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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
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1 to 2 of 2 Research Studies DisplayedSisic M, Kirby JS, Boyal S
Development of a quality-of-life measure for hidradenitis suppurativa.
The objective of this study was to develop a QoL instrument for hidradenitis suppurativa (HS-QoL) in accordance with recommended standards. : Concept elicitation interviews with patients with HS generated 12 themes. Most frequently reported were impacts on daily activities and symptoms due to HS. These themes, along with literature review and input from clinical experts, informed development of the HS-QoL-v1.
AHRQ-funded; HS024585.
Citation: Sisic M, Kirby JS, Boyal S .
Development of a quality-of-life measure for hidradenitis suppurativa.
J Cutan Med Surg 2017 Mar/Apr;21(2):152-55. doi: 10.1177/1203475416677721.
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Keywords: Patient Experience, Quality Measures, Quality of Life, Skin Conditions
Carlozzi NE, Schilling SG, Lai JS
HDQLIFE: the development of two new computer adaptive tests for use in Huntington disease, speech difficulties, and swallowing difficulties.
The authors developed a patient-reported outcome measure for use in the Huntington Disease Health-Related Quality of Life (HDQLIFE) Measurement System that focused on the impact that difficulties with speech and swallowing have on health-related quality of life in Huntington disease. These measures may have clinical utility in other populations where speech and swallowing difficulties are prevalent.
AHRQ-funded; HS023313.
Citation: Carlozzi NE, Schilling SG, Lai JS .
HDQLIFE: the development of two new computer adaptive tests for use in Huntington disease, speech difficulties, and swallowing difficulties.
Qual Life Res 2016 Oct;25(10):2417-27. doi: 10.1007/s11136-016-1273-y.
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Keywords: Neurological Disorders, Quality of Life, Patient-Centered Outcomes Research, Health Information Technology (HIT), Quality Measures