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AHRQ Research Studies Date
Topics
- Adverse Events (1)
- Autism (1)
- Behavioral Health (1)
- Care Coordination (1)
- Caregiving (4)
- (-) Children/Adolescents (14)
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- Patient Adherence/Compliance (1)
- (-) Patient and Family Engagement (14)
- Patient Self-Management (1)
- Quality Improvement (1)
- Quality of Care (1)
- Racial and Ethnic Minorities (2)
- Shared Decision Making (2)
- Sickle Cell Disease (1)
- Substance Abuse (1)
- Vulnerable Populations (1)
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 14 of 14 Research Studies DisplayedWhittington KJ, Ma Y, Butler AM
The impact of infectious diseases consultation for children with Staphylococcus aureus bacteremia.
The purpose of this cohort study was to explore the impact of infectious diseases (ID) consultation for Staphylococcus aureus bacteremia in children. The researchers conducted a study of 306 children at St. Louis Children's Hospital between 2011 to 2018 with S. aureus bacteremia. Adherence to six established quality-of-care indicators (QCIs) was evaluated. The study found that 63% of the study patients received ID consultation, which was associated with greater adherence to all QCIs, including proof-of-cure blood cultures, indicated laboratory studies, echocardiography, source control, targeted antibiotic therapy, and antibiotic duration. In addition, improved outcomes were related with acquiring proof-of-cure blood cultures and all indicated laboratory studies. The researchers concluded that ID consultation improved adherence to QCIs, some of which were associated with improved clinical outcomes, for children with S. aureus bacteremia.
AHRQ-funded; HS024269.
Citation: Whittington KJ, Ma Y, Butler AM .
The impact of infectious diseases consultation for children with Staphylococcus aureus bacteremia.
Pediatr Res 2022 Dec;92(6):1598-605. doi: 10.1038/s41390-022-02251-0..
Keywords: Children/Adolescents, Infectious Diseases, Patient and Family Engagement
Adolphe S, Fernandez-Pastrana I, Scott H
EASE-ing the way for pediatric providers and parents: the Engagement and Access to Special Education (EASE) Clinic.
Primary Care Providers (PCPs) are tasked by the American Academy of Pediatrics to identify children who need special education and ensure that those children receive appropriate related services provided by the Individuals with Disabilities Education Act (IDEA). The IDEA entitles children between the ages of 3 and 21 to free education through individualized education programs (IEPs), and other related supports. The extent of PCP knowledge about the IDEA, special education, and available related support services and how to assess them, is largely unknown. Existing research indicates there is a lack of knowledge, training, and confidence in providers about special education. Boston Medical Center’s (BMC) Engagement and Access to Special Education (EASE) clinic was developed to provide support to the parents and PCPs of children with special education needs. The purpose of this article was to introduce and describe the EASE clinical model as a useful method for PCPs to strengthen their ability to provide appropriate and available comprehensive care to their patients requiring special education. The authors reported that of the 14,000 pediatric patients at the Boston Medical Center, 308 children were referred to the EASE clinic between its inception in 2017 and May 2021. The majority of children were Black non-Hispanic, English-speaking, and male, with an average age of 8.3 at first clinic. During that same time 452 total visits were completed, with a waiting list of less than 90 days. The authors conclude that for primary care practices with patients with special education needs, the BMC EASE clinic can serve as a useful model for improving their ability to provide care.
AHRQ-funded; HS022242.
Citation: Adolphe S, Fernandez-Pastrana I, Scott H .
EASE-ing the way for pediatric providers and parents: the Engagement and Access to Special Education (EASE) Clinic.
Acad Pediatr 2022 May-Jun;24(4):705-07. doi: 10.1016/j.acap.2022.02.011..
Keywords: Children/Adolescents, Caregiving, Patient and Family Engagement, Vulnerable Populations, Disabilities
Thorp K, Van CM, Olin SS
Integrating youth voice in health plan quality improvement.
This article describes lessons learned from working with health plans to incorporate youth voice in quality improvement (QI) approaches to improve adolescent depression care. Findings showed that plan approaches to youth engagement varied and evolved over time as plans learned how to employ deliberate approaches to engage youth perspectives. Further, plans learned that building genuine relationships with youth and family takes an investment of time and trust that can provide rich and useful information for QI.
AHRQ-funded; HS025296.
Citation: Thorp K, Van CM, Olin SS .
Integrating youth voice in health plan quality improvement.
Acad Pediatr 2022 Apr;22(3s):S68-s69. doi: 10.1016/j.acap.2021.03.006..
Keywords: Children/Adolescents, Patient and Family Engagement, Quality Improvement, Quality of Care
Smith BM, Sharma R, Das A
Patient and family engagement strategies for children and adolescents with chronic diseases: a review of systematic reviews.
Patient and family engagement is important for family-centered care, particularly for children and adolescents with chronic disease. In this study the investigators aimed to 1) identify available evidence from systematic reviews on engagement strategies used to help children, adolescents, and their caregivers manage chronic conditions, and 2) identify gaps in the literature. They searched PubMed and CINAHL from January 2015 to January 2020 for systematic reviews on patient and family engagement strategies in the pediatrics population (<18 years).
AHRQ-funded; 290201500006I.
Citation: Smith BM, Sharma R, Das A .
Patient and family engagement strategies for children and adolescents with chronic diseases: a review of systematic reviews.
Patient Educ Couns 2021 Sep;104(9):2213-23. doi: 10.1016/j.pec.2021.02.026..
Keywords: Children/Adolescents, Patient and Family Engagement, Chronic Conditions, Patient-Centered Healthcare, Evidence-Based Practice, Patient Self-Management
Feinberg E, Kuhn J, Eilenberg JS
Improving family navigation for children with autism: a comparison of two pilot randomized controlled trials.
This study looked at impacts of a modification to a pilot program called Family Navigation to help low-income, minority children needing autism-related diagnostic services receive those services. An advisory group recommended modifications to recruitment criteria and study conditions. 40 parent-child dyad participants were randomized between the two pilots to receive usual care (UC) or modified FN. Participant enrollment, satisfaction with clinical care, and timely completion of the diagnostic assessment were compared. Recruitment improved significantly with the modified protocol (4.8% vs. 19.5%) and no participants were excluded from study enrollment compared to the first pilot (43.6%). Families in the second pilot were more likely to complete diagnostic assessment and report greater satisfaction with clinical care.
AHRQ-funded; HS022155; HS022242.
Citation: Feinberg E, Kuhn J, Eilenberg JS .
Improving family navigation for children with autism: a comparison of two pilot randomized controlled trials.
Acad Pediatr 2021 Mar;21(2):265-71. doi: 10.1016/j.acap.2020.04.007..
Keywords: Children/Adolescents, Autism, Patient-Centered Healthcare, Care Coordination, Racial and Ethnic Minorities, Low-Income, Patient and Family Engagement, Chronic Conditions
Yasui M, Pottick KJ, Chen Y
Conceptualizing culturally infused engagement and its measurement for ethnic minority and immigrant children and families.
The authors systematically reviewed 119 existing instruments that measure the multi-dimensional and developmental process of engagement for ethnic minority and immigrant children and families. Its findings highlight the variety of tools that are used to measure behavioral and attitudinal dimensions of engagement, showing the limitations of their application for ethnic minority and immigrant children and families.
AHRQ-funded; HS023007.
Citation: Yasui M, Pottick KJ, Chen Y .
Conceptualizing culturally infused engagement and its measurement for ethnic minority and immigrant children and families.
Clin Child Fam Psychol Rev 2017 Sep;20(3):250-332. doi: 10.1007/s10567-017-0229-2.
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Keywords: Children/Adolescents, Cultural Competence, Behavioral Health, Patient and Family Engagement, Patient-Centered Healthcare
Runaas L, Hanauer D, Maher M
BMT roadmap: a user-centered design health information technology tool to promote patient-centered care in pediatric HCT.
“BMT Roadmap" is a web-based application that integrates patient-specific information and includes several domains. In this study, BMT Roadmap was provided to 10 caregivers of patients undergoing first-time hematopoietic cell transplant (HCT) . Caregivers found the tool useful and easy-to-use, leading them to want even greater access to information. BMT Roadmap was feasible, with no disruption to inpatient care.
AHRQ-funded; HS023613.
Citation: Runaas L, Hanauer D, Maher M .
BMT roadmap: a user-centered design health information technology tool to promote patient-centered care in pediatric HCT.
Biol Blood Marrow Transplant 2017 May;23(5):813-19. doi: 10.1016/j.bbmt.2017.01.080.
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Keywords: Caregiving, Health Information Technology (HIT), Patient and Family Engagement, Children/Adolescents, Web-Based
Khan A, Coffey M, Litterer KP
Families as partners in hospital error and adverse event surveillance.
This study compared error and adverse event (AE) rates among hospitalized children : (1) gathered systematically with vs without family reporting, (2) reported by families vs clinicians, and (3) reported by families vs hospital incident reports. Among the findings: Family-reported error rates were 5.0-fold higher and AE rates 2.9-fold higher than hospital incident report rates.
AHRQ-funded; HS022986; HS000063.
Citation: Khan A, Coffey M, Litterer KP .
Families as partners in hospital error and adverse event surveillance.
JAMA Pediatr 2017 Apr;171(4):372-81. doi: 10.1001/jamapediatrics.2016.4812.
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Keywords: Adverse Events, Children/Adolescents, Hospitals, Medical Errors, Patient and Family Engagement
Cornelius T, Earnshaw VA, Menino D
Treatment motivation among caregivers and adolescents with substance use disorders.
The researchers used self-determination theory to examine intersecting motivational narratives among caregivers and adolescents in substance use disorder treatment. Relationships between motivation, interpretation of caregiver pressures, adolescent autonomy, and relatedness were also explored. Their results suggest the importance of intrinsically motivated treatment, and highlight autonomy support and relatedness as mechanisms that might facilitate treatment engagement.
AHRQ-funded; HS022986.
Citation: Cornelius T, Earnshaw VA, Menino D .
Treatment motivation among caregivers and adolescents with substance use disorders.
J Subst Abuse Treat 2017 Apr;75:10-16. doi: 10.1016/j.jsat.2017.01.003.
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Keywords: Caregiving, Children/Adolescents, Patient Adherence/Compliance, Patient and Family Engagement, Substance Abuse
Jolles MP, Wells R
Does caregiver participation in decision making within child welfare agencies influence children's primary and mental health care service use?
This study uses a national sample of children involved with child welfare to compare their health service use between those children served through a participatory decision making (PDM) practice and those who did not experience it. It concluded that lower-risk families were more likely to be served through PDM which was positively associated with child use of primary health services.
AHRQ-funded; HS000032.
Citation: Jolles MP, Wells R .
Does caregiver participation in decision making within child welfare agencies influence children's primary and mental health care service use?
Child Care Health Dev 2017 Mar;43(2):192-201. doi: 10.1111/cch.12384.
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Keywords: Caregiving, Children/Adolescents, Shared Decision Making, Health Services Research (HSR), Patient and Family Engagement
Asan O, Flynn KE, Azam L
Nurses’ perceptions of a novel health information technology: a qualitative study in the pediatric intensive care unit.
The purpose of this study was to evaluate the use of a novel health information technology (HIT), a large customizable interactive monitor (LCIM), implemented in a pediatric intensive care unit (PICU). The study collected and analyzed data from 55 PICU nurses in seven focus groups. Six major themes emerged including familiarity and use routines, positive perceptions with the LCIM, negative perceptions with the LCIM, privacy, training, and suggestions for improvement.
AHRQ-funded; HS023626.
Citation: Asan O, Flynn KE, Azam L .
Nurses’ perceptions of a novel health information technology: a qualitative study in the pediatric intensive care unit.
Int J Hum Comput Interact 2017;33(4):258-64. doi: 10.1080/10447318.2017.1279828.
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Keywords: Health Information Technology (HIT), Intensive Care Unit (ICU), Patient and Family Engagement, Children/Adolescents, Nursing
Magnusson DM, Mistry KB
AHRQ Author: Mistry KB
Racial and ethnic disparities in unmet need for pediatric therapy services: the role of family-centered care.
The researchers examined whether individual elements of family-centered care (FCC) mediate racial/ethnic disparities in parent-reported unmet therapy need. Eighteen percent of children with special health care needs 0 to 5 years old with reported therapy need experienced unmet need. Black and Hispanic children were more likely than white children to have parent-reported unmet therapy need.
AHRQ-authored.
Citation: Magnusson DM, Mistry KB .
Racial and ethnic disparities in unmet need for pediatric therapy services: the role of family-centered care.
Acad Pediatr 2017 Jan - Feb;17(1):27-33. doi: 10.1016/j.acap.2016.06.010.
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Keywords: Children/Adolescents, Disparities, Racial and Ethnic Minorities, Patient and Family Engagement, Racial and Ethnic Minorities
Crosby LE, Shook LM, Ware RE
Shared decision making for hydroxyurea treatment initiation in children with sickle cell anemia.
While decision aids and tools are being developed, the authors recommended six strategies providers can use to facilitate discussions concerning the NHLBI clinical guidelines to recommend hydroxyurea for young patients with sickle cell anemia.
AHRQ-funded; HS021114.
Citation: Crosby LE, Shook LM, Ware RE .
Shared decision making for hydroxyurea treatment initiation in children with sickle cell anemia.
Pediatr Blood Cancer 2015 Feb;62(2):184-85. doi: 10.1002/pbc.25124.
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Keywords: Children/Adolescents, Shared Decision Making, Education: Patient and Caregiver, Patient and Family Engagement, Sickle Cell Disease
Baird J, Davies B, Hinds PS
What impact do hospital and unit-based rules have upon patient and family-centered care in the pediatric intensive care unit?
This qualitative, grounded theory study identified the existence of explicit and implicit rules in a pediatric intensive care unit, all of which negatively affected the family's ability to receive care that was attentive to their needs. The rules also placed the registered nurse in the challenging position of serving as rule enforcer and facilitator of patient and family-centered care.
AHRQ-funded; HS000063.
Citation: Baird J, Davies B, Hinds PS .
What impact do hospital and unit-based rules have upon patient and family-centered care in the pediatric intensive care unit?
J Pediatr Nurs 2015 Jan-Feb;30(1):133-42. doi: 10.1016/j.pedn.2014.10.001.
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Keywords: Children/Adolescents, Intensive Care Unit (ICU), Patient and Family Engagement, Patient-Centered Healthcare, Children/Adolescents