National Healthcare Quality and Disparities Report
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Search All Research Studies
AHRQ Research Studies Date
Topics
- Care Coordination (1)
- (-) Caregiving (4)
- Children/Adolescents (2)
- Health Information Technology (HIT) (1)
- Home Healthcare (1)
- Hospital Discharge (2)
- Hospitals (2)
- Newborns/Infants (1)
- Patient-Centered Healthcare (1)
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- Patient and Family Engagement (1)
- Patient Experience (1)
- Quality Measures (1)
- Stress (1)
- (-) Transitions of Care (4)
AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 4 of 4 Research Studies DisplayedAmar-Dolan LG, Horn MH, O'Connell B B
"This is how hard it is". family experience of hospital-to-home transition with a tracheostomy.
This study explores the experience of family caregivers of children and young adults with a tracheostomy during the transition from hospital to home care. Researchers sought to identify the specific unmet needs of families to direct future interventions. Using semi-structured interviews, they found a need for family-centered discharge processes including coordination of care and teaching focused on emergency preparedness.
AHRQ-funded; HS000063.
Citation: Amar-Dolan LG, Horn MH, O'Connell B B .
"This is how hard it is". family experience of hospital-to-home transition with a tracheostomy.
Ann Am Thorac Soc 2020 Jul;17(7):860-68. doi: 10.1513/AnnalsATS.201910-780OC..
Keywords: Transitions of Care, Home Healthcare, Caregiving, Patient Experience, Care Coordination, Hospital Discharge, Hospitals, Children/Adolescents, Patient-Centered Healthcare
Fuller TE, Pong DD, Piniella N
Interactive digital health tools to engage patients and caregivers in discharge preparation: implementation study.
This clinical trial studied implementation of a suite of EHR-integrated digital health tools to engage patients, caregivers, and clinicians in discharge preparation during hospitalization. Patients who were enrolled agreed to watch a discharge video, complete a checklist assessing discharge readiness, and request postdischarge text messaging with a physician 24 to 48 hours before their expected discharge date. Out of 752 patient admissions, from December 2017 to July 2018, 510 participated, 416 watched the video and completed the checklist, and 94 completed only the checklist. Most patients endorsed the tools, but felt that the video and checklist would be more useful closer to the actual discharge date. Clinicians participating in focus groups perceived the value for patients but felt that there were a number of limitations including low awareness and variable workflow regarding the intervention. A number of strategies were offered by the authors to address implementation barriers and promote adoption of these tools.
AHRQ-funded; HS024751.
Citation: Fuller TE, Pong DD, Piniella N .
Interactive digital health tools to engage patients and caregivers in discharge preparation: implementation study.
J Med Internet Res 2020 Apr 28;22(4):e15573. doi: 10.2196/15573..
Keywords: Health Information Technology (HIT), Patient and Family Engagement, Caregiving, Hospital Discharge, Transitions of Care, Hospitals
Desai AD, Jacob-Files EA, Lowry SJ
Development of a caregiver-reported experience measure for pediatric hospital-to-home transitions.
The objective for this study was to develop and test a caregiver-reported experience measure for pediatric hospital-to-home transitions. An eight-item caregiver-reported experience measure to evaluate hospital-to-home transition outcomes in pediatric populations demonstrated acceptable content validity and psychometric properties.
AHRQ-funded; HS024299.
Citation: Desai AD, Jacob-Files EA, Lowry SJ .
Development of a caregiver-reported experience measure for pediatric hospital-to-home transitions.
Health Serv Res 2018 Aug;53 Suppl 1:3084-106. doi: 10.1111/1475-6773.12864..
Keywords: Caregiving, Children/Adolescents, Patient-Centered Outcomes Research, Quality Measures, Transitions of Care
Garfield CF, Simon CD, Rutsohn J
Stress from the neonatal intensive care unit to home: paternal and maternal cortisol rhythms in parents of premature infants.
The purpose of the study was to examine cortisol diurnal rhythms, a physiologic marker of stress, over the transition from the critical care setting to home for fathers and mothers of very low-birth-weight infants, including how cortisol is associated with psychosocial stress and parenting sense of competence. The investigators noted that fathers may be especially susceptible to stressors during this transition.
AHRQ-funded; HS020316.
Citation: Garfield CF, Simon CD, Rutsohn J .
Stress from the neonatal intensive care unit to home: paternal and maternal cortisol rhythms in parents of premature infants.
J Perinat Neonatal Nurs 2018 Jul/Sep;32(3):257-65. doi: 10.1097/jpn.0000000000000296..
Keywords: Caregiving, Newborns/Infants, Newborns/Infants, Stress, Transitions of Care