the first pilot (43.6%). Families in the second pilot were more likely to complete diagnostic assessment and report greater satisfaction with clinical care.
AHRQ-funded; HS022155; HS022242.
Citation: Feinberg E, Kuhn J, Eilenberg JS .
Improving family navigation for children with autism: a comparison of two pilot randomized controlled trials.
Acad Pediatr 2021 Mar;21(2):265-71. doi: 10.1016/j.acap.2020.04.007..
Keywords: Children/Adolescents, Autism, Patient-Centered Healthcare, Care Coordination, Racial and Ethnic Minorities, Low-Income, Patient and Family Engagement, Chronic Conditions
Martinez M, Thomas KC, Williams CS
Family experiences with the diagnosis of autism spectrum Disorder: system barriers and facilitators of efficient diagnosis.
This paper examines family experiences with the efficiency of Autism Spectrum Disorder diagnosis. Screening, travel distance, and delay in diagnosis were associated with shifting diagnoses and being told child did not have ASD. Physician and parent training in communication and addressing mental health professional shortages and maldistribution may improve the diagnosis experiences of families of children with ASD.
AHRQ-funded; HS000032.
Citation: Martinez M, Thomas KC, Williams CS .
Family experiences with the diagnosis of autism spectrum Disorder: system barriers and facilitators of efficient diagnosis.
J Autism Dev Disord 2018 Jul;48(7):2368-78. doi: 10.1007/s10803-018-3493-1..
Keywords: Autism, Children/Adolescents, Diagnostic Safety and Quality, Patient-Centered Healthcare, Patient Experience