National Healthcare Quality and Disparities Report
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AHRQ Research Studies Date
Topics
- Ambulatory Care and Surgery (3)
- Back Health and Pain (1)
- Blood Thinners (1)
- Cancer (2)
- Cancer: Colorectal Cancer (1)
- Caregiving (2)
- Children/Adolescents (1)
- Clinician-Patient Communication (9)
- Communication (4)
- Consumer Assessment of Healthcare Providers and Systems (CAHPS) (15)
- COVID-19 (1)
- Critical Care (1)
- Cultural Competence (2)
- Dementia (1)
- Diabetes (1)
- Disparities (3)
- Elderly (4)
- Electronic Health Records (EHRs) (3)
- Emergency Department (2)
- Healthcare Utilization (1)
- Health Information Technology (HIT) (8)
- Health Insurance (1)
- Health Literacy (2)
- Health Services Research (HSR) (1)
- Health Status (1)
- Home Healthcare (1)
- Hospitalization (2)
- Hospitals (6)
- Inpatient Care (3)
- Intensive Care Unit (ICU) (2)
- Kidney Disease and Health (1)
- Low-Income (1)
- Maternal Care (1)
- Medicare (1)
- Medication (4)
- Medication: Safety (1)
- Mortality (1)
- Neurological Disorders (1)
- Newborns/Infants (1)
- Orthopedics (1)
- Pain (1)
- Palliative Care (1)
- Patient-Centered Healthcare (1)
- Patient Adherence/Compliance (2)
- Patient and Family Engagement (4)
- (-) Patient Experience (46)
- Patient Safety (1)
- Patient Self-Management (1)
- Primary Care (6)
- Provider (2)
- Provider: Clinician (1)
- Provider: Health Personnel (1)
- Provider: Nurse (1)
- Provider: Pharmacist (1)
- Provider: Physician (2)
- Provider Performance (6)
- Quality Improvement (8)
- Quality Indicators (QIs) (1)
- Quality Measures (4)
- Quality of Care (14)
- Quality of Life (2)
- Racial and Ethnic Minorities (7)
- Research Methodologies (1)
- Rural Health (1)
- Shared Decision Making (3)
- Social Determinants of Health (1)
- Substance Abuse (1)
- Surgery (1)
- Telehealth (1)
- Transitions of Care (1)
- Urban Health (2)
- Vulnerable Populations (4)
- Web-Based (1)
- Women (1)
AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 25 of 46 Research Studies DisplayedSquires A, Gerchow L, Ma C
A multi-language qualitative study of limited English proficiency patient experiences in the United States.
The objective of this study was to understand the experience of limited English proficiency patients with health care services in an urban setting. Individuals who spoke either Spanish, Russian, Cantonese, Mandarin, or Korean shared their experiences through semi-structured interviews. A major theme that emerged throughout all interviews was a sense that the language barrier with clinicians posed a threat to safety when receiving healthcare. Participants also identified factors they felt would improve their sense of security specific to clinician interactions. The authors concluded that these findings highlight ongoing challenges that spoken language barriers pose at multiple points of care in the US health care system.
AHRQ-funded; HS023593.
Citation: Squires A, Gerchow L, Ma C .
A multi-language qualitative study of limited English proficiency patient experiences in the United States.
PEC Innov 2023 Dec; 2:100177. doi: 10.1016/j.pecinn.2023.100177..
Keywords: Patient Experience, Disparities, Vulnerable Populations
Danilack VA, Siegel-Reamer L, Lum L
From "disappointing" to "fantastic": women's experiences with labor induction in a U.S. tertiary hospital.
This study examined women’s expectations and experiences regarding labor induction. Labor induction patients were recruited in a US tertiary care hospital's postpartum mother-baby unit and invited to participate in semi-structured qualitative interviews. From April to September 2018, 26 women were interviewed about expectations and experiences of the labor induction process, side effects and health outcomes of concern, reflections on personal tolerance of different interventions, and thoughts about an ideal process. A wide range of experiences were described- with characterizations from horrible, frustrating, and terrifying to simple, fast and smooth. The Foley balloon catheter was the most polarizing induction method. Other concerns centered on the health of their baby, and an ideal induction involved fewer interventions.
AHRQ-funded; HS025013.
Citation: Danilack VA, Siegel-Reamer L, Lum L .
From "disappointing" to "fantastic": women's experiences with labor induction in a U.S. tertiary hospital.
Birth 2023 Dec; 50(4):959-67. doi: 10.1111/birt.12750..
Keywords: Women, Maternal Care, Hospitals, Patient Experience
Buchanan CL, Morris MA, Matlock D
Parental experience and understanding of parent-provider discussions of treatment for infants with ureteropelvic junction obstruction.
The objective of this study was to understand what families perceive as necessary information to guide decisionmaking in the treatment of children with ureteropelvic junction obstruction (UPJO). The authors conducted semi-structured interviews with parents of children with UPJO. Their findings were organized into three major themes: barriers to meaningful participation in decisionmaking, logistical aspects, and psychosocial aspects. They concluded that these results highlighted the importance of caregivers needing clear and accurate information to engage in meaningful discussions related to surgical decisionmaking regarding UPJO treatment. They recommended patient education and enhanced psychosocial support for more meaningful parental engagement in the surgical decisionmaking process.
AHRQ-funded; HS024597.
Citation: Buchanan CL, Morris MA, Matlock D .
Parental experience and understanding of parent-provider discussions of treatment for infants with ureteropelvic junction obstruction.
PEC Innov 2023 Dec; 2:100142. doi: 10.1016/j.pecinn.2023.100142..
Keywords: Newborns/Infants, Patient Experience, Shared Decision Making, Patient and Family Engagement, Clinician-Patient Communication
Martino SC, Haas A, Hays RD
Use of patient experience scales differs by education and Asian race/ethnicity : evidence from a vignette study.
Extreme response tendency (ERT) in survey administration refers to the level to which a survey respondent tends to choose extreme values on a response scale rather than intermediate values. A person with high ERT has a greater likelihood than a person with low ERT to select extremely positive or negative options for responses. ERT is known to be lower among Asian adults and those who attended college, creating implications for response interpretation. The purpose of this study was to explore the combined effect of education and race/ethnicity on reports about patient experience to fully understand the healthcare inequities affecting Asian people. The researchers reanalyzed data from a sample of Asian and White participants who were presented a series of 5 standardized vignettes describing physician–patient encounters with varying levels of physician responsiveness toward a patient describing ongoing headaches. The only difference between vignettes was the physician’s level of responsiveness to patients’ concerns. Respondents answered three questions about the level to which the doctor listened carefully to the patient, showed respect for what the patient had to say, spent enough time with the patient. The study found that respondents provided more favorable evaluations as the physician behavior described became more responsive. Interaction terms indicate that the Asian-White difference changed from positive to negative as the care depicted improved. Asian participants evaluated the vignette depicting the least responsive physician behavior more positively than White participants and the most responsive behavior less positively. Interaction coefficients from education-stratified models revealed that the tendency for Asian participants to give more negative evaluations as care improves was more than twice as strong in the lower than the higher education group. For Vignette 1 (worst care), Asian participants in the lower and higher education groups evaluated the physician’s behavior 16.7 and 4.3 points more favorably than White participants, respectively. For Vignette 5 (best care), Asian participants in the lower and higher education groups evaluated the physician’s behavior 10.1 and 5.0 points less favorably than White participants, respectively.
AHRQ-funded; HS029321.
Citation: Martino SC, Haas A, Hays RD .
Use of patient experience scales differs by education and Asian race/ethnicity : evidence from a vignette study.
J Gen Intern Med 2023 Aug; 38(11):2629-32. doi: 10.1007/s11606-023-08197-1..
Keywords: Patient Experience, Racial and Ethnic Minorities
Hoonakker PLT, Carayon P, Brown RL
Satisfaction of older patients with emergency department care: psychometric properties and construct validity of the Consumer Emergency Care Satisfaction Scale.
This study’s purpose to was examine the construct validity of the Consumer Emergency Care Satisfaction Scale (CECSS), designed to measure patient satisfaction in the emergency department (ED). The authors administered 2 surveys to older adults who presented with a fall to the ED and used electronic health record data to examine construct validity of the CECSS and ceiling effects. Using several criteria, they improved construct validity of the CECSS, reduced ceiling effects, and standardized scoring.
AHRQ-funded; HS026624.
Citation: Hoonakker PLT, Carayon P, Brown RL .
Satisfaction of older patients with emergency department care: psychometric properties and construct validity of the Consumer Emergency Care Satisfaction Scale.
J Nurs Care Qual 2023 Jul-Sep; 38(3):256-63. doi: 10.1097/ncq.0000000000000694..
Keywords: Elderly, Emergency Department, Patient Experience
Rivard SJ, Vitous CA, Bamdad MC
"I wish there had been resources": a photo-elicitation study of rectal cancer survivorship care needs.
Prior research reveals that healthcare providers are not skilled at identifying the most relevant rectal cancer survivorship issues. As a result, survivorship care is inadequate with most rectal cancer survivors reporting at least one unmet posttherapy need. The purpose of this photo-elicitation study was to explore rectal cancer survivors’ lived experiences using participant-submitted photographs and minimally structured qualitative interviews. Twenty rectal cancer survivors from a single center submitted photographs illustrative of their life after rectal cancer therapy. The study found that rectal cancer survivors’ recommendations to improve their survivorship care fell into three primary themes: 1) informational needs; 2) continued multidisciplinary follow up care; and 3) suggestions for support services. The study concluded that rectal cancer survivors want information that is more detailed and individualized, access to multidisciplinary follow-up care over time, and resources to alleviate the challenges of daily life.
AHRQ-funded; HS026772; HS000053.
Citation: Rivard SJ, Vitous CA, Bamdad MC .
"I wish there had been resources": a photo-elicitation study of rectal cancer survivorship care needs.
Ann Surg Oncol 2023 Jun; 30(6):3530-37. doi: 10.1245/s10434-022-13042-6..
Keywords: Cancer: Colorectal Cancer, Cancer, Quality of Life, Patient Experience
Ayers DC, Zheng H, Yang W
How back pain affects patient satisfaction after primary total knee arthroplasty.
This study looked at patient-reported outcomes (PROs) for patients with back pain (BP) who underwent total knee arthroscopy (TKA) surgery for pre- and postoperatively. This multicenter cohort study included 9,057 patients undergoing primary unilateral TKA who were enrolled in FORCE-TJ. Back pain (BP) intensity was assessed using the Oswestry back disability index (ODI) pain intensity questionnaire, with BP severity then classified into 4 categories. PROs were collected preoperatively and postoperatively after 1 year including the Knee injury and Osteoarthritis Outcome Score (KOOS) (total score, pain, Activities of Daily Living (ADL), and Quality of Life (QOL), Short-Form health survey 36-item (SF-36) Physical Component Score (PCS), and Mental Component Score (MCS)). At 1 year a total of 18.3% TKA patients were dissatisfied. At the time of surgery, a total of 4,765 patients (52.6%) reported back pain, divided into mild BP (24.9%), moderate (20.3%), and severe (7.2%). Severe back pain was significantly associated with patient dissatisfaction at 1 year after TKA. The predictive variables for dissatisfaction include age [odds ratio (OR) for younger patients <65 years versus older patients ≥65 years], educational level [OR for post high school versus less], smoking [OR for nonsmoker versus current smoker)], and Charlson comorbidity index [OR for CCI ≥2 versus 0]. The authors recommend surgeons consider a spine evaluation in patients who have severe BP prior to TKA.
AHRQ-funded; HS018910.
Citation: Ayers DC, Zheng H, Yang W .
How back pain affects patient satisfaction after primary total knee arthroplasty.
J Arthroplasty 2023 Jun; 38(6s):S103-s08. doi: 10.1016/j.arth.2023.03.072..
Keywords: Back Health and Pain, Pain, Pain, Patient Experience, Orthopedics, Surgery
Nembhard IM, David G, Ezzeddine I
A systematic review of research on empathy in health care.
This systematic review’s aim was to summarize the predictors and outcomes of empathy by health care personnel, methods used to study their empathy, and the effectiveness of interventions targeting their empathy, in order to advance understanding of the role of empathy in health care and facilitate additional research aimed at increasing positive patient care experiences and outcomes. English-language publications were searched for empirical studies of research from 1971 to April 2021. Out of 2270 articles, 455 reporting on 270 analyses satisfied the inclusion criteria. The authors found that most studies have been survey-based, cross-sectional examinations. Greater empathy is associated with better clinical outcomes and patient care experiences; and empathy predictors are many and fall into five categories (provider demographics, provider characteristics, provider behavior during interactions, target characteristics, and organizational context). One-hundred twenty-eight intervention studies were found of which 80% found a positive and significant effect. Except for 4 studies, interventions were educational programs focused on individual clinicians or trainees.
AHRQ-funded; HS016978.
Citation: Nembhard IM, David G, Ezzeddine I .
A systematic review of research on empathy in health care.
Health Serv Res 2023 Apr;58(2):250-63. doi: 10.1111/1475-6773.14016.
Keywords: Provider: Health Personnel, Patient Experience
Martino SC, Reynolds KA, Grob R
Evaluation of a protocol for eliciting narrative accounts of pediatric inpatient experiences of care.
This study’s objective was to evaluate the measurement properties of a set of six items designed to elicit narrative accounts of pediatric inpatient experience. This cross-sectional survey with follow-up phone interviews used data from 163 participants recruited from a probability-based online panel of US adults. Eligible participants were family members of a child who had an overnight hospital stay in the past 12 months. Participants completed an online (n = 129) or phone (n = 34) survey about their child's hospitalization experience that contained closed-ended items from the Child HCAHPS Survey followed by the six narrative items. About two weeks after completing the survey, 47 participants additionally completed a one-hour, semi-structured phone interview, the results of which served as a "gold standard" for evaluating the fidelity of narrative responses. The average narrative was 248 words, with 79% of narratives mentioning a topic included on the Child HCAHPS survey; 89% mentioning a topic not covered by that survey; 75% including at least one detailed description of an actionable event. Overall, there was a 66% correspondence between narrative and interview responses, with higher correspondence in the phone than in the online condition (75% vs. 59%).
AHRQ-funded; HS025920; HS016978.
Citation: Martino SC, Reynolds KA, Grob R .
Evaluation of a protocol for eliciting narrative accounts of pediatric inpatient experiences of care.
Health Serv Res 2023 Apr;58(2):271-81. doi: 10.1111/1475-6773.14134.
Keywords: Consumer Assessment of Healthcare Providers and Systems (CAHPS), Patient Experience, Inpatient Care
Schuttner L, Guo R, Wong E
High-risk patient experiences associated with an intensive primary care management program in the Veterans Health Administration.
This study assessed high-risk patient experiences associated with an intensive primary care management program conducted at the Veterans Health Administration (VHA). The authors assessed patient experience using a patient survey based on the CAHPS Survey in 2019. Patient experience was assessed among 1) prior enrollees (n = 59) of an intensive management program (2014-2018); (2) nonenrollees (n = 356) at program sites; and (3) nonprogram site patients (n = 728). The VHA Office of Primary Care used a patient-centered medical home model (PACT) to deliver coordinated, continuous primary care through multidisciplinary teams. The PACT-Intensive Management (PIM) program was piloted at 5 sites from 2014 to 2018. Outcomes examined included patient ratings of patient-centered care; overall health care experience; and satisfaction with their usual outpatient care provider. Enrollees were more satisfied with their current provider versus nonenrollees within program sites. However, the authors weren’t sure if the benefits persisted after program conclusion.
AHRQ-funded; HS026369.
Citation: Schuttner L, Guo R, Wong E .
High-risk patient experiences associated with an intensive primary care management program in the Veterans Health Administration.
J Ambul Care Manage 2023 Jan-Mar;46(1):45-53. doi: 10.1097/jac.0000000000000428..
Keywords: Consumer Assessment of Healthcare Providers and Systems (CAHPS), Patient Experience, Primary Care
Jallow F, Stehling E, Sajwani-Merchant Z
A multisite qualitative analysis of perceived roles in medication safety: older adults' perspectives.
The objective of this study was to identify the roles of patients, providers, and pharmacists in medication safety from the perspective of older adults. Researchers conducted semi-structured qualitative interviews with community-dwelling adults over 65 years old who took five or more prescription medications daily. Their results suggested that older adults' perceptions of their role and the roles of primary care providers and pharmacists in medication safety varied widely. The researchers concluded that educating providers and pharmacists about the expectations of this population can ultimately improve medication safety.
AHRQ-funded; HS027277.
Citation: Jallow F, Stehling E, Sajwani-Merchant Z .
A multisite qualitative analysis of perceived roles in medication safety: older adults' perspectives.
J Patient Exp 2023 Jan-Dec; 10:23743735231158887. doi: 10.1177/23743735231158887..
Keywords: Elderly, Medication, Medication: Safety, Patient Safety, Patient Experience
Zhou RA, McIntosh N, Rajan R
Association between use of clinician performance information and patient experience.
The objective of this study was to examine the association between the collection and use of clinician performance information in physician practices and patient experience in primary care. Researchers conducted observational multivariant generalized linear regression at the patient level. Patient experience scores were calculated from the 2018-2019 Massachusetts Statewide Survey of Adult Patient Experience of Primary Care. The findings showed that nearly ninety percent of practices in the sample collected or used clinician performance information, which was associated with better primary care patient experience among physician practices. The authors concluded that efforts to use clinician performance information in ways that cultivate clinicians' intrinsic motivation may be especially effective for quality improvement.
AHRQ-funded; HS024075; HS024074.
Citation: Zhou RA, McIntosh N, Rajan R .
Association between use of clinician performance information and patient experience.
Am J Manag Care 2023 Feb;29(2):e51-e57. doi: 10.37765/ajmc.2023.89321.
Keywords: Provider Performance, Patient Experience, Provider: Physician
Pham T, Patel P, Mbusa D
Impact of a pharmacist intervention on DOAC knowledge and satisfaction in ambulatory patients.
This randomized clinical trial’s goal was to assess the impact on knowledge and satisfaction of an intervention framed around a newly developed direct oral anticoagulants (DOAC) Checklist to guide and educate patients initiating or resuming DOACs. The cohort included ambulatory patients starting a DOAC or resuming one after setback (bleeding, stroke, or transient ischemic attack) in an ambulatory setting (office, emergency department, or short stay hospitalization). The study included three educational clinical pharmacist tele-visits, hotline access to the pharmacist, and coordination with continuity providers in 3 months. An abbreviated version of the Duke Anticoagulation Satisfaction Survey was administered to 463 patients. Scores were similar for the 233 intervention patients vs. 203 control patients (63.7% vs 62.2% correct). Satisfaction scores on the 7-point Likert scale were also virtually identical. The pharmacist-led intervention framed around the DOAC checklist had little impact on knowledge and satisfaction. There were delays between the intervention end and completion of the follow-up questionnaires, which may have obscured benefits experienced earlier.
AHRQ-funded; HS026859.
Citation: Pham T, Patel P, Mbusa D .
Impact of a pharmacist intervention on DOAC knowledge and satisfaction in ambulatory patients.
J Thromb Thrombolysis 2023 Feb;55(2):346-54. doi: 10.1007/s11239-022-02743-0.
Keywords: Provider: Pharmacist, Blood Thinners, Medication, Patient Experience, Ambulatory Care and Surgery
Barton AJ, Amura CR, Willems EL
Patient and provider perceptions of COVID-19-driven telehealth use from nurse-led care models in rural, frontier, and urban Colorado communities.
The aim of this study was to describe the patient and provider encounter in the unexpected telehealth application that took place with the onset of the COVID-19 pandemic. Patients and providers from 3 nurse-led models of care (federally qualified health centers, nurse midwifery practices, and the Nurse-Family partnership program) in Colorado were surveyed. Data from the Patient Attitude toward Telehealth survey and Provider Perceptions about Telehealth were collected. Patients who resided in urban areas utilized telehealth with greater frequency than in rural or frontier areas. Across each of the 5 domains assessed, rural/frontier patients had significantly lower attitude scores than urban patients. The mode of Telehealth employed differed across location, with video calls utilized more frequently by urban providers, and phone calls utilized by rural/frontier providers.
AHRQ-funded; HS028085.
Citation: Barton AJ, Amura CR, Willems EL .
Patient and provider perceptions of COVID-19-driven telehealth use from nurse-led care models in rural, frontier, and urban Colorado communities.
J Patient Exp 2023 Jan 25; 10:23743735231151546. doi: 10.1177/23743735231151546..
Keywords: COVID-19, Telehealth, Primary Care, Patient Experience, Rural Health, Urban Health, Vulnerable Populations, Provider: Nurse
Quigley DD, Elliott MN, Slaughter ME
Follow-up shadow coaching improves primary care provider-patient interactions and maintains improvements when conducted regularly: a spline model analysis.
The purpose of this study was to explore whether a second shadow coaching session (re-coaching) improves the patient experience and maintains it over time. The researchers observed a statistically significant increase of 3.7 points among re-coached providers after re-coaching on overall provider rating (OPR) and 3.5 points on provider communication (PC) (differences of 1, 3, and 5 points or more are considered small, medium, and large, respectively). Improvements from the re-coaching endured for 12 months for OPR and 8 months for PC.
AHRQ-funded; HS025920.
Citation: Quigley DD, Elliott MN, Slaughter ME .
Follow-up shadow coaching improves primary care provider-patient interactions and maintains improvements when conducted regularly: a spline model analysis.
J Gen Intern Med 2023 Jan; 38(1):221-27. doi: 10.1007/s11606-022-07881-y..
Keywords: Consumer Assessment of Healthcare Providers and Systems (CAHPS), Primary Care, Clinician-Patient Communication, Patient Experience, Provider Performance
Nembhard IM, Matta S, Shaller D
Learning from patients: the impact of using patients' narratives on patient experience scores.
The purpose of this study was to assess whether primary care clinics that often share patients' narratives with their staff have higher patient experience survey scores. The researchers conducted a 1-year study of 5,545 adult patients and 276 staff affiliated with nine clinics in one health system. The study found the frequency of sharing useful narratives with staff was related with patient experience scores for all measures, a result which was conditional upon staff confidence in their own knowledge. For operational measures such as care coordination, higher levels of sharing was associated with subsequently higher performance for more confident staff and lower performance or no difference for less confident staff, depending on the measure. For relational measures such as patient-provider communication, increased sharing was associated with higher scores for less confident staff and lower scores for more confident staff.
AHRQ-funded; HS016978.
Citation: Nembhard IM, Matta S, Shaller D .
Learning from patients: the impact of using patients' narratives on patient experience scores.
Health Care Manage Rev 2023 Jan-Mar; 49(1):2-13. doi: 10.1097/hmr.0000000000000386..
Keywords: Consumer Assessment of Healthcare Providers and Systems (CAHPS), Patient Experience, Provider Performance
McMurtry CL, Findling MG, Casey LS
Discrimination in the United States: experiences of Asian Americans.
This study examined the prevalence of racial discrimination among Asian Americans and its impact on health outcomes. A nationally representative, probability-based telephone survey was conducted comparing 500 Asian and 902 white US adults from January to April 2017. Thirteen percent of Asians reported discrimination in healthcare encounters, and at least one in four experienced discrimination in employment, housing, and experienced microaggressions (35%) or racial slurs (32%). This resulted in Asians having higher odds than whites of reporting avoiding health care due to discrimination concerns.
AHRQ-funded; HS000055.
Citation: McMurtry CL, Findling MG, Casey LS .
Discrimination in the United States: experiences of Asian Americans.
Health Serv Res 2019 Dec;54(Suppl2):1419-30. doi: 10.1111/1475-6773.13225..
Keywords: Racial and Ethnic Minorities, Disparities, Social Determinants of Health, Patient Experience
Evensen CT, Yost KJ, Keller S
Development and testing of the CAHPS Cancer Care Survey.
In order to develop the CAHPS Cancer Care Survey instrument, the authors conducted cognitive tests of the instrument as well as field tests at six cancer centers and four community oncology practices; the survey was then finalized and obtained the CAHPS trademark. The authors recommend mail-only, mail-telephone mixed-mode, and Web-mail mixed-mode data collection methods.
AHRQ-funded; 290200600019I.
Citation: Evensen CT, Yost KJ, Keller S .
Development and testing of the CAHPS Cancer Care Survey.
J Oncol Pract 2019 Nov;15(11):e969-e78. doi: 10.1200/jop.19.00039..
Keywords: Consumer Assessment of Healthcare Providers and Systems (CAHPS), Cancer, Patient Experience, Quality of Care
Haldar S, Mishra SR, Kim Y
Use and impact of an online community for hospital patients.
This study examined the impact of a technology resembling an online health community for hospitalized patients to exchange advice and provide each other support during their hospitalization. It was deployed at 1 pediatric and 1 adult hospital. Thirty participants were recruited and were interviewed bedside and were observed how they used the technology, along with follow-up phone interviews. It was found to be helpful to patients and that most (64%) of the shared advice was positive in nature. They also reported positive impacts to their quality, safety, and hospital experience due to the inpatient peer support community.
AHRQ-funded; HS022894.
Citation: Haldar S, Mishra SR, Kim Y .
Use and impact of an online community for hospital patients.
J Am Med Inform Assoc 2020 Apr;27(4):549-57. doi: 10.1093/jamia/ocz212..
Keywords: Health Information Technology (HIT), Hospitals, Patient and Family Engagement, Patient Experience
Cho H, Flynn G, Saylor M
Use of the FITT framework to understand patients' experiences using a real-time medication monitoring pill bottle linked to a mobile-based HIV self-management app: a qualitative study.
This study examined the usefulness of a mobile app linked to a real-time medication monitoring pill bottle that reminds HIV patients to take their medication. Thirty-eight randomized patients living with HIV who were aged 18 and older, owned a smartphone and were mostly medication-compliant were selected. The majority were African-American, had a high school education or less, and had a median income of less than $20,000. The Fit between Individuals, Task and Technology (FITT) framework was used to determine the fit between the individuals and the technology. Hindrances to the technology included: ease of use, HIV-related stigma and disclosure of HIV status, customized alert of medication time windows, and preference for device design.
AHRQ-funded; HS025071.
Citation: Cho H, Flynn G, Saylor M .
Use of the FITT framework to understand patients' experiences using a real-time medication monitoring pill bottle linked to a mobile-based HIV self-management app: a qualitative study.
Int J Med Inform 2019 Nov;131:103949. doi: 10.1016/j.ijmedinf.2019.08.009..
Keywords: Patient Experience, Patient Adherence/Compliance, Medication, Patient Self-Management, Health Information Technology (HIT)
Martino SC, Grob R, Davis S
Choosing doctors wisely: can assisted choice enhance patients' selection of clinicians?
In this study, the investigators conducted a simulated clinician-choice experiment, comparing choices and decision-making processes of participants (N = 688) randomized among four experimental arms: a conventional website reporting only quantitative performance information, a website reporting both qualitative (patient comments) and quantitative information, the second website augmented by a decision aid (labeling of patient comments), and the decision-aided website further augmented by the presence of a trained navigator.
AHRQ-funded; HS016978.
Citation: Martino SC, Grob R, Davis S .
Choosing doctors wisely: can assisted choice enhance patients' selection of clinicians?
Med Care Res Rev 2019 Oct;76(5):572-96. doi: 10.1177/1077558717743822..
Keywords: Patient Experience, Shared Decision Making
Howard SD, Lee KL, Nathan AG
Healthcare experiences of transgender people of color.
Researchers investigated how transgender people of color (TPOC) healthcare experiences are shaped by both race/ethnicity and gender identity. Using interviews and focus groups with participants in the Chicago area, they found that all participants described healthcare experiences where providers responded negatively to their race/ethnicity and/or gender identity. A majority of participants sought out healthcare locations designated as lesbian, gay, bisexual, and transgender-friendly in an effort to avoid discrimination, but feared experiencing racism there. When describing positive healthcare experiences, participants were most likely to highlight providers' respect for their gender identity. The researchers concluded that TPOC have different experiences compared with white transgender or cisgender racial/ethnic minorities and recommended that providers improve understanding of intersectional experiences of TPOC to improve quality of care.
AHRQ-funded; HS023050.
Citation: Howard SD, Lee KL, Nathan AG .
Healthcare experiences of transgender people of color.
J Gen Intern Med 2019 Oct;34(10):2068-74. doi: 10.1007/s11606-019-05179-0..
Keywords: Patient Experience, Vulnerable Populations, Cultural Competence, Racial and Ethnic Minorities, Primary Care, Ambulatory Care and Surgery
Hargraves JL, Cosenza C, Elliott MN, et al.
The effect of different sampling and recall periods in the CAHPS Clinician & Group (CG-CAHPS) survey.
Researchers examined the effect of changing the sampling and reference periods for the CAHPS((R)) Clinician & Group Survey from 12 to 6 months. They found that shortening the reference reduced the proportion of respondents reporting a blood test, X-ray, or other tests, and the most positive response was selected more often on the 6-month survey for 12 out of 13 questions. They concluded that surveys using a 6-month recall period may yield slightly higher scores than surveys with a 12-month recall period.
AHRQ-funded; HS016978.
Citation: Hargraves JL, Cosenza C, Elliott MN, et al..
The effect of different sampling and recall periods in the CAHPS Clinician & Group (CG-CAHPS) survey.
Health Serv Res 2019 Oct;54(5):1036-44. doi: 10.1111/1475-6773.13173..
Keywords: Consumer Assessment of Healthcare Providers and Systems (CAHPS), Patient Experience, Quality of Care, Research Methodologies
Beckett MK, Elliott MN, Burkhart Q
The effects of survey version on patient experience scores and plan rankings.
Researchers assessed the effect of changing survey questions on plan-level patient experience measures and ratings. Using CAHPS data, they concluded that their analyses illustrated how to assess the impact of seemingly minor survey modifications for other national surveys considering changes and highlighted the importance of screeners in instrument design.
AHRQ-funded; HS016978.
Citation: Beckett MK, Elliott MN, Burkhart Q .
The effects of survey version on patient experience scores and plan rankings.
Health Serv Res 2019 Oct;54(5):1016-22. doi: 10.1111/1475-6773.13172..
Keywords: Consumer Assessment of Healthcare Providers and Systems (CAHPS), Patient Experience, Medicare, Quality of Care
Flory JH, Keating S, Guelce D
Overcoming barriers to the use of metformin: patient and provider perspectives.
Researcher undertook a qualitative study of barriers to metformin use from the patient and provider perspective. A purposive sampling of patients and providers in New York State were interviewed and 1259 charts manually reviewed. The researchers found that, although metformin is positively viewed by patients and providers, gastrointestinal side effects are a barrier to its use. They recommended clinical trial research on optimal dose, formulation, and counseling for new users.
AHRQ-funded; HS023898.
Citation: Flory JH, Keating S, Guelce D .
Overcoming barriers to the use of metformin: patient and provider perspectives.
Patient Prefer Adherence 2019 Aug 22;13:1433-41. doi: 10.2147/ppa.S211614..
Keywords: Medication, Diabetes, Patient Adherence/Compliance, Patient Experience