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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
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1 to 4 of 4 Research Studies DisplayedShah SC, Bonnet K, Schulte R
Helicobacter pylori management is associated with predominantly negative patient experiences: results from a focused qualitative analysis.
This paper is a qualitative analysis of the patient experience of H. pylori management using a focus group and one-on-one telephone interviews. A total of 13 participants were included (mean age 50.4 years; 62% female; 38% non-Hispanic white). A total of 987 codes were yielded that five major themes related to the patient H. pylori experience: context of decision-making; health beliefs; barriers experienced; cues to action; and impact of new knowledge. The perceived patient-provider interaction contributed most prominently to the negative patient experience along with treatment-related side effects. Knowledge that lack of treatment can lead to gastric cancer along with symptoms modified participants’ perceptions and motivation to accept treatment.
AHRQ-funded; HS026395.
Citation: Shah SC, Bonnet K, Schulte R .
Helicobacter pylori management is associated with predominantly negative patient experiences: results from a focused qualitative analysis.
Dig Dis Sci 2022 Sep;67(9):4387-94. doi: 10.1007/s10620-021-07320-8..
Keywords: Digestive Disease and Health, Patient Experience
Dos Santos Marques IC, Herbey II, Theiss LM
Understanding the surgical experience for Black and White patients with inflammatory bowel disease (IBD): the importance of health literacy.
The purpose of this qualitative study was to describe the surgical experience for Black and White inflammatory bowel disease patients. Same race, semi-structured qualitative interviews with patients with IBD who had undergone surgery were conducted to explore barriers and facilitators to a positive or negative surgical experience. The study reported that 6 focus groups were conducted with 10 Black and 17 White IBD participants with a mean age of 44.8 years, 52% of whom were male and 65% of whom had Crohn’s disease. Four themes were identified that most characterized the surgical experience: the impact of the IBD diagnosis, the quality of the information that was provided, disease management, and the surgery. Within these theme groupings, identified barriers to a positive surgical experience included inadequate personal knowledge of IBD, ineffective written and verbal communication, lack of a support system and complications after surgery. Both groups indicated that information was provided inconsistently which led to unclear expectations of surgical outcomes. The study concluded that surgical experiences vary between Black and White patients, but both groups emphasized the need for understandable, accurate, and trustworthy health information.
AHRQ-funded; HS023009; HS013852.
Citation: Dos Santos Marques IC, Herbey II, Theiss LM .
Understanding the surgical experience for Black and White patients with inflammatory bowel disease (IBD): the importance of health literacy.
Am J Surg 2022 Feb;223(2):303-11. doi: 10.1016/j.amjsurg.2021.06.003..
Keywords: Health Literacy, Surgery, Racial and Ethnic Minorities, Racial and Ethnic Minorities, Digestive Disease and Health, Patient Experience
Zia JK, Chung CF, Schroeder J
The feasibility, usability, and clinical utility of traditional paper food and symptom journals for patients with irritable bowel syndrome.
The primary aim of this study was to evaluate the feasibility, usability, and clinical utility of paper food and gastrointestinal symptom journals as a data collection tool. Over half of the 17 participants perceived paper journaling of food and symptoms as feasible, usable, and clinically useful. Thirteen participants demonstrated a strong association with at least one symptom and meal nutrient.
AHRQ-funded; HS023654.
Citation: Zia JK, Chung CF, Schroeder J .
The feasibility, usability, and clinical utility of traditional paper food and symptom journals for patients with irritable bowel syndrome.
Neurogastroenterol Motil 2017 Feb;29(2). doi: 10.1111/nmo.12935.
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Keywords: Digestive Disease and Health, Nutrition, Patient Experience, Patient Self-Management
Siegel CA, Lofland JH, Naim A
Novel statistical approach to determine inflammatory bowel disease: patients' perspectives on shared decision making.
The aim of this study was to examine patient insights regarding shared decision making among patients with inflammatory bowel disease (IBD) using novel statistical technology to analyze qualitative data. From the 355 patients surveyed, the researchers identified three unique patient clusters: satisfied, content, and dissatisfied. They concluded that patient perspectives in this study indicate an increased desire for shared decision making in determining an optimal IBD treatment plan.
AHRQ-funded; HS021747.
Citation: Siegel CA, Lofland JH, Naim A .
Novel statistical approach to determine inflammatory bowel disease: patients' perspectives on shared decision making.
Patient 2016 Feb;9(1):79-89. doi: 10.1007/s40271-015-0126-z.
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Keywords: Shared Decision Making, Digestive Disease and Health, Patient and Family Engagement, Patient Experience, Clinician-Patient Communication