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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
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1 to 2 of 2 Research Studies DisplayedMorrone KA, Manwani D, Cabana MD
Efficient clinical counseling for sickle cell disease.
Sickle cell anemia (SCA) is a chronic illness that requires frequent health care visits for preventative management. Aims of this overview were to review challenges faced in outpatient subspecialty medicine and describe evidence-based techniques for more effective communication for patients with sickle cell anemia.
AHRQ-funded; HS025297.
Citation: Morrone KA, Manwani D, Cabana MD .
Efficient clinical counseling for sickle cell disease.
J Natl Med Assoc 2021 Aug;113(4):382-87. doi: 10.1016/j.jnma.2021.01.006..
Keywords: Sickle Cell Disease, Chronic Conditions, Clinician-Patient Communication, Communication, Patient Adherence/Compliance
Leonard S, Anderson LM, Jonassaint J
Utilizing a novel mobile health "selfie" application to improve compliance to iron chelation in pediatric patients receiving chronic transfusions.
Iron chelation therapy can prevent iron overload for pediatric patients with sickle cell disease and beta-thalassemia major; however, adherence is suboptimal. Therefore, the researchers developed an intensive training program (ITP), to improve medication management and disease knowledge. The objectives were to determine feasibility of the ITP and its preliminary impact on adherence, disease knowledge, and health outcomes. The mobile ITP was feasibly implemented in a clinical setting.
AHRQ-funded; HS022989.
Citation: Leonard S, Anderson LM, Jonassaint J .
Utilizing a novel mobile health "selfie" application to improve compliance to iron chelation in pediatric patients receiving chronic transfusions.
J Pediatr Hematol Oncol 2017 Apr;39(3):223-29. doi: 10.1097/mph.0000000000000743.
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Keywords: Children/Adolescents, Education: Patient and Caregiver, Patient Adherence/Compliance, Sickle Cell Disease