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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
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1 to 2 of 2 Research Studies DisplayedTimbie JW, Reynolds KA, Evans EL
AHRQ Author: Cohen JW
Advancing data capacity for economic outcomes in patient-centered outcomes research: challenges and opportunities.
The HHS Office of the Assistant Secretary for Planning and Evaluation convened a symposium that brought together patients, researchers, federal agency representatives, and other stakeholders to discuss research on the collection, linkage, and analysis of economic outcomes data for patient-centered outcomes research (PCOR) studies. The purpose of this paper was to synthesize the information gathered in the symposium to guide efforts to build data capacity. The authors then emphasize preliminary opportunities to expand the availability and use of relevant, high-quality economic outcomes data as part of evidence generation in patient-centered outcomes research. Across panel discussions, 4 overarching themes arose to guide efforts to build data capacity for PCOR studies with economic outcomes: 1) Measurement and data collection for economic outcomes should enable a comprehensive, person-centered, and longitudinal understanding of health and other impacts; 2) Research data on economic outcomes should be high quality, accessible, timely, interoperable, and linkable. 3) Collaborative partnerships across stakeholder groups are essential for aligning, advancing, and sustaining efforts to improve the measurement and use of economic outcomes in PCOR; and 5) Economic outcomes in PCOR studies should be defined, collected, and analyzed in ways that advance health equity. With those factors in mind, the researchers explored opportunities to build data capacity for economic outcomes in patient-centered outcomes research in 4 domains: measurement, data collection, data linkage, and data access and use. Within each domain the researchers emphasize opportunities for meaningful, impactful improvements.
AHRQ-authored.
Citation: Timbie JW, Reynolds KA, Evans EL .
Advancing data capacity for economic outcomes in patient-centered outcomes research: challenges and opportunities.
Med Care 2023 Dec; 61(12 Suppl 2):s161-s65. doi: 10.1097/mlr.0000000000001901..
Keywords: Patient-Centered Outcomes Research, Evidence-Based Practice, Patient-Centered Healthcare
Bierman AS, Burke BT, Comfort LN
AHRQ Author: Bierman AS, Burke BT, Comfort LN, Gerstein M, Mueller NM, Umscheid CA
From precision medicine to precision care: choosing and using precision medicine in the context of multimorbidity.
Swift progress in personalized medicine offers significant potential to decrease disease and death rates for numerous health issues. To maximize the advantages of personalized medicine and minimize negative outcomes, addressing real-world obstacles in applying this research to clinical practice is crucial. A primary challenge involves selecting and employing personalized medicine approaches in everyday practice, considering the care of a substantial portion of individuals with multiple coexisting conditions. Personalized medicine should be incorporated into a broader framework of individualized care, which takes into account factors that impact the efficacy of specific treatments. Individualized care combines a patient-focused approach with personalized medicine to guide decision-making and care plans, considering multiple health conditions, functional ability, personal values, goals, preferences, and social and societal contexts. Creating dissemination and implementation strategies for personalized medicine centered around individualized care can enhance patient-centric quality and health outcomes, direct interventions toward those who will benefit most, improve access to novel treatments, reduce the likelihood of treatment withdrawal due to unforeseen side effects, and promote health equity by customizing interventions and care for diverse individuals and communities. Delivering personalized medicine within the scope of individualized care supports respectful treatment that aligns with patient preferences, values, and objectives, fostering trust and offering necessary information for informed decision-making. Accelerating its adoption demands focus on the entire translational research continuum: devising innovative methods, proving their value, disseminating and implementing findings, and involving patients throughout the process. This includes basic science, preclinical and clinical research, and integration into practice, all aimed at enhancing health. This paper scrutinizes the challenges in adopting personalized medicine in the presence of multiple health conditions. The authors conclude that while the promise of personalized medicine is immense, proactive measures are essential to prevent unintended repercussions and ensure its equitable and efficient implementation.
AHRQ-authored: All.
Citation: Bierman AS, Burke BT, Comfort LN .
From precision medicine to precision care: choosing and using precision medicine in the context of multimorbidity.
Cambridge Prisms: Precision Medicine 2023 Feb 21;1:e19. doi:10.1017/pcm.2023.8.
Keywords: Learning Health Systems, Patient-Centered Healthcare, Evidence-Based Practice, Patient-Centered Outcomes Research