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Search All Research Studies
Topics
- Caregiving (1)
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- Education: Patient and Caregiver (1)
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 9 of 9 Research Studies DisplayedWard TM, Skubic M, Rantz M
Human-centered approaches that integrate sensor technology across the lifespan: opportunities and challenges.
Children, parents, older adults, and caregivers routinely use sensor technology as a source of health information and health monitoring. The purpose of this paper was to describe three exemplars of research that used a human-centered approach to engage participants in the development, design, and usability of interventions that integrate technology to promote health. The exemplars were based on current research studies that integrated sensor technology into pediatric, adult, and older adult populations living with a chronic health condition.
AHRQ-funded; HS018477.
Citation: Ward TM, Skubic M, Rantz M .
Human-centered approaches that integrate sensor technology across the lifespan: opportunities and challenges.
Nurs Outlook 2020 Nov-Dec;68(6):734-44. doi: 10.1016/j.outlook.2020.05.004..
Keywords: Health Information Technology (HIT), Patient and Family Engagement, Health Services Research (HSR), Research Methodologies
Armstrong MJ, Gamez N, Alliance S
Research priorities of caregivers and individuals with dementia with Lewy bodies: an interview study.
The authors investigated the research priorities of individuals and caregivers living with dementia with Lewy bodies (DLB). Through telephone interviews, they found that individuals with DLB and caregivers identified research needs and highlighted DLB symptoms needing additional research. They recommended that funding be informed by the priorities of all relevant stakeholders and support research investigating causes, natural history, biomarkers, and treatment in addition to research targeting themes regarding living with disease.
AHRQ-funded; HS024159.
Citation: Armstrong MJ, Gamez N, Alliance S .
Research priorities of caregivers and individuals with dementia with Lewy bodies: an interview study.
PLoS One 2020 Oct 7;15(10):e0239279. doi: 10.1371/journal.pone.0239279..
Keywords: Caregiving, Dementia, Neurological Disorders, Patient and Family Engagement, Elderly, Research Methodologies
Byham-Gray LD, Peters EN, Rothpletz-Puglia P
Patient-centered model for protein-energy wasting: stakeholder deliberative panels.
Integrating the patient's voice into research prioritization is essential for solving problems that patients care the most about in terms of health, symptom management, and survival. In this study, the investigators used deliberative processes for adapting the existing model of protein-energy wasting (PEW) to one that included stakeholder priorities, addressing gaps from the initial concept.
AHRQ-funded; HS023434.
Citation: Byham-Gray LD, Peters EN, Rothpletz-Puglia P .
Patient-centered model for protein-energy wasting: stakeholder deliberative panels.
J Ren Nutr 2020 Mar;30(2):137-44. doi: 10.1053/j.jrn.2019.06.001..
Keywords: Patient-Centered Healthcare, Patient-Centered Outcomes Research, Evidence-Based Practice, Patient and Family Engagement, Research Methodologies
Ivlev I, Vander Ley KJ, Wiedrick J
Training patients to review scientific reports for the Patient-Centered Outcomes Research Institute: an observational study.
This observational study aimed to evaluate the effect of new training for patient peer reviewers of scientific reports for the Patient-Centered Outcomes Research Institute (PCORI). A new online training in peer review was used to help change reviewers’ knowledge and skills and change self-efficacy and attitudes. Reviewers improved their answers to the knowledge questions. Median numbers of answers improved after the training, particularly in questions targeting the specifics of PCORI peer review. It modestly increased reviewers’ confidence in completing a high-quality peer review. Their excitement about providing a review slightly increased. All reviewers were satisfied with the training.
AHRQ-funded; HS026370.
Citation: Ivlev I, Vander Ley KJ, Wiedrick J .
Training patients to review scientific reports for the Patient-Centered Outcomes Research Institute: an observational study.
BMJ Open 2019 Sep;9(9):e028732. doi: 10.1136/bmjopen-2018-028732..
Keywords: Patient-Centered Outcomes Research, Evidence-Based Practice, Research Methodologies, Patient and Family Engagement, Education: Patient and Caregiver, Training
Armstrong MJ, Mullins CD, Gronseth GS
Impact of patient involvement on clinical practice guideline development: a parallel group study.
The aim of this study was to investigate the effect of patient and public involvement (PPI) on guideline question formation and validate a conceptual model of patient and public contributions to guidelines. The qualitative analysis of the discussions occurring during guideline question development demonstrated key differences in group conduct and validated the proposed conceptual model of patient and public contributions to guidelines.
AHRQ-funded; HS024159; HS022135.
Citation: Armstrong MJ, Mullins CD, Gronseth GS .
Impact of patient involvement on clinical practice guideline development: a parallel group study.
Implement Sci 2018 Apr 16;13(1):55. doi: 10.1186/s13012-018-0745-6.
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Keywords: Evidence-Based Practice, Guidelines, Patient and Family Engagement, Patient-Centered Outcomes Research, Research Methodologies
Ray KN, Miller E
Strengthening stakeholder-engaged research and research on stakeholder engagement.
The proposed exploratory framework highlights contexts and processes to be addressed in planning stakeholder engagement, and potential immediate, intermediate and long-term outcomes that warrant evaluation. The authors use this framework to illustrate both the minimum information needed for reporting stakeholder-engaged research and the comprehensive detail needed for reporting research on stakeholder engagement.
AHRQ-funded; HS022989.
Citation: Ray KN, Miller E .
Strengthening stakeholder-engaged research and research on stakeholder engagement.
J Comp Eff Res 2017 Jun;6(4):375-89. doi: 10.2217/cer-2016-0096.
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Keywords: Patient and Family Engagement, Patient-Centered Outcomes Research, Research Methodologies
Grob R, Schlesinger M, Parker AM
Breaking narrative ground: Innovative methods for rigorously eliciting and assessing patient narratives.
The researchers sought to design a methodology for rigorously eliciting narratives about patients' experiences with clinical care that is potentially useful for public reporting and quality improvement. They demonstrated that a five-question protocol that has been tested and refined yields three- to sixfold increases in completeness and four- to tenfold increases in meaningfulness, compared to a single open-ended question. It performs equally well for healthy and sick patients.
AHRQ-funded; HS021858; HS016980; HS016978.
Citation: Grob R, Schlesinger M, Parker AM .
Breaking narrative ground: Innovative methods for rigorously eliciting and assessing patient narratives.
Health Serv Res 2016 Jun;51 Suppl 2:1248-72. doi: 10.1111/1475-6773.12503.
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Keywords: Patient Experience, Patient and Family Engagement, Research Methodologies
Harter G, Darden J, McMenemy N
Consent and enrollment process: achieving high enrollment rates for obstetric research.
The authors aimed to study the development, design, and implementation of a patient consent and enrollment initiative to identify strategies that enhanced participation. Over a three-year study period, there was an 85% enrollment rate the the five study sites. The researchers found that enrollment rates improved over time with increased nursing engagement in patient recruitment, site-specific adaptations, and patient education strategies.
AHRQ-funded; HS019608.
Citation: Harter G, Darden J, McMenemy N .
Consent and enrollment process: achieving high enrollment rates for obstetric research.
Appl Nurs Res 2016 Feb;29:101-6. doi: 10.1016/j.apnr.2015.05.011.
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Keywords: Patient and Family Engagement, Research Methodologies, Women
Fleurence R, Selby JV, Odom-Walker K
AHRQ Author: Slutsky JR
How the Patient-Centered Outcomes Research Institute is engaging patients and others in shaping its research agenda.
This article describes PCORI's approach to generating topics for research and how it is being used in selection of research that PCORI will fund. It further describes challenges facing this approach, including a lack of common language and training on the part of patients and resistance on the part of researchers to questions that are not researcher generated.
AHRQ-authored.
Citation: Fleurence R, Selby JV, Odom-Walker K .
How the Patient-Centered Outcomes Research Institute is engaging patients and others in shaping its research agenda.
Health Aff 2013 Feb;32(2):393-400. doi: 10.1377/hlthaff.2012.1176.
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Keywords: Health Services Research (HSR), Patient and Family Engagement, Patient-Centered Outcomes Research, Research Methodologies