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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
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1 to 2 of 2 Research Studies DisplayedSimon NJ, Richardson J, Ahmad A
Health utilities and parental quality of life effects for three rare conditions tested in newborns.
The purposes of this study were to estimate health utilities for three rare, heritable conditions currently recommended for newborn screening - Krabbe disease, phenylketonuria, and Pompe disease - and to estimate the spillover effects experienced by the parents of infants diagnosed with these disorders. A survey elicited health utilities for the three conditions at varying stages and onset of symptoms. Respondents valued disease specific health states in three question frames: adult, child, and parent spillover state. Results reported that more severe conditions and infant health states received lower estimated utility, and estimates of greater disutility among parents.
AHRQ-funded; HS020644.
Citation: Simon NJ, Richardson J, Ahmad A .
Health utilities and parental quality of life effects for three rare conditions tested in newborns.
J Patient Rep Outcomes 2019 Jan 22;3(1):4. doi: 10.1186/s41687-019-0093-6..
Keywords: Caregiving, Family Health and History, Newborns/Infants, Quality of Life, Screening
Salihu HM, Salemi JL, Nash MC
Assessing the economic impact of paternal involvement: a comparison of the generalized linear model versus decision analysis trees.
The authors illustrated a methodological comparison of decision analysis modeling and generalized linear modeling (GLM) techniques using a case study that assesses the cost-effectiveness of potential father involvement interventions. They found that lack of paternal involvement was associated with higher rates of preterm birth, small-for-gestational age, and infant morbidity and mortality, concluding that healthcare costs could be significantly reduced through enhanced father involvement during pregnancy.
AHRQ-funded; HS019997.
Citation: Salihu HM, Salemi JL, Nash MC .
Assessing the economic impact of paternal involvement: a comparison of the generalized linear model versus decision analysis trees.
Matern Child Health J 2014 Aug;18(6):1380-90. doi: 10.1007/s10995-013-1372-0.
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Keywords: Family Health and History, Newborns/Infants, Outcomes, Pregnancy, Case Study, Shared Decision Making