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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 5 of 5 Research Studies DisplayedBierman AS, Burke BT, Comfort LN
AHRQ Author: Bierman AS, Burke BT, Comfort LN, Gerstein M, Mueller NM, Umscheid CA
From precision medicine to precision care: choosing and using precision medicine in the context of multimorbidity.
Swift progress in personalized medicine offers significant potential to decrease disease and death rates for numerous health issues. To maximize the advantages of personalized medicine and minimize negative outcomes, addressing real-world obstacles in applying this research to clinical practice is crucial. A primary challenge involves selecting and employing personalized medicine approaches in everyday practice, considering the care of a substantial portion of individuals with multiple coexisting conditions. Personalized medicine should be incorporated into a broader framework of individualized care, which takes into account factors that impact the efficacy of specific treatments. Individualized care combines a patient-focused approach with personalized medicine to guide decision-making and care plans, considering multiple health conditions, functional ability, personal values, goals, preferences, and social and societal contexts. Creating dissemination and implementation strategies for personalized medicine centered around individualized care can enhance patient-centric quality and health outcomes, direct interventions toward those who will benefit most, improve access to novel treatments, reduce the likelihood of treatment withdrawal due to unforeseen side effects, and promote health equity by customizing interventions and care for diverse individuals and communities. Delivering personalized medicine within the scope of individualized care supports respectful treatment that aligns with patient preferences, values, and objectives, fostering trust and offering necessary information for informed decision-making. Accelerating its adoption demands focus on the entire translational research continuum: devising innovative methods, proving their value, disseminating and implementing findings, and involving patients throughout the process. This includes basic science, preclinical and clinical research, and integration into practice, all aimed at enhancing health. This paper scrutinizes the challenges in adopting personalized medicine in the presence of multiple health conditions. The authors conclude that while the promise of personalized medicine is immense, proactive measures are essential to prevent unintended repercussions and ensure its equitable and efficient implementation.
AHRQ-authored: All.
Citation: Bierman AS, Burke BT, Comfort LN .
From precision medicine to precision care: choosing and using precision medicine in the context of multimorbidity.
Cambridge Prisms: Precision Medicine 2023 Feb 21;1:e19. doi:10.1017/pcm.2023.8.
Keywords: Learning Health Systems, Patient-Centered Healthcare, Evidence-Based Practice, Patient-Centered Outcomes Research
Bierman AS, Tong ST, McNellis RJ
AHRQ Author: Bierman AS, Tong ST, McNellis RJ
Realizing the dream: the future of primary care research.
In this article, the authors discussed the primary care research central to successful primary care transformation and to realizing the vision of a high-performing US health system to serve effectively all Americans and their communities while advancing health equity.
AHRQ-authored.
Citation: Bierman AS, Tong ST, McNellis RJ .
Realizing the dream: the future of primary care research.
Ann Fam Med 2022 Mar-Apr;20(2):170-74. doi: 10.1370/afm.2788..
Keywords: Primary Care, Healthcare Delivery, Evidence-Based Practice, Health Systems, Learning Health Systems, Patient-Centered Healthcare
Mullins CD, Wingate LT, Edwards HA
Transitioning from learning healthcare systems to learning health care communities.
The learning healthcare system (LHS) model framework has three core, foundational components. These include an infrastructure for health-related data capture, care improvement targets and a supportive policy environment. This paper discusses transitioning from learning healthcare systems to learning healthcare communities.
AHRQ-funded; HS022135.
Citation: Mullins CD, Wingate LT, Edwards HA .
Transitioning from learning healthcare systems to learning health care communities.
J Comp Eff Res 2018 Jun;7(6):603-14. doi: 10.2217/cer-2017-0105..
Keywords: Community-Based Practice, Healthcare Delivery, Learning Health Systems, Patient-Centered Healthcare
Kamal AH, Kirkland KB, Meier DE
A person-centered, registry-based learning health system for palliative care: a path to coproducing better outcomes, experience, value, and science.
In this paper, the authors discuss measurement of the impact of palliative care, which is critical for determining what works for which patients in what settings, to learn, improve care, and ensure access to high value care for people with serious illness. The authors described an approach to codesigning and implementing a palliative care registry that functions as a learning health system, by combining patient and family inputs and clinical data to support person-centered care, quality improvement, accountability, transparency, and scientific research.
AHRQ-funded; HS023681.
Citation: Kamal AH, Kirkland KB, Meier DE .
A person-centered, registry-based learning health system for palliative care: a path to coproducing better outcomes, experience, value, and science.
J Palliat Med 2018 Mar;21(S2):S61-s67. doi: 10.1089/jpm.2017.0354..
Keywords: Palliative Care, Patient-Centered Healthcare, Patient-Centered Outcomes Research, Outcomes, Learning Health Systems, Registries, Patient and Family Engagement
Franklin P, Chenok K, Lavalee D
Framework to guide the collection and use of patient-reported outcome measures in the learning healthcare system.
Web-based collection of patient-reported outcome measures (PROMs) in clinical practice is expanding rapidly as electronic health records include web portals for patients to report standardized assessments of their symptoms. As the value of PROMs in patient care expands, a framework to guide the implementation planning, collection, and use of PROs to serve multiple goals and stakeholders is needed. In this study, researchers identified diverse clinical, quality, and research settings where PROMs have been successfully integrated into care and routinely collected and analyzed drivers of successful implementation.
AHRQ-funded; HS022789.
Citation: Franklin P, Chenok K, Lavalee D .
Framework to guide the collection and use of patient-reported outcome measures in the learning healthcare system.
eGEMS 2017 Sep 4;5(1):17. doi: 10.5334/egems.227..
Keywords: Learning Health Systems, Health Systems, Electronic Health Records (EHRs), Health Information Technology (HIT), Web-Based, Patient-Centered Healthcare