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- Autism (1)
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 25 of 28 Research Studies DisplayedSon H, Nahm ES
Older adults' experience using patient portals in communities: challenges and opportunities.
The purpose of this study was to assess the perceived usability of patient portals currently used by older adults. 272 older adults were recruited from an online trial testing the effects of a 3-week Theory-Based Patient Portal eLearning Program. Self-efficacy and perceived usability of patient portals were both low; difficulties with using patient portals were primarily associated with login/access and specific portal functions. Favored features were review of medical information and eMessaging.
AHRQ-funded; HS024739.
Citation: Son H, Nahm ES .
Older adults' experience using patient portals in communities: challenges and opportunities.
Comput Inform Nurs 2019 Jan;37(1):4-10. doi: 10.1097/cin.0000000000000476..
Keywords: Clinician-Patient Communication, Communication, Elderly, Electronic Health Records (EHRs), Health Information Technology (HIT), Patient Experience, Web-Based
Walker DM, Hefner JL, Sieck CJ
Framework for evaluating and implementing inpatient portals: a multi-stakeholder perspective.
Inpatient portals are emerging as an important tool to support patient care and are increasingly being adopted in hospitals. However, best practices concerning the implementation, use, and impact of these portals are poorly understood. To improve evaluation and implementation efforts, this paper develops a logic model that can help researchers and hospital managers in deploying and assessing the impact of inpatient portals.
AHRQ-funded; HS024349; HS024091.
Citation: Walker DM, Hefner JL, Sieck CJ .
Framework for evaluating and implementing inpatient portals: a multi-stakeholder perspective.
J Med Syst 2018 Jul 16;42(9):158. doi: 10.1007/s10916-018-1009-3..
Keywords: Electronic Health Records (EHRs), Health Services Research (HSR), Hospitals, Web-Based
Bush RA, Richardson AC, Cardona-Grau D
Patient portal usage in pediatric urology: is it meaningful use for everyone?
This study examined pediatric urology patient portal enrollment and activation patterns at a tertiary pediatric hospital in Southern California by race/ethnicity, preferred language, gender, and residential region. The study concluded that primary language and socioeconomic factors may be significant barriers to portal adoption. Patient education to reduce these barriers may increase portal acceptance and increase meaningfulness to the portal for patients/parents and providers.
AHRQ-funded; HS022404.
Citation: Bush RA, Richardson AC, Cardona-Grau D .
Patient portal usage in pediatric urology: is it meaningful use for everyone?
Urol Pract 2018 Jul;5(4):279-85. doi: 10.1016/j.urpr.2017.05.002..
Keywords: Education: Patient and Caregiver, Electronic Health Records (EHRs), Health Information Technology (HIT), Patient and Family Engagement, Web-Based
Nystrom DT, Singh H, Baldwin J
Methods for patient-centered interface design of test result display in online portals.
However, current patient portals are not designed in a patient-centered way and little is known on how best to harness patients' information needs to inform user-centered interface design of portals. The researchers designed a patient-facing laboratory test result interface prototype based on requirement elicitation research and used a mixed-methods approach to evaluate this interface.
AHRQ-funded; HS023602.
Citation: Nystrom DT, Singh H, Baldwin J .
Methods for patient-centered interface design of test result display in online portals.
eGEMS 2018 Jun 26;6(1):15. doi: 10.5334/egems.255..
Keywords: Electronic Health Records (EHRs), Patient-Centered Healthcare, System Design, Web-Based
Grossman LV, Choi SW, Collins S
Implementation of acute care patient portals: recommendations on utility and use from six early adopters.
This paper provides recommendations on how to most effectively implement advanced features of acute care patient portals, including: (1) patient-provider communication, (2) care plan information, (3) clinical data viewing, (4) patient education, (5) patient safety, (6) caregiver access, and (7) hospital amenities. One specific recommendation was that stakeholders in acute care patient portals should consider the benefits and challenges of generic and structured electronic care team messaging.
AHRQ-funded; HS021816; HS023613; HS023535; HS024349.
Citation: Grossman LV, Choi SW, Collins S .
Implementation of acute care patient portals: recommendations on utility and use from six early adopters.
J Am Med Inform Assoc 2018 Apr;25(4):370-79. doi: 10.1093/jamia/ocx074.
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Keywords: Critical Care, Electronic Health Records (EHRs), Patient Safety, Clinician-Patient Communication, Web-Based
Giardina TD, Baldwin J, Nystrom DT
Patient perceptions of receiving test results via online portals: a mixed-methods study.
The researchers conducted a mixed-methods study to explore patients' experiences and preferences when accessing their test results via online portals. They found that nearly two-thirds (63 percent) did not receive any explanatory information or test result interpretation at the time they received the result. Patients experienced negative emotions often with abnormal results, but sometimes even with normal results.
AHRQ-funded; HS023602; HS022087.
Citation: Giardina TD, Baldwin J, Nystrom DT .
Patient perceptions of receiving test results via online portals: a mixed-methods study.
J Am Med Inform Assoc 2018 Apr;25(4):440-46. doi: 10.1093/jamia/ocx140.
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Keywords: Electronic Health Records (EHRs), Patient Experience, Patient and Family Engagement, Clinician-Patient Communication, Web-Based
Yen PY, Walker DM, Smith JMG
Usability evaluation of a commercial inpatient portal.
The authors aimed to understand how users interact with, learn to use, and communicate with their providers through an inpatient portal. They found that participants frequently made operational errors in navigation and assuming non-existent functionalities; participants' learning styles varied, with age as a potential factor that influenced how they learned MyChart Bedside; and participants preferred to message providers individually and wanted feedback on status. They concluded that, for inpatient portals to be effective in promoting patient engagement, it remains critical for technology developers and hospital administrators to understand how users interact with this technology and the resources that may be necessary to support its use.
AHRQ-funded; HS024091.
Citation: Yen PY, Walker DM, Smith JMG .
Usability evaluation of a commercial inpatient portal.
Int J Med Inform 2018 Feb;110:10-18. doi: 10.1016/j.ijmedinf.2017.11.007.
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Keywords: Electronic Health Records (EHRs), Health Information Technology (HIT), Inpatient Care, Patient and Family Engagement, Web-Based
Ali SB, Romero J, Morrison K
Focus section health it usability: applying a task-technology fit model to adapt an electronic patient portal for patient work.
Although electronic patient portals are offered by most health care organizations, poor usability and poor fit to patient needs may pose barriers to adoption. In this study, the investigators collaborated with an academic hospital to conduct iterative user evaluation of a newly deployed portal designed to deliver inpatient data upon hospital discharge.
AHRQ-funded; HS021531.
Citation: Ali SB, Romero J, Morrison K .
Focus section health it usability: applying a task-technology fit model to adapt an electronic patient portal for patient work.
Appl Clin Inform 2018 Jan;9(1):174-84. doi: 10.1055/s-0038-1632396..
Keywords: Electronic Health Records (EHRs), Health Information Technology (HIT), Health Information Technology (HIT), Web-Based
Huerta TR, McAlearney AS, Rizer MK
Introducing a patient portal and electronic tablets to inpatient care.
The researchers implemented a pilot inpatient portal (MyChart Bedside [Epic Systems]) using Android tablets to provide patients and their families and caregivers with an expected care plan each day, a roster of the care team, the ability to exchange secure messages with the care team, a way to write and save notes, and access to health information. They conducted the 90-day pilot program in 15 rooms on 1 patient unit in each of 2 hospitals and gave tablets to 179 patients. They found that patients wanted immediate access to laboratory results, that patients admitted for 1-2 days found the tablets less important, that those readmitted insisted on having a tablet, and that those with their own electronic devices were less likely to accept the tablet.
AHRQ-funded; HS024091.
Citation: Huerta TR, McAlearney AS, Rizer MK .
Introducing a patient portal and electronic tablets to inpatient care.
Ann Intern Med 2017 Dec 5;167(11):816-17. doi: 10.7326/m17-1766.
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Keywords: Health Information Technology (HIT), Hospitalization, Inpatient Care, Web-Based, Electronic Health Records (EHRs)
Sakaguchi-Tang DK, Bosold AL, Choi YK
Patient portal use and experience among older adults: systematic review.
The aim of this review was to assess the existing research landscape related to patient portal and electronic personal health records (ePHRs) use and experience among older adults and to understand the benefits and barriers to older adults' use and adoption of patient portals and ePHRs. Overall, it found 2 main barriers to use: (1) privacy and security and (2) access to and ability to use technology and the Internet.
AHRQ-funded; HS022106.
Citation: Sakaguchi-Tang DK, Bosold AL, Choi YK .
Patient portal use and experience among older adults: systematic review.
JMIR Med Inform 2017 Oct 16;5(4):e38. doi: 10.2196/medinform.8092.
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Keywords: Elderly, Electronic Health Records (EHRs), Patient Experience, Web-Based
Lyles CR, Fruchterman J, Youdelman M
Legal, practical, and ethical considerations for making online patient portals accessible for all.
The authors argue that there are potential legal mandates for improving portal accessibility (e.g., the Civil Rights and the Rehabilitation Acts), as well as ethical considerations to prevent the exacerbation of existing health and health care disparities. To address these legal, practical, and ethical considerations, they present standards and broad recommendations that could greatly improve the reach and impact of portal Web sites.
AHRQ-funded; HS022408.
Citation: Lyles CR, Fruchterman J, Youdelman M .
Legal, practical, and ethical considerations for making online patient portals accessible for all.
Am J Public Health 2017 Oct;107(10):1608-11. doi: 10.2105/ajph.2017.303933.
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Keywords: Health Information Technology (HIT), Web-Based, Education: Patient and Caregiver, Electronic Health Records (EHRs)
Franklin P, Chenok K, Lavalee D
Framework to guide the collection and use of patient-reported outcome measures in the learning healthcare system.
Web-based collection of patient-reported outcome measures (PROMs) in clinical practice is expanding rapidly as electronic health records include web portals for patients to report standardized assessments of their symptoms. As the value of PROMs in patient care expands, a framework to guide the implementation planning, collection, and use of PROs to serve multiple goals and stakeholders is needed. In this study, researchers identified diverse clinical, quality, and research settings where PROMs have been successfully integrated into care and routinely collected and analyzed drivers of successful implementation.
AHRQ-funded; HS022789.
Citation: Franklin P, Chenok K, Lavalee D .
Framework to guide the collection and use of patient-reported outcome measures in the learning healthcare system.
eGEMS 2017 Sep 4;5(1):17. doi: 10.5334/egems.227..
Keywords: Learning Health Systems, Health Systems, Electronic Health Records (EHRs), Health Information Technology (HIT), Web-Based, Patient-Centered Healthcare
Bowen ME, Merchant Z, Abdullah K
Patient, provider, and system factors associated with failure to follow-up elevated glucose results in patients without diagnosed diabetes.
Patient, provider, and system factors associated with failure to follow-up elevated glucose values in electronic medical records (EMRs) are not well described. The researchers conducted a chart review in a comprehensive EMR with a patient portal and results management features but found no associations between patient characteristics, diabetes risk factors, or provider characteristics and follow-up failures.
AHRQ-funded; HS022418.
Citation: Bowen ME, Merchant Z, Abdullah K .
Patient, provider, and system factors associated with failure to follow-up elevated glucose results in patients without diagnosed diabetes.
Health Serv Res Manag Epidemiol 2017 Aug 29;4:2333392817721647. doi: 10.1177/2333392817721647.
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Keywords: Diabetes, Electronic Health Records (EHRs), Web-Based, Patient-Centered Healthcare, Diagnostic Safety and Quality
Bush RA, Connelly CD, Perez A
Physician perception of the role of the patient portal in pediatric health.
Little information regarding physician opinion of the patient portal is available, with almost no information gathered in the pediatric environment. Using a mixed-methods approach, physicians in a large pediatric medical facility and integrated delivery network were surveyed by online quantitative questionnaire and structured interviews. Physicians reported the portal's role in more communication efficiency for patients, parents, and providers.
AHRQ-funded; HS022404.
Citation: Bush RA, Connelly CD, Perez A .
Physician perception of the role of the patient portal in pediatric health.
J Ambul Care Manage 2017 Jul/Sep;40(3):238-45. doi: 10.1097/jac.0000000000000175.
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Keywords: Children/Adolescents, Electronic Health Records (EHRs), Provider: Health Personnel, Clinician-Patient Communication, Web-Based
Morrow D, Hasegawa-Johnson M, Huang T
A multidisciplinary approach to designing and evaluating electronic medical record portal messages that support patient self-care.
The authors describe a project intended to improve the use of Electronic Medical Record (EMR) patient portal information by older adults with diverse numeracy and literacy abilities, so that portals can better support patient-centered care. Their approach combines quantitative measures, as well as experimental and individual difference methods in order to investigate which formats are more effective, and whether some formats benefit some types of patients more than others.
AHRQ-funded; HS022948.
Citation: Morrow D, Hasegawa-Johnson M, Huang T .
A multidisciplinary approach to designing and evaluating electronic medical record portal messages that support patient self-care.
J Biomed Inform 2017 May;69:63-74. doi: 10.1016/j.jbi.2017.03.015.
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Keywords: Elderly, Electronic Health Records (EHRs), Health Literacy, Patient Self-Management, Web-Based
Tieu L, Schillinger D, Sarkar U
Online patient websites for electronic health record access among vulnerable populations: portals to nowhere?
The objective of this study was to examine specific usability barriers to patient portal engagement among a diverse group of patients and caregivers. In navigating the portal, participants experienced basic computer barriers (eg, difficulty using a mouse), routine computer barriers (eg, mistyping, navigation issues), reading/writing barriers, and medical content barriers.
AHRQ-funded; HS022408; HS022561.
Citation: Tieu L, Schillinger D, Sarkar U .
Online patient websites for electronic health record access among vulnerable populations: portals to nowhere?
J Am Med Inform Assoc 2017 Apr 1;24(e1):e47-e54. doi: 10.1093/jamia/ocw098.
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Keywords: Electronic Health Records (EHRs), Health Information Technology (HIT), Health Literacy, Vulnerable Populations, Web-Based
Ancker JS, Mauer E, Hauser D
Expanding access to high-quality plain-language patient education information through context-specific hyperlinks.
A federally qualified health center (FQHC) sought to help patients interpret their records by embedding context-specific hyperlinks to plain-language patient education materials in its portal. Black patients, Latino patients comfortable using English, and patients covered by Medicaid were more likely to use the informational hyperlinks than other patients.
AHRQ-funded; HS021531.
Citation: Ancker JS, Mauer E, Hauser D .
Expanding access to high-quality plain-language patient education information through context-specific hyperlinks.
AMIA Annu Symp Proc 2017 Feb 10;2016:277-84.
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Keywords: Education: Patient and Caregiver, Electronic Health Records (EHRs), Health Information Technology (HIT), Web-Based
Lyles CR, Allen JY, Poole D
"I want to keep the personal relationship with my doctor": Understanding barriers to portal use among African Americans and Latinos.
The investigators sought to understand specific barriers to portal use among African American and Latino patients at Kaiser Permanente, which has had a portal in place for over a decade. Their findings suggest that uniform adoption of portal use across diverse patient groups requires more usable, more personalized websites, which may be particularly important for reducing health care disparities.
AHRQ-funded; HS022408.
Citation: Lyles CR, Allen JY, Poole D .
"I want to keep the personal relationship with my doctor": Understanding barriers to portal use among African Americans and Latinos.
J Med Internet Res 2016 Oct 3;18(10):e263. doi: 10.2196/jmir.5910.
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Keywords: Disparities, Electronic Health Records (EHRs), Clinician-Patient Communication, Racial and Ethnic Minorities, Web-Based
Bush RA, Stahmer AC, Connelly CD
Exploring perceptions and use of the electronic health record by parents of children with autism spectrum disorder: a qualitative study.
This study used structured interviews with nine parents to examine perceptions of electronic health records and related patient portals in the treatment of their children. The authors recommend further research to increase portal registration and integration in patient care.
AHRQ-funded; HS022404.
Citation: Bush RA, Stahmer AC, Connelly CD .
Exploring perceptions and use of the electronic health record by parents of children with autism spectrum disorder: a qualitative study.
Health Informatics J 2016 Sep;22(3):702-11. doi: 10.1177/1460458215581911.
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Keywords: Autism, Electronic Health Records (EHRs), Web-Based, Patient Experience, Education: Patient and Caregiver
Bajracharya AS, Crotty BH, Kowaloff HB
Improving health care proxy documentation using a web-based interview through a patient portal.
The authors sought to develop and evaluate a web-based interview to assist patients with health care proxy documentation to be included in the patients' electronic health record. They implemented the interview within the patient portal of an academic health system and analyzed the experience of the first 200 patients to complete it. The patients found the online interview convenient and helpful in establishing a healthcare proxy.
AHRQ-funded; HS021495.
Citation: Bajracharya AS, Crotty BH, Kowaloff HB .
Improving health care proxy documentation using a web-based interview through a patient portal.
J Am Med Inform Assoc 2016 May;23(3):580-7. doi: 10.1093/jamia/ocv133.
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Keywords: Web-Based, Electronic Health Records (EHRs), Health Information Technology (HIT)
Lyles CR, Sarkar U, Schillinger D
Refilling medications through an online patient portal: consistent improvements in adherence across racial/ethnic groups.
The researchers evaluated longitudinal changes in statin adherence to determine whether racial/ethnic minorities initiating use of the online refill function in patient portals had similar changes over time compared with whites. Their examination of a retrospective cohort of diabetes patients who were existing patient portal users found that all racial/ethnic minority groups had poorer baseline statin adherence compared with whites.
AHRQ-funded; HS022408.
Citation: Lyles CR, Sarkar U, Schillinger D .
Refilling medications through an online patient portal: consistent improvements in adherence across racial/ethnic groups.
J Am Med Inform Assoc 2016 Apr;23(e1):e28-e33. doi: 10.1093/jamia/ocv126.
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Keywords: Medication, Web-Based, Patient Adherence/Compliance, Electronic Health Records (EHRs), Racial and Ethnic Minorities
Tieu L, Sarkar U, Schillinger D
Barriers and facilitators to online portal use among patients and caregivers in a safety net health care system: a qualitative study.
The researchers explored patient and caregiver perspectives on online patient portal use before its implementation at San Francisco General Hospital. Despite concerns about security, difficulty understanding medical information, and satisfaction with current communication processes, respondents generally expressed enthusiasm about portal use. Their findings suggest a strong need for training and support to assist vulnerable patients with portal registration and use, particularly those with limited health literacy.
AHRQ-funded; HS022561; HS022047; HS022408.
Citation: Tieu L, Sarkar U, Schillinger D .
Barriers and facilitators to online portal use among patients and caregivers in a safety net health care system: a qualitative study.
J Med Internet Res 2015 Dec 03;17(12):e275. doi: 10.2196/jmir.4847.
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Keywords: Web-Based, Electronic Health Records (EHRs), Health Information Technology (HIT), Health Literacy
Lyles C, Schillinger D, Sarkar U
Connecting the dots: health information technology expansion and health disparities.
The authors argue that early evidence links EHR and portal use to better healthcare processes and health outcomes. Promoting patient engagement with health technology such as portals is challenging, and rapid expansion of portals could exacerbate existing healthcare disparities if only well-resourced individuals use these websites.
AHRQ-funded; HS023558; HS022408; HS022047.
Citation: Lyles C, Schillinger D, Sarkar U .
Connecting the dots: health information technology expansion and health disparities.
PLoS Med 2015 Jul 14;12(7):e1001852. doi: 10.1371/journal.pmed.1001852..
Keywords: Disparities, Electronic Health Records (EHRs), Health Information Technology (HIT), Patient and Family Engagement, Web-Based
Callen J, Giardina TD, Singh H
Emergency physicians' views of direct notification of laboratory and radiology results to patients using the Internet: a multisite survey.
The authors explored emergency physicians' current practices of test result notification and attitudes to direct patient notification of clinically significant abnormal and normal test results. They found that more than half of the emergency physicians were uncomfortable with patients receiving direct notification of normal or abnormal test results. Main concerns were that patients could be anxious, confused, and lacking in the necessary expertise to interpret their results.
AHRQ-funded; HS022087.
Citation: Callen J, Giardina TD, Singh H .
Emergency physicians' views of direct notification of laboratory and radiology results to patients using the Internet: a multisite survey.
J Med Internet Res 2015 Mar 4;17(3):e60. doi: 10.2196/jmir.3721.
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Keywords: Communication, Electronic Health Records (EHRs), Emergency Medical Services (EMS), Provider: Health Personnel, Web-Based
Turner A, Osterhage K, Joe J
Use of patient portals: personal health information management in older adults.
This paper described initial results from the SOARING (Studying Older Adults & Researching Information Needs and Goals) study at the University of Washington, a participatory design investigation of personal health information management (PHIM) in older adults. Its findings indicate that patient portals designed to target the specific needs for older adults can support PHIM.
AHRQ-funded; HS022106.
Citation: Turner A, Osterhage K, Joe J .
Use of patient portals: personal health information management in older adults.
Stud Health Technol Inform 2015;216:978..
Keywords: Elderly, Electronic Health Records (EHRs), Health Information Technology (HIT), Web-Based