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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 10 of 10 Research Studies DisplayedGaskin DJ, Karmarkar TD, Maurer A
Potential role of cost and quality of life in treatment decisions for arthritis-related knee pain in African American and Latina women.
This study examined whether using a decision-making tool would aid Latina and African-American women over age 45 years with arthritic knee pain in making more informed treatment decisions. The researchers conducted 4 focus groups of Latina and African-American women and 2 focus groups with primary care providers who treated them for knee pain. They found that minority women and primary care providers all endorsed the use of a decision-making tool that provided information on the impact of treatment on quality of life, medical care costs, and work productivity.
AHRQ-funded; HS000029.
Citation: Gaskin DJ, Karmarkar TD, Maurer A .
Potential role of cost and quality of life in treatment decisions for arthritis-related knee pain in African American and Latina women.
Arthritis Care Res 2020 May;72(5):692-98. doi: 10.1002/acr.23903..
Keywords: Arthritis, Orthopedics, Pain, Quality of Life, Healthcare Costs, Decision Making, Racial and Ethnic Minorities, Women
Acree ME, McNulty M, Blocker O
Shared decision-making around anal cancer screening among black bisexual and gay men in the USA.
This study focused on shared decision-making on anal cancer screening among black gay and bisexual men in the US. The researchers conducted 30 semi-structured one-on-one interviews and two focus groups in 2016-2017. Out of forty-five participants, all were black and male, with 13 identified as bisexual and 32 as gay. Barriers to screening include internalized racism, biphobia/homophobia, provider bias lead to reduced healthcare engagement and discomfort discussing sexual practices which hindered shared decision-making.
AHRQ-funded; HS023050.
Citation: Acree ME, McNulty M, Blocker O .
Shared decision-making around anal cancer screening among black bisexual and gay men in the USA.
Cult Health Sex 2020 Feb;22(2):201-16. doi: 10.1080/13691058.2019.1581897..
Keywords: Decision Making, Cancer, Screening, Prevention, Racial and Ethnic Minorities, Vulnerable Populations
Hale KL, Wallace DD, Blanco-Duran D
Conversations between Latina mothers and their child's mental health provider: An observational study of shared decision-making regarding pediatric patient mental health needs.
The authors evaluated shared decision-making (SDM) and delineated SDM processes in audio-recorded conversations between language-congruent Spanish-/English-speaking clinicians and parents of pediatric mental health patients. They found that their present sample performed on par with other populations studied to date, and that it expanded the evaluation of observed SDM to include Latino patients and new clinician populations. The practical implications of their findings is that use of the Observer OPTION(5) instrument highlights that eliciting and integrating parent/patient preferences is a skill that requires attention when delivering culturally competent interventions.
AHRQ-funded; HS000032.
Citation: Hale KL, Wallace DD, Blanco-Duran D .
Conversations between Latina mothers and their child's mental health provider: An observational study of shared decision-making regarding pediatric patient mental health needs.
Patient Educ Couns 2020 Jan;103(1):96-102. doi: 10.1016/j.pec.2019.08.013..
Keywords: Children/Adolescents, Decision Making, Cultural Competence, Racial and Ethnic Minorities, Clinician-Patient Communication, Communication, Caregiving, Behavioral Health
Tan JY, Xu LJ, Lopez FY
Shared decision making among clinicians and Asian American and Pacific Islander sexual and gender minorities: an intersectional approach to address a critical care gap.
The authors illustrated how issues at the intersection of Asian American and Pacific Islander (AAPI) and sexual and gender minorities (SGM) identities affect shared decision making processes and health outcomes. They discussed experiences of AAPI SGM that are affected by AAPI heterogeneity, SGM stigma, multiple minority group identities, and sources of discrimination.
AHRQ-funded; HS022433.
Citation: Tan JY, Xu LJ, Lopez FY .
Shared decision making among clinicians and Asian American and Pacific Islander sexual and gender minorities: an intersectional approach to address a critical care gap.
LGBT Health 2016 Oct;3(5):327-34. doi: 10.1089/lgbt.2015.0143.
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Keywords: Decision Making, Disparities, Racial and Ethnic Minorities, Clinician-Patient Communication, Social Stigma
DeMeester RH, Lopez FY, Moore JE
A model of organizational context and shared decision making: application to LGBT racial and ethnic minority patients.
The authors propose a conceptual model that suggests ways in which organizations can shape their contextual structure and operations to support shared decisionmaking (SDM). Their model contains six drivers: workflows, health information technology, organizational structure and culture, resources and clinic environment, training and education, and incentives and disincentives. They provide examples of how specific contextual changes could make SDM more effective for LGBT racial/ethnic minority populations.
AHRQ-funded; HS023050.
Citation: DeMeester RH, Lopez FY, Moore JE .
A model of organizational context and shared decision making: application to LGBT racial and ethnic minority patients.
J Gen Intern Med 2016 Jun;31(6):651-62. doi: 10.1007/s11606-016-3608-3.
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Keywords: Decision Making, Racial and Ethnic Minorities, Racial and Ethnic Minorities
Peek ME, Lopez FY, Williams HS
Development of a conceptual framework for understanding shared decision making among African-American LGBT patients and their clinicians.
The purpose of this review was to understand how race, sexual orientation and gender identity can simultaneously influence shared decision making (SDM) among African-American LGBT persons. It also presents a conceptual model for understanding SDM in African-American LGBT persons, wherein multiple systems of social stratification (e.g., race, gender, sexual orientation) influence patient and provider perceptions, behaviors, and shared decision making.
AHRQ-funded; HS023050.
Citation: Peek ME, Lopez FY, Williams HS .
Development of a conceptual framework for understanding shared decision making among African-American LGBT patients and their clinicians.
J Gen Intern Med 2016 Jun;31(6):677-87. doi: 10.1007/s11606-016-3616-3.
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Keywords: Decision Making, Social Determinants of Health, Racial and Ethnic Minorities, Patient-Centered Outcomes Research
Chin MH, Lopez FY, Nathan AG
Improving shared decision making with LGBT racial and ethnic minority patients.
In 2014, the authors' team at the University of Chicago, supported by funds from AHRQ and the Patient-Centered Outcomes Research Trust Fund, began examining how to reduce disparities for LGBT racial/ethnic minority patients through improved shared decisionmaking (SDM). Their three goals are to review what is known, to perform interviews and focus groups of patients and clinicians, and to develop tools and resources. The three articles in this issue’s JGIM symposium on "Improving Shared Decision Making with LGBT Racial and Ethnic Minority Patients" reflect their initial foundational work.
AHRQ-funded; HS023050.
Citation: Chin MH, Lopez FY, Nathan AG .
Improving shared decision making with LGBT racial and ethnic minority patients.
J Gen Intern Med 2016 Jun;31(6):591-3. doi: 10.1007/s11606-016-3607-4.
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Keywords: Decision Making, Disparities, Racial and Ethnic Minorities, Patient-Centered Outcomes Research, Racial and Ethnic Minorities
Nathan AG, Marshall IM, Cooper JM
Use of decision aids with minority patients: a systematic review.
The authors conducted a systematic review to characterize the application and effectiveness of decision aids (DA) in racial, ethnic, sexual, and gender minorities. ical decisions. They concluded that DAs have been effective in improving patient-doctor communication and decision quality outcomes in minority populations and could help address health disparities. However, the existing literature is almost non-existent for sexual and gender minorities.
AHRQ-funded; HS023050.
Citation: Nathan AG, Marshall IM, Cooper JM .
Use of decision aids with minority patients: a systematic review.
J Gen Intern Med 2016 Jun;31(6):663-76. doi: 10.1007/s11606-016-3609-2.
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Keywords: Decision Making, Racial and Ethnic Minorities, Racial and Ethnic Minorities, Clinician-Patient Communication
Lee SC, Marks EG, Sanders JM
Elucidating patient-perceived role in "decision-making" among African Americans receiving lung cancer care through a county safety-net system.
The researchers explored patient-perceived role in "decision-making" related to active treatment and palliation among African Americans receiving lung cancer care through a county safety-net system. They found that caregivers and patients expressed a concurrent lack of understanding of their prognosis and outcomes of treatment. Dyads did not discuss their lung cancer experience in terms of decision-making; rather, most articulated their role as following physician guidance.
AHRQ-funded; HS022418.
Citation: Lee SC, Marks EG, Sanders JM .
Elucidating patient-perceived role in "decision-making" among African Americans receiving lung cancer care through a county safety-net system.
J Cancer Surviv 2016 Feb;10(1):153-63. doi: 10.1007/s11764-015-0461-z.
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Keywords: Cancer: Lung Cancer, Cancer, Racial and Ethnic Minorities, Decision Making, Clinician-Patient Communication
Chen J, Mullins CD, Novak P
Personalized strategies to activate and empower patients in health care and reduce health disparities.
The authors proposed a patient-centered, multilevel activation and empowerment framework to inform the development of culturally informed personalized patient activation and empowerment (P-PAE) interventions to improve population health and reduce racial and ethnic disparities. They believe the P-PAE model is timely and sustainable and will be critical to engaging patients in their treatment, developing patients' abilities to manage their health, helping patients express concerns and preferences regarding treatment, empowering patients to ask questions about treatment options, and building up strategic patient-provider partnerships through shared decision making.
AHRQ-funded; HS022135.
Citation: Chen J, Mullins CD, Novak P .
Personalized strategies to activate and empower patients in health care and reduce health disparities.
Health Educ Behav 2016 Feb;43(1):25-34. doi: 10.1177/1090198115579415.
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Keywords: Decision Making, Disparities, Patient and Family Engagement, Patient-Centered Healthcare, Racial and Ethnic Minorities