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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
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1 to 2 of 2 Research Studies DisplayedBi S, Gunter KE, Lopez FY
Improving shared decision making for Asian American Pacific Islander sexual and gender minorities.
This study examined the challenges Asian American Pacific Islander (AAPI) sexual and gender minorities (SGM) encounter with shared decision making (SDM) with their providers, especially concerning mental health. Focus groups were conducted in San Francisco and interviews were conducted in Chicago and San Francisco. The participants were surveyed about attitudes towards SGM disclosure and preferences about providers. Many participants felt that providers either ignored or overemphasized their identities. Some shared the stigma of SGM identities and effects on mental health in their own families.
AHRQ-funded; HS023050.
Citation: Bi S, Gunter KE, Lopez FY .
Improving shared decision making for Asian American Pacific Islander sexual and gender minorities.
Med Care 2019 Dec;57(12):937-44. doi: 10.1097/mlr.0000000000001212..
Keywords: Shared Decision Making, Racial and Ethnic Minorities, Vulnerable Populations, Patient and Family Engagement, Patient-Centered Healthcare, Behavioral Health, Social Stigma
Feinberg E, Stransky ML, Augustyn M
Effect of family navigation on participation in Part C early intervention.
This study investigated whether family navigation (FN) improved Part C Early Intervention (EI) initiation following positive primary care screening for autism compared to conventional care management (CCM). The authors conducted a randomized clinical trial among 339 families of children (ages 15-27 months) who screened as having an increased likelihood for autism at 11 urban primary care sites in 3 cities. Families were randomly assigned to FN or CCM. Families in the FN group received community-based outreach from a navigator trained to support families to overcome structural barriers to autism evaluation and services. The authors obtained EI service records from state or local agencies. The primary outcome of this study was measured as the number of days from randomization to the first EI appointment. They obtained service records for 271 children; 156 (57.6%) children were not engaged with EI at study enrollment. Children were followed for 100 days after diagnostic ascertainment or until age 3, when Part C EI eligibility ends. Families receiving FN were approximately 54% more likely to engage EI than those receiving CCM.
AHRQ-funded; HS022242.
Citation: Feinberg E, Stransky ML, Augustyn M .
Effect of family navigation on participation in Part C early intervention.
Acad Pediatr 2023 Jul; 23(5):904-12. doi: 10.1016/j.acap.2023.03.013..
Keywords: Children/Adolescents, Vulnerable Populations, Patient and Family Engagement