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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
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1 to 6 of 6 Research Studies DisplayedJacobson CE, Heximer A, Olmeda-Barrientos R
Language accessibility of liver transplantation center websites.
This research letter describes an analysis of language accessibility of liver transplantation center websites. The authors surveyed patient-facing educational websites of all 140 active, accredited US liver transplantation centers. Thirty-eight states and the District of Columbia had websites. Inclusion criteria was that they were using the Organ Procurement and Transplantation Network website. They analyzed each website for non-English content. Excluded were websites from Puerto Rico, as Spanish is the predominant governmental language. A total of 23 states had no transplant websites with online materials in a second language, and 34 sites (24.3%) had resources other than English on their website. California had the highest number of centers with resources in a language other than English, followed by Texas and New York. Spanish was the most common language available at 100% of sites that had resources other than English, followed by Arabic at 38.9% and Mandarin Chinese at 38.9%. A total of 108 different languages were represented among 10 state websites.
AHRQ-funded; HS000053.
Citation: Jacobson CE, Heximer A, Olmeda-Barrientos R .
Language accessibility of liver transplantation center websites.
Liver Transpl 2022 Apr; 28(4):722-24. doi: 10.1002/lt.26343..
Keywords: Transplantation, Clinician-Patient Communication, Communication, Health Information Technology (HIT), Health Literacy
Henderson ML, Adler JT, Van Pilsum Rasmussen SE
How should social media be used in transplantation? A survey of the American Society of Transplant Surgeons.
The authors investigated how social media-driven communication is perceived by providers in the field of transplantation. 299 members of the American Society of Transplant Surgeons were surveyed regarding their use of, attitudes toward, and perceptions of social media; the authors analyzed relationships between their responses and participant characteristics. The authors found that individual characteristics influence opinions about the role and clinical usefulness of social media. They concluded that increasing use of social media among transplant professionals may provide an opportunity to deliver high-quality information to patients.
AHRQ-funded; HS024600.
Citation: Henderson ML, Adler JT, Van Pilsum Rasmussen SE .
How should social media be used in transplantation? A survey of the American Society of Transplant Surgeons.
Transplantation 2019 Mar;103(3):573-80. doi: 10.1097/tp.0000000000002243..
Keywords: Transplantation, Social Media, Clinician-Patient Communication, Communication, Provider: Physician
Novogrodsky E, Yaghoubian A, Connor SE
The role of media in non-directed (altruistic) living kidney donation.
This study sought to characterize how non-directed living kidney donors use media and informational resources over the course of their kidney donation journey. The investigators conducted semi-structured interviews with non-directed donors (NDDs) who initiated kidney transplant chains. The investigators concluded that media and informational resources play an important role in the process of donation for NDDs, including inspiring interest in donation through personal narratives.
AHRQ-funded; HS000029.
Citation: Novogrodsky E, Yaghoubian A, Connor SE .
The role of media in non-directed (altruistic) living kidney donation.
Health Commun 2019 Feb;34(2):259-67. doi: 10.1080/10410236.2017.1405480..
Keywords: Kidney Disease and Health, Transplantation, Shared Decision Making, Communication, Education: Patient and Caregiver
Ruck JM, Henderson ML, Eno AK
Use of Twitter in communicating living solid organ donation information to the public: an exploratory study of living donors and transplant professionals.
As transplant centers start leveraging Twitter for information dissemination and public engagement, it is important to understand current living solid organ donation-related Twitter use. This paper investigated use of Twitter in communicating living solid organ donation information to the public. It provides insight into how the social media platform may be used to communicate about and disseminate information about living donation.
AHRQ-funded; HS023876.
Citation: Ruck JM, Henderson ML, Eno AK .
Use of Twitter in communicating living solid organ donation information to the public: an exploratory study of living donors and transplant professionals.
Clin Transplant 2019 Jan;33(1):e13447. doi: 10.1111/ctr.13447..
Keywords: Transplantation, Social Media, Communication, Education: Patient and Caregiver
Traino HM, West SM, Nonterah CW
Communicating About Choices in Transplantation (COACH).
This article presents pilot results of the behavioral communication intervention program, Communicating about Choices in Transplantation (COACH), designed to improve transplant candidates' communication about transplantation. The authors indicate that results provided preliminary support for the program's impact. Moreover, participant evaluations of the COACH were overwhelmingly positive. They noted that a more definitive program evaluation with a larger, more diverse sample is currently underway.
AHRQ-funded; HS018113; HS021312.
Citation: Traino HM, West SM, Nonterah CW .
Communicating About Choices in Transplantation (COACH).
Prog Transplant 2017 Mar;27(1):31-38. doi: 10.1177/1526924816679844..
Keywords: Clinician-Patient Communication, Communication, Shared Decision Making, Education: Patient and Caregiver, Kidney Disease and Health, Transplantation
Traino HM, Nonterah CW, Gupta G
Living kidney donors' information needs and preferences.
The purpose of this study was to assess donors' perceptions of the information provided while considering living donation. The study revealed limited usefulness of certain CMS-mandated topics and a desire for additional information about donation. Efforts to standardize the informed consent process should incorporate donors' perspectives as to the specific topics, quantity of information, and the mode of communication found most useful when considering living donation.
AHRQ-funded; HS018113; HS021312.
Citation: Traino HM, Nonterah CW, Gupta G .
Living kidney donors' information needs and preferences.
Prog Transplant 2016 Mar;26(1):47-54. doi: 10.1177/1526924816633943.
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Keywords: Communication, Shared Decision Making, Transplantation