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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
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1 to 2 of 2 Research Studies DisplayedOstby PL, Armer JM, Smith K
Patient perceptions of barriers to self-management of breast cancer-related lymphedema.
This article reports on results from a study which used an IRB-approved focus group and mailed surveys to identify barriers to lymphedema self-management, definitions of education and support from breast cancer survivors with lymphedema, types of education and support they had received, what kind of education and support they wanted. Lack of education about lymphedema treatment and risk reduction was identified as a main barrier. Women’s responses also make it unclear whether or not they were exposed to support options other than medical treatment.
AHRQ-funded; HS022140.
Citation: Ostby PL, Armer JM, Smith K .
Patient perceptions of barriers to self-management of breast cancer-related lymphedema.
West J Nurs Res 2018 Dec;40(12):1800-17. doi: 10.1177/0193945917744351..
Keywords: Cancer: Breast Cancer, Education: Patient and Caregiver, Patient Self-Management
Rosenberg SM, Greaney ML, Patenaude AF
"I don't want to take chances.": a qualitative exploration of surgical decision making in young breast cancer survivors.
The purpose of this study was to better understand the choice of contralateral prophylactic mastectomy (CPM) through a qualitative exploration of surgical decision-making in young breast cancer survivors, including how issues particular to younger women affected their decision and the post-surgical experience. Through focus groups, themes emerged and were categorized. The authors concluded that informational resources and decision aids may enhance patient-doctor communication and help young survivors better understand risk and manage expectations surrounding short- and longer-term physical and emotional effects after surgery.
AHRQ-funded; HS023680.
Citation: Rosenberg SM, Greaney ML, Patenaude AF .
"I don't want to take chances.": a qualitative exploration of surgical decision making in young breast cancer survivors.
Psychooncology 2018 Jun;27(6):1524-29. doi: 10.1002/pon.4683.
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Keywords: Cancer: Breast Cancer, Decision Making, Education: Patient and Caregiver, Clinician-Patient Communication, Surgery